Guest guest Posted October 19, 1998 Report Share Posted October 19, 1998 Bruce & Robyn Yes, Aubrie has already had surgery to realign her eyes. I expect repeated procedures throughout the years to keep them in line. My understanding is that this happens because there is such a discrepancy between the abilities of both eyes. Aubrie has one eye that seems to have normal vision and one with a huge coloboma and, therefore, very limited vision. The eye muscle surgery was outpatient and no big deal. I've known other kids who've had it done when I was teaching and it was not a biggie for them either. Michele Aubrie's mom (10 mos) CHargE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 1998 Report Share Posted October 19, 1998 Michele, Did they ever get you to try patching Aubrie's good eye? We are doing that now with Kennedy, but I don't know if it's doing anything yet, we have to see a local orthoptist sometime in the next week or two to see if there's been any benefit to it. Mom to Kennedy 8 mos old CHARGEr, 9, 7, and wife to Graeme -- Graeme & Weir gweir@... http://www.geocities.com/SunsetStrip/Palms/5716 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 1998 Report Share Posted October 20, 1998 Michele Westmaas wrote: > > > > Bruce & Robyn > Yes, Aubrie has already had surgery to realign her eyes. I expect > repeated procedures throughout the years to keep them in line. My > understanding is that this happens because there is such a discrepancy > between the abilities of both eyes. Aubrie has one eye that seems to > have normal vision and one with a huge coloboma and, therefore, very > limited vision. The eye muscle surgery was outpatient and no big deal. > I've known other kids who've had it done when I was teaching and it was > not a biggie for them either. > > Michele > Aubrie's mom (10 mos) CHargE > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 1998 Report Share Posted October 20, 1998 I'm leery of even saying that > because many times already I've said, " no she doesn't have that problem " , > and sure enough it would creep up on us. > > Take care, > Jeanie & MacKenzie Colp Jeanie, It wasn't funny when you said this but it made me smile because it sounds just like Graeme and I with Kennedy...darn frustrating eh? -- Graeme & Weir gweir@... http://www.geocities.com/SunsetStrip/Palms/5716 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1998 Report Share Posted October 21, 1998 Toby- Aubrie's eye problem happened slowly over time. My understanding is that the weak eye begins to get lazy and so the muscles don't keep the eye in line with the other. At the time that we had the corrective surgery, her weak eye would wander in at times, but it wasn't constantly crossed. I think the idea of correcting is to keep both eyes focussing together to maximize vision and keep the poor eye working. I hope that makes sense. Michele mom to Aubrie (10.5 mos) CHargE and (7 yrs) IL westml@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1998 Report Share Posted October 21, 1998 - So many people have had important results from eye patching. Maybe you should talk to your doc again before you slow down. I would hate for you to take our experience as a reason to stop with Kennedy and then have her vision suffer for it. And who knows, next time I go in, our eye doc may surprise me and prescribe it for Aubrie! (Crossing my fingers :-)) Michele mom to Aubrie (10.5 mos) CHargE and (7 yrs) IL westml@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 1998 Report Share Posted October 22, 1998 Hi all: Just thought I'd add my .02 to the discussion... Oran's eyes were fine initially. I can't recall exactly when they started crossing, I think he was about 7 or 8 months. We tried patching, but it didn't do any good. Although he didn't object to it, Oran also removed the patch in 2 seconds flat. Oran has extensive colobomas in both eyes, but his vision appears to be very good...he can pull a string out of the air. His depth perception is a little off . He also has the nystagmus although it has lessened over time (in fact I can't remember the last time I noticed it!) His opthamologist told us that if the patching didn't work, he would need the surgery. After seeking the advice of some of the parents on this list, we have set an appointment to have the surgery done on Dec 11th. Trish, mom to Oran (2) ChaRge, wife to Tim Atlanta, GA At 07:03 AM 10/20/98 PDT, you wrote: > > >Bruce and Robyn > >First of all please forgive me, last night replying on your patching >questions, I think I may have confused you with someone else and >addressed the email to someone else (AAGH!) > >True infantile esotropia originates from the brain not the eyes as most >people would think. The brain sends incorrect messages to the eyes. >Current research is being done to operate on the brain to fix these >wrong messages, but until an answer is found the only way to correct it >is to loosen or tighten the eye muscles. This is not an exact science, >again because the messages are still coming incorrectly from the brain. >That is why some surgeries need to be repeated. > >My daughter does not have colobomas, but she does have some mild visual >deficits and we have a lot of experience with her vision therapists. >And I will tell you that children will learn to maneuver around >colobomas. They learn to angle their head or shift their eyes in the >way that gives them the best vision, and they do this automatically. So >though I don't know if they would actually cross both of their eyes at >the same time to avoid the colobomas I wouldn't be surprised. > >And one final note, though infantile esotropia is congenital, it is not >always apparent immediately after birth. It sometimes doesn't appear >until 2 or 3 months old. > >Sorry to beat a dead horse, but I want this to be clear to you. >Jeanne > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 1998 Report Share Posted October 22, 1998 Michele Westmaas wrote: > > > > - > So many people have had important results from eye patching. Maybe you > should talk to your doc again before you slow down. I would hate for > you to take our experience as a reason to stop with Kennedy and then > have her vision suffer for it. And who knows, next time I go in, our > eye doc may surprise me and prescribe it for Aubrie! (Crossing my > fingers :-)) > Michele, I am trying - it's not that I'm slowing down, I was never " sped " up! We just do the best we can. I'm going to talk to her ped more about it, and also to the orthoptist that we are supposed to be going to see in a few weeks or two. -- Graeme & Weir gweir@... http://www.geocities.com/SunsetStrip/Palms/5716 Quote Link to comment Share on other sites More sharing options...
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