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Hi, I'm 34 female and brand new to the list and fairly new to my PA

diagnosis. But, NOT new to the oral night guard I wear in my mouth

every night. It is prescribed by my dentist to help with jaw joint

pain, and wear and tear on teeth due mostly to teeth grinding at

night and jaw clenching in day. I've been wearing one for almost ten

years. Apparently I grind a lot because I'm about to grind through

and break my second one. I also wear it during the day when I am

having very stressful times but it causes a lisp so I don't wear it

if I have to talk to people other than family much.

It is a molded plastic upper only mouthpiece that covers the teeth

and part of the gums inside the teeth. It is molded specifically for

your mouth including the bite. My jaw was soooo tight when he did

the first one the dentist had to lean on me to get it loosened up

properly to set the mold right.

The other thing to watch out for with joint pain is to stop chewing

gum. I rarely chew gum and when I do I spit it out in 5 minutes.

This keeps those muscles from getting tensed up and pulling the jaw

out of alignment.

Hope this helps you all! Never thought of this being related to my

arthritis but I'll ask my dentist next I see him.

Kim

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  • 1 year later...
Guest guest

My mom pointed out to me the other day Madison seems to have an

underbite. I had noticed it but she has 2 teeth on bottom and 4

coming in on the top and I just thought once those top teeth were in

it'd be ok. My husband thinks it isn't like that all the time and now

she is bored of the " show me your teeth " game! I keep trying to peek!

Anyone know about this? Do I tell the neuro? Do I call the dentist?

Will the helmet help if it is related?

Danette

Mommy to 3-16-99 and

Madison 4-25-02

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  • 4 years later...
Guest guest

~

Yes, I have terrible jaw problems. They both crunch

and snap crackle and pop when I move them, and

dull aches in them, and you can just press in on my

jaws without me moving them, and it crunches. I have

severe TMJ . I am a previous silicone rupture patient.

Hugs ~ DedeDelicious ideas to please the pickiest eaters. Watch the video on AOL Living.

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Guest guest

~

Yes, I have terrible jaw problems. They both crunch

and snap crackle and pop when I move them, and

dull aches in them, and you can just press in on my

jaws without me moving them, and it crunches. I have

severe TMJ . I am a previous silicone rupture patient.

Hugs ~ DedeDelicious ideas to please the pickiest eaters. Watch the video on AOL Living.

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Did any of you ladies have problems with your jaw? saxony01 <saxony01@...> wrote: Thanks (and all you wonderful ladies)I'm going to be fine. I'm working on attitude adjustment - big time!This cancer is very treatable - just horribly disrupting right now!I wish Lynda's was as treatable.You're going to be so happy to get those toxic

bombs out! . . . Dr. Kolb will take excellent care of you!Hugs and prayers,Rogene

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Did any of you ladies have problems with your jaw? saxony01 <saxony01@...> wrote: Thanks (and all you wonderful ladies)I'm going to be fine. I'm working on attitude adjustment - big time!This cancer is very treatable - just horribly disrupting right now!I wish Lynda's was as treatable.You're going to be so happy to get those toxic

bombs out! . . . Dr. Kolb will take excellent care of you!Hugs and prayers,Rogene

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,No . . . I've had one ear that has been bouncing between a bacterial and fungal infection for years. I should have seen an ENT long ago . . .Actually I saw several ENTs, but they didn't help, so I gave up. . . I should have kept looking for a doctor who knew what to do.Rogene

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,No . . . I've had one ear that has been bouncing between a bacterial and fungal infection for years. I should have seen an ENT long ago . . .Actually I saw several ENTs, but they didn't help, so I gave up. . . I should have kept looking for a doctor who knew what to do.Rogene

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I just looked up TMJ and its association with implants. I didn't

search for long but came across this story of a daughter who had facial

implants for TMJ. Her symptoms are strikingly similar to ours.

http://www.tmj.org/karen.asp

~PH

>

> ~

> Yes, I have terrible jaw problems. They both crunch

> and snap crackle and pop when I move them, and

> dull aches in them, and you can just press in on my

> jaws without me moving them, and it crunches. I have

> severe TMJ . I am a previous silicone rupture patient.

> Hugs ~ Dede

>

>

>

> **************Ideas to please picky eaters. Watch video on AOL

Living.

> (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-

campos-duffy/

> 2050827?NCID=aolcmp00300000002598)

>

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Guest guest

I just looked up TMJ and its association with implants. I didn't

search for long but came across this story of a daughter who had facial

implants for TMJ. Her symptoms are strikingly similar to ours.

http://www.tmj.org/karen.asp

~PH

>

> ~

> Yes, I have terrible jaw problems. They both crunch

> and snap crackle and pop when I move them, and

> dull aches in them, and you can just press in on my

> jaws without me moving them, and it crunches. I have

> severe TMJ . I am a previous silicone rupture patient.

> Hugs ~ Dede

>

>

>

> **************Ideas to please picky eaters. Watch video on AOL

Living.

