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Max T's Update

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Hi!

I hope everyone had a wonderful Mother's day. Max has been in his

DOCband for just over 7 weeks now. We are slowly seeing progress.

He will have to have a second band and possibly a third. We have

BCBS and I was wondering if there might be a chance they will pay

something toward the second band. I read a previous post that

mentioned that it is viewed as a continuation of care/treatment. You

never know with these frustrating insurance companies, though!

We have found a new ped who advocates for helmet/band therapy. Our

previous ped was not supportive at all. After sharing this with our

clinician she has arranged for a representative from CT to visit his

office with literature and to meet with him. I was so excited when

she mentioned this. Our situation was so frustrating and scary to go

through...if this would help even one family it would be worth it.

Max is just a little trooper. We've been out and about quite a bit.

I have to admit it was hard for me at first and sometimes still is.

People for the most part are just curious. I had a grandma stop me

at church and ask all about the band. She is so concerned about her

grandchild. It really is a way to educate people and gain more

awareness for plagio.

I still have my up's and down's. Our clinician said this is really

normal. We just keep plugging away. I keep praying for a growth

spurt!!! All my best to the group. Thanks to all of you who have

shared pictures. The little ones are just precious. Sorry to

ramble...just wanted to share a little bit about us. Thanks!

Kathleen (Max's mom, 10.5 months, banded 3/20)

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Kathleen,

Glad to hear that you are seeing some progress. Hang in there -

you'll get there.

Great news about finding a good ped and even better news that CT will

arrange a visit to your old ped to help educate him about plagio and

banding. You're doing a great service to future babies no doubt.

Marci (Mom to )

Oklahoma

> Hi!

>

> I hope everyone had a wonderful Mother's day. Max has been in his

> DOCband for just over 7 weeks now. We are slowly seeing progress.

> He will have to have a second band and possibly a third. We have

> BCBS and I was wondering if there might be a chance they will pay

> something toward the second band. I read a previous post that

> mentioned that it is viewed as a continuation of care/treatment.

You

> never know with these frustrating insurance companies, though!

>

> We have found a new ped who advocates for helmet/band therapy. Our

> previous ped was not supportive at all. After sharing this with

our

> clinician she has arranged for a representative from CT to visit

his

> office with literature and to meet with him. I was so excited when

> she mentioned this. Our situation was so frustrating and scary to

go

> through...if this would help even one family it would be worth it.

>

> Max is just a little trooper. We've been out and about quite a

bit.

> I have to admit it was hard for me at first and sometimes still

is.

> People for the most part are just curious. I had a grandma stop me

> at church and ask all about the band. She is so concerned about

her

> grandchild. It really is a way to educate people and gain more

> awareness for plagio.

>

> I still have my up's and down's. Our clinician said this is really

> normal. We just keep plugging away. I keep praying for a growth

> spurt!!! All my best to the group. Thanks to all of you who have

> shared pictures. The little ones are just precious. Sorry to

> ramble...just wanted to share a little bit about us. Thanks!

>

> Kathleen (Max's mom, 10.5 months, banded 3/20)

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Guest guest

Hi Kathleen,

Glad to hear that Max is rounding out. Glad to hear about your new

ped! Please keep us posted on Max's progress.

> Hi!

>

> I hope everyone had a wonderful Mother's day. Max has been in his

> DOCband for just over 7 weeks now. We are slowly seeing progress.

> He will have to have a second band and possibly a third. We have

> BCBS and I was wondering if there might be a chance they will pay

> something toward the second band. I read a previous post that

> mentioned that it is viewed as a continuation of care/treatment.

You

> never know with these frustrating insurance companies, though!

>

> We have found a new ped who advocates for helmet/band therapy. Our

> previous ped was not supportive at all. After sharing this with

our

> clinician she has arranged for a representative from CT to visit

his

> office with literature and to meet with him. I was so excited when

> she mentioned this. Our situation was so frustrating and scary to

go

> through...if this would help even one family it would be worth it.

>

> Max is just a little trooper. We've been out and about quite a

bit.

> I have to admit it was hard for me at first and sometimes still

is.

> People for the most part are just curious. I had a grandma stop me

> at church and ask all about the band. She is so concerned about

her

> grandchild. It really is a way to educate people and gain more

> awareness for plagio.

