Guest guest Posted March 3, 2003 Report Share Posted March 3, 2003 Hi Madeleine, The dizziness you have described is called BPPV (benign positional paroxysmal vertigo) which can be triggered by a virus, migraine or head trauma. This condition usually settles down in time, however it can re-occur. It is worse with head movement, however, you can also have ongoing dizziness, lightheadedness and unsteadiness. I have had this on and off for years, but it seems to have settled now, thank goodness. My pulmologist assured me that it wasn't related to my bronch or lack of oxygen. I remember when I had the first attack, I was very tired, stressed and working long hours. If you do not get satisfaction from your doctor, you could always ask for a referral to a neuro-otologist as they are the best doctors to deal with dizziness (not an ENT specialist). The exercises that Kathy suggested will certainly help. It is just a bit daunting at first trying to make yourself dizzy (ugh)! You could also see a vestibular physiotherapist, who can assess your condition and set some appropriate exercises. There is a procedure that a doctor or trained therapist can perform called the "Epley Manoevre" or "Canalith Repositioning Procedure" where sequential head movements on the patient can actually reposition the crystals back into the inner ear where they belong (this is probably the procedure your doctor performed). I hope this helps some, and that you get some relief soon. Best wishes Bunny -----Original Message-----From: Madeleine Welsh Sent: Sunday, 2 March 2003 1:29 PMTo: bronchiectasis Subject: Vertigo Dear everyone - I have been reading the emails on Vertigo with interest. Over the last month I have suffered what I called bouts of dizziness. My ears were ok and dr said some crystals within the ear (deep) had come loose and were floating around. He had me lay down and slowly I had to turn right around in a full circle while he held me head straight. For 2 weeks I had to sleep propped up (even though I already do to help breathing) but I was not to turn to my left side as that was the worse side. I went back the other day for a check and said I still felt giddy a lot of the time although it was slightly better. He did the turning test again and said my eyes didn't register any spinning so I was ok. I walked out of there feeling duped.....I wasn't ok and he didn't take any notice of me.... Now a few of you are mentioning vertigo and I am intrigued to ask does it perhaps go hand in hand with the bronchs. Perhaps lack of oxygen causes it? Am very interested to hear what all you experts say (and I don't use that term loosely). As I said before I think we all know as much if not more than some of our doctors. Take care everyone Madeleine Madeleine WelshEmail:: madeleine.welsh@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2003 Report Share Posted March 3, 2003 Dear Bunny & Bob THanks so much for your very informed reply to my query on Vertigo. It does help to have things explained carefully and thoroughly. I will follow through with my GP and see about another referral. If I'm not being too nosey are you (both) doctors - you seem so knowledgeable.....I'm so glad that you are anyway... Thanks again Madeleine RE: Vertigo Hi Madeleine, The dizziness you have described is called BPPV (benign positional paroxysmal vertigo) which can be triggered by a virus, migraine or head trauma. This condition usually settles down in time, however it can re-occur. It is worse with head movement, however, you can also have ongoing dizziness, lightheadedness and unsteadiness. I have had this on and off for years, but it seems to have settled now, thank goodness. My pulmologist assured me that it wasn't related to my bronch or lack of oxygen. I remember when I had the first attack, I was very tired, stressed and working long hours. If you do not get satisfaction from your doctor, you could always ask for a referral to a neuro-otologist as they are the best doctors to deal with dizziness (not an ENT specialist). The exercises that Kathy suggested will certainly help. It is just a bit daunting at first trying to make yourself dizzy (ugh)! You could also see a vestibular physiotherapist, who can assess your condition and set some appropriate exercises. There is a procedure that a doctor or trained therapist can perform called the "Epley Manoevre" or "Canalith Repositioning Procedure" where sequential head movements on the patient can actually reposition the crystals back into the inner ear where they belong (this is probably the procedure your doctor performed). I hope this helps some, and that you get some relief soon. Best wishes Bunny -----Original Message-----From: Madeleine Welsh Sent: Sunday, 2 March 2003 1:29 PMTo: bronchiectasis Subject: Vertigo Dear everyone - I have been reading the emails on Vertigo with interest. Over the last month I have suffered what I called bouts of dizziness. My ears were ok and dr said some crystals within the ear (deep) had come loose and were floating around. He had me lay down and slowly I had to turn right around in a full circle while he held me head straight. For 2 weeks I had to sleep propped up (even though I already do to help breathing) but I was not to turn to my left side as that was the worse side. I went back the other day for a check and said I still felt giddy a lot of the time although it was slightly better. He did the turning test again and said my eyes didn't register any spinning so I was ok. I walked out of there feeling duped.....I wasn't ok and he didn't take any notice of me.... Now a few of you are mentioning vertigo and I am intrigued to ask does it perhaps go hand in hand with the bronchs. Perhaps lack of oxygen causes it? Am very interested to hear what all you experts say (and I don't use that term loosely). As I said before I think we all know as much if not more than some of our doctors. Take care everyone Madeleine Madeleine WelshEmail:: madeleine.welsh@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2003 Report Share Posted March 4, 2003 Re vertigo, it is very important to see a specialist to try to establish the cause. There are several causes of vertigo...some of them need to be treated promptly. The guru doctor of vestibular diseases in Aust is at the RPH in