Re: A few more questions...

[Guest guest]

Hi,

The only thing I can help you w/is repositioning... I'm positive some

other memebers here will be able to answer all of your questions.

Here are some really good links about repositioning:

http://www.plagiocephaly.org/support/repotech.htm

http://www.geocities.com/alittleone2000/plagiopage_ourstory.htm

> #1...we are not near a military base (we currently live near

> Rochester, NY) but there is a VA hopsital...would they help? We

> are Tricare Standard due to DH being stationed in Korea...so we

have

> a 20% copay which still would be $560 for each band...I'm assuming

> the reason why it's $2,800 is because we have to have weekly

> adjustments.

>

> #2...What sort of repositioning should I try?

>

> #3...When contacting Shriners/Jaycees what should I ask them for?

>

> #4...do you know of any tax liability/fundraiser laws that I need

to

> be aware of? I'm thinking I have a few friends that would let me

> put donation buckets up but I don't know what I need to do legally.

>

> #5...'s birth record stated Overriding cranial sutchers

> (sp)...could this have meant anything? He was born c-section but

> was head down and " engaged " for a VERY long time.

>

> Thanks in advance...you guys are great. I didn't expect such an

> overwhelming response.

[Guest guest]

,

I guess that going to a military hospital won't be feasible. I would

research the possibility of the VA hospital, although I don't know

how much experience the orthotists would have with plagio. As for the

repositioning, I see that others have given you links to check out to

show you how to reposition . I don't really know much about

Tricare Standard, but I would mention to the doc who referred you

about the overriding cranial sutures. There may be a loophole in your

coverage that would allow them to cover the band, because it was

congenital rather than positional. I'm certainly no insurance or

medical expert, but I would explore every avenue possible. It's a lot

of work, especially with your husband being stationed overseas and

having 3 kids at home, but it'll be worth it. I wish I could be more

help. Please let me know if there is anything else I can do. Good

luck!

Mom to andra (8.5 months) waiting for STARband

> #1...we are not near a military base (we currently live near

> Rochester, NY) but there is a VA hopsital...would they help? We

> are Tricare Standard due to DH being stationed in Korea...so we

have

> a 20% copay which still would be $560 for each band...I'm assuming

> the reason why it's $2,800 is because we have to have weekly

> adjustments.

>

> #2...What sort of repositioning should I try?

>

> #3...When contacting Shriners/Jaycees what should I ask them for?

>

> #4...do you know of any tax liability/fundraiser laws that I need

to

> be aware of? I'm thinking I have a few friends that would let me

> put donation buckets up but I don't know what I need to do legally.

>

> #5...'s birth record stated Overriding cranial sutchers

> (sp)...could this have meant anything? He was born c-section but

> was head down and " engaged " for a VERY long time.

>

> Thanks in advance...you guys are great. I didn't expect such an

> overwhelming response.

[Guest guest]

Hi , I'm putting answers to your questions below each.

> #1...we are not near a military base (we currently live near

> Rochester, NY) but there is a VA hopsital...would they help? We

> are Tricare Standard due to DH being stationed in Korea...so we

have

> a 20% copay which still would be $560 for each band...I'm assuming

> the reason why it's $2,800 is because we have to have weekly

> adjustments.

The weekly adjustments should be included in the cost. I've never

seen a STARband that costs that much. I'm hoping someone in your area

can recommend a STARband maker that charges less and might offer a

payment plan. I'm not sure about the VA hospital - kind of sounds

like a long shot, but worth checking out.

>

> #2...What sort of repositioning should I try?

I see you've received some good links to repo information. It's a

24/7 job. You have to do it every waking and every sleeping hour. It

can be effective, but it is hard work!

>

> #3...When contacting Shriners/Jaycees what should I ask them for?

I would explain your babies condition and see if they might be able

to do some sort of fundraiser or perhaps they have funds that could

be designated for your baby's treatment. Basically you want to ask

them to cover the cost of the treatment.

>

> #4...do you know of any tax liability/fundraiser laws that I need

to

> be aware of? I'm thinking I have a few friends that would let me

> put donation buckets up but I don't know what I need to do legally.

I can't help on this one, but that's a good point. Hmm, hopefully

someone in the group can help you with that one.

>

> #5...'s birth record stated Overriding cranial sutchers

> (sp)...could this have meant anything? He was born c-section but

> was head down and " engaged " for a VERY long time.

