Guest guest Posted September 23, 2002 Report Share Posted September 23, 2002 Hey! I'm way behingd on reading posts, but I wanted to check in. I'm doing well. I'm able to finish a basic TaeBo workout now, and I'm proud of that. le: I ordered my tapes from Firm Direct and received them within 2 weeks. However, it was quite expensive and I'll never do that again! I tried the Cardio Sculpt video today and it was tough! I was sweating like crazy! LOL I definitely think it will blend well with TaeBo. I already take a multi-vitamin, and to be honest, I don't trust the Firm Formula. Monse: I decided against joining the gym. $696 per year is a lot to pay to use an indoor pool! Thanks for the advice about incorporating weights in to my workouts...... : congrats on your weighloss, girl!!!!!! your group sounds awesome..... Beckie: 31 days is a huge accomplishment....I'm cheering for you....I know you can do it!!!!!!! Good luck to the other 100 DCers as well!!!!! Sandie: feel free to sponge off me anytime when you move.....just be prepared for an occassional dry spell LOL : Great Brag! Keep burning those calories! AmyBeth: I have a question for you. Do you mind if I send an email to your personal address? As I mentioned, I'm behind on posts, but I want to congratulate everyone on the great brags! Happy Belated B'day to Carolyn and ! Hi, Bev, Pat, and Caroline...luv ya! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Pattie, thank you for writing such a heart wrenching letter. Anyway, it feels that way to us, because we care so much. Yet, you are handling your illness with grace and dignity. You wrote a very concise and well thought out letter. You are obviously an educated lady. I applaud you for what you are doing for the rest of us. Thank you dear lady, Imogene Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with Parkinsonism. In a message dated 10/7/2006 10:43:36 AM Central Daylight Time, pattijsp@... writes: Just dropping in to let you all know how I am doing. It seems I am having problems recognizing faces of friends and didn't even know my husband a few times. I am being hugged by strangers until my husband tells me who they are and then I know them. This I find to be worriesome and depressing. More and more I don't want to be around people. My family is ok as long as they come here, but find getting out anywhere to be a problem. I am just not interested. I have lost interest in even getting dressed or combing my hair. Why? I don't know. I think it is that there just doesn't seem to be any purpose in it. There are no rewards for doing things anymore. I do try to look my best when I do go out. For those of you who don't know I was diagnosed with DLBD some years ago. I don't any longer remember the dates I was diagnosed. I do know that the DR. thought I had it when I was hospitalized with hallucinations and delusions, but waited to observe me for a couple of years before he actually told me the diagnosis. You can learn more about me if you go back into when I first joined this group. I am now 57 y/o and have done relatively well with all of this. They have kept a close eye on my medications and have done well with them. I am on very low doses. Currently I am not hearing any voices or hallucinating. I see a neurologist, psychiatrist and psychologist. Slowly I am slipping. I have decreased concentration level and my memory has been badly affected. I don't know what else to tell you and if this helps you knowing what I am going through then I am happy. I will come back and post as things happen for as long as I can. Have a wonderful day!... Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Patti You are an inspiration to a lot of people. You are letting caregivers know what it feels like to have this damn disease. Because of you caregivers can stop and think what to do that is best for their lo's. God Bless You and your family, Jacqui in So Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Patti, I'm glad you are still able to post. Everything you write helps us deal with our LOs. You give us insight to what is happening or has happened to them. I find that my Mother sometimes is not sure who I am, but after talking to her for a little while she will remember. Sometimes the sound of my voice triggers her memory. I have always thought that the vision changes due to LBD make facial recognition harder. When she doesn't seem to know me, I'm quick to tell her who I am. Take care, in Dallas > > Just dropping in to let you all know how I am doing. It seems I am > having problems recognizing faces of friends and didn't even know my > husband a few times. I am being hugged by strangers until my husband > tells me who they are and then I know them. This I find to be > worriesome and depressing. More and more I don't want to be around > people. My family is ok as long as they come here, but find getting > out anywhere to be a problem. I am just not interested. I have lost > interest in even getting dressed or combing my hair. Why? I don't > know. I think it is that there just doesn't seem to be any purpose > in it. There are no rewards for doing things anymore. I do try to > look my best when I do go out. > > For those of you who don't know I was diagnosed with DLBD some years > ago. I don't any longer remember the dates I was diagnosed. I do > know that the DR. thought I had it when I was hospitalized with > hallucinations