Guest guest Posted May 19, 2003 Report Share Posted May 19, 2003 Aidan had his appt today & was casted for the helmet. His plagiocephaly is mild/moderate. He'll be 6 months this Friday. I have to say, i'm having anxieties about it. I'm wondering if I made the right decision. Summer time is coming up & I had all these plans. We were going to do water babies, a class at the Y parents do w/ their babies in the pool. I'm just feeling like i'm not going to see my baby for two months. I have waited for this baby for 9 years after infertility & many losses. He is my miracle baby & i'm so sad i won't be seeing his head for two months. I kiss it all the time. I'm going to miss feeling that fuzzy head. I know i'm being a little overly emotional about this and I'm hoping it's just PMS. Has anyone felt this way? Does it get better? Thanks in advance for all your support. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2003 Report Share Posted May 19, 2003 Hi , You're not alone in feeling this way. My husband and I have also discussed exactly the same things! gets his helmet this Friday. It's the full on helmet with a chin strap too. He's going to have to wear it for 4-6 months. His is closer to moderate than it is to mild (so they told me). We decided that we don't want there to be any chance at all that he could have any health or self esteem issues if his head doesn't round out on its own. There are no guarantees that it will round out on its own. It could even get worse! I do know that it definately will improve with helmet therapy. I am going to miss 's little fuzzy head too! Debbie North Bend, WA > Aidan had his appt today & was casted for the helmet. His plagiocephaly is > mild/moderate. He'll be 6 months this Friday. I have to say, i'm having > anxieties about it. I'm wondering if I made the right decision. Summer time > is coming up & I had all these plans. We were going to do water babies, a > class at the Y parents do w/ their babies in the pool. I'm just feeling like > i'm not going to see my baby for two months. I have waited for this baby for > 9 years after infertility & many losses. He is my miracle baby & i'm so sad > i won't be seeing his head for two months. I kiss it all the time. I'm > going to miss feeling that fuzzy head. I know i'm being a little overly > emotional about this and I'm hoping it's just PMS. > > Has anyone felt this way? Does it get better? > > Thanks in advance for all your support. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2003 Report Share Posted May 19, 2003 I just had to deal with all this mixed emotions myself. My boys were DOC banded on Friday, and although I knew it was the right thing to do in the long run, I was sad for me. Very selfish I know, but I too miss rubbing their heads, kissing their heads etc. But I now have dealt with it (kinda?!). Although I'm still a little sad about it, I know it is the right thing, and they really don't care about it. Definately more difficult for parents than the kids. My boys turned 6 months 2 days after they received the bands, so they hopefully will receive good correction, the earlier the better. I too am going to regester at teh Y for baby & me classes. They are only 30 min classes once a week, so no problem to take the band off for that time. Good luck Aidan & keep us updated. Tricia Newly DOC banded Braeden & Spencer (6 months) > Aidan had his appt today & was casted for the helmet. His plagiocephaly is > mild/moderate. He'll be 6 months this Friday. I have to say, i'm having > anxieties about it. I'm wondering if I made the right decision. Summer time > is coming up & I had all these plans. We were going to do water babies, a > class at the Y parents do w/ their babies in the pool. I'm just feeling like > i'm not going to see my baby for two months. I have waited for this baby for > 9 years after infertility & many losses. He is my miracle baby & i'm so sad > i won't be seeing his head for two months. I kiss it all the time. I'm > going to miss feeling that fuzzy head. I know i'm being a little overly > emotional about this and I'm hoping it's just PMS. > > Has anyone felt this way? Does it get better? > > Thanks in advance for all your support. