13 yr. old Kaitee has EN --Mom, Jacki is worried

[Guest guest]

Hi Jacki,I hope you don't mind, but I fwd your msg to our grup site. That way you will reach our entire membership and when I reply everyone will see that too.Let me read this and give it some thought. I'll get back to you and of course members may reply anytime to the our msg board.Love,idio. EN '68jackibackus wrote: Date: Sun, 17 Jun 2007 07:27:50 -0000To: " Strecker" Subject: Kaitee My daughter Kaitee was diagnosed with EN about two months ago. Ithas gone from one leg to the other. She has a hard time making itthrough her school day and has had to miss some events that wouldhave kept her on her feet too long. Luckily I work in the school

sheattends, so she can come to me when things aren't going well. (Herfeet get very swollen. There are no discolored markings on her feet,they just get terribly swollen.)Kaitee is only 13 and has not begun to develop yet, so she's just atiny thing. (She weighs about 80 lbs. and is 5'.) She has threeolder siblings who are extremely tall. She's always been a littlesmaller than they were, but in the fourth grade, she just stoppedgrowing. I've taken her in for tests each year. She's finally addedtwo inches and five pounds in the last year.This whole thing has been very frightening and confusing. My biggestconcern is that she has something that has not been diagnosed. WhenI first panicked and took her to the emergency room, they didn't eventest her for strept. After five minutes on the internet I found thatis the number one reason for EN in children. I couldn't get her intomy dr. for two weeks and it

was then they did the test and got her onmeds. I worry that her growth issue and now this EN are signs thatsomething more is wrong.We finally saw a dermatologist who told us nothing new, butprescribed potassium oidide. Kaitee took this at first, but it makesher sick to her stomache for the day. It did seem to help with theswelling. I can't find another form of this med. Do you feel thisis helpful enough to insist she take it despite the discomfort?Sorry this is so long. It's just nice to talk to someone who knowssomething about this. I feel the doctors just leave the room, readtheir journals and come and tell me what I've already read throughthe internet.Thanks for listening.Jacki You can help Erythema Nodosum Research. Just go to www.goodsearch.com and under the I'm Supporting section enter Erythema Nodosum Research Fund. Every time you use Goodsearch to search, a penny will be donated to EN Research. So sign up today, and be sure to tell your friends, family and co-workers. Let's find a cure for Erythema Nodosum!

Get your own web address. Have a HUGE year through Yahoo! Small Business.

[Guest guest]

No problem, . I've never joined a group site before, so I'm just figuring out how things work. I wasn't sure if I'd sent it to just you or the whole membership! Thanks. Jacki Strecker wrote: Hi Jacki,I hope you don't mind, but I fwd your msg to our grup site. That way you will reach our entire membership and when I reply everyone will see that too.Let me read this and give it some thought. I'll get back to you and of course members

may reply anytime to the our msg board.Love,idio. EN '68jackibackus <jackibackus> wrote: Date: Sun, 17 Jun 2007 07:27:50 -0000From: "jackibackus" <jackibackus>To: " Strecker" <rebeccastrecker>Subject: KaiteeMy daughter Kaitee was diagnosed with EN about two months ago. Ithas gone from one leg to the other. She has a hard time making itthrough her school day and has had to miss some events that wouldhave kept her on her feet too long. Luckily I work in the school sheattends, so she can come to me when things aren't going well. (Herfeet get very swollen. There are no discolored markings on her feet,they just get terribly swollen.)Kaitee is only 13 and has not begun to develop yet, so she's just atiny thing. (She weighs about 80

lbs. and is 5'.) She has threeolder siblings who are extremely tall. She's always been a littlesmaller than they were, but in the fourth grade, she just stoppedgrowing. I've taken her in for tests each year. She's finally addedtwo inches and five pounds in the last year.This whole thing has been very frightening and confusing. My biggestconcern is that she has something that has not been diagnosed. WhenI first panicked and took her to the emergency room, they didn't eventest her for strept. After five minutes on the internet I found thatis the number one reason for EN in children. I couldn't get her intomy dr. for two weeks and it was then they did the test and got her onmeds. I worry that her growth issue and now this EN are signs thatsomething more is wrong.We finally saw a dermatologist who told us nothing new, butprescribed potassium oidide. Kaitee took this at first, but it makesher sick to her

