Jump to content
RemedySpot.com

Wiley Protocol

Rate this topic


Guest guest

Recommended Posts

Guest guest

I was trying to find what the P & E levels were suppose to be on

average for Young Adults.

I found on the web: Estadiol

Follicular Phase 20 - 160

Follicular Phase 2-3 days 20 - 84

Periovulatory Phase +/- 3 days34 - 400

Luteal Phase 27 - 246

Progesterone Median Absolute Rng

Ovulating Females: ng/mL ng/mL

Follicular Phase 0.4 0 - 1.5

Luteal Phase 7.7 2.3 - 25

Midluteal Phase 14.7 3.5 - 25

Pregnant Females:

First Trimester 22.4 8.1 - 42

Second Trimester 53.5 15.2 - 130

Third Trimester 110. 49.1 - 227

I agree with Wiley Protocol hypothesis as far as replacing hormones

to a youthful level and if we are already there why is there a need

to do a specific # of lines of anything (E or P)

We should have the protective benefits of hormone replacement if we

can get them to fluctuate at youthful levels. This is the goal, not

putting on X # of lines.

It does concern me when it sounds like individuals were just putting

on more and more hormones just based on how they felt at any given

time. I am of the school of thought that just the addition of one

hormone affects all the others and they all must find a new balance.

I am afraid some maybe suffering from yoyo affects, not giving there

bodies enough time to find new balance.

Remember when we had babies we were told to only introduce one food

each week. When we take any drug w/psychiatric affects we are told to

ramp up slowly and down slowly. Not shocking our bodies.

I am on Day 13 of my second month. I am on 1/2 dose WP. I needed to

add Synthroid for Thyroid deficiency a week ago after 1st blood test

showed my thyroid efficiency going down. I am sure the result of the

hormones. I am in a holding pattern to observe my bodies ability to

balance additions. There are fluctuations within my day but nothing

unbearable. I do notice small improvements in some situations,

sometimes, that only I could feel. I don't think my family has

noticed any differences yet.

Margaret

Link to comment
Share on other sites

Guest guest

Margaret wrote:

I agree with Wiley Protocol hypothesis as far as replacing hormones

to a youthful level and if we are already there

why is there a need

to do a specific # of lines of anything (E or P)

But the WP is about never doing less than

10 lines of P and the recommendations for increasing came from Susie. Women who

are doing less than 10 lines of P on day 21 are told “you are not on the

WP”.  What we hear from a doctor who works with Dr. Taguchi is to not

change ANYHTING for 3 – 6 months.  That doctor worked with Wiley in the

past, but will not now.  This extreme resistance to respect individuality is what

we are responding to with such irritation. Your goal sounds healthy and one I

also embrace. 

Another consideration.  Using blood levels

is not showing to be a consistent way of measuring hormone levels with this protocol. 

The astonishingly high levels of progesterone which women are told to deposit

into the fat base are _likely_ saturating

the tissues and not showing up on the blood tests.  The excessive P _may_be_ killing off estrogen reception

(overkill) and escalating the need for more estrogen.  It _may_ depend on an individual woman’s

predisposition to accumulating the P in the tissues.   This would make blood

testing highly suspect for evaluation and the determination to state a dose of

never use less than 10 lines of P to be dependent on unsound assumptions.   

I am of the school of thought that just the addition of one

hormone affects all the others and they all must

find a new balance.

I am afraid some maybe suffering from yoyo

affects, not giving there

bodies enough time to find new balance.

This is a very

wise comment, but women were responding to what they were told about the

protocol from the researcher.  Can we explain why women who start the protocol

can tolerate the progesterone (to some extent) and become increasingly less

able to tolerate it?  Would continuing to apply it as directed be wise if women

are seeing the extreme side effects?  The researcher told women in my town to

double the E and the P or double the E.  Your perspective appears to be somewhat

different although I don’t know how one can achieve balance with an

accumulation of P in the system. 