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2003 Report Share Posted May 20, 2003 Hi , I think what you are feeling is pretty normal. I can see how the feelings might be even more intense given all you've been through to come to this point. It gets easier - I promise. :-) You'll have to work those cuddles and kisses on the head in double time during the one hour off and when the band is on you'll learn to be creative with the hugs and loves! :-) You're doing a good thing for your boy - keep the goal in mind and remember that it really is just a drop in the bucket of time when you consider the lifetime of roundess he will get in exchange. Hang in there - you're doing the right thing! Marci (Mom to ) Oklahoma > Aidan had his appt today & was casted for the helmet. His plagiocephaly is > mild/moderate. He'll be 6 months this Friday. I have to say, i'm having > anxieties about it. I'm wondering if I made the right decision. Summer time > is coming up & I had all these plans. We were going to do water babies, a > class at the Y parents do w/ their babies in the pool. I'm just feeling like > i'm not going to see my baby for two months. I have waited for this baby for > 9 years after infertility & many losses. He is my miracle baby & i'm so sad > i won't be seeing his head for two months. I kiss it all the time. I'm > going to miss feeling that fuzzy head. I know i'm being a little overly > emotional about this and I'm hoping it's just PMS. > > Has anyone felt this way? Does it get better? > > Thanks in advance for all your support. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Hi Mike, Welcome to the group! Aidan is a doll, thanks for sharing his pic with us. I'm so happy to hear your insurance company came through for you. Please keep us posted on his progress. > Hello All, > This probably doesn't count as an update since I've never actually > posted details for Aidan before. Anyways he was born 8/12/03, about 2 > 1/2 months premature. At his 4 month checkup he was diagnosed with > plagio and tort. He began physical therapy with Miss Ann Marie at the > Providence Park facility in Novi Michigan. He also started that > by-hand skull shaping therapy with Miss . > > Aidan received his Danmar helmet on March 4th, through the Detroit > Institute of Children. Mr. did the casting and now is also doing > some minor modification to the helmet because of red spots. Little > Aidan seems to be doing fine with his helmet so far. > > Our insurance company, Health Alliance Plan (HAP), initially denied > our claim. However, a letter from Dr. Sood (Aidan's neurosurgeon) > cleared everything up and HAP changed their decision. > > If I can get the uploading stuff to work , look for his pic in the > folder called " Aidan " in the " Our Plagio Kids " folder. > > Mike, Aidan's dad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Hi Mike, Welcome to the group. It's good to hear Aidan is doing well in his helmet. Hopefully all the adjustments will be done soon and you will have no more red spots to worry about. Please keep us posted with future updates! and (DOCgrad 13-Feb-04/10-14mos./PA)mja48336 <mansel@...> wrote: Hello All,This probably doesn't count as an update since I've never actuallyposted details for Aidan before. Anyways he was born 8/12/03, about 21/2 months premature. At his 4 month checkup he was diagnosed withplagio and tort. He began physical therapy with Miss Ann Marie at theProvidence Park facility in Novi Michigan. He also started thatby-hand skull shaping therapy with Miss .Aidan received his Danmar helmet on March 4th, through the DetroitInstitute of Children. Mr. did the casting and now is also doingsome minor modification to the helmet because of red spots. LittleAidan seems to be doing fine with his helmet so far.Our insurance company, Health Alliance Plan (HAP), initially deniedour claim. However, a letter from Dr. Sood (Aidan's neurosurgeon)cleared everything up and HAP changed their decision.If I can get the uploading stuff to work , look for his pic in thefolder called "Aidan " in the "Our Plagio Kids" folder.Mike, Aidan's dadFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Hi MIke, Welcome to the group! Aidan is a cutie! I'm glad your insurance ended up coming through for you guys--what a relief! We have lots of members from Michigan right now. Please keep us updated on Aidan's progress. , mom to Hannah, DOCgrad Cape Cod, Ma > Hello All, > This probably doesn't count as an update since I've never actually > posted details for Aidan before. Anyways he was born 8/12/03, about 2 > 1/2 months premature. At his 4 month checkup he was diagnosed with > plagio and tort. He began physical therapy with Miss Ann Marie at the > Providence Park facility in Novi Michigan. He also started that > by-hand skull shaping therapy with Miss . > > Aidan received his Danmar helmet on March 4th, through the Detroit > Institute of Children. Mr. did the casting and now is also doing > some minor modification to the helmet because of red spots. Little > Aidan seems to be doing fine with his helmet so far. > > Our insurance company, Health Alliance Plan (HAP), initially denied > our claim. However, a letter from Dr. Sood (Aidan's neurosurgeon) > cleared everything up and HAP changed their decision. > > If I can get the uploading stuff to work , look for his pic in the > folder called " Aidan " in the " Our Plagio Kids " folder. > > Mike, Aidan's dad Quote Link to comment Share on other sites More sharing options...
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