and delusions, but waited to observe me for a couple > of years before he actually told me the diagnosis. You can learn > more about me if you go back into when I first joined this group. I > am now 57 y/o and have done relatively well with all of this. They > have kept a close eye on my medications and have done well with > them. I am on very low doses. Currently I am not hearing any voices > or hallucinating. I see a neurologist, psychiatrist and psychologist. > > Slowly I am slipping. I have decreased concentration level and my > memory has been badly affected. I don't know what else to tell you > and if this helps you knowing what I am going through then I am > happy. I will come back and post as things happen for as long as I > can. > > Have a wonderful day!... Patti > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Dear Patti, I'm sorry you feel more unsettled because of the disease. So from here on out I will always think of you in my daily thoughts and hope you stay with us here as long as you can. I'm new and I will go back and try to read your posts. I'll be thinking of you and hope that in every day you can find something that pleases you. Love to you, Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Dear Pattie, I am so sorry to hear you have this terrible disease. my husband also has it and hes doing good so far, dx 2004 , hes in a retirement home for 2 yrs now , I will pray for and my love goes with it , Eileen B.... Ontario . Canada -- Re: Hello Pattie, thank you for writing such a heart wrenching letter. Anyway, it feels that way to us, because we care so much. Yet, you are handling your illness with grace and dignity. You wrote a very concise and well thought out letter. You are obviously an educated lady. I applaud you for what you are doing for the rest of us. Thank you dear lady, Imogene Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with Parkinsonism. In a message dated 10/7/2006 10:43:36 AM Central Daylight Time, pattijsp@... writes: Just dropping in to let you all know how I am doing. It seems I am having problems recognizing faces of friends and didn't even know my husband a few times. I am being hugged by strangers until my husband tells me who they are and then I know them. This I find to be worriesome and depressing. More and more I don't want to be around people. My family is ok as long as they come here, but find getting out anywhere to be a problem. I am just not interested. I have lost interest in even getting dressed or combing my hair. Why? I don't know. I think it is that there just doesn't seem to be any purpose in it. There are no rewards for doing things anymore. I do try to look my best when I do go out. For those of you who don't know I was diagnosed with DLBD some years ago. I don't any longer remember the dates I was diagnosed. I do know that the DR. thought I had it when I was hospitalized with hallucinations and delusions, but waited to observe me for a couple of years before he actually told me the diagnosis. You can learn more about me if you go back into when I first joined this group. I am now 57 y/o and have done relatively well with all of this. They have kept a close eye on my medications and have done well with them. I am on very low doses. Currently I am not hearing any voices or hallucinating. I see a neurologist, psychiatrist and psychologist. Slowly I am slipping. I have decreased concentration level and my memory has been badly affected. I don't know what else to tell you and if this helps you knowing what I am going through then I am happy. I will come back and post as things happen for as long as I can. Have a wonderful day!... Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Patti: It is so good that you are writing to let us know what it's like from your perspective. I have often wanted to get inside my husband's head to know what he is thinking and feeling. He is presently in the hospital and coming out of a serious UTI, possible aspiration pneumonia, and severe dehydration but is able to talk again. It has really set him back. He does not seem to recognize me now with this latest episode. Please keep writing so we can see how you are doing and, hopefully, give you support. --- Patti wrote: > Just dropping in to let you all know how I am doing. > It seems I am > having problems recognizing faces of friends and > didn't even know my > husband a few times. I am being hugged by strangers > until my husband > tells me who they are and then I know them. This I > find to be > worriesome and depressing. More and more I don't > want to be around > people. My family is ok as long as they come here, > but find getting > out anywhere to be a problem. I am just not > interested. I have lost > interest in even getting dressed or combing my hair. > Why? I don't > know. I think it is that there just doesn't seem to > be any purpose > in it. There are no rewards for doing things > anymore. I do try to > look my best when I do go out. > > For those of you who don't know I was diagnosed with > DLBD some years > ago. I don't any longer remember the dates I was > diagnosed. I do > know that the DR. thought I had it when I was > hospitalized with > hallucinations and delusions, but waited to observe > me for a couple > of years before he actually told me the diagnosis. > You can learn > more about me if you go back into when I first > joined this group. I > am now 57 y/o and have done relatively well with all > of this. They > have kept a close eye on my medications and have > done well with > them. I am on very low doses. Currently I am not > hearing any voices > or hallucinating. I see a neurologist, psychiatrist > and psychologist. > > Slowly I am slipping. I have decreased concentration > level and my > memory has been badly affected. I don't know what > else to tell you > and if this helps you knowing what I am going > through then I am > happy. I will come back and post as things happen > for as long as I > can. > > Have a wonderful day!... Patti > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2006 Report Share Posted October 8, 2006 Patti -- thank you for taking the time to let us know how you are doing and what happens with someone with LBD -- your words are helping us and I'm grateful you are able to do that. Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2006 Report Share Posted October 8, 2006 Dear Patti Thank you for posting to this group. I am sorry that you have this disease and so young. My mom is afflicted and although she has been told what it is all about she forgets all information and thinks everyone else has a problem. It is helpful to all of us to hear from you giving us insight into the other side of this terrible disease. I wish you well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2006 Report Share Posted October 9, 2006 Hi Patti, I was sad to read about your decline and can only pray that you get some back - sometimes mom seemed to slip and then for some reason get back to a previous level. However, I don't want to deny your reality - the reality of what this damned disease will do to you. I don't know if this will help at all Patti but I wanted to let you know that even if it is true that you will come to a point in time when you will forget us I won't forget you. I want to thank you for being here and sharing with us. Courage Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2006 Report Share Posted October 11, 2006 Patti, you are such an angel to this group.! I fell so sad and angry reading what this disease is doing to you but at the same time I find some comfort in knowing,in a way, what my granda went through and why when he didn't want to get washed or dressed, I sometimes thought he was just giving up and would push him to 'make an effort'. I just wish I'd realised that he simply didn't want to at times. As caregivers we tend to a lot of the time see things from our own perspective, we look at what we're losing with this disease because we never truly know how it's affecting out LO's but you manage to give us some insight and for that I am truly thankful. Take care. .xxx Hello Just dropping in to let you all know how I am doing. It seems I am having problems recognizing faces of friends and didn't even know my husband a few times. I am being hugged by strangers until my husband tells me who they are and then I know them. This I find to be worriesome and depressing. More and more I don't want to be around people. My family is ok as long as they come here, but find getting out anywhere to be a problem. I am just not interested. I have lost interest in even getting dressed or combing my hair. Why? I don't know. I think it is that there just doesn't seem to be any purpose in it. There are no rewards for doing things anymore. I do try to look my best when I do go out. For those of you who don't know I was diagnosed with DLBD some years ago. I don't any longer remember the dates I was diagnosed. I do know that the DR. thought I had it when I was hospitalized with hallucinations and delusions, but waited to observe me for a couple of years before he actually told me the diagnosis. You can learn more about me if you go back into when I first joined this group. I am now 57 y/o and have done relatively well with all of this. They have kept a close eye on my medications and have done well with them. I am on very low doses. Currently I am not hearing any voices or hallucinating. I see a neurologist, psychiatrist and psychologist. Slowly I am slipping. I have decreased concentration level and my memory has been badly affected. I don't know what else to tell you and if this helps you knowing what I am going through then I am happy. I will come back and post as things happen for as long as I can. Have a wonderful day!... Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 Carol -- I really don't know how you do it... You are one amazing woman! " I am woman, hear me roar. " LOL Get better soon! See you on Wednesday - but if you don't feel well Wednesday, know that I'll understand... > > Hi Everyone, > Just want to say a quick hello to all. I spent a tough two days at > Mom's so I wasn't around. Now it's the weekend and I took my treatment > so I am in bed sick...I did sit and read all the posts...but, I can't > sit here much longer...a quick hello to Imogene, I hope you are feeling > better, Prayers for Josh and Jan and Donnie, my heart broke when I read > his story, and dear , my gosh, you absolutely have to put the > brakes on and slow down..take it from me...you will end up sick. > Listen to what everyone says to you. This is a great group and I miss > everyone.. > Hugs and Prayers, > Carol Incognito :-) > Quote Link to comment Share on other sites More sharing options...
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