stomache for the day. It did seem to help with theswelling. I can't find another form of this med. Do you feel thisis helpful enough to insist she take it despite the discomfort?Sorry this is so long. It's just nice to talk to someone who knowssomething about this. I feel the doctors just leave the room, readtheir journals and come and tell me what I've already read throughthe internet.Thanks for listening.Jacki You can help Erythema Nodosum Research. Just go to www.goodsearch.com and

under the I'm Supporting section enter Erythema Nodosum Research Fund. Every time you use Goodsearch to search, a penny will be donated to EN Research. So sign up today, and be sure to tell your friends, family and co-workers. Let's find a cure for Erythema Nodosum! Get your own web address.Have a HUGE year through Yahoo! Small Business.

Park yourself in front of a world of choices in alternative vehicles.Visit the Yahoo! Auto Green Center.

[Guest guest]

My daughter was 16 when she had EN. She also had problems going to school and making it through the day. She missed about 6 days of school, off and on. She had the swelling in the ankles that made it really difficult for her to walk. She also had arthritis symptoms along with the swelling and the discolorations. The arthritis part bothered her so that it was very difficult for her to get out of bed and even brush her hair. Prednisone was the miracle drug for her. Within 24 hours of taking it she felt so much better! My daughter is also very petite. She is 5 feet and only weighed about 100 pounds, Good luck.Jacki Backus wrote: No problem, . I've never joined a group site before, so I'm just figuring out how things work. I wasn't sure if I'd sent it to just you or the whole membership! Thanks. Jacki Strecker <rebeccastrecker> wrote: Hi Jacki,I hope you don't mind, but I fwd your msg to our grup site. That way you will reach our entire membership and when I reply everyone will see that too.Let me read this and give it some thought. I'll get back to you and of course members may reply anytime to the our msg board.Love,idio. EN '68jackibackus <jackibackus> wrote: Date: Sun, 17 Jun 2007 07:27:50 -0000From: "jackibackus" <jackibackus>To: " Strecker" <rebeccastrecker>Subject: KaiteeMy daughter Kaitee was diagnosed with EN about two months ago. Ithas gone from one leg to the other. She has a hard time making itthrough her school day and has had to miss some events that wouldhave kept her on her feet too long. Luckily I work in the school sheattends, so she can come to me when things aren't going well. (Herfeet get very swollen. There are no discolored markings on her feet,they just get terribly swollen.)Kaitee is only 13 and has not begun to develop yet, so she's just atiny thing. (She weighs about 80 lbs. and is 5'.) She has threeolder siblings who are extremely tall. She's always been a littlesmaller than they were, but in the fourth grade, she just

stoppedgrowing. I've taken her in for tests each year. She's finally addedtwo inches and five pounds in the last year.This whole thing has been very frightening and confusing. My biggestconcern is that she has something that has not been diagnosed. WhenI first panicked and took her to the emergency room, they didn't eventest her for strept. After five minutes on the internet I found thatis the number one reason for EN in children. I couldn't get her intomy dr. for two weeks and it was then they did the test and got her onmeds. I worry that her growth issue and now this EN are signs thatsomething more is wrong.We finally saw a dermatologist who told us nothing new, butprescribed potassium oidide. Kaitee took this at first, but it makesher sick to her stomache for the day. It did seem to help with theswelling. I can't find another form of this med. Do you feel thisis helpful enough to insist she take it

despite the discomfort?Sorry this is so long. It's just nice to talk to someone who knowssomething about this. I feel the doctors just leave the room, readtheir journals and come and tell me what I've already read throughthe internet.Thanks for listening.Jacki You can help Erythema Nodosum Research. Just go to www.goodsearch.com and under the I'm Supporting section enter Erythema Nodosum Research Fund. Every time you use Goodsearch to search, a penny will be donated to EN Research. So sign up today, and be sure to tell your friends, family and co-workers. Let's find a cure for Erythema Nodosum! Get your own web address.Have a HUGE year through Yahoo! Small Business. Park yourself in front of a world of choices in alternative vehicles.Visit the Yahoo! Auto Green Center.

8:00? 8:25? 8:40? Find a flick in no time with theYahoo! Search movie showtime shortcut.

