Re: Welcome New Member Lee Ko'/Case History/7rs of EN now Cured?

[Guest guest]

Lee, how long has it been since you have had another flare up? How many flare-ups had you had before you stopped drinking cold things? This is interesting. Thanks! Strecker wrote: Dear Lee,On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added your information to our "Member Medical History" Files on the Group site and posted it below.You now

have Full EN Group privileges.You are receiving ALL EN Group emails, and you may also visit the Erythema Nodosum Group Site:http://health.groups.yahoo.com/group/erythema_nodosum_Group/ whenever you like by logging on with your Yahoo ID and secret password.You do not have to have the group emails delivered to be a member here.I hope you will remain a member here to support others.Since EN is not being actively researched, please take this opportunity to make a generous donation to our "EN Research Fund" to find a cure for this painful disorder. Instructions have been sent to you.Welcome to our Friendly Erythema Nodosum Group!Love,Idiopathic EN since 1968*********Lee Ko's Case History4/31-0/071. Your name and age: Lee Ko2. Your location: West Covina, California (Los Angeles County)3. Your email address: lyko34. Your Yahoo ID: lyko35. Describe your erythema nodosum/PG symptoms or, if you do not have EN or PG, please explain why you wish to join this group: EN started for me in 2000 when I was 29 years old. I didn't think anything of it. I thought it was just a bug bite. It started to occur more and more frequently. The nodules were most of the time on the shin of my legs, until about a year ago when I noticed the nodules on my thigh. The ones on the thigh were not as bad as the ones on the ankle or shin. The two times that I was admitted to the emergency room was when the nodules were on my ankle where the pain was unbearable. The ultrasounds of my legs were

normal. I was treated with prednisone and antibiotics. I was in the hospital for 4 days until I was able to limp. The hospital didn't know what I had and thought it was gout. I saw my family doctor and was referred to an arthritis doctor, who straight out said "I don't know what's wrong with you". I was then referred to a blood and cancer doctor, an allergist, and finally a dermatologist. The dermatologist was the one that diagnosed me with EN. He gave me Potassium Iodine which I did not see improvements. The only medication that helped with the pain and inflammation was prednisone. I took prednisone every time the inflammation got really bad. I got the chest x-ray which was normal. Blood tests were normal. I have an 11 year old son. During the years that I suffered from EN, I was on and off trying to conceive. I am now 35 and still can't conceive. I now have vitiligo on

certain parts of my body. I don't know if this has anything to do with taking too much prednisone. I went to see an herbalist who took my pulse and said that my circulation is bad. He advised me never to drink or eat anything cold, like sodas or ice cream. It has been a year without eating anything cold and noticed that the nodules have not come back. I pretty much cut sodas, iced drinks and anything cold out of my life. I mostly drink warm/hot teas (mostly green teas) or regular room temperature water. The reason why I joined this group is to share my EN experience and hopefully help as many people as possible. Please, please try not to eat or drink anything cold and see if this will cure the EN the way it did for me. 6. List any other health conditions. See above.7. State what medications or treatments you take for EN, and their effectiveness:See

above.8. When did you first get erythema nodosum or PG? See above.9. How long have you had erythema nodosum or PG? See above.10. Do you agree to treat all EN members with respect? Yes.11.Do you agree to post NO advertisements for any products or services? Yes.12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral from another group or person etc.). Google.

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Yahoo! Autos.

[Guest guest]

Hello, I have had countless flare ups. Some are not as bad as others. So many times I had to take time off work because the pain was so bad. I was in the emergency rooms twice with really, really bad flare ups where the bruises turned black and with high fevers. Just like most of you, I was really desperate for answers. A biopsy, blood tests and x-rays were taken. I was very devastated when I was diagnosed with EN and to find out that there wasn't a cure. I was going to try anything to cure this sickness. I was told by people around me what to do and what not to do. I tried everything and nothing seems to work. Since I cut cold drinks/foods out of my diet, I have not gotten another flare up. It has been a year and a half since the last flare up. I don't know

if this will work for you, but I really think it is worth a try. I know how painful (physically and mentally) this is. I still have old bruises that are still visible from the flare ups and a very noticable scar from the biopsy. It has been more than a year without prednisone. I am so happy because I know prednisone is not a good thing to take even though this was the only thing that cured the inflammation and pain. Please let me know if you need more information from my experience. I wrote: Lee, how long has it been since you have had another flare up? How many flare-ups had you had before you stopped drinking cold things? This is interesting. Thanks! Strecker <rebeccastrecker> wrote: Dear Lee,On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added your information to our "Member Medical History" Files on the Group site and posted it below.You now have Full EN Group privileges.You are receiving ALL EN Group emails, and you may also visit the Erythema Nodosum Group

