Welcome New Member Tina Web-/ Case History/PG member

[Guest guest]

Dear Tina,On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added your information to our "Member Medical History" Files on the Group site and posted it below.You now have Full EN Group privileges.You are receiving ALL EN Group emails, and you may also visit the Erythema Nodosum Group Site:http://health.groups.yahoo.com/group/erythema_nodosum_Group/ whenever you like by logging on with your Yahoo ID and secret password.You do not have to have the group emails delivered to be a member here. Let me know if you want the emails to stop.I hope you will remain a member here to support others even after you go into remission. Since EN IS NOT BEING ACTIVELY RESEARCHED, please take this opportunity to make a generous donation to our "EN Research Fund" to find a cure for this painful disorder.http://www.geocities.com/erythema_nodosum/donate/index.htm Also, please visit our new Erythema Nodosum Websitehttp://www.geocities.com/erythema_nodosum/ We intend to make it the best EN website on the net.Of course you may talk about whatever works or doesn't work for you. We just don't want members selling their products at the site. Welcome to our Friendly Erythema Nodosum Group!Love,Chronic Idiopathic EN since 1968************Tina Web-'s Case History12/29/071. Your name and age: Tina Web-, 582. Your location: Birdsboro, PA3. Your email address: twebwalker@...4. Your Yahoo ID twebwalker5. Describe your erythema nodosum/PG symptoms or, if you do not have EN or PG, please explain why you wish to join this group. PG lesions have appeared on both legs off and on for almost four years. Severe pain, even around some of the scars. My most recent outbreak has been multiple lesions around one ankle. For a few months, I was in a wheelchair because of the most extreme pain yet. At the worst point, I could only scoot on the floor. I was unable to get much sleep because of the pain and I could not shop or prepare food during this period. I attend a wound care center twice a week. I spend most of every week going to appointments and geting tests. The bleeding and drainage can require heavy wound dressings for weeks or months during some phases of the outbreaks. 6. List any other health conditions.I am a Hodgkin's Lymphona survivor. I have been slightly anemic for a year. CT and PET scans reveal enlarged lymph nodes which show up as "reactive", but not cancer when biopsied. I have food sensitivities to grains and bovine dairy. I have type O blood. I sometimes get sores at the back of my neck which last for weeks. I have had repeated sores at the front, top of my nostrils which don't show anything when cultured. I had phneumonia last summer. 7. State what medications or treatments you take for EN, and their effectiveness:I have been using homeopathic mercurialis and calendula, both orally and topically, on the small "pimples" (not the large, open lesions). I take turmeric. I tried Omega 3 oil but can't tell whether or not that may have worsened the condition. I get solumedrol on my special dressings at the wound care clinic and I can't tell that there is much improvement from it. Some of the lesions are healing while others are continuing to spread. It is very difficult to discern whether or not something is helpful because the condition will eventually heal by itself and it always seems to last for months no matter what. Having and area cut out will cause it to heal but I understand that this causes the condition to spread. I have been resisting systemic steroid treatments because I am afraid of the side effects, expecially given my Hodgkin's history. 8. When did you first get erythema nodosum or PG?Spring 20049. How long have you had erythema nodosum or PG?Off and on since then10. Do you agree to treat all EN members with respect?Yes11.Do you agree to post NO advertisements for any products or services? I hope that people can openly share what they find helping them. That is one of the main reasons I am joining the group. I will post no formal advertisements.12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral from another group or person etc.)Google