Re: Kaitee, 13 years old

[Guest guest]

Jacki and Kaitee,

I hope that Kaitee gets to feeling better. Hopefully the diarrhea is from her stressing out over her bumps and not quite knowing what is wrong with her. Stress is not good for anyone, and it can cause that. Please do not worry and stress out about what it could be...What has her doctor said?

Take care.

Debbie~one that stresses out way too often

EN 5/07 See what's free at AOL.com.

[Guest guest]

Hi Jackie,

Please get Kaitee examined by an gastroenterologist and be sure that

you mention the white heads on the EN bumps. They may be the start of

Pyoderma Gangrenosum. That is how it starts--like a blister. It can

spread fast, so please don't delay. The smoking gun is the EN along

with the short stature and the chronic diahhrea with blood in the

stool. It will not take a brillient dr. to put these clues together.

Be sure to mention Pyoderma Gangrenosum to the dr. and read what we

have on the site. If that is indeed the diagnosis,it requires special

care, and Jeff our " PG Expert " will assist you. He also has Crohn's

Disease so he can help there too if that is the diagnosis.

While this can all be unnerving, you have a big advantage by getting

this diagnosed and properly treated early. If we turn out to have

jumped the gun and tests like colonoscopy show no problem, you can

rest assured. Kaitee has all the symptoms to permit this sort of

medical investigation.

Both Hubby and I had our first ever colonoscopies a few months ago,

and both of us choose to do it without anesthesia. Kaitee will not

feel a thing with the typical anesthesia.

With symptoms like she has, this is a diagnostic colonoscopy and she

should get priority scheduling.

Please keep us posted and Good Luck!!

Love,

idio. EN since '68

[Guest guest]

Kaitee stresses quite a bit. She always has and I try to keep things in perspective for her. I want my children to be successful, but I am not a pushy demanding mom by any means. She pushes herself, especially in school. Because of this, I'm not having her read all this. I told her a little about Crohns last night and that we were going to have some tests done and she broke down, saying "Mom, am I really sick?" It breaks my heart to have her worry like this. No child should have to worry about such things, but I know it could be worse. I know other mothers have had to see their children suffer much more. I just don't know if I could bear it.mohtherof2@... wrote: Jacki and Kaitee, I hope that Kaitee gets to feeling better. Hopefully the diarrhea is from her stressing out over her bumps and not quite knowing what is wrong with her. Stress is not good for anyone, and it can cause that. Please do not worry and stress out about what it could be...What has her doctor said? Take care. Debbie~one that stresses out way too often EN 5/07 See what's free at AOL.com.

Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games.

[Guest guest]

Jacki

I have Pyoderma Gangrenosum and my affected areas start as red

nodules that are painful to the touch and very warm. Eventuall they

will start with a dark spot that will soon fill entire red nodule.

This black blister like material will eventually pop and ulcerate

with dead tissue. I have had several attacks and from the time of

red nodule to open ulcer is typically 2-4 weeks. Upon healing I do

see systs that are small pimple like nodules with white heads, my

dermatologist instructed me to leave them alone and they kind of did

there own thing and went away. I made the mistake with PG of going

to my gastro first, and I should have found a Derm that specializes

in PG. I found one and have a much better life since. I still see

both, but my Derm has a much better handle on PG.

I have never taken any photos, but can describe all in more detail if

you need further description.

Good Luck

Bill