Guest guest Posted September 22, 1998 Report Share Posted September 22, 1998 Holly - has hypoplastic right ventricle and pulmonary stenosis. She had open heart at one week old, and we are waiting to hear when the next one will be and what exactly they will be doing. It's beginning to look like they may do a Glenn, or a semi-Fontan. What type of defect does have? Amy - Mom to (2) and (9.5 mos CHaRgE) Atlanta, GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 1998 Report Share Posted September 29, 1998 Holly: Good luck with all those appointments--I remember those days. Try not to focus on what he can't do, or is delayed in, but rather how happy he makes you and all of his progress. Let us know how the visits turn out! Anne Vanderbloemen mom of , 17 months CHArgE Madison, WI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 1998 Report Share Posted October 1, 1998 Holly- Hang in there. It is so hard in the beginning when you are still gathering info about your child. We're still learning more about Aubrie (10 mos) but, for the most part, we know what we are dealing with. It's much more comfortable now than at your stage. It will get better. Michele mom to Aubrie (10 mos) and (almost 7 yrs) IL westml@... Quote Link to comment Share on other sites More sharing options...
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