Site:http://health.groups.yahoo.com/group/erythema_nodosum_Group/ whenever you like by logging on with your Yahoo ID and secret password.You do not have to have the group emails delivered to be a member here.I hope you will remain a member here to support others.Since EN is not being actively researched, please take this opportunity to make a generous donation to our "EN Research Fund" to find a cure for this painful disorder. Instructions have been sent to you.Welcome to our Friendly Erythema Nodosum Group!Love,Idiopathic EN since 1968*********Lee Ko's Case History4/31-0/071. Your name and age: Lee Ko2. Your location: West Covina, California (Los Angeles County)3. Your email address:

lyko34. Your Yahoo ID: lyko35. Describe your erythema nodosum/PG symptoms or, if you do not have EN or PG, please explain why you wish to join this group: EN started for me in 2000 when I was 29 years old. I didn't think anything of it. I thought it was just a bug bite. It started to occur more and more frequently. The nodules were most of the time on the shin of my legs, until about a year ago when I noticed the nodules on my thigh. The ones on the thigh were not as bad as the ones on the ankle or shin. The two times that I was admitted to the emergency room was when the nodules were on my ankle where the pain was unbearable. The ultrasounds of my legs were normal. I was treated with prednisone and antibiotics. I was in the hospital for 4 days until I was able to limp. The hospital didn't know what I had and thought it was gout. I saw my family doctor and

was referred to an arthritis doctor, who straight out said "I don't know what's wrong with you". I was then referred to a blood and cancer doctor, an allergist, and finally a dermatologist. The dermatologist was the one that diagnosed me with EN. He gave me Potassium Iodine which I did not see improvements. The only medication that helped with the pain and inflammation was prednisone. I took prednisone every time the inflammation got really bad. I got the chest x-ray which was normal. Blood tests were normal. I have an 11 year old son. During the years that I suffered from EN, I was on and off trying to conceive. I am now 35 and still can't conceive. I now have vitiligo on certain parts of my body. I don't know if this has anything to do with taking too much prednisone. I went to see an herbalist who took my pulse and said that my circulation is bad. He advised me never to

drink or eat anything cold, like sodas or ice cream. It has been a year without eating anything cold and noticed that the nodules have not come back. I pretty much cut sodas, iced drinks and anything cold out of my life. I mostly drink warm/hot teas (mostly green teas) or regular room temperature water. The reason why I joined this group is to share my EN experience and hopefully help as many people as possible. Please, please try not to eat or drink anything cold and see if this will cure the EN the way it did for me. 6. List any other health conditions. See above.7. State what medications or treatments you take for EN, and their effectiveness:See above.8. When did you first get erythema nodosum or PG? See above.9. How long have you had erythema nodosum or PG? See above.10. Do you agree to treat all EN members with

respect? Yes.11.Do you agree to post NO advertisements for any products or services? Yes.12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral from another group or person etc.). Google. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos.

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Yahoo! Autos.

[Guest guest]

After 8 years of Dr's scratching their heads and telling me I was just stressed and that's what was causing it, I am willing to try just about anything. I am even eating for my bloodtype and have cut out wheat, corn, chicken, and countless others while starting specific supplements. I would say their are no side effects from cutting out cold stuff, so I'll give it a go. I am currently tapering off of a month of prednisone and can't wait to be done with it. Thanks, Lee Ko wrote: Hello, I have had countless flare ups. Some are not as bad as others. So many times I had to take time off work because the pain was so bad. I was in the emergency rooms twice with really, really bad flare ups where the bruises turned black and with high fevers. Just like most of you, I was really desperate for answers. A biopsy, blood tests and x-rays were taken. I was very devastated when I was diagnosed with EN and to find out that there wasn't a cure. I was going to try anything to cure this sickness. I was told by people around me what to do and what not to do. I tried everything and nothing seems to work. Since I cut cold drinks/foods out of my diet, I have not gotten another flare up. It has been a year and a half since the last flare

