Re: New member - pill question

[Guest guest]

Welcome , and hello to all (I wonder if my question for will help somebody else)- I'm a new member too, and I THINK my EN came from hormone level changes. My testosterone was high last year, then I was diagnosed w/PCOS (polycystic ovarian syndrome) in February. The Dr put me on oral contraceptive to protect me from the PCOS/prevent problems in March, and then I got EN in April. I'm off the oral contras. for 6 weeks, but I'm still in week 7 of pain (not nodules now, just joints). You wrote in your quesitonnaire: "When did you first get erythema nodosum or PG?1993- bad bout as I was on the pill." can you expand on that? do mean that over the years you noticed that the EN was the worst when you think it came from the pill? ..maybe your experience will help me feel some more support. I'm seeing a rheumatologist tomorrow and am skeptical

to get the steriod shot- what if 1 week of pain is all i have left anyway? is the steroid necesary/will it mess up my hormones more? if you want to just answer privately, or not at all, I understand. I know I'm asking personal questions. Thank you - Strecker wrote: Dear ,On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire.

I have added your information to our "Member Medical History" Files on the Group site and posted it below.You now have Full EN Group privileges.You are receiving ALL EN Group emails, and you may also visit the Erythema Nodosum Group Site:http://health.groups.yahoo.com/group/erythema_nodosum_Group/ whenever you like by logging on with your Yahoo ID and secret password.You do not have to have the group emails delivered to be a member here. Let me know if you want the emails to stop.I hope you will remain a member here to support others even after you go into remission. Since EN IS NOT BEING ACTIVELY RESEARCHED, please take this opportunity to make a generous donation to our "EN Research Fund" to find

a cure for this painful disorder.http://www.geocities.com/erythema_nodosum/donate/index.htm Also, please visit our new Erythema Nodosum Websitehttp://www.geocities.com/erythema_nodosum/ We intend to make it the best EN website on the net.I'm glad you chose to join us!Welcome to our Friendly Erythema Nodosum Group!Love,Chronic Idiopathic EN since 1968********* Fensterstock's Case History5/27/081. Your name and age: age 382. Your location Charlotte, NC3. Your email address:laufenster4. Your Yahoo ID5. Describe your erythema nodosum/PG symptoms or,

if you do not have EN or PG, please explain why you wish to join this group. I have had EN since 1993- It has varied in intensity and levels since- lately It has been almost constant for 3 years- right now I have a couple of very large bumps. I am frustrated and would like some support and maybe someone has answers my doctors do not- and I have been to many!6. List any other health conditions. None7. State what medications or treatments you take for EN, and their effectiveness: First breakout I took some antiinflammatory- not sure if it helped- hot compresses did! I just started taking Indomethacin 25mg 3x's day- After 1 day I stopped as i was having more pain- It caused my whole lower leg to swell- My ankle is still swollen and I stopped the meds on thursday- Almost like the nodules dropped or grew in my ankle- weird- much bigger, much more painful!8. When did you first get erythema nodosum or PG?1993- bad bout as I

was on the pill.9. How long have you had erythema nodosum or PG?Off and on since10. Do you agree to treat all EN members with respect?of course!11.Do you agree to post NO advertisements for any products or services?yes12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral from another group or person etc.) invited me from the Pannicultus group

[Guest guest]

No Problem -

In 1995, I had been on the pill for a few years- no problem and then I had gotten EN- so many of them!

So they stopped the pill- and I have never taken since...I then saw my internist and dermatologist (in NY)

I did notice bouts after giving birth to both of my children but they were fairly mild (or maybe I was too busy to notice?)

My kids are now 10 and 7- Since then I had a few outbreaks every so often- nothing tooo memorable- But I did see my internist and dermatologist (in CT)

so I must have had some?

3 years ago we moved to NC- and I immediately noticed an outbreak- which had subsided some but never resolved- Now it is in the worst episode I have ever had- I have i a nodule that was pretty bad so the dermatologist did some research and prescribed a med which after taking for a day- I now have a whole different nodule- It goes from my calf to my ankle- must be over 9inches long and 4 or 5 wide- awful!

It is nice to know that I am not alone- I always just thought this was my own private weird disease- I am sorry that you have it!

Hope this helps! I am here if you have any more thoughts/questions!

Re: New member - pill question

Welcome , and hello to all (I wonder if my question for will help somebody else)-

I'm a new member too, and I THINK my EN came from hormone level changes. My testosterone was high last year, then I was diagnosed w/PCOS (polycystic ovarian syndrome) in February. The Dr put me on oral contraceptive to protect me from the PCOS/prevent problems in March, and then I got EN in April. I'm off the oral contras. for 6 weeks, but I'm still in week 7 of pain (not nodules now, just joints).

You wrote in your quesitonnaire: "When did you first get erythema nodosum or PG?1993- bad bout as I was on the pill."

can you expand on that? do mean that over the years you noticed that the EN was the worst when you think it came from the pill? ..maybe your experience will help me feel some more support.

I'm seeing a rheumatologist tomorrow and am skeptical to get the steriod shot- what if 1 week of pain is all i have left anyway? is the steroid necesary/will it mess up my hormones more?

if you want to just answer privately, or not at all, I understand. I know I'm asking personal questions.

Thank you

-

Strecker <rebeccastrecker@ yahoo.com> wrote:

Dear ,On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added your information to our "Member Medical History" Files on the Group site and posted it below.You now have Full EN Group privileges.You are receiving ALL EN Group emails, and you may also visit the Erythema Nodosum Group Site:http://health. groups.yahoo. com/group/ erythema_ nodosum_Group/ whenever you like by logging on with your Yahoo ID and secret password.You do not have to have the group emails delivered to be a member here. Let me know if you want the emails to stop.I hope you will remain a member here to support others even after you go into remission.

Since EN IS NOT BEING ACTIVELY RESEARCHED, please take this opportunity to make a generous donation to our "EN Research Fund" to find a cure for this painful disorder.http://www.geocitie s.com/erythema_ nodosum/donate/ index.htm Also, please visit our new Erythema Nodosum Websitehttp://www.geocitie s.com/erythema_ nodosum/ We intend to make it the best EN website on the net.I'm glad you chose to join us!Welcome to our Friendly Erythema Nodosum Group!Love,Chronic Idiopathic EN since 1968********* Fensterstock' s Case History5/27/081. Your name and age: age

382. Your location Charlotte, NC3. Your email address:laufenster@ yahoo.com4. Your Yahoo ID5. Describe your erythema nodosum/PG symptoms or, if you do not have EN or PG, please explain why you wish to join this group. I have had EN since 1993- It has varied in intensity and levels since- lately It has been almost constant for 3 years- right now I have a couple of very large bumps. I am frustrated and would like some support and maybe someone has answers my doctors do not- and I have been to many!6. List any other health conditions. None7. State what medications or treatments you take for EN, and their effectiveness: First breakout I took some antiinflammatory- not sure if it helped- hot compresses did! I just started taking Indomethacin 25mg 3x's day- After 1 day I stopped as i was having more pain- It caused my whole lower leg

to swell- My ankle is still swollen and I stopped the meds on thursday- Almost like the nodules dropped or grew in my ankle- weird- much bigger, much more painful!8. When did you first get erythema nodosum or PG?1993- bad bout as I was on the pill.9. How long have you had erythema nodosum or PG?Off and on since10. Do you agree to treat all EN members with respect?of course!11.Do you agree to post NO advertisements for any products or services?yes12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral from another group or person etc.) invited me from the Pannicultus group