Guest guest Posted November 15, 2005 Report Share Posted November 15, 2005 In a message dated 11/15/2005 10:39:50 AM Central Standard Time, munsonbdandak@... writes: I also feel weird twitches in my neck area in the mornings. I have a fairly large lesion in my mid cervical spine and wonder if maybe these are signs of healing or getting worse??? Anybody else experience this type of thing? Thanks for any feedback. Amy ++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Amy, I've been on 4.5mg LDN for 2 yrs, and I, too, have developed tremors in both hands. It's pretty bad, but I'm managing. None of the meds have helped. I wish I had something that would help you! Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2005 Report Share Posted November 15, 2005 >Hi Amy, I find it it a little disturbing that you have developed a tremor after about 3 months on LDN. I assume you have MS. I believe in the 9 month theory on giving your immune system time to normalise but I don't think someone should be developing new symptoms 3 months into LDN. I started off with tremor on one side which got worse over 3 years. They said I had MS but the dx was changed to Parkinson's about a year ago. I have been on LDN for 16 months but was also put on Sinemet (L-dopa) a year ago. Sinemet is the major treatment for PD and it has eliminated my tremor for now. It will only work for a few years and then it can " wear off " and you have other problems. I now take a minimal amount of Sinemet and doing well. I have know way of knowing if LDN has helped me or stopped PD progression. It will take years, maybe, before I will know if LDN works for me. I'm willing to stay with it but it would be meaningful to hear how others with PD have done over a number of years. The PD meds can mask the disease so I just don't know what to think. As far as I know, Dr. Bihari has the only long term info on people with PD who take LDN and that info is now 2 years old. > I have been on LDN for about 4 months now and overall I have been > feeling better. I have noticed in the last few weeks off and on that > I will have days when I have pretty signifigant tremors. (especially > in my right hand) I never remember having issues with tremors in the > past. Its even noticible enough that my husband commented on it the > other day, which made me feel really uncomfortable. > > I also feel weird twitches in my neck area in the mornings. I have a > fairly large lesion in my mid cervical spine and wonder if maybe these > are signs of healing or getting worse??? Anybody else experience this > type of thing? > > Thanks for any feedback. > > Amy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2005 Report Share Posted November 15, 2005 I have been on LDN for 2 months and prior to taking LDN I had very spastic twitching in my lower neck / shoulder area. It was so bad at night I couldn't sleep it was so annoying. When I started LDN, it calmed right down. Now I rarely feel it, only when I'm in an awkward position but it is so slight that it doesn't bother me at all. LDN doesn't always take away the " old symptoms " of MS, but if you have any improvement, it's a bonus !!! I suggest continue running the race with LDN and hope for symptom improvements. Don't be discouraged when some of the old symptoms creep up. > > In a message dated 11/15/2005 10:39:50 AM Central Standard Time, > munsonbdandak@c... writes: > > > > I also feel weird twitches in my neck area in the mornings. I have a > > fairly large lesion in my mid cervical spine and wonder if maybe these > > are signs of healing or getting worse??? Anybody else experience this > > type of thing? > > > > Thanks for any feedback. > > > > Amy > > > > ++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ > > Amy, > > I've been on 4.5mg LDN for 2 yrs, and I, too, have developed tremors in both > hands. It's pretty bad, but I'm managing. None of the meds have helped. I > wish I had something that would help you! > > Marcie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2005 Report Share Posted November 16, 2005 It's like something is INSIDE you, under your skin, like "punching" up/out? Never seems to be much in the same exact place, once it stops in an area, that seems to be it. I think it's healing, it's like your muscles are waking up and saying HELLO, long time no flex Doesn't last more than a few weeks, and then you'll get them every so often, not much, just here and there. After a while I thought they were pretty funny. When they happened I would laugh and say hello back. I also had recurrance of old symptoms: IN REVERSE ORDER going back 5 years of exacerbations, and the 4th one isn't even MS related. Going on Day 945 for me, 3.0 MG Re: [low dose naltrexone] Tremors..... In a message dated 11/15/2005 10:39:50 AM Central Standard Time, munsonbdandak@... writes: I also feel weird twitches in my neck area in the mornings. I have a fairly large lesion in my mid cervical spine and wonder if maybe these are signs of healing or getting worse??? Anybody else experience this type of thing? Thanks for any feedback. Amy ++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Amy, I've been on 4.5mg LDN for 2 yrs, and I, too, have developed tremors in both hands. It's pretty bad, but I'm managing. None of the meds have helped. I wish I had something that would help you! Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2005 Report Share Posted November 16, 2005 > > Larry the kind of tremor Marcie is talking about is a shaking/wavering of the hands. You've seen an elderly person's hands shake...that's what she means by tremor. > -------- Larry, I looked at the post again and I think you were replying to Amy and not Marcie...am I right? Bren Quote Link to comment Share on other sites More sharing options...
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