Another thing I

find fascinating and of concern.  Why do we see younger cycling women posting

their pre protocol blood testing results and follow up results with much lower

blood levels of E and P?  There was one with much higher E, but her response

was usual and interesting as well. 

And another thing…

We are seeing younger women (36 – 46) who have their periods drying up or

never appearing even after a year.  A woman of around 50 who had not cycled for

three years and could not get blood levels was told to increase her E and P by

double.  After a year (of great difficulty and no significant increase in

health and well being) she had an ultrasound and her lining showed no

indication of any increase.  A year of very high E and P she did not grow a

lining or ever bleed. 

I am on Day 13 of my second month. I am on 1/2 dose WP.

If you do a ½ dose

you are not on the Wiley Protocol.  The Wiley Protocol registered pharmacy has

been forcefully instructed that they are not allowed to sell any prescriptions at

½ dosing and call it the Wiley Protocol.  Your approach seems wise as hell to

me, but if you sat in a support meeting in Port Townsend in December you would

be told that those levels could grow cancer in your body.  That I am telling

you I believe that your ½ dose seems wise to me would be an example of the

misinformation that is being spread on the RL group.  Very wise of you.  You

might manage to make this work and feel good all the time, but you are not on

the WP.  That could be called rhythmic dosing or some such thing. 

Laurel

From:

rhythmicliving [mailto:rhythmicliving ] On Behalf Of margaretcegelski

Sent: Thursday, May 12, 2005 10:34

AM

To: rhythmicliving

Subject: Wiley

Protocol

I was trying to find what the P & E levels were suppose to be on

average for Young Adults.

I found on the web: Estadiol

Follicular

Phase

20 - 160

Follicular Phase 2-3 days 20 - 84

Periovulatory Phase +/- 3 days34 - 400

Luteal

Phase

27 - 246

Progesterone

Median Absolute Rng

Ovulating Females:

ng/mL ng/mL

Follicular

Phase

0.4 0 - 1.5

Luteal Phase

7.7 2.3 - 25

Midluteal

Phase

14.7 3.5 - 25

Pregnant Females:

First

Trimester

22.4 8.1 - 42

Second

Trimester 53.5

15.2 - 130

Third

Trimester

110. 49.1 - 227

I agree with Wiley Protocol hypothesis as far as

replacing hormones

to a youthful level and if we are already there

why is there a need

to do a specific # of lines of anything (E or P)

We should have the protective benefits of hormone

replacement if we

can get them to fluctuate at youthful levels. This

is the goal, not

putting on X # of lines.

It does concern me when it sounds like individuals

were just putting

on more and more hormones just based on how they

felt at any given

time. I am of the school of thought that just the

addition of one

hormone affects all the others and they all must

find a new balance.

I am afraid some maybe suffering from yoyo

affects, not giving there

bodies enough time to find new balance.

Remember when we had babies we were told to only

introduce one food

each week. When we take any drug w/psychiatric

affects we are told to

ramp up slowly and down slowly. Not shocking our

bodies.

I am on Day 13 of my second month. I am on 1/2

dose WP. I needed to

add Synthroid for Thyroid deficiency a week ago

after 1st blood test

showed my thyroid efficiency going down. I am sure

the result of the

hormones. I am in a holding pattern to observe my

bodies ability to

balance additions. There are fluctuations within

my day but nothing

unbearable. I do notice small improvements in some

situations,

sometimes, that only I could feel. I don't think

my family has

noticed any differences yet.