> (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-

campos-duffy/

> 2050827?NCID=aolcmp00300000002598)

>

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TMJ complications are very, very tragic stories. I've read others

besides this one that have been absolutely gut wrenching. We are

certainly not alone in our suffering from the evils of failed

implants. It's criminal what has been done to human beings in the

name of medicine.

I myself could have been one of those TMJ victims. Right after I got

married, and before I received breast implants, I had TMJ issues. I

saw an oral surgeon who wanted to do surgery on my jaw and put in one

of these horrible implants. All I can say is PRAISE GOD that He was

watching out for me!!! I found out I was pregnant with my daughter,

so I could not have the needed MRI done, nor the surgery. I remember

the surgeon being so upset and frustrated that I could not get this

treatment. He sold me this expensive jaw appliance instead that I

never wore because it interefered with everything I did.

The best part was that miraculously, that jaw popping and crunching

eventually healed itself and I never have had any other issues with

it since.

Buyer beware when it comes to medical doctors! That was the lesson

I've learned over and over again, and breast implants was the final

straw! Does anyone wonder why I am so skeptical about what doctors

do anymore?

Patty

> >

> > ~

> > Yes, I have terrible jaw problems. They both crunch

> > and snap crackle and pop when I move them, and

> > dull aches in them, and you can just press in on my

> > jaws without me moving them, and it crunches. I have

> > severe TMJ . I am a previous silicone rupture patient.

> > Hugs ~ Dede

> >

> >

> >

> > **************Ideas to please picky eaters. Watch video on AOL

> Living.

> > (http://living.aol.com/video/how-to-please-your-picky-

eater/rachel-

> campos-duffy/

> > 2050827?NCID=aolcmp00300000002598)

> >

>

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  • 1 year later...

Hi Cam,

A life of spine, hip and knee problems. Unfortunately, I think we

need to add Sacroiliac Joint, and possibly even shoulder problems.

Too many of us have had shoulder issues, usually rotator cuff. I'm

thinking it's more than just a coincidence, though I don't know of any

studies done on the effects of scoliosis on shoulders. When I had my

rotator cuff surgery, I questioned my surgeon about the connection.

his response was, " well, it's all connected " .

Bonnie

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--

Thanks for giving me the hope that someday after revision I'll be able to lift a

20lb turkey into and out of the oven!

--Beth, LI

>

> Tyra and all,

>

> Wishing you all a very happy Thanksgiving, here I'm up to get the Turkey on

for a early meal, and reading posts. I guess with all that has gone on this past

year( the awful economy, layoffs etc) we all have to look at the blessings in

our lives, and being here with my scoli friends has been for me, a cherished

gift. Thank you one and all, for being a support to one another, through surgery

and daily life living in these bodies we have been given. You all are amazing!

>

> Tyra, what Cam said, reminds me of the song we all learned to remember parts

of the body, " the backbone connected to the hip bone, the hip bone connected to

the leg bone " , and on and on. Throw one part of the body really out of whack,

and the rest will suffer.

>

> While I'm careful not to #$% & *, to others about related aches and pains, I

know many of my small issues are in the fullness of a picture is related to my

spine, or the overworking of areas above and below my fusions. While revision

did vastly improve everything, there are some areas I'm still careful with. I'm

fused T1 to the sacrum, and nearly 8 years out, I do notice, that I have to be

careful not to overtax my neck, keep computer time to an hour at a time,

scrapbooking too, and I do lay down about twice during the day, for about 15

minutes to rest my neck. I have no pain , it just gets tired and a little sore.

My knees I'm very careful with, preventative mostly, as I'd be lost if troubles

cropped up there. Currently my shoulders are really good, PT right after

revision, did the trick for them, and I still do the exercises from time to time

if I feel they need it. My elbows are still a challenge, can ache when I lay

down, mostly this is from overuse of my grabbers, if I tone the use down they

respond with improvement.

>

> Tyra, the gift revision gave me is a body vastly better aligned, perfect no,

but vastly better. I'm quite sure if I hadn't had my surgeries in 2000 and 2002,

at this point I'd no longer be walking much, I'd either be using a walker or a

wheelchair. So in the the big picture, I'm terrific, and have to always say

that. Is there crap that is bothersome, yes, but in the big picture I'm great.

>

> We will always have scoliosis, fused spines, and live in a subprime body, but

I'm ever thankful to my surgeon, Dr. Anant Kumar, who worked along with me, to

get this crooked girl less crooked, and get me living without the awful pain. I

know I'm lucky, and it's never lost on me, I lived far too long in flatback

mode, so this gift , and my thankfulness for it is ever present. I'm also so

glad to be among all of you, to never really have to explain myself, you all get

it, and sometimes it's plain good to be among those where it's just EASY.

>

> Off to get the 20 pound bird in, Niles is up, low ovens and weight is still a

challenge, so he will be putting it in, life with a fused spine!

>

> Happy Thanksgiving all!