Sounds like 's plagio may have started inuterio - in this case

it would be congenital plagio and perhaps that would get coverage

from Tricare. You will probably need your specialist to write a

letter explaining this. Also, ask your specialist to explain

what " overriding cranial sutures " means. I'm not sure about this one.

>

> Thanks in advance...you guys are great. I didn't expect such an

> overwhelming response.

You're welcome! This is a great group and you've come to the right

place if you are looking for support and guidance. We LOVE to help -

that's what we're here for! :-) I have a couple of questions for you -

Does have torticollis and has craniosynostosis been ruled

out? I'm assuming you've seen some sort of specialist - what kind did

you see?

OK - hope that helped! Please keep us posted.

Marci (Mom to )

Oklahoma

[Guest guest]

You were asking re Ph level---ThreeLac, a product for fighting candida, balances

your Ph levels.

brenda

a few more questions...

Okay,

I've just got a few more questions. I notice a lot of you suggest

grapefruit seed extract, oil of oregano, and olive leaf extract. In

addition to being antifungal, all of these things are also

antibacterial and antiviral. So, anyway, my question is, if you also

take probiotics, aren't these things wiping out the probiotics you

put into your body? Do you try to take the probiotics at a different

time than the other things to try to avoid this?

Also, do any of you track your pH? Could you post and let me know

what foods actually lower it and which ones raise it? There seem to

be many conflicting things about this. I've got books that say

different things than what I find on the internet. I asked my

nutritionist and the only answer she could give me was that they are

still doing a lot of research on it. So, I was thinking maybe first-

hand accounts are the way to go. I haven't noticed that much of a

difference in mine with different foods, but taking a cessium liquid

supplement did raise it. Also, baking soda seemed to raise it,

although I don't want to ingest that much sodium too often. I made

an order at the pharmacist for some potassium bicarbonate, it should

have the same effect as plain baking soda, but without the sodium.

Finally, have any of you ever tried taking tea tree oil by mouth? I

keep reading you're not supposed to, but I have a booked called " A

Cancer Battle Plan, " which was written by a stage 4 breast cancer

survivor (she beat it even after the best medicine had to offer,

includig 2 stem cell transplants failed) where she says she took 3

drops 3 times a day while she was recovering from cancer. She also

did all sorts of other supplements and diet, too. She felt she

needed the tea tree oil because her immune system was totally wiped

out after the stem cell transplants and all the chemo, and she didn't

want to catch any opportunistic infection. She said she still to

this day takes 3 drops once or twice a week to prevent any sort of

illness. So, she obviously didn't die from it, quite the contrary.

nah

[Guest guest]

As per the tea tree oil...there are two kinds: one

for external use only, and one that is safe to ingest.

Check with your nutritionist or ask at the health

food store. Or Duncan could probably advise you.

> You were asking re Ph level---ThreeLac, a product

> for fighting candida, balances your Ph levels.

>

> brenda

>

> a few more questions...

>

>

> Okay,

>

> I've just got a few more questions. I notice a

> lot of you suggest

> grapefruit seed extract, oil of oregano, and olive

> leaf extract. In

> addition to being antifungal, all of these things

> are also

> antibacterial and antiviral. So, anyway, my

> question is, if you also

> take probiotics, aren't these things wiping out

> the probiotics you

> put into your body? Do you try to take the

> probiotics at a different

> time than the other things to try to avoid this?

>

> Also, do any of you track your pH? Could you post

> and let me know

> what foods actually lower it and which ones raise

> it? There seem to

> be many conflicting things about this. I've got

> books that say

> different things than what I find on the internet.

> I asked my

> nutritionist and the only answer she could give me

> was that they are

> still doing a lot of research on it. So, I was

> thinking maybe first-

> hand accounts are the way to go. I haven't

> noticed that much of a

> difference in mine with different foods, but

> taking a cessium liquid

> supplement did raise it. Also, baking soda seemed

> to raise it,

> although I don't want to ingest that much sodium

> too often. I made

> an order at the pharmacist for some potassium

> bicarbonate, it should

> have the same effect as plain baking soda, but

> without the sodium.