Margaret

click here

for our webpage http://rhythmicliving.com/

Our sister group for research and high volume

http://health.groups.yahoo.com/group/Rhythmic_Living_Research/

**This group has no pharmacy or commercial

affiliations. Any mention of product or a pharmacy is within the scope of

that group member's experience and does not represent the view of the list

owner. Please check directly with pharmacies for details about their product

and policies. Not everything you hear on an e-mail list is the truth even if it

is a member's best effort to report their experience which may vary from your

own. There are many variables that determine how we feel.***

**The group conversation is informational in

nature and is not intended as medical advice. Anyone wishing to actively use

this information or members' opionins for personal health improvement is

advised to consult with the qualified health care provider of their choice

before attempting to use the information. Membership on this list constitutes

agreement that you will not consider any of this medical advice. Discuss

your decisions with your doctor.**

Link to comment
Share on other sites

Guest guest

Hi Margaret..it sounds like you are approaching this in an

intelligent manner. As long as you continue to feel well, that's the

main thing, I think. Because if we don't feel well doing any

particular thing, then chances are it's not for us. And to me it

makes sense to begin more gradually if you have been in menopause or

not cycling for a while and have low levels of natural homrones. But

I think the " adding more lines of E " was actually started several

months ago, in response to women on the protocol as set forth in the

book coming to Susie with their individual symptoms, such as

headache, allergies, fibromyalgia, etc and Susie telling them they

may need more E and to try x number of extra lines to see if it will

allevitate the symptoms that appeared. (I have been follwoing this

since last summer )She did say that some women might need double the

E - statements like that. But I am not faulting Susie here...she did

it on an individual basis and to individuals, she did encourage them

to experiment a little when faced with unforseen symptoms. I do not

think that women on the WP were dosing on their own at all. But I am

sure some were...like me - while I waited for my doctor to prescribe

the WP for me I began using ever increasing amounts of P during my

two week P phase, trying to ready my receptors for more E - you see,

I have been cycling with P and using estradiol for over a year before

I got on the WP just this month. I have begun to find I am having

symptoms of P excess...and I would really appreciate hearing what

Susie Wiley has to say about this subject. But I know she will not

comment on anything women not on the WP are doing....the fact remains

that P excess is a phenomenon, so I am left with questions as to why

is the high P on the WP okay...maybe there is a justification for

it. I do not know. But keep us apprised of how you're doing!

> I was trying to find what the P & E levels were suppose to be on

> average for Young Adults.

>

> I found on the web: Estadiol

> Follicular Phase 20 - 160

> Follicular Phase 2-3 days 20 - 84

> Periovulatory Phase +/- 3 days34 - 400

> Luteal Phase 27 - 246

>

> Progesterone Median Absolute

Rng

> Ovulating Females: ng/mL ng/mL

> Follicular Phase 0.4 0 - 1.5

> Luteal Phase 7.7 2.3 - 25

> Midluteal Phase 14.7 3.5 - 25

>

> Pregnant Females:

> First Trimester 22.4 8.1 - 42

> Second Trimester 53.5 15.2 -

130

> Third Trimester 110. 49.1 -

227

>

> I agree with Wiley Protocol hypothesis as far as replacing hormones

> to a youthful level and if we are already there why is there a need

> to do a specific # of lines of anything (E or P)

>

> We should have the protective benefits of hormone replacement if we

> can get them to fluctuate at youthful levels. This is the goal, not

> putting on X # of lines.

>

> It does concern me when it sounds like individuals were just

putting

> on more and more hormones just based on how they felt at any given

> time. I am of the school of thought that just the addition of one

> hormone affects all the others and they all must find a new

balance.

> I am afraid some maybe suffering from yoyo affects, not giving

there

> bodies enough time to find new balance.

>

> Remember when we had babies we were told to only introduce one food

> each week. When we take any drug w/psychiatric affects we are told

to

> ramp up slowly and down slowly. Not shocking our bodies.

>

> I am on Day 13 of my second month. I am on 1/2 dose WP. I needed to

> add Synthroid for Thyroid deficiency a week ago after 1st blood

test

> showed my thyroid efficiency going down. I am sure the result of

the

> hormones. I am in a holding pattern to observe my bodies ability to

> balance additions. There are fluctuations within my day but nothing

> unbearable. I do notice small improvements in some situations,

> sometimes, that only I could feel. I don't think my family has

> noticed any differences yet.

