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Re: dr. appt.

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, I think that it is good news, because I have been very apprehensive

about using The Vest therapy. I think that the answer is that the doctors do

not have the answer. He was a bit puzzled and suggested that the cyanosis

might be due to the pressure of The Vest on the superficial blood vessels around

the chest during treatment. My skin is very thin and I am slim in build so

perhaps he is right. in Ca.

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Tina, You are so right. I also think that with all the new technologies

nowadays that doctors are able to find physical flaws that were never

investigated

in the old days. The heart is such a strong organ and can withstand amazing

physical traumas. Who knows how many children are running around with minor

developmental heart defects. Does Jonathon's facial color change at times?

in Ca.

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so, claire, am i to understand that this represents good news and dubious news?

it's so good when we hear that our hearts are working ok isn't it?

jennifer in canadaBCSCOFFMAN@... wrote:

Hi Norma! I just got back from the Cardiologist. Got some good news for both of us. He did a stress test and some other test on the table. Then discussed the valve problems. About the mitral valve ...He said it is no longer anything to worry about because statistics show that a larger population is showing a prolapsed mitral valve than was previously known, and that it is no longer considered to be of any consequence.. As for the tricuspid valve leak, that is now considered an age related syndrome and not a problem to be concerned about either. So I left the office in a more positive frame of mind. My b.p. is normal and the heart is functioning normally for my age. He said that I should not worry about the blue color change that occurs after I use The Vest. He thinks that it must have something to do with mucus shifting.

Personally I don't agree with that assessment because I asked the Pulmonologist about it and I was referred back to the Cardiologist. . in Ca.Post your free ad now! Yahoo! Canada Personals

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so, claire, am i to understand that this represents good news and dubious news?

it's so good when we hear that our hearts are working ok isn't it?

jennifer in canadaBCSCOFFMAN@... wrote:

Hi Norma! I just got back from the Cardiologist. Got some good news for both of us. He did a stress test and some other test on the table. Then discussed the valve problems. About the mitral valve ...He said it is no longer anything to worry about because statistics show that a larger population is showing a prolapsed mitral valve than was previously known, and that it is no longer considered to be of any consequence.. As for the tricuspid valve leak, that is now considered an age related syndrome and not a problem to be concerned about either. So I left the office in a more positive frame of mind. My b.p. is normal and the heart is functioning normally for my age. He said that I should not worry about the blue color change that occurs after I use The Vest. He thinks that it must have something to do with mucus shifting.

Personally I don't agree with that assessment because I asked the Pulmonologist about it and I was referred back to the Cardiologist. . in Ca.Post your free ad now! Yahoo! Canada Personals

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Pulmonologists and cardiologists often argue over whose organ is to blame for cyanosis. So long as it is fleeting and resolves reasonably quickly it is not a major worry.

As for the Tricuspid leak...hmmmm has a tricuspid leak at 14????

He also has moderate mitral valve leakage which he has had since his heart surgery at a year old.

He has had problems with High pulmonary pressures which is the only issue that both Pulmonologist and cardiologist agree on...at the moment it is not an issue but needs to be watched as it can easily become a serious issue!

Hugs

Tina Hillier Mum to , 14 years old and possesor of an Extra Special Chromosome. Rosie 12 ( who enjoys a life enhanced by the Joys and Trial of CdLS) 7, A budding Artist and Singer, And who is 6 years old and a lovely friend! Isle of Wight UK http://uk.photos.yahoo.com/tdlhillier mailto:tdlhillier@...

www.cdlsrosie.homestead.com

I do not know what the future holds, But I am glad I know who holds the Future.

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, I also have a mitral valve prolapse (had it over 25 yrs). And it is

true, you don't have to be too concerned about it. The only thing I have to

worry about is when I have my teeth cleaned or worked on. I have to take

antibiotics that day. They claim if your gums bleed bacteria can get into

your blood stream and damage your heart. Anyone else have this problem?

>From: BCSCOFFMAN@...

>Reply-To: bronchiectasis

>To: Nor236@..., Bronchiectasis@yahoo groups.com

>Subject: dr. appt.

>Date: Tue, 28 Sep 2004 16:35:08 EDT

>

>Hi Norma! I just got back from the Cardiologist. Got some good news for

>both of us. He did a stress test and some other test on the table. Then

>discussed

>the valve problems. About the mitral valve ...He said it is no longer

>anything to worry about because statistics show that a larger population is

>showing a

>prolapsed mitral valve than was previously known, and that it is no longer

>considered to be of any consequence.. As for the tricuspid valve leak, that

>is

>now considered an age related syndrome and not a problem to be concerned

>about

>either. So I left the office in a more positive frame of mind. My b.p. is

>normal and the heart is functioning normally for my age. He said that I

>should not

> worry about the blue color change that occurs after I use The Vest. He

>thinks that it must have something to do with mucus shifting. Personally I

>don't

>agree with that assessment because I asked the Pulmonologist about it and I

>was

>referred back to the Cardiologist. . in Ca.

_________________________________________________________________

Check out Election 2004 for up-to-date election news, plus voter tools and

more! http://special.msn.com/msn/election2004.armx

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, I also have a mitral valve prolapse (had it over 25 yrs). And it is

true, you don't have to be too concerned about it. The only thing I have to

worry about is when I have my teeth cleaned or worked on. I have to take

antibiotics that day. They claim if your gums bleed bacteria can get into

your blood stream and damage your heart. Anyone else have this problem?

>From: BCSCOFFMAN@...

>Reply-To: bronchiectasis

>To: Nor236@..., Bronchiectasis@yahoo groups.com

>Subject: dr. appt.

>Date: Tue, 28 Sep 2004 16:35:08 EDT

>

>Hi Norma! I just got back from the Cardiologist. Got some good news for

>both of us. He did a stress test and some other test on the table. Then

>discussed

>the valve problems. About the mitral valve ...He said it is no longer

>anything to worry about because statistics show that a larger population is

>showing a

>prolapsed mitral valve than was previously known, and that it is no longer

>considered to be of any consequence.. As for the tricuspid valve leak, that

>is

>now considered an age related syndrome and not a problem to be concerned

>about

>either. So I left the office in a more positive frame of mind. My b.p. is

>normal and the heart is functioning normally for my age. He said that I

>should not

> worry about the blue color change that occurs after I use The Vest. He

>thinks that it must have something to do with mucus shifting. Personally I

>don't

>agree with that assessment because I asked the Pulmonologist about it and I

>was

>referred back to the Cardiologist. . in Ca.

_________________________________________________________________

Check out Election 2004 for up-to-date election news, plus voter tools and

more! http://special.msn.com/msn/election2004.armx

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You are right about dental precautions. I used to take Penicillin tabs when

getting my teeth cleaned. The last few years I would just clean thoroughly and

rinse with a strong medicated mouthwash before going to the dentist. But

still would get the occasional bleed from the gum. I have cut my dental cleaning

visits to just once a year now. in Ca.

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