Guest guest Posted September 5, 2004 Report Share Posted September 5, 2004 you did not attach the photo Elaine! Tina Hillier Mum to , 14 years old and possesor of an Extra Special Chromosome. Rosie 12 ( who enjoys a life enhanced by the Joys and Trial of CdLS) 7, A budding Artist and Singer, And who is 5 years old and a lovely friend! Isle of Wight UK http://uk.photos.yahoo.com/tdlhillier mailto:tdlhillier@... www.cdlsrosie.homestead.com ALL-NEW Yahoo! Messenger - all new features - even more fun! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2004 Report Share Posted September 5, 2004 Hi Elaine, Your photo is lovely and you are a handsome couple! Thanks for posting it so we could have a peek! I just wanted to add that when Malcolm is being released from hospital, he will probably be asked about home help, physio, and other things. If you can get any of these services, I'm sure it would be a great help to you both. It will take Malcolm some time to regain his strength after being laid up in hospital. It is interesting that your doctor mentioned that Malcolm could have had bronchiectasis since childhood. Since it is not a common disease, it is quite often undiagnosed and, in some cases, passed off as asthma. In my case I had whooping cough when I was two years' old, and was diagnosed with bronchiectasis soon after. I also wanted to ask you about your nail ridges, are they vertical or horizonal? I was interested to hear that they could be a sign of rheumatoid arthritis or fibromyalgia? I have vertical ridges which I've only noticed over the past few months. I don't have clubbed fingers, as they are not always present with bronch sufferers. Take care, my best wishes to Malcolm for a speedy recovery, and look after yourself, okay!! Love Bunny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2004 Report Share Posted September 6, 2004 Hiya tina its in the photo album section of the site under elaine (crystalcavies) elaineTina Hillier wrote: you did not attach the photo Elaine! Tina Hillier Mum to , 14 years old and possesor of an Extra Special Chromosome. Rosie 12 ( who enjoys a life enhanced by the Joys and Trial of CdLS) 7, A budding Artist and Singer, And who is 5 years old and a lovely friend! Isle of Wight UK http://uk.photos.yahoo.com/tdlhillier mailto:tdlhillier@... www.cdlsrosie.homestead.com ALL-NEW Yahoo! Messenger - all new features - even more fun! ALL-NEW Yahoo! Messenger - all new features - even more fun! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2004 Report Share Posted September 6, 2004 Hiya bunny thanks for the compliment. As for the nails, the deepest, visible ones run vertical (nail bed to nail tip) I also have some not to noticable unless you move them around in the light and they are not so deep either horizentally. We at the local to me fibro suport group all had a look at our own nails and also some looked at other peoples and we all had some degree of nail ridges, it seems those that reported worse symptoms and also those that had severe or regular daily 'hypersolannce (sp?)' (daytime sleeping or need to sleep) higher hypersolannce equals worse fibro and seemed to show more visible nail ridges. it is something that is seen in people with rhuematoid arthritis too. but like finger clubbing and bronch. you mention that not everyone gets it, some fibro and some RA sufferers that might have it bad show nearly nothing or not noticable nail changes. We are hoping that since it will be 6 weeks in hospital this week and his anti biotics finish tomorrow, that as they said they needed to keep him in a couple of days to monitor his bloods, a couple of days would be wed and thursday and so hoping that its friday or sat they allow him home. I told Mum in law that I would not allow him to travel with his smoking sister and B I Law that also smoke in their car, because he can't risk being put into hospital wiht his asthma if they insist they need a fag on the way home, but since they coulnd't pick him up this week/weekend thats ok, but they do know their is problems in getting to visit and lack of cars and that they do provide people without transport, transport home or back to local hospital. But they have said he will not need they hope to be sent back to his local hospital, but back home, they are just waiting to the imflammation in his blood to drop to zero, but feel it know could be the anti biotics, hence them wanting to see what occurs when he comes off them, so fingers crossed and praying that his imflammation levels drop once he is off them, so they allow him home, he is so bored that he feels tired than he was a week ago, well bordom does make you tired. but then he normally gets 8 hours almost constant sleep most nights and since they wake him midnight to give him a 30 minutes to be given introven. anti biotics, then again for the same at 6am. well I'm hoping our new mattress will be of great help to him, as much as it is helping my own conditions, finally we have been able to afford a tempur mattress, it helps circulation, stops dust mites living in it and also helps to stop mould growth too. and moulds to the shape of your body, so since he has lost osme weight, he is a bit bones in some areas, so at least he wil have no areas toget pressure sores if he does have to use the bed alot for a while, while he recovers. Will check with the hospital docs/nurses about home help and put it to them that he thinks he will be able to cope if my fibor flares up after the relief and relaxing I will get when he finally does come home, the fibro is likely to get a hold big time and I can't see him looking after me and trying to recover fomr his ilness. Well form what the said as he had lots of bronchitis infections as a child and chest infections, asthma dx'd at 6 weeks old and then he had this over mucus production before i knew him and he said he had it for many years, although he was 16 when he was in switerland, he wasn't sure he had it before his 18 months over their or not, but for 6 months after his return he didn't really need any inhalers, shame that his parents didn't keep him out of smoke when he returned home, as he might have ended up on less meds and maybe it couldhave helped stop this other condition of bronch. from affecting him so much, althouhg, he isn't as bad as some of you discribe. Take care and thanks again ElaineBunny & Bob wrote: Hi Elaine,Your photo is lovely and you are a handsome couple! Thanks for postingit so we could have a peek!I just wanted to add that when Malcolm is being released from hospital,he will probably be asked about home help, physio, and other things. Ifyou can get any of these services, I'm sure it would be a great help toyou both. It will take Malcolm some time to regain his strength afterbeing laid up in hospital.It is interesting that your doctor mentioned that Malcolm could have hadbronchiectasis since childhood. Since it is not a common disease, it isquite often undiagnosed and, in some cases, passed off as asthma. In mycase I had whooping cough when I was two years' old, and was diagnosedwith bronchiectasis soon after.I also wanted to ask you about your nail ridges, are they vertical orhorizonal? I was interested to hear that they could be a sign ofrheumatoid arthritis or fibromyalgia? I have vertical ridges which I'veonly noticed over the past few months. I don't have clubbed fingers, asthey are not always present with bronch sufferers.Take care, my best wishes to Malcolm for a speedy recovery, and lookafter yourself, okay!!Love Bunny ALL-NEW Yahoo! Messenger - all new features - even more fun! Quote Link to comment Share on other sites More sharing options...
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