>

> Margaret

Link to comment
Share on other sites

Guest guest

> But the WP is about never doing less than 10 lines of P and the

> recommendations for increasing came from Susie. Women who are doing

less

> than 10 lines of P on day 21 are told " you are not on the WP " .

What we hear

> from a doctor who works with Dr. Taguchi is to not change ANYHTING

for 3 – 6

> months. That doctor worked with Wiley in the past, but will not

now. This

> extreme resistance to respect individuality is what we are

responding to

> with such irritation. Your goal sounds healthy and one I also

embrace.

My Doctor is friends with Dr Taguchi and she is the one who suggested

starting with 1/2 doses. I agreed with her especially at the time

reading about issues with peoples receptors needing to be turned on.

She is on the hormones herself, although I don't know if she follows

it exact. She made a comment that Suzie does not like her to start

people on 1/2 doses. My doctor is doing alot of her own research into

this as well, attending conferences all over the country.

I got my Rx filled by MS w/WP 1/2 dose. No problem.

I do comprehend you ladies frustrations with the protocol. There is

nothing in the book that suggests a minimum use of product or you

will get sick and die. They only discuss turning our clocks back to

when we were in prime reproductive years. So until I see proof, 10

lines means nothing to me. That is not my goal. My goal is to achieve

the hormones I was producing when I was younger.

> Another consideration. Using blood levels is not showing to be a

consistent

> way of measuring hormone levels with this protocol. The

astonishingly high

> levels of progesterone which women are told to deposit into the fat

base are

> _likely_ saturating the tissues and not showing up on the blood

tests. The

> excessive P _may_be_ killing off estrogen reception (overkill) and

> escalating the need for more estrogen. It _may_ depend on an

individual

> woman's predisposition to accumulating the P in the tissues. This

would

> make blood testing highly suspect for evaluation and the

determination to

> state a dose of never use less than 10 lines of P to be dependent

on unsound

> assumptions.

I hear you. I am monitoring the conversation here regarding this

subject. I will still continue to test, place P in alternate parts of

body (not fat), and observe closely my symptoms for improvement.

> This is a very wise comment, but women were responding to what they

were

> told about the protocol from the researcher. Can we explain why

women who

> start the protocol can tolerate the progesterone (to some extent)

and become

> increasingly less able to tolerate it? Would continuing to apply

it as

> directed be wise if women are seeing the extreme side effects? The

> researcher told women in my town to double the E and the P or

double the E.

> Your perspective appears to be somewhat different although I don't

know how

> one can achieve balance with an accumulation of P in the system.

> Another thing I find fascinating and of concern. Why do we see

younger

> cycling women posting their pre protocol blood testing results and

follow up

> results with much lower blood levels of E and P? There was one

with much

> higher E, but her response was usual and interesting as well.

>

>

>

> And another thing… We are seeing younger women (36 – 46) who have

their

> periods drying up or never appearing even after a year. A woman of

around

> 50 who had not cycled for three years and could not get blood

levels was

> told to increase her E and P by double. After a year (of great

difficulty

> and no significant increase in health and well being) she had an

ultrasound

> and her lining showed no indication of any increase. A year of

very high E

> and P she did not grow a lining or ever bleed.

> Laurel

Laurel, Your passion here is helping alot of people. I am making

decisions for myself based on all the books I've read, research on

the web and info I have learned from this group and my doctors.

Suzanne Sommers said and I am paraphrasing, " to always search for the

most current, progressive, leading edge, anti-aging doctors you can

find " . I still believe the SL & M hypothesis for now. If the WP did not

exist we would all still be trying to achieve the effects of

recapturing our youth with BHRT, because we want to feel alive and

vibrant again.

I am not being confused by the information here, I am going into this

with my eyes as wide open as I can possibly make them. Thank you,

Keep up the excellent service you provide.

