Re:Welcome New Member, a/Chronic EN

[Guest guest]

Dear a,On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added your information to our "Member Medical History" Files on the Group site and posted it below.You now have Full EN Group privileges.You are receiving ALL EN Group emails, and you may also visit the Erythema Nodosum Group Site:http://health.groups.yahoo.com/group/erythema_nodosum_Group/ whenever you like by logging on with your Yahoo ID and secret password.You do not have to have the group emails delivered to be a member here.I hope you will remain a member here to support others even after you go into remission. Since EN IS NOT BEING ACTIVELY RESEARCHED, please take this opportunity to make a generous donation to our "EN Research Fund" to find a cure for this painful disorder. Instructions have been sent to you.Also, please visit our new Erythema Nodosum Websitehttp://www.geocities.com/erythema_nodosum/ We intend to make it the best EN website on the net.I understand your concern. None of the conditions you have is related to EN, so we must make sure you have been tested for other conditions that are. I assume that you have had a chest x-ray as well as many blood tests and a biopsy of the lumps. This will rule out many common triggers of EN. Please look at our New Website for Triggers and see if any may be what started your EN. Often drugs can trigger EN. Are you allergic to sulphur? Some diabetic meds have sulphur and that could be triggering your EN. Also female hormones can cause EN, so if you are taking HRT that could trigger it. There is a lot to explore and I hope you will avail yourself of all our resources. We should be able to figure this out if we look carefully. I don't like to call anyone "idiopathic" without a good hard look. Welcome to our Friendly Erythema Nodosum Group!Love,Chronic Idiopathic EN since 1968> > 1. Your name : a> > 2. your age:54> > 3. Your location: Brookhaven> > 4. Your email address:eskimo5053@...> > 5. Your Yahoo ID:eskimo5053> > 6. Describe your erythema nodosum symptoms or, if you do not have EN or PG, please explain why you wish to join this group.> swollen red lumps, swollen legs from the toes to the knees, lotsa pain, sometimes I actually feel like sharp pains where the bumps are, my knees are really bad right now I can hardly walk, like today they are real hot ,and painful I am wearing my hose that the Univ. of Penn gave me to wear. I need help knowing that the drs. are doing all the right tests and giving me the right meds. I needed to know that I am not the only one with this condition. Everyone that sees my legs cannot believe how bad that look. I also have bumps on the bottom of my feet. In the very beginning I did have a bruise on my right leg a large one. This has not happened anymore> > > 7. List any other health conditions.> Tachycardia, heart arythmia, diabetes, glaucoma, high blood pressure> > > 8. State what medications/treatments you take for EN or PG and their effectiveness:> I am on plaquenil, dapsone and a new med starts with letters Quen and it can only be made in certain pharmacies. I also had alot of prednisone treatments.> > > 9. When did you first get erythema nodosum or PG?> June 5,2006> 10. How long have you had erythema nodosum or PG?> 17 months> 11. Do you agree to treat all EN members with respect?> yes> 12.Do you agree to post NO advertisements for any products or service?> yes> 13 How did you find this group? ( Google Search , MSN Search, Yahoo Search, Referral from another Group or person?)> I was told that they should have a group chat line about this disease

[Guest guest]

Dear , Thankyou so much for answereing my questionaire so fast. I must be an idiot but what is idiopathic EN?? I was looking at all the med's people have taken and I noticed that not too many take Plaquenil, and Dapsone together plus the third med either prednisone or the new one that they are using until December ( Quinacrine ) is the other med. I have had the biopsy on the lump and chest xray and alot of blood work since June of 2006. Yes, I take a # of other drugs, Altace Crestor, metformin, Toprol and Calcium w/vitamin D. Hope this helps. Thanks again. Strecker wrote: Dear a,On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added your information to our "Member Medical History" Files on the Group site and posted it below.You now have Full EN Group privileges.You are receiving ALL EN Group emails, and you may also visit the Erythema Nodosum Group Site:http://health.groups.yahoo.com/group/erythema_nodosum_Group/ whenever you like by logging on with your Yahoo ID and secret password.You do

not have to have the group emails delivered to be a member here.I hope you will remain a member here to support others even after you go into remission. Since EN IS NOT BEING ACTIVELY RESEARCHED, please take this opportunity to make a generous donation to our "EN Research Fund" to find a cure for this painful disorder. Instructions have been sent to you.Also, please visit our new Erythema Nodosum Websitehttp://www.geocities.com/erythema_nodosum/ We intend to make it the best EN website on the net.I understand your concern. None of the conditions you have is related to EN, so we must make sure you have been tested for other conditions that are. I assume that you have had a chest x-ray as well as many blood tests and a biopsy of the lumps. This will rule out many common triggers of

EN. Please look at our New Website for Triggers and see if any may be what started your EN. Often drugs can trigger EN. Are you allergic to sulphur? Some diabetic meds have sulphur and that could be triggering your EN. Also female hormones can cause EN, so if you are taking HRT that could trigger it. There is a lot to explore and I hope you will avail yourself of all our resources. We should be able to figure this out if we look carefully. I don't like to call anyone "idiopathic" without a good hard look. Welcome to our Friendly Erythema Nodosum Group!Love,Chronic Idiopathic EN since 1968> > 1. Your name : a> > 2. your age:54> > 3. Your location: Brookhaven> > 4. Your email address:eskimo5053@...> > 5. Your Yahoo ID:eskimo5053> > 6.

