Re: Parkinsons questions

[Guest guest]

Hi Everyone,

My mother has Parkinson's. She was taking a new alturnative med for

Parkinsons and it was working just great for over a year and a half.

Recently she seems to be going backwords though, so I thought she should try

LDN now. My husband does LDN with great sucess for MS.

So I am hoping to get some experiences from everyone taking LDN for

Parkinsons in order to help my mother make a decision as to whether LDN

would be a good choice for her.

Thanks for all of your help in advance

Aletha

[Guest guest]

My uncle with PD has been on LDN only, nothing else, since

september 2002. He has not experienced anything brand new but his

pre existing tremor in his arm and leg are a bit worse .. nothing

brand new though. He has not hit a day worse than pre LDN so the

promise still holds, although he gets scared at times and swears it

is placebo. He will not stop the LDN, he cannot tolerate any other

meds and he eats and drinks what he pleases. I would have to

conclude the LDN is holding him without question thus far but he

assures me anyday now a new symptom will appear. It is by no means

an easy raod.

All the Best

Bradley

> >Hi Aletha, I don't know how many people with Parkinson's take LDN,

> there seem to be very few of us on this site and it's hard to find

> information on how any of us are doing on LDN. I have been taking

> 4.5mg of LDN for 16 months now. My main symptom has been tremor on

one

> side that had become worse over 4 years. Over two years ago they

> thought I had MS and I tried many meds for tremor, none really

worked.

> When I first began LDN, I think my balance and thinking improved

but I

> still had the tremor. A year ago, I started on Sinemet and Mirapex.

> The tremor is just about gone and I feel ok. Sinemet is the best

> treatment for PD so far but it loses effectivness 2-5 years down

the

> road and PD takes over again. So my question is, how do I know LDN

is

> stopping progression? I don't because Sinemet, for now, masks PD

> symptoms. I have searched out info on naloxon & Parkinson's on the

net

> and have come up with information that makes a case for naltrexone

> (naloxone) in the treatment of PD, see this attach.

> http://www.annalsnyas.org/cgi/content/full/962/1/318

> I have recently been hopeing here that the LDN website would give

us

> all an update on Dr. Biharis's patients since the last info is

dated

> back to 2003.

> So Aletha, for your mother, how long has she had PD and are her PD

> meds beginning to lose effectivness? If that's the case and if she

> starts LDN, which I would reccommend, it would probably be easier

to

> determine if LDN has stopped progression than in a case like mine.

For

> me, I'm in the Sinemet honeymoon and I can't say LDN works yet. As

you

> know, it's important to note how one is doing on LDN as the months

go

> by, it's the only way to measure progress or not.

> Give it a try,

>

> > Hi Everyone,

> >

> > My mother has Parkinson's. She was taking a new alturnative med

for

> > Parkinsons and it was working just great for over a year and a

half.

> > Recently she seems to be going backwords though, so I thought she

> should try

> > LDN now. My husband does LDN with great sucess for MS.

> >

> > So I am hoping to get some experiences from everyone taking LDN

for

> > Parkinsons in order to help my mother make a decision as to

whether LDN

> > would be a good choice for her.

> >

> > Thanks for all of your help in advance

> > Aletha

> >

>