Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Hi Di, I think it is a combination of all that you mentioned. Especially the progress that is being made with ms. It surely appears that a lot, a whole lot of ms'er's are beating, overcoming and winning with ms. I mean actually eliminating certain symptoms and problems. I see a lot of success with a lot of folks. What is disturbing is the lack of publicity regarding these success's. It seems that if there is not a lot of money to publicize these things or something sensational to report it just falls by the wayside. To me, the simple fact that these things are occurring is sensational. Unfortunately medicine and disease are BIG BUSINESS. I hate to be so cynical but why is there no positive press about these things?? We ms'er's have more hope than ever before. More results than ever before. What we don't have is ........proof. We have tons of anecdotal experiences, results, and victories but not conclusive proof. Well to my mind success and results are proof. I am excited because I know that we the ms'er's know more about ms than medicine. We the ms'er's are defeating and finding more solutions and answer's than medicine. I truly believe that the victory is almost 'At Hand'. Not yet, but almost. This is why I am so excited and I surely am excited about winning with ms. Regards, Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Hi Tom! -----Original Message----- From: tmbayuk I think it is a combination of all that you mentioned. Especially the progress that is being made with ms. It surely appears that a lot, a whole lot of ms'er's are beating, overcoming and winning with ms. I mean actually eliminating certain symptoms and problems. I see a lot of success with a lot of folks. What is disturbing is the lack of publicity regarding these success's. It seems that if there is not a lot of money to publicize these things or something sensational to report it just falls by the wayside. To me, the simple fact that these things are occurring is sensational. Unfortunately medicine and disease are BIG BUSINESS. I hate to be so cynical but why is there no positive press about these things?? We ms'er's have more hope than ever before. More results than ever before. What we don't have is .......proof. We have tons of anecdotal experiences, results, and victories but not conclusive proof. Well to my mind success and results are proof. I am excited because I know that we the ms'er's know more about ms than medicine. We the ms'er's are defeating and finding more solutions and answer's than medicine. I truly believe that the victory is almost 'At Hand'. Not yet, but almost. This is why I am so excited and I surely am excited about winning with ms. >>>>> You bring up excellent points. To me, the number one problem with these success stories is the lack of a 'one size fits all' regime. Doctors don't like to tinker and most sick people really don't like to hear 'Try this, it might help'. This disease is not like Measles or even cancer. There is the business side to it but the really frustrating side is the continous search people have to do to find what works for them. Jeff's protocol is excellent and I commend Jeff for his efforts to document what works but this is only his success story. There are too many variables to do a double blind/placebo type study on. I think that in the next 20 years, a more flexible approach to healing will develop but right now everyone is looking for the 'silver bullet' cure all for MS and our approach to this disease will not get much attention. For this reason, I appreciate the Internet and the CureZone website. It offers a clearinghouse for alternative approaches and lets people decide for themselves. Just my 2 cents on this question, Tom Nesler Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 > The starting list > Magnesium # 1786-6 > Calcium # 823-5 > Potassium # 1673-3 [snip] Hi Jeff What are those ID numbers following your recommendations? I googled on one of 'em, and came up empty. Also - about how much $$$/month is all of this? Thanks, -Dave http://www.daveboll.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 PUBLICITY ISDIFFICULT, given that the societies 'dedicated to helping MS sufferers ' only seem to want to go down the route dictated by the POWERS THAT BE if you try to put anything alternative on their website they just ignore it,so it is really marvellous to have a site like this one, where all sorts of helpful ideas can be aired A few years ago, I read an article in one such magazine which suggested that symptoms such as I had then, meant that I was 'on the way out' it referred to a case study bout a lady whose husband wanted to put her into a home against her wishes since coming off tablets containing ASPARTAME, and going on the ER4YT diet I am now feeling a lot better, and am off most of the painkillers that I was on , and can think more clearly, and am in very little pain compared to what I was ( I am now at retirement age) Also am srill living at home thaks to a husband who is prepared to try new ideas Elaine > >Reply-To: mscured >To: <mscured > >Subject: RE: Re: Back from Fishin' >Date: Fri, 12 Mar 2004 09:31:40 -0600 > >Hi Tom! >-----Original Message----- >From: tmbayuk > >I think it is a combination of all that you mentioned. Especially the >progress that is being made with ms. It surely appears that a lot, a >whole lot of ms'er's are beating, overcoming and winning with ms. I >mean actually eliminating certain symptoms and problems. I see a lot of >success with a lot of folks. > >What is disturbing is the lack of publicity regarding these success's. >It seems that if there is not a lot of money to publicize these things >or something sensational to report it just falls by the wayside. > >To me, the simple fact that these things are occurring is sensational. >Unfortunately medicine and disease are BIG BUSINESS. I hate to be so >cynical but why is there no positive press about these things?? We >ms'er's have more hope than ever before. More results than ever before. >What we don't have is .......proof. We have tons of anecdotal >experiences, results, and victories but not conclusive proof. Well to >my mind success and results are proof. I am excited because I know that >we the ms'er's know more about ms than medicine. We the ms'er's are >defeating and finding more solutions and answer's than medicine. I >truly believe that the victory is almost 'At Hand'. Not yet, but >almost. This is why I am so excited and I surely am excited about >winning with ms. > >>>>> > >You bring up excellent points. To me, the number one problem with these >success stories is the lack of a 'one size fits all' regime. Doctors >don't like to tinker and most sick people really don't like to hear 'Try >this, it might help'. > >This disease is not like Measles or even cancer. There is the business >side to it but the really frustrating side is the continous search >people have to do to find what works for them. > >Jeff's protocol is excellent and I commend Jeff for his efforts to >document what works but this is only his success story. There are too >many variables to do a double blind/placebo type study on. > >I think that in the next 20 years, a more flexible approach to healing >will develop but right now everyone is looking for the 'silver bullet' >cure all for MS and our approach to this disease will not get much >attention. > >For this reason, I appreciate the Internet and the CureZone website. It >offers a clearinghouse for alternative approaches and lets people decide >for themselves. > >Just my 2 cents on this question, > >Tom Nesler _________________________________________________________________ It's fast, it's easy and it's free. Get MSN Messenger today! http://www.msn.co.uk/messenger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Hi Elaine, There is no doubt in my mind that the very best information for ms comes from us, the patients. During the last 20 yrs with ms I have never met or talked with an ms'er that did not sincerely want to help another ms'er. We can trust each other, the doc's just seem to not know or experiment with drugs. Your husband is a winner and so are you. Regards, Tom Quote Link to comment Share on other sites More sharing options...
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