Guest guest Posted February 8, 2004 Report Share Posted February 8, 2004 Click here: My Breathing Jouney Home Hey Guys Here is a website I did on myself. Im not done but its a start. They DX me with Shwachman Diamond Syndorme in November instead of Cystic Fibrosis. Regardless of whether its CF or SDS the digestive and lung symptoms are the same ( per Dr. Keller )...b/c of all the infections and lung damage...it basicallly got me to the same darn place as what happens in end stage CF.....anyways......... It talks about my need for new lungs and whatnot. I will add a phot page eventually and whatnot but I am whiped out right now. Becki Life is not measured by the number of breaths we take, but by the moments that take our breath away. Listed for Lungs 1/14/04 at Mayo Clinic ville,Fla. YOUNGLUNG EMAIL SUPPORT LIST www.topica.com/lists/younglung Pediatric Interstitial Lung Disease Society http://groups.yahoo.com/group/InterstitialLung_Kids/ Quote Link to comment Share on other sites More sharing options...
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