>

> Finally, have any of you ever tried taking tea

> tree oil by mouth? I

> keep reading you're not supposed to, but I have a

> booked called " A

> Cancer Battle Plan, " which was written by a stage

> 4 breast cancer

> survivor (she beat it even after the best medicine

> had to offer,

> includig 2 stem cell transplants failed) where she

> says she took 3

> drops 3 times a day while she was recovering from

> cancer. She also

> did all sorts of other supplements and diet, too.

> She felt she

> needed the tea tree oil because her immune system

> was totally wiped

> out after the stem cell transplants and all the

> chemo, and she didn't

> want to catch any opportunistic infection. She

> said she still to

> this day takes 3 drops once or twice a week to

> prevent any sort of

> illness. So, she obviously didn't die from it,

> quite the contrary.

>

> nah

>

>

>

[Guest guest]

,

Thanks for the info. Have you been testing your pH? Does it balance

it to be neutral, or are you aiming for slightly alkaline? I know

that yeast seems to like slightly acid environments, or at least it

seems so, since in vaginal yeast infections, the pH is always around

4.5 or so.

nah

> You were asking re Ph level---ThreeLac, a product for fighting

candida, balances your Ph levels.

>

> brenda

>

> a few more questions...

>

>

> Okay,

>

> I've just got a few more questions. I notice a lot of you

suggest

> grapefruit seed extract, oil of oregano, and olive leaf extract.

In

> addition to being antifungal, all of these things are also

> antibacterial and antiviral. So, anyway, my question is, if you

also

> take probiotics, aren't these things wiping out the probiotics

you

> put into your body? Do you try to take the probiotics at a

different

> time than the other things to try to avoid this?

>

> Also, do any of you track your pH? Could you post and let me

know

> what foods actually lower it and which ones raise it? There seem

to

> be many conflicting things about this. I've got books that say

> different things than what I find on the internet. I asked my

> nutritionist and the only answer she could give me was that they

are

> still doing a lot of research on it. So, I was thinking maybe

first-

> hand accounts are the way to go. I haven't noticed that much of

a

> difference in mine with different foods, but taking a cessium

liquid

> supplement did raise it. Also, baking soda seemed to raise it,

> although I don't want to ingest that much sodium too often. I

made

> an order at the pharmacist for some potassium bicarbonate, it

should

> have the same effect as plain baking soda, but without the sodium.

>

> Finally, have any of you ever tried taking tea tree oil by

mouth? I

> keep reading you're not supposed to, but I have a booked

called " A

> Cancer Battle Plan, " which was written by a stage 4 breast cancer

> survivor (she beat it even after the best medicine had to offer,

> includig 2 stem cell transplants failed) where she says she took

3

> drops 3 times a day while she was recovering from cancer. She

also

> did all sorts of other supplements and diet, too. She felt she

> needed the tea tree oil because her immune system was totally

wiped

> out after the stem cell transplants and all the chemo, and she

didn't

> want to catch any opportunistic infection. She said she still to

> this day takes 3 drops once or twice a week to prevent any sort

of

> illness. So, she obviously didn't die from it, quite the

contrary.

>

> nah

>

>

>

[Guest guest]

no, I haven't ever had it tested. But, that is interesting about the numbers

you gave--4.5--I'd be curious to know what mine is and what a few more months of

ThreeLac will do if it is supposed to be balancing the Ph levels to " normal "

levels. Is it costly for you to test your levels?

thanks

brenda

a few more questions...

>

>

> Okay,

>

> I've just got a few more questions. I notice a lot of you

suggest

> grapefruit seed extract, oil of oregano, and olive leaf extract.

In

> addition to being antifungal, all of these things are also

> antibacterial and antiviral. So, anyway, my question is, if you

also

> take probiotics, aren't these things wiping out the probiotics

you

> put into your body? Do you try to take the probiotics at a

different

> time than the other things to try to avoid this?

>

> Also, do any of you track your pH? Could you post and let me

know

> what foods actually lower it and which ones raise it? There seem

to

> be many conflicting things about this. I've got books that say

> different things than what I find on the internet. I asked my

> nutritionist and the only answer she could give me was that they

are

> still doing a lot of research on it. So, I was thinking maybe

first-

> hand accounts are the way to go. I haven't noticed that much of

a

> difference in mine with different foods, but taking a cessium

liquid

> supplement did raise it. Also, baking soda seemed to raise it,

> although I don't want to ingest that much sodium too often. I

made

> an order at the pharmacist for some potassium bicarbonate, it

should

> have the same effect as plain baking soda, but without the sodium.

