Guest guest Posted January 3, 2009 Report Share Posted January 3, 2009 Tammy,I didnt relize you just had a baby until this email. Very strange coincidence, but one of my very best friends had EN after her child. It lasted about three months until she tried a few things. She has not had it since and that is going on five years.The things that will help you besides the ACV is support stockings! These are a huge help, too! There are two very good brands: I like the Futuro (sp) brand. And another brand that starts with a "T" - i want to say Toms but I am spacing on the name. If anyone else remebers please share.Support stocking will prevent the noduls from creating bigger ones. It also helps with the pain.Best,ML GemmillEN - 1975Sent via BlackBerry from T-MobileFrom: Tammy Velasquez Date: Sat, 3 Jan 2009 05:07:31 -0800 (PST)To: <erythema_nodosum_Group >Subject: Re: Another new member Thank you all for your help. I do plan to definitely take all of my antibiotics. The swelling in my ankles has gone done quite a bit over the last 36 hours or so but I am still in quite a bit of pain. I have done hardly anything but sit on the couch which is difficult with a 3 month old baby at home! I am just really hoping that I can at least walk for short periods of time by Monday. I just returned to work a few weeks ago from a 3 month long maternity leave and now I have been home again for the past week due to this! I'm sure my boss loves me right now!From: O'Brien <stacyberk10>To: erythema_nodosum_Group Sent: Friday, January 2, 2009 5:25:58 PMSubject: Re: Another new member Hello,once you start taking any antibiotic, its really important to take it for its ENTIRE course. if you dont finish it, the harmful bacteria wont be fully killed, and will then have the potential to learn how to be resistant to the antibiotic. if a person does this repeatedly it becomes increasingly difficult to get rid of bacterial infections. so please continue to take the prescribed antibiotics! ! also, you can get rid of EN if you dont first get rid of its cause. it will still likely take several weeks up to several months for the EN to fully go away. its been a rough battle for many of us EN sufferers (is that a word??) but it DOES get better. just rest as much as you can and dont push yourself. and you are lucky to know the cause of EN- many of us are still searching to understand why we got it. hang in there!!! O'Brien, RDNJFrom: tams1728 <tams1728yahoo (DOT) com>Subject: [erythema_nodosum_ Group] Another new memberTo: erythema_nodosum_ Group@yahoogroup s.comDate: Friday, January 2, 2009, 12:27 PM Hello, I was just diagnosed with EN 5 days ago. I've had the symptoms for about a week and a half and it's awful. I am taking amoxycillin since my strep test came back positive. I am confused about why I'm being treated for strep to get rid of this. I was feeling significantly better 2 days ago so I was up walking around and doing things. Then that evening my ankles swelled back up terribly and the bruises looked awful. So now I'm couch bound again. I'm concerned about how long it's going to take for this to go away. Will taking amoxycillin really help me? Thank you for any advice you can offer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2009 Report Share Posted January 3, 2009 Tammy,I didnt relize you just had a baby until this email. Very strange coincidence, but one of my very best friends had EN after her child. It lasted about three months until she tried a few things. She has not had it since and that is going on five years.The things that will help you besides the ACV is support stockings! These are a huge help, too! There are two very good brands: I like the Futuro (sp) brand. And another brand that starts with a "T" - i want to say Toms but I am spacing on the name. If anyone else remebers please share.Support stocking will prevent the noduls from creating bigger ones. It also helps with the pain.Best,ML GemmillEN - 1975Sent via BlackBerry from T-MobileFrom: Tammy Velasquez Date: Sat, 3 Jan 2009 05:07:31 -0800 (PST)To: <erythema_nodosum_Group >Subject: Re: Another new member Thank you all for your help. I do plan to definitely take all of my antibiotics. The swelling in my ankles has gone done quite a bit over the last 36 hours or so but I am still in quite a bit of pain. I have done hardly anything but sit on the couch which is difficult with a 3 month old baby at home! I am just really hoping that I can at least walk for short periods of time by Monday. I just returned to work a few weeks ago from a 3 month long maternity leave and now I have been home again for the past week due to this! I'm sure my boss loves me right now!From: O'Brien <stacyberk10>To: erythema_nodosum_Group Sent: Friday, January 2, 2009 5:25:58 PMSubject: Re: Another new member Hello,once you start taking any antibiotic, its really