up. I don't know if this will work for you, but I really think it is worth a try. I know how painful (physically and mentally) this is. I still have old bruises that are still visible from the flare ups and a very noticable scar from the biopsy. It has been more than a year without prednisone. I am so happy because I know prednisone is not a good thing to take even though this was the only thing that cured the inflammation and pain. Please let me know if you need more information from my experience. I <karenmfh> wrote: Lee, how long has it been since you have had another flare up? How many flare-ups had you had before you stopped drinking cold things? This is

interesting. Thanks! Strecker <rebeccastrecker> wrote: Dear Lee,On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added your information to our "Member Medical History" Files on the Group site and posted it below.You now have Full EN Group privileges.You are receiving ALL EN Group emails, and you may also visit the Erythema Nodosum Group Site:http://health.groups.yahoo.com/group/erythema_nodosum_Group/ whenever you like by logging on with your Yahoo ID and secret password.You do not have to have the group emails delivered

to be a member here.I hope you will remain a member here to support others.Since EN is not being actively researched, please take this opportunity to make a generous donation to our "EN Research Fund" to find a cure for this painful disorder. Instructions have been sent to you.Welcome to our Friendly Erythema Nodosum Group!Love,Idiopathic EN since 1968*********Lee Ko's Case History4/31-0/071. Your name and age: Lee Ko2. Your location: West Covina, California (Los Angeles County)3. Your email address: lyko34. Your Yahoo ID: lyko35. Describe your erythema nodosum/PG symptoms or, if you do not have EN or PG, please explain why you wish to join this group: EN started for me in 2000 when I was 29 years old. I didn't think

anything of it. I thought it was just a bug bite. It started to occur more and more frequently. The nodules were most of the time on the shin of my legs, until about a year ago when I noticed the nodules on my thigh. The ones on the thigh were not as bad as the ones on the ankle or shin. The two times that I was admitted to the emergency room was when the nodules were on my ankle where the pain was unbearable. The ultrasounds of my legs were normal. I was treated with prednisone and antibiotics. I was in the hospital for 4 days until I was able to limp. The hospital didn't know what I had and thought it was gout. I saw my family doctor and was referred to an arthritis doctor, who straight out said "I don't know what's wrong with you". I was then referred to a blood and cancer doctor, an allergist, and finally a dermatologist. The dermatologist was the one that diagnosed me with EN. He gave

me Potassium Iodine which I did not see improvements. The only medication that helped with the pain and inflammation was prednisone. I took prednisone every time the inflammation got really bad. I got the chest x-ray which was normal. Blood tests were normal. I have an 11 year old son. During the years that I suffered from EN, I was on and off trying to conceive. I am now 35 and still can't conceive. I now have vitiligo on certain parts of my body. I don't know if this has anything to do with taking too much prednisone. I went to see an herbalist who took my pulse and said that my circulation is bad. He advised me never to drink or eat anything cold, like sodas or ice cream. It has been a year without eating anything cold and noticed that the nodules have not come back. I pretty much cut sodas, iced drinks and anything cold out of my life. I mostly drink warm/hot teas (mostly green

teas) or regular room temperature water. The reason why I joined this group is to share my EN experience and hopefully help as many people as possible. Please, please try not to eat or drink anything cold and see if this will cure the EN the way it did for me. 6. List any other health conditions. See above.7. State what medications or treatments you take for EN, and their effectiveness:See above.8. When did you first get erythema nodosum or PG? See above.9. How long have you had erythema nodosum or PG? See above.10. Do you agree to treat all EN members with respect? Yes.11.Do you agree to post NO advertisements for any products or services? Yes.12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral from another group or person etc.). Google. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos.

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Yahoo! Autos.