>

> Finally, have any of you ever tried taking tea tree oil by

mouth? I

> keep reading you're not supposed to, but I have a booked

called " A

> Cancer Battle Plan, " which was written by a stage 4 breast cancer

> survivor (she beat it even after the best medicine had to offer,

> includig 2 stem cell transplants failed) where she says she took

3

> drops 3 times a day while she was recovering from cancer. She

also

> did all sorts of other supplements and diet, too. She felt she

> needed the tea tree oil because her immune system was totally

wiped

> out after the stem cell transplants and all the chemo, and she

didn't

> want to catch any opportunistic infection. She said she still to

> this day takes 3 drops once or twice a week to prevent any sort

of

> illness. So, she obviously didn't die from it, quite the

contrary.

>

> nah

>

>

>

[Guest guest]

,

The 4.5 number for vaginal yeast infections is something I read

online somewhere, I think it was a website for gynecologists to

reference. It was also saying that yeast infections down there

commonly occur right before or during your period. So, I was trying

also to figure out what pH different hormones are at, I was assuming

that progesterone must make your pH higher (more alkaline), since it

is high then drops right before your period. So, that means your

body would get more acid right before your period due to the drop in

progesterone. I didn't have any luck confirming that, though (too

bad, it would have been nice to learn if I could help prevent yeast

infections w/ natural progesterone cream). pH is very hard to search

for on the web, since everyone with a PHd shows up!

You pH isn't expensive at all to test. Just buy some pH test

strips. The ones I have can test the whole spectrum of pH values,

you can also buy narrower range ones, so that you can get a more

exact number. I bought them from some science store online. You can

also usually buy them at pool supply stores. You test either your

saliva or your urine. I usually test my saliva, but you need to do

it first thing in the morning before drinking anything, and spit a

few times into the sink (I read that somewhere) before spitting on to

the strip. I'm not sure exactly how you would go about testing the

pH of the vagina itself.

nah

> > You were asking re Ph level---ThreeLac, a product for fighting

> candida, balances your Ph levels.

> >

> > brenda

> >

> > a few more questions...

> >

> >

> > Okay,

> >

> > I've just got a few more questions. I notice a lot of you

> suggest

> > grapefruit seed extract, oil of oregano, and olive leaf

extract.

> In

> > addition to being antifungal, all of these things are also

> > antibacterial and antiviral. So, anyway, my question is, if

you

> also

> > take probiotics, aren't these things wiping out the

probiotics

> you

> > put into your body? Do you try to take the probiotics at a

> different

> > time than the other things to try to avoid this?

> >

> > Also, do any of you track your pH? Could you post and let me

> know

> > what foods actually lower it and which ones raise it? There

seem

> to

> > be many conflicting things about this. I've got books that

say

> > different things than what I find on the internet. I asked

my

> > nutritionist and the only answer she could give me was that

they

> are

> > still doing a lot of research on it. So, I was thinking

maybe

> first-

> > hand accounts are the way to go. I haven't noticed that much

of

> a

> > difference in mine with different foods, but taking a cessium

> liquid

> > supplement did raise it. Also, baking soda seemed to raise

it,

> > although I don't want to ingest that much sodium too often.

I

> made

> > an order at the pharmacist for some potassium bicarbonate, it

> should

> > have the same effect as plain baking soda, but without the

sodium.

> >

> > Finally, have any of you ever tried taking tea tree oil by

> mouth? I

> > keep reading you're not supposed to, but I have a booked

> called " A

> > Cancer Battle Plan, " which was written by a stage 4 breast

cancer

> > survivor (she beat it even after the best medicine had to

offer,

> > includig 2 stem cell transplants failed) where she says she

took

> 3

> > drops 3 times a day while she was recovering from cancer.

She

> also

> > did all sorts of other supplements and diet, too. She felt

she

> > needed the tea tree oil because her immune system was totally

> wiped

> > out after the stem cell transplants and all the chemo, and

she

> didn't

> > want to catch any opportunistic infection. She said she

still to

> > this day takes 3 drops once or twice a week to prevent any

sort

> of

> > illness. So, she obviously didn't die from it, quite the

> contrary.

> >

> > nah

> >

> >

> >