>

> I still have my up's and down's. Our clinician said this is really

> normal. We just keep plugging away. I keep praying for a growth

> spurt!!! All my best to the group. Thanks to all of you who have

> shared pictures. The little ones are just precious. Sorry to

> ramble...just wanted to share a little bit about us. Thanks!

>

> Kathleen (Max's mom, 10.5 months, banded 3/20)

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Guest guest

That is just wonderful about Max getting correction already!! Way to

Grow, Max!!

Hat's off to CT for going to the ped's office for a visit. That is

wonderful!!!! CT is so aware/concerned for these babies! I'm also

glad you found a ped that is very supportive of the banding

treatments.

dustie

> Hi!

>

> I hope everyone had a wonderful Mother's day. Max has been in his

> DOCband for just over 7 weeks now. We are slowly seeing progress.

> He will have to have a second band and possibly a third. We have

> BCBS and I was wondering if there might be a chance they will pay

> something toward the second band. I read a previous post that

> mentioned that it is viewed as a continuation of care/treatment.

You

> never know with these frustrating insurance companies, though!

>

> We have found a new ped who advocates for helmet/band therapy. Our

> previous ped was not supportive at all. After sharing this with

our

> clinician she has arranged for a representative from CT to visit

his

> office with literature and to meet with him. I was so excited when

> she mentioned this. Our situation was so frustrating and scary to

go

> through...if this would help even one family it would be worth it.

>

> Max is just a little trooper. We've been out and about quite a

bit.

> I have to admit it was hard for me at first and sometimes still

is.

> People for the most part are just curious. I had a grandma stop me

> at church and ask all about the band. She is so concerned about

her

> grandchild. It really is a way to educate people and gain more

> awareness for plagio.

>

> I still have my up's and down's. Our clinician said this is really

> normal. We just keep plugging away. I keep praying for a growth

> spurt!!! All my best to the group. Thanks to all of you who have

> shared pictures. The little ones are just precious. Sorry to

> ramble...just wanted to share a little bit about us. Thanks!

>

> Kathleen (Max's mom, 10.5 months, banded 3/20)

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Guest guest

Congratulations on progress...any progress is a cause for

celebration.

One suggestion for the stares/curiosity when you are out and

about....we had our son's band painted to look like a Dallas Stars

hockey helmet and we have had so much fun with it. Sadly, his time

in the band has outlasted the Stars playoff run BUT we have had so

many people stop us to ask where we got the cool hat! It doesn't

even occur to them that it could be a medical device.

If you have the talent (we didn't and ended up paying someone) to

decorate it, you might feel more comfortable.

Good luck.

BTW -- One mom I know had hers painted to look like a " sparing

helmet " for boxing with the " everlast " logo on the front. It was so

perfect because they do look like little boxers in their helmets

ready to take on the world!

> Hi!

>

> I hope everyone had a wonderful Mother's day. Max has been in his

> DOCband for just over 7 weeks now. We are slowly seeing progress.

> He will have to have a second band and possibly a third. We have

> BCBS and I was wondering if there might be a chance they will pay

> something toward the second band. I read a previous post that

> mentioned that it is viewed as a continuation of care/treatment.

You

> never know with these frustrating insurance companies, though!

>

> We have found a new ped who advocates for helmet/band therapy. Our

> previous ped was not supportive at all. After sharing this with

our

> clinician she has arranged for a representative from CT to visit

his

> office with literature and to meet with him. I was so excited when

> she mentioned this. Our situation was so frustrating and scary to

go

> through...if this would help even one family it would be worth it.

>

> Max is just a little trooper. We've been out and about quite a

bit.

> I have to admit it was hard for me at first and sometimes still

is.

> People for the most part are just curious. I had a grandma stop me

> at church and ask all about the band. She is so concerned about

her

> grandchild. It really is a way to educate people and gain more

> awareness for plagio.

>

> I still have my up's and down's. Our clinician said this is really

> normal. We just keep plugging away. I keep praying for a growth

> spurt!!! All my best to the group. Thanks to all of you who have

> shared pictures. The little ones are just precious. Sorry to

> ramble...just wanted to share a little bit about us. Thanks!

>

> Kathleen (Max's mom, 10.5 months, banded 3/20)

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