[Guest guest]

Betty, thanks for your response! Do you mind me asking how old your daughter is now and has she had a recurrence of EN? Jackibetty suitter wrote: My daughter was 16 when she had EN. She also had problems going to school and making it through the day. She missed about 6 days of school, off and on. She had the swelling in the ankles that made it really difficult for her to walk. She also had arthritis symptoms along with the swelling and the discolorations. The arthritis part

bothered her so that it was very difficult for her to get out of bed and even brush her hair. Prednisone was the miracle drug for her. Within 24 hours of taking it she felt so much better! My daughter is also very petite. She is 5 feet and only weighed about 100 pounds, Good luck.Jacki Backus <jackibackus> wrote: No problem, . I've never joined a group site before, so I'm just figuring out how things work. I wasn't sure if I'd sent it to just you or the whole membership! Thanks. Jacki Strecker <rebeccastrecker> wrote: Hi Jacki,I hope you don't mind, but I fwd your msg to our grup site. That way

you will reach our entire membership and when I reply everyone will see that too.Let me read this and give it some thought. I'll get back to you and of course members may reply anytime to the our msg board.Love,idio. EN '68jackibackus <jackibackus> wrote: Date: Sun, 17 Jun 2007 07:27:50 -0000From: "jackibackus" <jackibackus>To: " Strecker" <rebeccastrecker>Subject: KaiteeMy daughter Kaitee was diagnosed with EN about two months ago. Ithas gone from one leg to the other. She has a hard time making itthrough her school day and has had to miss some events that wouldhave kept her on her feet too long. Luckily I work in the school sheattends, so she can come to me when things aren't going well. (Herfeet get very swollen. There are no discolored

markings on her feet,they just get terribly swollen.)Kaitee is only 13 and has not begun to develop yet, so she's just atiny thing. (She weighs about 80 lbs. and is 5'.) She has threeolder siblings who are extremely tall. She's always been a littlesmaller than they were, but in the fourth grade, she just stoppedgrowing. I've taken her in for tests each year. She's finally addedtwo inches and five pounds in the last year.This whole thing has been very frightening and confusing. My biggestconcern is that she has something that has not been diagnosed. WhenI first panicked and took her to the emergency room, they didn't eventest her for strept. After five minutes on the internet I found thatis the number one reason for EN in children. I couldn't get her intomy dr. for two weeks and it was then they did the test and got her onmeds. I worry that her growth issue and now this EN are signs thatsomething more is

wrong.We finally saw a dermatologist who told us nothing new, butprescribed potassium oidide. Kaitee took this at first, but it makesher sick to her stomache for the day. It did seem to help with theswelling. I can't find another form of this med. Do you feel thisis helpful enough to insist she take it despite the discomfort?Sorry this is so long. It's just nice to talk to someone who knowssomething about this. I feel the doctors just leave the room, readtheir journals and come and tell me what I've already read throughthe internet.Thanks for listening.Jacki You can help Erythema Nodosum Research. Just go to www.goodsearch.com and under the I'm Supporting section enter Erythema Nodosum Research Fund. Every time you use Goodsearch to search, a penny will be donated to EN Research. So sign up today, and be sure to tell your friends, family and co-workers. Let's find a cure for Erythema Nodosum! Get your own web address.Have a HUGE year through Yahoo! Small Business. Park yourself in front of a world of choices in alternative vehicles.Visit the Yahoo! Auto Green Center. 8:00? 8:25? 8:40? Find a flick in no timewith theYahoo! Search movie showtime shortcut.

Park yourself in front of a world of choices in alternative vehicles.Visit the Yahoo! Auto Green Center.

[Guest guest]

This is exactly how my daughter felt. She is 17 and had her first

episode over the winter. It took a good 3 weeks before she was feeling

better. Missed a week of school. Had to drop a cloass due to not being

there. She did get through it and we pray it does not come back!

>

> My daughter was 16 when she had EN. She also had problems going to

school and making it through the day. She missed about 6 days of

school, off and on. She had the swelling in the ankles that made it

really difficult for her to walk. She also had arthritis symptoms

along with the swelling and the discolorations. The arthritis part

bothered her so that it was very difficult for her to get out of bed

and even brush her hair. Prednisone was the miracle drug for her.

Within 24 hours of taking it she felt so much better! My daughter is

also very petite. She is 5 feet and only weighed about 100 pounds,

Good luck.

>

> Jacki Backus wrote: No problem,

. I've never joined a group site before, so I'm just figuring

out how things work. I wasn't sure if I'd sent it to just you or the

whole membership!

> Thanks.