>

>

> Colorado Springs

> [ ] Jaw problems

>

>

>

>

> I have only been a member of this wonderful group for about two months, so I

may have missed any mention of flatback- related jaw problems. I had an

appointment today with my brother-in-law who is also my dentist. I have been

having what I thought was a flareup of my TMJ--sore jaws and sore teeth. My

teeth don't feel like they fit together properly as before and they have been

sliding--I guess out of alignment. The first thing he noticed about me today

was that my head was cocked slightly to the right which confirmed what he had

surmised from what my sister had told him the other day about my flatback. He

said that my jaw is now trying to compensate for the muscles pulling from my

neck being out of alignment.

>

> I had my scoliosis surgery in 1974 when I was 27 and was fused from T-7 to

L-4. Everything was great for about 27 years, but then I started having

difficulties above and below the fusion. Same story as many of you--left hip

replacement last May even. Now I'm looking at probable revision surgery--we'll

see after my appointment with Dr. LaGrone next Thursday.

>

> I wondered if anyone else had any insights in this area. My scoliosis has

affected my entire life. Seems every physical problem I've ever had was based

on my unstable spine. I'm thankful that Alpine Price enrolled her daughter in

my school a couple of years ago and noticed my flatback before I even realized I

had it!

> Tyra

>

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hi, tyra,

i'm interested in what you find out about your tmj. i had a horrible flareup

that started about a year ago and lasted a good 6 months. just another ailment

to add to the list, i guess. i've been in PT the last few months for

neck/shoulder issues and it's helped greatly. (I'm fused with harrington rods

from about C3 to L4; my major problems started really piling up the last 3-5

years.) anyway, if you learn anymore about your jaw issues, please post them.

yours sound very similar to mine (feeling like teeth are out of alignment and of

course, pain).

maria

>

> I have only been a member of this wonderful group for about two months, so I

may have missed any mention of flatback- related jaw problems.  I had an

appointment today with my brother-in-law who is also my dentist.  I have been

having what I thought was a flareup of my TMJ--sore jaws andsore teeth.  My

teeth don't feel like they fit together properly as before and they have been

sliding--I guess out of alignment.  The first thing he noticed about me today

was that my head was cocked slightly to the right which confirmed what he had

surmised from what my sister had told him the other day about my flatback.  He

said that my jaw is now trying to compensate for the muscles pulling from my

neck being out of alignment. 

>

> I had my scoliosis surgery in 1974 when I was 27 and was fused from T-7 to

L-4.  Everything was great for about 27 years, but then I started having

difficulties above and below the fusion.  Same story as many of you--left hip

replacement last May even.  Now I'm looking at probable revision surgery--we'll

see after my appointment with Dr. LaGrone next Thursday. 

>

> I wondered if anyone else had any insights in this area.  My scoliosis has

affected my entire life.  Seems every physical problem I've ever had was based

on my unstable spine.  I'm thankful that Alpine Price enrolled her daughter in

my school a couple of years ago and noticed my flatback before I even realized I

had it! 

> Tyra

>

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,

I'm hoping to find out lots of things next Thursday at my appointment with Dr. LaGrone in Amarillo. I'll keep y'all posted!

Thanks for your input!

SJ

Tyra

From: maria <dsmtm78@...> Sent: Sat, November 28, 2009 10:32:36 AMSubject: [ ] Re: Jaw problems

hi, tyra,i'm interested in what you find out about your tmj. i had a horrible flareup that started about a year ago and lasted a good 6 months. just another ailment to add to the list, i guess. i've been in PT the last few months for neck/shoulder issues and it's helped greatly. (I'm fused with harrington rods from about C3 to L4; my major problems started really piling up the last 3-5 years.) anyway, if you learn anymore about your jaw issues, please post them. yours sound very similar to mine (feeling like teeth are out of alignment and of course, pain). maria >> I have only been a member of this wonderful group for about two months, so I may have missed any mention of flatback- related jaw

problems. I had an appointment today with my brother-in-law who is also my dentist. I have been having what I thought was a flareup of my TMJ--sore jaws andsore teeth. My teeth don't feel like they fit together properly as before and they have been sliding--I guess out of alignment. The first thing he noticed about me today was that my head was cocked slightly to the right which confirmed what he had surmised from what my sister had told him the other day about my flatback. He said that my jaw is now trying to compensate for the muscles pulling from my neck being out of alignment. > > I had my scoliosis surgery in 1974 when I was 27 and was fused from T-7 to L-4. Everything was great for about 27 years, but then I started having difficulties above and below the fusion. Same story as many of you--left hip replacement last May even. Now I'm looking at probable revision surgery--we' ll see

after my appointment with Dr. LaGrone next Thursday. > > I wondered if anyone else had any insights in this area. My scoliosis has affected my entire life. Seems every physical problem I've ever had was based on my unstable spine. I'm thankful that Alpine Price enrolled her daughter in my school a couple of years ago and noticed my flatback before I even realized I had it! > Tyra>

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