Guest guest Posted February 20, 2001 Report Share Posted February 20, 2001 Thanks for sharing that with me. The burning in the skin can be so irritating and it is alway's great to hear of someone feeling better from it. Thanks again,Tonya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2001 Report Share Posted February 20, 2001 I'm not sure how " natural " you'll consider this, because of the delivery method, but hydroxycobalamin is natural. I got relief from the burning by doing IM injections of hydroxycobalamin B-12 every day. The potency that I use is 10,000 mcg./ml, and I do 1 ml (1 cc) per day. At this potency, you have to be purchased it through a compounding pharmacy, and you need to have a doctor's prescription for it. And it's on the expensive side, and my insurance won't cover the cost because it's an experimental use for it. (You also have to be brave enough to actually give yourself daily shots) But it has made a world of difference for me. It has also significantly reduced the muscle pain that I had, and improved my sleep a little. It's safe to use, and doesn't have any side effects. (Other than some people seem to be over-stimulated from it. They probably don't need such high doses of it.) If your body can't use it, then it just gets rid of the excess through your urine. There don't seem to be any risks from using it long-term. Hydroxycobalamin is one of only a couple forms of B-12 that can pass through the blood/brain barrier. (Cyanacobalamin, which is usually found in vitamins, cannot.) It acts as an antioxidant, and helps neutralize the neurotoxins that cause neurological damage in CFS/FM. (specifically peroxynitrite) It also helps repair nerve damage, and because it can get into the brain, it helps repair brain damage. It also helps improve red blood cells, so that the muscles and nerves get a better oxygen supply. It helps in the methylation cycle, lowering homocysteine levels and recycling glutithone. And it improves liver function. It does more, but those things seem to be things that specifically help people with CFS/FM. Some people seem to get more energy with it. If I do the shot before bedtime, it seems to help me sleep better. If I do it in the morning, it seems to give me more energy during the day. I haven't had problems with it making me jittery, although some people say it did this to them. I've tried using it sublingually, and you might consider doing it this way to avoid the " unnatural " method of shots, and I do occasionally do it that way. However, I have to split the dose and take half in the morning and half in the evening, because it seems to have more kick but a shorter working life when I do it sublingually. The shot takes longer to kick in, doesn't seem to be as strong working, but lasts 24 hours. Splitting the dose and taking it sublingually seems to last about 10-12 hours per 1/2 dose for me. Sometimes it runs out before time's up when I do it sublingually. A person might be able to split the dose into thirds and get more even results, but I can't remember to remind myself to do it that often. I'm not sure using it sublingually is quite as good as IM injections, but sometimes I need a break from the injections. I've tried using methylcobalamin, another form of B-12 that can pass through the blood/brain barrier, and is available in 5 mg. sublingual tablets from a few places without prescription, and taking two per day equates to the same dosage, but it did nothing for me. However, some people that have tried it find it works better than the hydroxycobalamin for them. It took a long time after learning about hydroxycobalamin shots before I was willing to try it. But I got to the point where I was in so much pain, and I could barely stand to wear clothing because of the burning skin sensation, and finally, after hearing so many people with CFS or FM who tried it and benefited from it, in desperation I finally talked my doctor into trying me on it. I felt like I went into shock every time I gave myself a shot for the first week of doing it, But then I began to realize it hurts a lot less than things like plucking your eyebrows, which I can handle, and I began relaxing a little about it. lindaj@... Burning In Skin > Has anyone found anything naturally to help burning in the skin. I burn everyday in my skin and I am sure it is probably to to the nerve endings and to the HPA(axis) in the brain not working correctly. Has anyone else experience this and does anyone get relief.....Thanks,Tonya > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2001 Report Share Posted February 20, 2001 Dear Tonya I get severe burning, then itching in my hands whenever I touch anything cold. I try to avoid it, but 57 years of habit it hard to break. I also try to keep throw-away gloves around for preparing cold things for cooking or salads, etc. But, once it starts, I have to put an over the counter cortisone cream on my hands which turn deep red to purple almost immediately. I've tried Benadryl cream but, for me, the other creams work best. Also, when I was in physical therapy, briefly, they asked me if I was allergic to cold?! My ex used to make fun of my problem, but this surprised me that other people would be allergic to cold also. Evidentially, it's a fibromyalgia thing, too. So is neuropathy. Anyone else suffering from this, too? It controls my life as much as the pain. In this body, all temperatures are opposite. Kate Burning In Skin > Has anyone found anything naturally to help burning in the skin. I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2001 Report Share Posted February 21, 2001 Kate: Do your hands turn red? This sounds like Raynaud's phenomenon. Crystal In a message dated 2/20/01 4:47:37 PM Central Standard Time, grasshop@... writes: << I get severe burning, then itching in my hands whenever I touch anything cold. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2001 Report Share Posted February 21, 2001 Crystal Yes they turn deep red. . .almost purple. Kate Re: Burning In Skin > Kate: > Do your hands turn red? This sounds like Raynaud's phenomenon. > Crystal > > In a message dated 2/20/01 4:47:37 PM Central Standard Time, > grasshop@... writes: > > << I get severe burning, then itching in my hands whenever I touch anything > cold. >> > > > Quote Link to comment Share on other sites More sharing options...
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