important to take it for its ENTIRE course. if you dont finish it, the harmful bacteria wont be fully killed, and will then have the potential to learn how to be resistant to the antibiotic. if a person does this repeatedly it becomes increasingly difficult to get rid of bacterial infections. so please continue to take the prescribed antibiotics! ! also, you can get rid of EN if you dont first get rid of its cause. it will still likely take several weeks up to several months for the EN to fully go away. its been a rough battle for many of us EN sufferers (is that a word??) but it DOES get better. just rest as much as you can and dont push yourself. and you are lucky to know the cause of EN- many of us are still searching to understand why we got it. hang in there!!! O'Brien, RDNJFrom: tams1728 <tams1728yahoo (DOT) com>Subject: [erythema_nodosum_ Group] Another new memberTo: erythema_nodosum_ Group@yahoogroup s.comDate: Friday, January 2, 2009, 12:27 PM Hello, I was just diagnosed with EN 5 days ago. I've had the symptoms for about a week and a half and it's awful. I am taking amoxycillin since my strep test came back positive. I am confused about why I'm being treated for strep to get rid of this. I was feeling significantly better 2 days ago so I was up walking around and doing things. Then that evening my ankles swelled back up terribly and the bruises looked awful. So now I'm couch bound again. I'm concerned about how long it's going to take for this to go away. Will taking amoxycillin really help me? Thank you for any advice you can offer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2009 Report Share Posted January 3, 2009 Just saw this and had to chime in... My PG got horrendously worse during my pregnancy in 2003. I also got it while I was early in that pregnancy -- brought on by neighbors' flea infestation. It did improve but has not gone away after delivery. Sincerely, Christy :-) [erythema_nodosum_ Group] Another new memberTo: erythema_nodosum_ Group@yahoogroup s.comDate: Friday, January 2, 2009, 12:27 PM Hello, I was just diagnosed with EN 5 days ago. I've had the symptomsfor about a week and a half and it's awful. I am taking amoxycillinsince my strep test came back positive. I am confused about why I'mbeing treated for strep to get rid of this. I was feelingsignificantly better 2 days ago so I was up walking around and doingthings. Then that evening my ankles swelled back up terribly and thebruises looked awful. So now I'm couch bound again.I'm concerned about how long it's going to take for this to go away. Will taking amoxycillin really help me? Thank you for any advice youcan offer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2009 Report Share Posted January 6, 2009 Yes I am starting to wonder if there is any sort of connection with me getting EN shortly after having my baby. I am going back to the doctor tomorrow and I'll see what she thinks. I haven't gotten much better. I went back to work yesterday and after sitting at my desk for only 1.5 hours my ankles swelled back up terribly and I have a few more nodules on my legs. Like I said before, I have had strep MANY times and have never experienced anything like this. > > From: tams1728 <tams1728yahoo (DOT) com> > Subject: [erythema_nodosum_ Group] Another new member > To: erythema_nodosum_ Group@yahoogroup s.com > Date: Friday, January 2, 2009, 12:27 PM > > > Hello, I was just diagnosed with EN 5 days ago. I've had the symptoms > for about a week and a half and it's awful. I am taking amoxycillin > since my strep test came back positive. I am confused about why I'm > being treated for strep to get rid of this. I was feeling > significantly better 2 days ago so I was up walking around and doing > things. Then that evening my ankles swelled back up terribly and the > bruises looked awful. So now I'm couch bound again. > > I'm concerned about how long it's going to take for this to go away. > Will taking amoxycillin really help me? Thank you for any advice you > can offer. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2009 Report Share Posted January 6, 2009 Yes I am starting to wonder if there is any sort of connection with me getting EN shortly after having my baby. I am going back to the doctor tomorrow and I'll see what she thinks. I haven't gotten much better. I went back to work yesterday and after sitting at my desk for only 1.5 hours my ankles swelled back up terribly and I have a few more nodules on my legs. Like I said before, I have had strep MANY times and have never experienced anything like this. > > From: tams1728 <tams1728yahoo (DOT) com> > Subject: [erythema_nodosum_ Group] Another new member > To: erythema_nodosum_ Group@yahoogroup s.com > Date: Friday, January 2, 2009, 12:27 PM > > > Hello, I was just diagnosed with EN 5 days ago. I've had the symptoms > for about a week and a half and it's awful. I am taking amoxycillin > since my strep test came back positive. I am confused about why I'm > being treated for strep to get rid of this. I was feeling > significantly better 2 days ago so I was up walking around and doing > things. Then that evening my ankles swelled back up terribly and the > bruises looked awful. So now I'm couch bound again. > > I'm concerned about how long it's going to take for this to go away. > Will taking amoxycillin really help me? Thank you for any advice you > can offer. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2009 Report Share Posted January 6, 2009 I also had my first EN flare up after my first pregnancy -- about four months after I delivered. It started with a small nodule andd eventually the swelling and the pain spread to both legs. I remembered the pain as being excruciating especially first thing in the mornig. I was told pregnancy sometimes triggers EN outbreaks but I'm not sure if it's because of our change in hormone level right after delivering. My next flare up occurred almost 25 years later and during the time when I was going through menopausal changes. I don't know if hormones has anything to do with it but in my case it seems like hormones plays a big part. Subject: Re: Another new memberTo: erythema_nodosum_Group Date: Tuesday, January 6, 2009, 6:12 PM Yes I am starting to wonder if there is any sort of connection with megetting EN shortly after having my baby. I am going back to thedoctor tomorrow and I'll see what she thinks. I haven't gotten muchbetter. I went back to work yesterday and after sitting at my deskfor only 1.5 hours my ankles swelled back up terribly and I have a fewmore nodules on my legs. Like I said before, I have had strep MANYtimes and have never experienced anything like this.> > From: tams1728 <tams1728yahoo (DOT) com>> Subject: [erythema_nodosum_ Group] Another new member> To: erythema_nodosum_ Group@yahoogroup s.com> Date: Friday, January 2, 2009, 12:27 PM> > > Hello, I was just diagnosed with EN 5 days ago. I've had the symptoms> for about a week and a half and it's awful. I am taking amoxycillin> since my strep test came back positive. I am confused about why I'm> being treated for strep to get rid of this. I was feeling> significantly better 2 days ago so I was up walking around and doing> things. Then that evening my ankles swelled back up terribly and the> bruises looked awful. So now I'm couch bound again.> > I'm concerned about how long it's going to take for this to go away. > Will taking amoxycillin really help me? Thank you for any advice you> can offer.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2009 Report Share Posted January 6, 2009 I also had my first EN flare up after my first pregnancy -- about four months after I delivered. It started with a small nodule andd eventually the swelling and the pain spread to both legs. I remembered the pain as being excruciating especially first thing in the mornig. I was told pregnancy sometimes triggers EN outbreaks but I'm not sure if it's because of our change in hormone level right after delivering. My next flare up occurred almost 25 years later and during the time when I was going through menopausal changes. I don't know if hormones has anything to do with it but in my case it seems like hormones plays a big part. Subject: Re: Another new memberTo: erythema_nodosum_Group Date: Tuesday, January 6, 2009, 6:12 PM Yes I am starting to wonder if there is any sort of connection with megetting EN shortly after having my baby. I am going back to thedoctor tomorrow and I'll see what she thinks. I haven't gotten muchbetter. I went back to work yesterday and after sitting at my deskfor only 1.5 hours my ankles swelled back up terribly and I have a fewmore nodules on my legs. Like I said before, I have had strep MANYtimes and have never experienced anything like this.> > From: tams1728 <tams1728yahoo (DOT) com>> Subject: [erythema_nodosum_ Group] Another new member> To: erythema_nodosum_ Group@yahoogroup s.com> Date: Friday, January 2, 2009, 12:27 PM> > > Hello, I was just diagnosed with EN 5 days ago. I've had the symptoms> for about a week and a half and it's awful. I am taking amoxycillin> since my strep test came back positive. I am confused about why I'm> being treated for strep to get rid of this. I was feeling> significantly better 2 days ago so I was up walking around and doing> things. Then that evening my ankles swelled back up terribly and the> bruises looked awful. So now I'm couch bound again.> > I'm concerned about how long it's going to take for this to go away. > Will taking amoxycillin really help me? Thank you for any advice you> can offer.