Guest guest Posted April 21, 2003 Report Share Posted April 21, 2003 Hi, I have just discovered this awesome group!!! My son is 15 weeks old and from the day that he was born I noticed that he had frontal bossing on the right side of his forehead. The MD said that all babies' heads change shape after they are born and we will just keep an eye on it. Well the bump never changed. We had the xrays that ruled out cranio, and he has now been in his helmet for three weeks. He has had a readjustment for a red spot and for crowding of one of his ears and now hopefully we will be on to obvious improvement of his head shape. He is wearing a STARband. I don't see much info on the web about it compared to the DOC. I need some encouragement that this product is just as good... We really didn't know much about the different products before we had this one fitted at an orthotic/prosthetic company that our pediatrician told us to go to. The orthototist we see specializes in peds and has years of experience, but what I have read about DOC is that they have very frequent follow-up. After these adjustments, he doesn't want to see Cody for 3 WEEKS!!!! Looking forward to hearing some good news. CP Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2003 Report Share Posted April 21, 2003 Hello and welcome! The STARband is a GREAT product when it is used by an experienced and well trained orthotist. If the ortho you are using has a strong background treating babies with plagio using the STARband then Cody should experience some great success. Have you seen some progress already? Three weeks seems a bit too long between adjustments for a baby as young as Cody. Keep a really close eye on his head and if you notice any redness that doesn't fade completely in an hour or if you are uncomfortable in any way with the fit then call the ortho and insist on being see right away. If you are diligent in checking out his head and insistent on being seen when there is a potential problem then all should be well. Keep us posted and let us know if you have seen progress already. I'd be curious to know. Marci (Mom to ) Oklahoma > Hi, > I have just discovered this awesome group!!! My son is 15 weeks > old and from the day that he was born I noticed that he had frontal > bossing on the right side of his forehead. The MD said that all > babies' heads change shape after they are born and we will just keep > an eye on it. Well the bump never changed. We had the xrays that > ruled out cranio, and he has now been in his helmet for three weeks. > He has had a readjustment for a red spot and for crowding of one of > his ears and now hopefully we will be on to obvious improvement of > his head shape. > He is wearing a STARband. I don't see much info on the web > about it compared to the DOC. I need some encouragement that this > product is just as good... We really didn't know much about the > different products before we had this one fitted at an > orthotic/prosthetic company that our pediatrician told us to go to. > The orthototist we see specializes in peds and has years of > experience, but what I have read about DOC is that they have very > frequent follow-up. After these adjustments, he doesn't want to see > Cody for 3 WEEKS!!!! > Looking forward to hearing some good news. > CP Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2003 Report Share Posted April 21, 2003 Hi and welcome to the group! Cody is at a wonderful age to see improvement from his band, he'll be growing so much within the next few months! You're really fortunate that it was caught so early! I just wanted to chime in here about the frequency of check-ups. My twins both wore STARbands, and we had a wonderfully experienced ortho. After we first received the bands, our appointment was scheduled for three days later. After that, we also went to every three weeks, but we were seen whenever we had a question...we didn't have to wait those three weeks if we were having problems. I should also mention that by that point, my twins were 8 months. With Cody being so young, you might request to be seen every two weeks. Here's to lots of growing and rounding! Niki Kaylie & Danny (STAR grads) Phila., PA --- In Plagiocephaly , " pivirottoch " <cherylpiv@s...> wrote: > Hi, > I have just discovered this awesome group!!! My son is 15 weeks > old and from the day that he was born I noticed that he had frontal > bossing on the right side of his forehead. The MD said that all > babies' heads change shape after they are born and we will just keep > an eye on it. Well the bump never changed. We had the xrays that > ruled out cranio, and he has now been in his helmet for three weeks. > He has had a readjustment for a red spot and for crowding of one of > his ears and now hopefully we will be on to obvious improvement of > his head shape. > He is wearing a STARband. I don't see much info on the web > about it compared to the DOC. I need some encouragement that this > product is just as good... We really didn't know much about the > different products before we had this one fitted at an > orthotic/prosthetic company that our pediatrician told us to go to. > The orthototist we see specializes in peds and has years of > experience, but what I have read about DOC is that they have very > frequent follow-up. After these adjustments, he doesn't want to see > Cody for 3 WEEKS!!!! > Looking forward to hearing some good news. > CP Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 Hello Dallena, welcome to the group. Can't help you with Knoxville as I'm in Australia. Everything is upside down here, so they tell me :-) Ted F. > > Hello..my name is Dallena. I have a severe to profound hearing loss. > And..have started the process to get an cochlear implant. I did my > initial CI eval locally here in Chattanooga. I cannot have the surgery > done here in Chattanooga and will have to go to Knoxville. Can anyone > tell me about how long the CI evaluation will take when I go to > Knoxville? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 -I live in Tennessee by the way Dallena -- In , " Ted F. " <ted.fletcher@...> wrote: > > Hello Dallena, welcome to the group. Can't help you with Knoxville as > I'm in Australia. Everything is upside down here, so they tell me :- ) > > Ted F. > > > > > > > Hello..my name is Dallena. I have a severe to profound hearing > loss. > > And..have started the process to get an cochlear implant. I did my > > initial CI eval locally here in Chattanooga. I cannot have the > surgery > > done here in Chattanooga and will have to go to Knoxville. Can > anyone > > tell me about how long the CI evaluation will take when I go to > > Knoxville? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 Hi Dallena, I just wanted to say hi and welcome! I've already had my CI evaluation a few months back and am now just waiting on approval from my insurance company and then a surgery date. I can't help you out with how long the eval process is in Knoxville...sorry. I'm sure somebody here will come on and help you out, though. I joined this group back in January and it was the people here who helped me make the decision to get a CI. I came here in a panic, not knowing what to do. I had normal hearing my whole life and then in a matter of two months was totally deaf. It was devastating. I thought my life was over. But low and behold, the good people here came to my rescue and told me I WOULD hear again and to just relax and take a breath, that everything was going to be okay. So I listened to them, and over these past few months they have been a godsend to me. And now I'm just waiting for approval from my insurance company, and then I'll get a surgery date! So I'm very excited right now! So you've come to the right place! I just wanted to say hi and I hope everything works out for you. > > Hello..my name is Dallena. I have a severe to profound hearing loss. > And..have started the process to get an cochlear implant. I did my > initial CI eval locally here in Chattanooga. I cannot have the surgery > done here in Chattanooga and will have to go to Knoxville. Can anyone > tell me about how long the CI evaluation will take when I go to > Knoxville? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 Hi Dallena, If you go to the CIHEar website www..com there is a section of frequently asked questions. And there should be something about what an evaluation is like. How long it takes depends on what needs to be done. If you have had a CT scan or MRI in Chatanooga, take those tests with you to avoid having them done again. Usual routine is audiology test, CT scan, MRI, sometimes physchological testing to make sure you aren't expecting too much. You may be asked to try stronger hearing aids, if yours are old. Check out the website. Wealth of knowledge. Welcome aboard, Hello..my name is Dallena. I have a severe to profound hearing loss. And..have started the process to get an cochlear implant. I did my initial CI eval locally here in Chattanooga. I cannot have the surgery done here in Chattanooga and will have to go to Knoxville. Can anyone tell me about how long the CI evaluation will take when I go to Knoxville? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 I dont hold that against you :-) Ted F. > > > > > > Hello..my name is Dallena. I have a severe to profound hearing > > loss. > > > And..have started the process to get an cochlear implant. I did > my > > > initial CI eval locally here in Chattanooga. I cannot have the > > surgery > > > done here in Chattanooga and will have to go to Knoxville. Can > > anyone > > > tell me about how long the CI evaluation will take when I go to > > > Knoxville? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Hi Dallena, I didn't go to Knoxville but Nashville. I saw my audi for the first time in July to see if I was a candidate. Scored 0 in both ears. It was 2 months between seeing the surgeon for the first time (Oct. 1) and the surgery day (Dec. 9). Sharon Myers Bilateral CI surgery 12-09-02 Bilateral CI Hookup 1-09-03 Posted by: " bigdhess91 " dhess91@... bigdhess91 Hello..my name is Dallena. I have a severe to profound hearing loss. And..have started the process to get an cochlear implant. I did my initial CI eval locally here in Chattanooga. I cannot have the surgery done here in Chattanooga and will have to go to Knoxville. Can anyone tell me about how long the CI evaluation will take when I go to Knoxville? --------------------------------- Ahhh...imagining that irresistible " new car " smell? Check outnew cars at Autos. Quote Link to comment Share on other sites More sharing options...
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