> Jacki

>

> Strecker wrote:

> Hi Jacki,

> I hope you don't mind, but I fwd your msg to our grup site. That way

you will reach our entire membership and when I reply everyone will

see that too.

> Let me read this and give it some thought. I'll get back to you and

of course members may reply anytime to the our msg board.

> Love,

>

> idio. EN '68

>

>

> jackibackus wrote: Date: Sun, 17 Jun 2007

07:27:50 -0000

>

> To: " Strecker "

> Subject: Kaitee

>

> My daughter Kaitee was diagnosed with EN about two months ago. It

> has gone from one leg to the other. She has a hard time making it

> through her school day and has had to miss some events that would

> have kept her on her feet too long. Luckily I work in the school she

> attends, so she can come to me when things aren't going well. (Her

> feet get very swollen. There are no discolored markings on her feet,

> they just get terribly swollen.)

>

> Kaitee is only 13 and has not begun to develop yet, so she's just a

> tiny thing. (She weighs about 80 lbs. and is 5'.) She has three

> older siblings who are extremely tall. She's always been a little

> smaller than they were, but in the fourth grade, she just stopped

> growing. I've taken her in for tests each year. She's finally added

> two inches and five pounds in the last year.

>

> This whole thing has been very frightening and confusing. My biggest

> concern is that she has something that has not been diagnosed. When

> I first panicked and took her to the emergency room, they didn't even

> test her for strept. After five minutes on the internet I found that

> is the number one reason for EN in children. I couldn't get her into

> my dr. for two weeks and it was then they did the test and got her on

> meds. I worry that her growth issue and now this EN are signs that

> something more is wrong.

>

> We finally saw a dermatologist who told us nothing new, but

> prescribed potassium oidide. Kaitee took this at first, but it makes

> her sick to her stomache for the day. It did seem to help with the

> swelling. I can't find another form of this med. Do you feel this

> is helpful enough to insist she take it despite the discomfort?

>

> Sorry this is so long. It's just nice to talk to someone who knows

> something about this. I feel the doctors just leave the room, read

> their journals and come and tell me what I've already read through

> the internet.

>

> Thanks for listening.

>

> Jacki

>

>

>

>

> You can help Erythema Nodosum Research. Just go to

www.goodsearch.com and under the I'm Supporting section enter Erythema

Nodosum Research Fund. Every time you use Goodsearch to search, a

penny will be donated to EN Research. So sign up today, and be sure

to tell your friends, family and co-workers. Let's find a cure for

Erythema Nodosum!

>

>

>

>

> ---------------------------------

> Get your own web address.

> Have a HUGE year through Yahoo! Small Business.

>

>

>

>

>

> ---------------------------------

> Park yourself in front of a world of choices in alternative vehicles.

> Visit the Yahoo! Auto Green Center.

>

>

>

>

> ---------------------------------

> 8:00? 8:25? 8:40? Find a flick in no time

> with theYahoo! Search movie showtime shortcut.

>

[Guest guest]

Hi Mom's and Group,

What you Moms are desecribing is the typical EN syndrome, or

collection of symptoms:

http://www.umm.edu/dermatology-info/enodo.htm

What are the symptoms of erythema nodosum?

The following are the most common symptoms of erythema nodosum.

However, each individual may experience symptoms differently:

* painful raised bruises on shins

* fever

* joint pain

* enlarged lymph nodes in chest

Please note that short stature and diarreah, [bloody or otherwise] is

NOT part of the EN syndrome. It may however, be a symptom of a

disorder that can have EN as a presenting feature.

While many of us ARE true idiopaths with no underlying trigger or

disorder identified, the real significance of EN IS the possible

underlying disorder, a few of which are:

Some Diseases that can cause erythema nodosum:

* streptococcal infections

* sarcoidosis (inflammation of the lymph nodes and other organs)

* leprosy

* coccidioidomycosis (infection of the upper respiratory tract and

lungs)

* histoplasmosis (an infectious pulmonary disease)

* tuberculosis

* psittacosis (a flu-like disease)

* lymphogranuloma venereum (a venereal infection)

* ulcerative colitis

* Crohn's Disease

* Leukemia or Lymphoma

When any symptoms other than the ones above present with EN it is

important to do the tests necessary to rule out the more serious

problems, treat it, and keep the EN from flaring up again.

This is not to scare anyone. It is basic EN info that we all need to

know.

Love,

idiopathic EN since '68