[Guest guest]

Another thing...I am into the natural healing stuff, what made you choose and herbalist? Was that the only advice he gave you? Had he dealt with autoimmune diseases before? Thanks! Lee Ko wrote: Hello, I have had countless flare ups. Some are not as bad as others. So many times I had to take time off work because the pain was so bad. I was in the emergency rooms twice with

really, really bad flare ups where the bruises turned black and with high fevers. Just like most of you, I was really desperate for answers. A biopsy, blood tests and x-rays were taken. I was very devastated when I was diagnosed with EN and to find out that there wasn't a cure. I was going to try anything to cure this sickness. I was told by people around me what to do and what not to do. I tried everything and nothing seems to work. Since I cut cold drinks/foods out of my diet, I have not gotten another flare up. It has been a year and a half since the last flare up. I don't know if this will work for you, but I really think it is worth a try. I know how painful (physically and mentally) this is. I still have old bruises that are still visible from the flare ups and a very noticable scar from the biopsy. It

has been more than a year without prednisone. I am so happy because I know prednisone is not a good thing to take even though this was the only thing that cured the inflammation and pain. Please let me know if you need more information from my experience. I hope <karenmfh> wrote: Lee, how long has it been since you have had another flare up? How many flare-ups had you had before you stopped drinking cold things? This is interesting. Thanks! Strecker <rebeccastrecker> wrote: Dear Lee,On behalf of all our members, welcome to our

Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added your information to our "Member Medical History" Files on the Group site and posted it below.You now have Full EN Group privileges.You are receiving ALL EN Group emails, and you may also visit the Erythema Nodosum Group Site:http://health.groups.yahoo.com/group/erythema_nodosum_Group/ whenever you like by logging on with your Yahoo ID and secret password.You do not have to have the group emails delivered to be a member here.I hope you will remain a member here to support others.Since EN is not being actively researched, please take this opportunity to make a generous donation to our "EN Research Fund" to find a cure for this painful disorder. Instructions have been sent to you.Welcome to our

Friendly Erythema Nodosum Group!Love,Idiopathic EN since 1968*********Lee Ko's Case History4/31-0/071. Your name and age: Lee Ko2. Your location: West Covina, California (Los Angeles County)3. Your email address: lyko34. Your Yahoo ID: lyko35. Describe your erythema nodosum/PG symptoms or, if you do not have EN or PG, please explain why you wish to join this group: EN started for me in 2000 when I was 29 years old. I didn't think anything of it. I thought it was just a bug bite. It started to occur more and more frequently. The nodules were most of the time on the shin of my legs, until about a year ago when I noticed the nodules on my thigh. The ones on the thigh were not as bad as the ones on the ankle or

shin. The two times that I was admitted to the emergency room was when the nodules were on my ankle where the pain was unbearable. The ultrasounds of my legs were normal. I was treated with prednisone and antibiotics. I was in the hospital for 4 days until I was able to limp. The hospital didn't know what I had and thought it was gout. I saw my family doctor and was referred to an arthritis doctor, who straight out said "I don't know what's wrong with you". I was then referred to a blood and cancer doctor, an allergist, and finally a dermatologist. The dermatologist was the one that diagnosed me with EN. He gave me Potassium Iodine which I did not see improvements. The only medication that helped with the pain and inflammation was prednisone. I took prednisone every time the inflammation got really bad. I got the chest x-ray which was normal. Blood tests were normal. I have an

11 year old son. During the years that I suffered from EN, I was on and off trying to conceive. I am now 35 and still can't conceive. I now have vitiligo on certain parts of my body. I don't know if this has anything to do with taking too much prednisone. I went to see an herbalist who took my pulse and said that my circulation is bad. He advised me never to drink or eat anything cold, like sodas or ice cream. It has been a year without eating anything cold and noticed that the nodules have not come back. I pretty much cut sodas, iced drinks and anything cold out of my life. I mostly drink warm/hot teas (mostly green teas) or regular room temperature water. The reason why I joined this group is to share my EN experience and hopefully help as many people as possible. Please, please try not to eat or drink anything cold and see if this will cure the EN the way it did for

me. 6. List any other health conditions. See above.7. State what medications or treatments you take for EN, and their effectiveness:See above.8. When did you first get erythema nodosum or PG? See above.9. How long have you had erythema nodosum or PG? See above.10. Do you agree to treat all EN members with respect? Yes.11.Do you agree to post NO advertisements for any products or services? Yes.12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral from another group or person etc.). Google. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos.

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Yahoo! Autos.

