Re: PCP wants to treat with LDN without neuros DX?

[Guest guest]

In a message dated 11/6/2005 9:01:44 AM Central Standard Time, pals@... writes:

My PCP wants to treat me with LDN with or without the neuros DX of MS.

Do you think this would be wise? Or should I wait? I am conserned that no diagnosis and the possiblility of future disability would prevent me from getting SSDI, if needed. Pat

+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

Pat,

If it were me, I would get on the LDN ASAP! I understand the SS issue, but this is your best shot at no future disability! What are your symptoms? Sounds like you've got an open-minded PCP!

Marcie

[Guest guest]

Pat, I had same problem with dx. I was 48 and a physical therapist told me to find a new neuro to diagnose because they were definitely missing something.(@ docs said I was too old) Went to a head of neurology at local hospital, was diagnosed in 2 days with MS.

Get on the LDN and find a new neuro! Kiki

[Guest guest]

Hi Pat,

That's interesting. We were worried the other way around. We wanted to

wait for an actual DX for MS because it is hard to get insurance with new

companies if you are DX with something expensive to treat.

Aletha

[low dose naltrexone] PCP wants to treat with LDN without neuros DX?

> My PCP wants to treat me with LDN with or without the neuros DX of MS.

> Do you think this would be wise? Or should I wait? I am conserned that

> no diagnosis and the possiblility of future disability would prevent

> me from getting SSDI, if needed.

> Pat

>

>

>

>

>

>

>

>

>

[Guest guest]

In a message dated 11/6/2005 4:13:34 PM Eastern Standard Time, pals@... writes:

Marcie, but one thing I don't have is the "O" bands, every neuro I have seen believe no "O" bands, no MS.

Pat

Pat

I never had a spinal so whether I have O bands they don't know. I was still dx'd with MS.

Arlene

[Guest guest]

Marcie, I have numberous lesions, 2 MRIs 5 months apart, show

progression of a demeylinating brain disease. High CFS seurim IgG,

High myelin basic protein, abnormal SSEPs ABR, and EMGs.I have

chronic epstein barr syndrome also. B & B loss of control, constant

twitching, and zapping, especially in the legs, visual scotomas,

vertically doubled vision, pain on eye movement. Toes that stick in

a position. balance problems, fatuige, Oh the list goes on, and on.

No diagnosis, I can't count the times I have been told I am too old

to have MS, I am 53 tomorrow. But I have been going to drs. for over

15 years trying to find out what is wrong. I've gotten the standard,

stress, take some antidepressants, to many symptoms just the cheif

complaint please. Untill this year when things stopped coming and

going, they finally did a MRI.

Pat

>

> In a message dated 11/6/2005 9:01:44 AM Central Standard Time,

> pals@w... writes:

>

>

> > My PCP wants to treat me with LDN with or without the neuros DX

of MS.

> > Do you think this would be wise? Or should I wait? I am

conserned that

> > no diagnosis and the possiblility of future disability would

prevent

> > me from getting SSDI, if needed.

> > Pat

>

> +++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

>

> Pat,

>

> If it were me, I would get on the LDN ASAP! I understand the SS

issue, but

> this is your best shot at no future disability! What are your

symptoms?

> Sounds like you've got an open-minded PCP!

>

> Marcie

>

[Guest guest]

Pat,

You are not too old to be dagnosed with MS. I used to have a member of my

support group and she was dx'd MS when she was 70 years old.

Your best bet would be taking the LDN now or you could wind up like me...almost

totally deaf(only 40% hearing left), permanently damaged muscles in all 4

extremeties and torso muscles and neck muscles, permanent visual loss. LDN

could possibly keep these things from happening.

Your PCP also needs to run a Western Blot on you via Igenex Labs to rule out

Lyme. Type into your search engine Western Blot, Igenex.

You PCP is a wise doc.

[Guest guest]

Marcie, but one thing I don't have is the "O" bands, every neuro I have seen believe no "O" bands, no MS.

Pat

Re: [low dose naltrexone] Re: PCP wants to treat with LDN without neuros DX?

In a message dated 11/6/2005 11:20:55 AM Central Standard Time, pals@... writes:

Marcie, I have numberous lesions, 2 MRIs 5 months apart, show progression of a demeylinating brain disease. High CFS seurim IgG, High myelin basic protein, abnormal SSEPs ABR, and EMGs.I have chronic epstein barr syndrome also. B & B loss of control, constant twitching, and zapping, especially in the legs, visual scotomas, vertically doubled vision, pain on eye movement. Toes that stick in a position. balance problems, fatuige, Oh the list goes on, and on. No diagnosis, I can't count the times I have been told I am too old to have MS, I am 53 tomorrow. But I have been going to drs. for over 15 years trying to find out what is wrong. I've gotten the standard, stress, take some antidepressants, to many symptoms just the cheif complaint please. Untill this year when things stopped coming and going, they finally did a MRI. Pat+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Pat, Wonder if your PCP would be open to an anti-viral for the Epstein-Barr? You probably need that for sure. Sounds like text book MS, whatever that means! I've come to believe that MS doesn't mean much. They can't or won't do anything for it. Reduce your viral load. Just a suggestion. Marcie

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[Guest guest]

Same here

Re: [low dose naltrexone] Re: PCP wants to treat with LDN without neuros DX?

In a message dated 11/6/2005 4:13:34 PM Eastern Standard Time, pals@... writes:

Marcie, but one thing I don't have is the "O" bands, every neuro I have seen believe no "O" bands, no MS.

Pat

Pat

I never had a spinal so whether I have O bands they don't know. I was still dx'd with MS.

Arlene