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2009 Report Share Posted January 7, 2009 Hi there. First time posting. I have had one EN episode and the nodules are slowly fading. I think it started late September. No underlying cause found but it's interesting that you should mention pregnancy/hormones being a factor. I'm still breastfeeding my 11month old and it has occured to me that my trigger could be hormonal.. [erythema_nodosum_ Group] Another new member> To: erythema_nodosum_ Group@yahoogroup s.com> Date: Friday, January 2, 2009, 12:27 PM> > > Hello, I was just diagnosed with EN 5 days ago. I've had the symptoms> for about a week and a half and it's awful. I am taking amoxycillin> since my strep test came back positive. I am confused about why I'm> being treated for strep to get rid of this. I was feeling> significantly better 2 days ago so I was up walking around and doing> things. Then that evening my ankles swelled back up terribly and the> bruises looked awful. So now I'm couch bound again.> > I'm concerned about how long it's going to take for this to go away. > Will taking amoxycillin really help me? Thank you for any advice you> can offer.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2009 Report Share Posted January 7, 2009 Hi there. First time posting. I have had one EN episode and the nodules are slowly fading. I think it started late September. No underlying cause found but it's interesting that you should mention pregnancy/hormones being a factor. I'm still breastfeeding my 11month old and it has occured to me that my trigger could be hormonal.. [erythema_nodosum_ Group] Another new member> To: erythema_nodosum_ Group@yahoogroup s.com> Date: Friday, January 2, 2009, 12:27 PM> > > Hello, I was just diagnosed with EN 5 days ago. I've had the symptoms> for about a week and a half and it's awful. I am taking amoxycillin> since my strep test came back positive. I am confused about why I'm> being treated for strep to get rid of this. I was feeling> significantly better 2 days ago so I was up walking around and doing> things. Then that evening my ankles swelled back up terribly and the> bruises looked awful. So now I'm couch bound again.> > I'm concerned about how long it's going to take for this to go away. > Will taking amoxycillin really help me? Thank you for any advice you> can offer.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 Hello! I only had one outbreak of this and it was over 5 years ago, just when I finished nursing my daughter and starting the pill. I definitely felt it was hormonal as I also had hot flashes. No underlying cause could be found. > > > > From: tams1728 <tams1728yahoo (DOT) com> > > Subject: [erythema_nodosum_ Group] Another new member > > To: erythema_nodosum_ Group@yahoogroup s.com > > Date: Friday, January 2, 2009, 12:27 PM > > > > > > Hello, I was just diagnosed with EN 5 days ago. I've had the symptoms > > for about a week and a half and it's awful. I am taking amoxycillin > > since my strep test came back positive. I am confused about why I'm > > being treated for strep to get rid of this. I was feeling > > significantly better 2 days ago so I was up walking around and doing > > things. Then that evening my ankles swelled back up terribly and the > > bruises looked awful. So now I'm couch bound again. > > > > I'm concerned about how long it's going to take for this to go away. > > Will taking amoxycillin really help me? Thank you for any advice you > > can offer. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 Hello! I only had one outbreak of this and it was over 5 years ago, just when I finished nursing my daughter and starting the pill. I definitely felt it was hormonal as I also had hot flashes. No underlying cause could be found. > > > > From: tams1728 <tams1728yahoo (DOT) com> > > Subject: [erythema_nodosum_ Group] Another new member > > To: erythema_nodosum_ Group@yahoogroup s.com > > Date: Friday, January 2, 2009, 12:27 PM > > > > > > Hello, I was just diagnosed with EN 5 days ago. I've had the symptoms > > for about a week and a half and it's awful. I am taking amoxycillin > > since my strep test came back positive. I am confused about why I'm > > being treated for strep to get rid of this. I was feeling > > significantly better 2 days ago so I was up walking around and doing > > things. Then that evening my ankles swelled back up terribly and the > > bruises looked awful. So now I'm couch bound again. > > > > I'm concerned about how long it's going to take for this to go away. > > Will taking amoxycillin really help me? Thank you for any advice you > > can offer. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 My first bout of EN began while I was weaning my son and starting the pill. I also developed Hashimoto's thyroiditis around this time, and I had a really bad breast infection due to the weaning, and was put on antibiotics. After 2 years of trying to figure out what caused my EN, my rheumatologist thinks it was an unfortunate confluence of events-- hormonal, drug/infection reaction, and autoimmune hypothyroidism. I went off the pill and started thyroid medication, but went on to have 2 more flare-ups of EN, each one worse than the first. Shortly after my first flare-up began, we started a home remodel project. Our contractor was horribly messy-- drywall dust everywhere, and I'm sure mold spores as well, since we live in a very damp area. I have severe allergies to drywall dust and mold, so I think the exposure may have perpetuated the EN flare-ups. Allergy testing confirmed that molds definitely cause EN bumps in me. After enduring my 3rd bout of EN in 10 months and 9 months of prednisone, I started on Plaquenil to try to quiet my immune system. Either the completion of my house project or the Plaquenil stopped the EN in it's tracks, but the joint pain took a while to resolve. I've been on Plaquenil for almost a year, and I am cutting back my dose by 1/2. So far so good. I'm a lot healthier than I was 2 years ago, and I don't get joint pain or swelling anymore when I'm falling sick. I'm keeping my fingers crossed, although, we are currently getting our contractor back in the house to fix his messy work-- hopefully this won't trigger another flare-up. April Idio. EN 5/07 (currently in remission for almost a year) > > > > > > From: tams1728 <tams1728yahoo (DOT) com> > > > Subject: [erythema_nodosum_ Group] Another new member > > > To: erythema_nodosum_ Group@yahoogroup s.com > > > Date: Friday, January 2, 2009, 12:27 PM > > > > > > > > > Hello, I was just diagnosed with EN 5 days ago. I've > had the symptoms > > > for about a week and a half and it's awful. I am taking > amoxycillin > > > since my strep test came back positive. I am confused > about why I'm > > > being treated for strep to get rid of this. I was > feeling > > > significantly better 2 days ago so I was up walking > around and doing > > > things. Then that evening my ankles swelled back up > terribly and the > > > bruises looked awful. So now I'm couch bound again. > > > > > > I'm concerned about how long it's going to take for > this to go away. > > > Will taking amoxycillin really help me? Thank you for > any advice you > > > can offer. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 My first bout of EN began while I was weaning my son and starting the pill. I also developed Hashimoto's thyroiditis around this time, and I had a really bad breast infection due to the weaning, and was put on antibiotics. After 2 years of trying to figure out what caused my EN, my rheumatologist thinks it was an unfortunate confluence of events-- hormonal, drug/infection reaction, and autoimmune hypothyroidism. I went off the pill and started thyroid medication, but went on to have 2 more flare-ups of EN, each one worse than the first. Shortly after my first flare-up began, we started a home remodel project. Our contractor was horribly messy-- drywall dust everywhere, and I'm sure mold spores as well, since we live in a very damp area. I have severe allergies to drywall dust and mold, so I think the exposure may have perpetuated the EN flare-ups. Allergy testing confirmed that molds definitely cause EN bumps in me. After enduring my 3rd bout of EN in 10 months and 9 months of prednisone, I started on Plaquenil to try to quiet my immune system. Either the completion of my house project or the Plaquenil stopped the EN in it's tracks, but the joint pain took a while to resolve. I've been on Plaquenil for almost a year, and I am cutting back my dose by 1/2. So far so good. I'm a lot healthier than I was 2 years ago, and I don't get joint pain or swelling anymore when I'm falling sick. I'm keeping my fingers crossed, although, we are currently getting our contractor back in the house to fix his messy work-- hopefully this won't trigger another flare-up. April Idio. EN 5/07 (currently in remission for almost a year) > > > > > > From: tams1728 <tams1728yahoo (DOT) com> > > > Subject: [erythema_nodosum_ Group] Another new member > > > To: erythema_nodosum_ Group@yahoogroup s.com > > > Date: Friday, January 2, 2009, 12:27 PM > > > > > > > > > Hello, I was just diagnosed with EN 5 days ago. I've > had the symptoms > > > for about a week and a half and it's awful. I am taking > amoxycillin > > > since my strep test came back positive. I am confused > about why I'm > > > being treated for strep to get rid of this. I was > feeling > > > significantly better 2 days ago so I was up walking > around and doing > > > things. Then that evening my ankles swelled back up > terribly and the > > > bruises looked awful. So now I'm couch bound again. > > > > > > I'm concerned about how long it's going to take for > this to go away. > > > Will taking amoxycillin really help me? Thank you for > any advice you > > > can offer. > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.