Sydney. Kind regards Jessie. RE: Vertigo Hi Madeleine, The dizziness you have described is called BPPV (benign positional paroxysmal vertigo) which can be triggered by a virus, migraine or head trauma. This condition usually settles down in time, however it can re-occur. It is worse with head movement, however, you can also have ongoing dizziness, lightheadedness and unsteadiness. I have had this on and off for years, but it seems to have settled now, thank goodness. My pulmologist assured me that it wasn't related to my bronch or lack of oxygen. I remember when I had the first attack, I was very tired, stressed and working long hours. If you do not get satisfaction from your doctor, you could always ask for a referral to a neuro-otologist as they are the best doctors to deal with dizziness (not an ENT specialist). The exercises that Kathy suggested will certainly help. It is just a bit daunting at first trying to make yourself dizzy (ugh)! You could also see a vestibular physiotherapist, who can assess your condition and set some appropriate exercises. There is a procedure that a doctor or trained therapist can perform called the "Epley Manoevre" or "Canalith Repositioning Procedure" where sequential head movements on the patient can actually reposition the crystals back into the inner ear where they belong (this is probably the procedure your doctor performed). I hope this helps some, and that you get some relief soon. Best wishes Bunny -----Original Message-----From: Madeleine Welsh Sent: Sunday, 2 March 2003 1:29 PMTo: bronchiectasis Subject: Vertigo Dear everyone - I have been reading the emails on Vertigo with interest. Over the last month I have suffered what I called bouts of dizziness. My ears were ok and dr said some crystals within the ear (deep) had come loose and were floating around. He had me lay down and slowly I had to turn right around in a full circle while he held me head straight. For 2 weeks I had to sleep propped up (even though I already do to help breathing) but I was not to turn to my left side as that was the worse side. I went back the other day for a check and said I still felt giddy a lot of the time although it was slightly better. He did the turning test again and said my eyes didn't register any spinning so I was ok. I walked out of there feeling duped.....I wasn't ok and he didn't take any notice of me.... Now a few of you are mentioning vertigo and I am intrigued to ask does it perhaps go hand in hand with the bronchs. Perhaps lack of oxygen causes it? Am very interested to hear what all you experts say (and I don't use that term loosely). As I said before I think we all know as much if not more than some of our doctors. Take care everyone Madeleine Madeleine WelshEmail:: madeleine.welsh@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Dear Jessie I have seen a specialist at RPA who said it's nothing to be concerned about - it will go away. But it might come back in which case he wants me to come back to see him again. I've just received his bill and am shocked at what I have to pay for 5 (if that) minutes of his time....very disappointed as I still don't know what caused it - I bet he doesn't either but I still had to pay through the nose. Thanks for your comments Madeleine (Sorry I'm just a bit cross - I'm happy to pay if I'm treated as a human being - but hate to be spoken down to as though I wouldn't understand - "trust me, I'm a doctor" RE: Vertigo Hi Madeleine, The dizziness you have described is called BPPV (benign positional paroxysmal vertigo) which can be triggered by a virus, migraine or head trauma. This condition usually settles down in time, however it can re-occur. It is worse with head movement, however, you can also have ongoing dizziness, lightheadedness and unsteadiness. I have had this on and off for years, but it seems to have settled now, thank goodness. My pulmologist assured me that it wasn't related to my bronch or lack of oxygen. I remember when I had the first attack, I was very tired, stressed and working long hours. If you do not get satisfaction from your doctor, you could always ask for a referral to a neuro-otologist as they are the best doctors to deal with dizziness (not an ENT specialist). The exercises that Kathy suggested will certainly help. It is just a bit daunting at first trying to make yourself dizzy (ugh)! You could also see a vestibular physiotherapist, who can assess your condition and set some appropriate exercises. There is a procedure that a doctor or trained therapist can perform called the "Epley Manoevre" or "Canalith Repositioning Procedure" where sequential head movements on the patient can actually reposition the crystals back into the inner ear where they belong (this is probably the procedure your doctor performed). I hope this helps some, and that you get some relief soon. Best wishes Bunny -----Original Message-----From: Madeleine Welsh Sent: Sunday, 2 March 2003 1:29 PMTo: bronchiectasis Subject: Vertigo Dear everyone - I have been reading the emails on Vertigo with interest. Over the last month I have suffered what I called bouts of dizziness. My ears were ok and dr said some crystals within the ear (deep) had come loose and were floating around. He had me lay down and slowly I had to turn right around in a full circle while he held me head straight. For 2 weeks I had to sleep propped up (even though I already do to help breathing) but I was not to turn to my left side as that was the worse side. I went back the other day for a check and said I still felt giddy a lot of the time although it was slightly better. He did the turning test again and said my eyes didn't register any spinning so I was ok. I walked out of there feeling duped.....I wasn't ok and he didn't take any notice of me.... Now a few of you are mentioning vertigo and I am intrigued to ask does it perhaps go hand in hand with the bronchs. Perhaps lack of oxygen causes it? Am very interested to hear what all you experts say (and I don't use that term loosely). As I said before I think we all know as much if not more than some of our doctors. Take care everyone Madeleine Madeleine WelshEmail:: madeleine.welsh@... Quote Link to comment Share on other sites More sharing options...
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