Describe your erythema nodosum symptoms or, if you do not have EN or PG, please explain why you wish to join this group.> swollen red lumps, swollen legs from the toes to the knees, lotsa pain, sometimes I actually feel like sharp pains where the bumps are, my knees are really bad right now I can hardly walk, like today they are real hot ,and painful I am wearing my hose that the Univ. of Penn gave me to wear. I need help knowing that the drs. are doing all the right tests and giving me the right meds. I needed to know that I am not the only one with this condition. Everyone that sees my legs cannot believe how bad that look. I also have bumps on the bottom of my feet. In the very beginning I did have a bruise on my right leg a large one. This has not happened anymore> > > 7. List any other health conditions.> Tachycardia, heart arythmia, diabetes, glaucoma, high blood pressure> > > 8. State what

medications/treatments you take for EN or PG and their effectiveness:> I am on plaquenil, dapsone and a new med starts with letters Quen and it can only be made in certain pharmacies. I also had alot of prednisone treatments.> > > 9. When did you first get erythema nodosum or PG?> June 5,2006> 10. How long have you had erythema nodosum or PG?> 17 months> 11. Do you agree to treat all EN members with respect?> yes> 12.Do you agree to post NO advertisements for any products or service?> yes> 13 How did you find this group? ( Google Search , MSN Search, Yahoo Search, Referral from another Group or person?)> I was told that they should have a group chat line about this disease __________________________________________________

[Guest guest]

Dear , Thankyou so much for answereing my questionaire so fast. I must be an idiot but what is idiopathic EN?? I was looking at all the med's people have taken and I noticed that not too many take Plaquenil, and Dapsone together plus the third med either prednisone or the new one that they are using until December ( Quinacrine ) is the other med. I have had the biopsy on the lump and chest xray and alot of blood work since June of 2006. Yes, I take a # of other drugs, Altace Crestor, metformin, Toprol and Calcium w/vitamin D. Hope this helps. Thanks again. Strecker wrote: Dear a,On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added your information to our "Member Medical History" Files on the Group site and posted it below.You now have Full EN Group privileges.You are receiving ALL EN Group emails, and you may also visit the Erythema Nodosum Group Site:http://health.groups.yahoo.com/group/erythema_nodosum_Group/ whenever you like by logging on with your Yahoo ID and secret password.You do

not have to have the group emails delivered to be a member here.I hope you will remain a member here to support others even after you go into remission. Since EN IS NOT BEING ACTIVELY RESEARCHED, please take this opportunity to make a generous donation to our "EN Research Fund" to find a cure for this painful disorder. Instructions have been sent to you.Also, please visit our new Erythema Nodosum Websitehttp://www.geocities.com/erythema_nodosum/ We intend to make it the best EN website on the net.I understand your concern. None of the conditions you have is related to EN, so we must make sure you have been tested for other conditions that are. I assume that you have had a chest x-ray as well as many blood tests and a biopsy of the lumps. This will rule out many common triggers of

EN. Please look at our New Website for Triggers and see if any may be what started your EN. Often drugs can trigger EN. Are you allergic to sulphur? Some diabetic meds have sulphur and that could be triggering your EN. Also female hormones can cause EN, so if you are taking HRT that could trigger it. There is a lot to explore and I hope you will avail yourself of all our resources. We should be able to figure this out if we look carefully. I don't like to call anyone "idiopathic" without a good hard look. Welcome to our Friendly Erythema Nodosum Group!Love,Chronic Idiopathic EN since 1968> > 1. Your name : a> > 2. your age:54> > 3. Your location: Brookhaven> > 4. Your email address:eskimo5053@...> > 5. Your Yahoo ID:eskimo5053> > 6.

Describe your erythema nodosum symptoms or, if you do not have EN or PG, please explain why you wish to join this group.> swollen red lumps, swollen legs from the toes to the knees, lotsa pain, sometimes I actually feel like sharp pains where the bumps are, my knees are really bad right now I can hardly walk, like today they are real hot ,and painful I am wearing my hose that the Univ. of Penn gave me to wear. I need help knowing that the drs. are doing all the right tests and giving me the right meds. I needed to know that I am not the only one with this condition. Everyone that sees my legs cannot believe how bad that look. I also have bumps on the bottom of my feet. In the very beginning I did have a bruise on my right leg a large one. This has not happened anymore> > > 7. List any other health conditions.> Tachycardia, heart arythmia, diabetes, glaucoma, high blood pressure> > > 8. State what

medications/treatments you take for EN or PG and their effectiveness:> I am on plaquenil, dapsone and a new med starts with letters Quen and it can only be made in certain pharmacies. I also had alot of prednisone treatments.> > > 9. When did you first get erythema nodosum or PG?> June 5,2006> 10. How long have you had erythema nodosum or PG?> 17 months> 11. Do you agree to treat all EN members with respect?> yes> 12.Do you agree to post NO advertisements for any products or service?> yes> 13 How did you find this group? ( Google Search , MSN Search, Yahoo Search, Referral from another Group or person?)> I was told that they should have a group chat line about this disease __________________________________________________