Guest guest Posted July 17, 2007 Report Share Posted July 17, 2007 Dear Group Members. This email is my once yearly " Special Notice " to bring you up to date. Today our EN Group marks its 4th Birthday. I'd like to thank all members for their support and participation over the past year. Our EN Group consists of members with PG, RA, Sarcoidosis and the many related disorders. We have over a dozen " Resource Members " including Jeff for PG and lie for RA who consistently help fellow members in need of information, support, and friendship. http://health.groups.yahoo.com/group/erythema_nodosum_Group/database?method=repo\ rtRows & tbl=19 Your willingness to help each other is inspiring. Our Group has grown from a handful of founding members in 2003 to over 1600. We are continuing our partnership with NORD [National Org. for Rare Disorders] to raise money for EN Medical Research. Kay offered our group a lovely Kay Mother's Day Gift Set and donated her entire profit to our EN Research Fund. It amounted to $255, the largest single donation to date. http://health.groups.yahoo.com/group/erythema_nodosum_Group/database?method=repo\ rtRows & tbl=18 Thanks for all your donations! Debbie came up with the idea of setting up a Pledge Drive for EN Research and she has pledged $20 per month for a year. This amounts to about 65 cents a day and raises $240/yr. Any pledge amount is welcome. To put your name on the list and find donating instructions go to: http://health.groups.yahoo.com/group/erythema_nodosum_Group/database?method=repo\ rtRows & tbl=20 Click on " add record " before and after you type in your information. Baron and her friend Ron McLean updated and transformed our EN website into one of the best EN sites on the internet: http://www.geocities.com/erythema_nodosum/ In addition to her Web Master duties, regularly posts " Inspirational Quotes " on our message board. Medical Doctors and Researchers now have easy access to our complete list of Triggers and Causes of EN http://www.geocities.com/erythema_nodosum/en_triggers/index.htm as well as the best information for EN in one location. To assist Researchers we have included our Group's EN Theories as well as a sample study proposal linking stress hormone to EN: http://www.geocities.com/erythema_nodosum/doctor_invitation/index.htm http://www.geocities.com/erythema_nodosum/rebecca/index.htm Instructions to donate to our EN Research Fund through NORD and use GoodSearch Search engine to augment our fund are included on nearly every page of our New website: http://www.geocities.com/erythema_nodosum/donate/index.htm McUmber, our co-moderator continues to work behind the scenes and gives me valuable input. A new EN sister group has been set up called ENFundraisers: http://health.groups.yahoo.com/group/enfundraisers/ If you are interested in seeing what we are doing and plan to do, please check out our new Group Site. If you are willing to put in the work, consider joining us. We need to raise a total of $35,000 for NORD to establish the EN Research Grant. We have the membership to do this if we all contribute. The sooner we reach our goal, the faster the research can begin. Because our group is international, many of our members are not American and will need to convert their funds to US dollars to contribute. Please don't let this extra step stop you from donating. We are all affected by EN, so we need to work together to cure it. If you have gotten value from your EN Group Membership, please contribute whatever money you can either by outright donation or in Pledge Form to put an end to EN for us all. I know we can end EN suffering if we all contribute what we can, and I am confident that our Group will take up the challenge to do this for ourselves and humanity. If you have suggestions on how to improve our Group or accelerate our Fund Raising, please contact me at strecker@... Wishing Everyone a Happy and Pain-free Day! Love, Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.