[Guest guest]

Thanks. No one has ever told me that before. But my EN keeps reoccuring as soon as the prednisone is finished. Thanks for the tip. Lee Ko wrote: Hello, I have had countless flare ups. Some are not as bad as others. So many times I had to take time off work because the pain was so bad. I was in the emergency rooms twice with really, really bad flare ups

where the bruises turned black and with high fevers. Just like most of you, I was really desperate for answers. A biopsy, blood tests and x-rays were taken. I was very devastated when I was diagnosed with EN and to find out that there wasn't a cure. I was going to try anything to cure this sickness. I was told by people around me what to do and what not to do. I tried everything and nothing seems to work. Since I cut cold drinks/foods out of my diet, I have not gotten another flare up. It has been a year and a half since the last flare up. I don't know if this will work for you, but I really think it is worth a try. I know how painful (physically and mentally) this is. I still have old bruises that are still visible from the flare ups and a very noticable scar from the biopsy. It has been more than

a year without prednisone. I am so happy because I know prednisone is not a good thing to take even though this was the only thing that cured the inflammation and pain. Please let me know if you need more information from my experience. I hope this <karenmfh> wrote: Lee, how long has it been since you have had another flare up? How many flare-ups had you had before you stopped drinking cold things? This is interesting. Thanks! Strecker <rebeccastrecker> wrote: Dear Lee,On behalf of all our members, welcome to our Erythema Nodosum

Group! Thanks for sending in your Questionnaire. I have added your information to our "Member Medical History" Files on the Group site and posted it below.You now have Full EN Group privileges.You are receiving ALL EN Group emails, and you may also visit the Erythema Nodosum Group Site:http://health.groups.yahoo.com/group/erythema_nodosum_Group/ whenever you like by logging on with your Yahoo ID and secret password.You do not have to have the group emails delivered to be a member here.I hope you will remain a member here to support others.Since EN is not being actively researched, please take this opportunity to make a generous donation to our "EN Research Fund" to find a cure for this painful disorder. Instructions have been sent to you.Welcome to our Friendly Erythema

Nodosum Group!Love,Idiopathic EN since 1968*********Lee Ko's Case History4/31-0/071. Your name and age: Lee Ko2. Your location: West Covina, California (Los Angeles County)3. Your email address: lyko34. Your Yahoo ID: lyko35. Describe your erythema nodosum/PG symptoms or, if you do not have EN or PG, please explain why you wish to join this group: EN started for me in 2000 when I was 29 years old. I didn't think anything of it. I thought it was just a bug bite. It started to occur more and more frequently. The nodules were most of the time on the shin of my legs, until about a year ago when I noticed the nodules on my thigh. The ones on the thigh were not as bad as the ones on the ankle or shin. The two times

that I was admitted to the emergency room was when the nodules were on my ankle where the pain was unbearable. The ultrasounds of my legs were normal. I was treated with prednisone and antibiotics. I was in the hospital for 4 days until I was able to limp. The hospital didn't know what I had and thought it was gout. I saw my family doctor and was referred to an arthritis doctor, who straight out said "I don't know what's wrong with you". I was then referred to a blood and cancer doctor, an allergist, and finally a dermatologist. The dermatologist was the one that diagnosed me with EN. He gave me Potassium Iodine which I did not see improvements. The only medication that helped with the pain and inflammation was prednisone. I took prednisone every time the inflammation got really bad. I got the chest x-ray which was normal. Blood tests were normal. I have an 11 year old son.

During the years that I suffered from EN, I was on and off trying to conceive. I am now 35 and still can't conceive. I now have vitiligo on certain parts of my body. I don't know if this has anything to do with taking too much prednisone. I went to see an herbalist who took my pulse and said that my circulation is bad. He advised me never to drink or eat anything cold, like sodas or ice cream. It has been a year without eating anything cold and noticed that the nodules have not come back. I pretty much cut sodas, iced drinks and anything cold out of my life. I mostly drink warm/hot teas (mostly green teas) or regular room temperature water. The reason why I joined this group is to share my EN experience and hopefully help as many people as possible. Please, please try not to eat or drink anything cold and see if this will cure the EN the way it did for me. 6. List

any other health conditions. See above.7. State what medications or treatments you take for EN, and their effectiveness:See above.8. When did you first get erythema nodosum or PG? See above.9. How long have you had erythema nodosum or PG? See above.10. Do you agree to treat all EN members with respect? Yes.11.Do you agree to post NO advertisements for any products or services? Yes.12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral from another group or person etc.). Google. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos.

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Yahoo! Autos.