Margaret

> From: rhythmicliving

[mailto:rhythmicliving ]

> On Behalf Of margaretcegelski

> Sent: Thursday, May 12, 2005 10:34 AM

> To: rhythmicliving

> Subject: Wiley Protocol

Link to comment
Share on other sites

Guest guest

Margaret wrote:

My Doctor is friends with Dr Taguchi and she is

the one who suggested

starting with 1/2 doses. I agreed with her

especially at the time

reading about issues with peoples receptors

needing to be turned on.

She is on the hormones herself, although I don't

know if she follows

it exact. She made a comment that Suzie does not

like her to start

people on 1/2 doses. My doctor is doing alot of her

own research into

this as well, attending conferences all over the

country.

How wonderful that your doctor is

independent.    I wonder if she is one of the doctors about which Susie has told

me “doesn’t do the WP correctly”?  Susie told me that if I

didn’t use enough progesterone I wouldn’t reset my estrogen

receptors and not receive my estrogen the next month.    

I got my Rx filled by MS w/WP 1/2 dose. No

problem.

That is very interesting!  I know full

well they were told very strongly to never do that.   Cool.    I wonder if

Susie knows they are sending out ½ dosing and writing “Wiley Protocol’

on it?  Or maybe they don’t write WP when they do that.  If she is cool

with it how will Susie account for telling the women in Port Townsend they will

get cancer on ½ dosing   I know when I wrote the FAQ and said that ½ dosing

would be fine for a little while, but after two months she was concerned I was

told to remove it and told – never say ½ dosing is the WP..

I do comprehend you ladies frustrations with the

protocol. There is

nothing in the book that suggests a minimum use of

product or you

will get sick and die. They only discuss turning

our clocks back to

when we were in prime reproductive years. So until

I see proof, 10

lines means nothing to me. That is not my goal. My

goal is to achieve

the hormones I was producing when I was younger.

I have Susie on video tape telling a room

full of women who thought they were doing the protocol that their doctor was

basically a screw up because she had them on ½ doses.  Some of them are reading

this list but never post.  Your experience of the protocol is different than

those of us who got closer for information.  I wonder if the ½ dosing was your

friend’s idea or ’s.  If is recommending ½ dosing a lot

of women in Port Townsend would like to know that!!!  Seriously, we would

really love to know.

I hear you. I am monitoring the conversation here

regarding this

subject. I will still continue to test, place P in

alternate parts of

body (not fat), and observe closely my symptoms

for improvement.

This may have been the initial idea behind

the protocol and because you didn’t get too close you won’t hear

any scare tactics that tell you your method is ‘going to give you cancer’

or not protect you from disease.

Laurel, Your passion here is helping alot of people. I am

making

decisions for myself based on all the books

I've read, research on

the web and info I have learned from this

group and my doctors.

Suzanne Sommers said and I am paraphrasing,

" to always search for the

most current, progressive, leading edge,

anti-aging doctors you can

find " . I still believe the SL & M

hypothesis for now. If the WP did not

exist we would all still be trying to achieve

the effects of

recapturing our youth with BHRT, because we

want to feel alive and

vibrant again.

I am not being confused by the information

here, I am going into this

with my eyes as wide open as I can

possibly make them. Thank you,

Keep up the excellent service you provide.

Margaret

Thank you Margaret.  You are capturing the feeling that many of us

felt when we started.  When we looked closer we got a message that turned

into something dark and far from what we originally expected.  It really

was shocking to be told by her that ½ dosing gave a woman cancer and it

was dangerous.  The archives don’t hold the history of the group. 

They only go back a bit.  I purposefully deleted them.  I don’t want

any record of supporting the protocol.  I honestly believe this approach

of slamming in large doses of sex hormones into women without knowing the

overall status of their hormone health is reckless.   I don’t have a

solution, but I have looked at the protocol very closely and I have a lot

of concerns.  My only solution is to learn.

Laurel

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...