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Anyone else Anemic

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Hello

Anyone else had their doctor tell them their anemic?  It's no wonder I'm winded,

my lungs are fine... it's my blood that's not working! 

Except for running of gas, sore feet and heels, I've been doing quite a bit

better with the MTX and Naproxen.  My flares are basically down to sore toe

joints, heel pain and being tired.  Luckily the fevers have been gone since

November 09 !  :)

Just wondering if anyone else is anemic and what they were told as to the cause.

Thanks

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greetings,

 

i've been borderline to mild animia all of my life (well at least as far back as

i can remember). no doc has ever said why.

 

blessings,

elizabeth

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its because you eat sisy food now if you were a real carnovore and liked to tear

into red meat now and then..... ya I know red meat is bad for ya but so is

almost every thing other I enjoy so what the heck LOL carnavors unite LMAO.

hugs ya all.

 

the redneck

Marty G.

To learn about Stills Disease http://www.stillsdisease.org/stills_info

Experience: that most brutal of teachers. But you learn, my God do you learn.---

C.S.

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Anemic  yuppers been that or at lest border line a time or two my self . Always

thought it was funny how you can be that and yet be ski high in your feriton

iron count . one ya need iron and one ya need to bleed some out of ya.

 now running out of gas heck that all I do any more even if its just a short

walk or any thing but then again I have some realy small red blood cells that

are also miss shaped and look almost like sickel cell but there not . some how I

just got blessed with some bad blood and I let mom know its all her fault LOL

hugs ya all

 

the redneck

Marty G.

To learn about Stills Disease http://www.stillsdisease.org/stills_info

Experience: that most brutal of teachers. But you learn, my God do you learn.---

C.S.

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I used to be severely anemic. A lot of it seemed to stem over the fact that

I was vegetarian so I put meat back into my diet but it was hard to get rid

of (the anemia that is).

>

>

> Actually, anemia is pretty common, so much so that there's a name for it:

> Anemia of Chronic Disease. It goes along with many of the AI diseases.

>

>

>

>

>

> ------------------------------------

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

> The materials and information contained in this message are not intended to

> replace the services of a trained health professional or to be a substitute

> for medical advice of physicians and/or other health care professionals. The

> International Still's Disease Foundation is not engaged in rendering medical

> or professional medical services. You should consult your physician on

> specific medical questions, particularly in matters requiring diagnosis or

> medical attention. The International Still's Disease Foundation makes no

> representations or warranties with respect to any treatment, action,

> application, medication or preparation by any person following the

> information offered or provided within this support form.

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> ion by any person following the information offered or provided within this

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greetings marty,

 

you got me confused with someone else.  i'm not a vegatarian, in fact i prefer

meat over most other types of food.  i can usually tell when the borderline has

dropped into actual animia cause i start craving meat big time.  that's when i

break out the liver.  good thing that high cholesteral is one thing that has

never been an issue for me.

 

seriously though, i try hard to keep my diet high iron.  even the green stuff

that i eat, lots of broccolli and such.

 

blessings,

elizabeth

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Me too. I have to have my hemoglogbin chacke every 4 weeks and if below 10 and

falling, have to get an Epoogen shot. Nissa is getting Neutrogen to stimulate

production of one of the types of white cells. Epogen pushes the bone marrow to

make more red cells.

In addition to what mentioned as " Anemia of Chronic Disease " , our enlarged

spleens (those of us with that condition) can have our red cells get yanked from

the system before they should and the bone marrow can not keep up on its own. I

will not even mention some of the drugs we are on can supress the bone marrow in

some individuals.

Tom from PA

>

>

>

> Actually, anemia is pretty common, so much so that there's a name for it:

Anemia of Chronic Disease. It goes along with many of the AI diseases.

>

>

>

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Hi Royal and others,

When I was first ill I had a certain type of anemia that I was later told could

be a specific side affect of Still's disease. I was even hospitalized for

intravenous transfusions of iron twice in the first year of my diagnoses it was

so bad. So, it definitely is a Still's symptom.

Anyone else Anemic

Hello

Anyone else had their doctor tell them their anemic?

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  • 1 month later...
Guest guest

Hi ,

Tonight was the first I've read messages since like April, I noticed in your

statement that you're having " heel " pain.  Can you explain the pain in your

heels?  My son, Cody has had pain in his right heel since Feb/March.

Thanks,

Tricia

________________________________

To: Stillsdisease

Sent: Mon, April 26, 2010 10:38:26 PM

Subject: Anyone else Anemic

 

Hello

Anyone else had their doctor tell them their anemic?  It's no wonder I'm

winded, my lungs are fine... it's my blood that's not working! 

Except for running of gas, sore feet and heels, I've been doing quite a bit

better with the MTX and Naproxen.  My flares are basically down to sore toe

joints, heel pain and being tired.  Luckily the fevers have been gone since

November 09 !  :)

Just wondering if anyone else is anemic and what they were told as to the cause.

Thanks

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In response to my heel pain.

My heel 'bone' isn't really sore, it is the heel towards the front of the foot. 

As if the tendon or muscles are tender.  It's very much like pushing on a severe

bruise.

Occasionally I still experience some tingling in my feet (feels like cold water

running over them) and oddly a the same time they get hot.  Yes, hot to the

touch.  I prefer cold (floor tiles, the leather couch, an ice pack) over

anything else.

On the anemic front:  I was just in to see my Rheumy.  He said that the 20mg

Methotrexate is what he's going to hold me at.  My anemia could be part of the

stills and they have no way of knowing.  He said " get to exercising and do what

your body will let you, you don't need to hold back " .

I'll do just that!  I'm dying to get back into shape.

Royal

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