Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 nne I expect I am cloggin up your mail even more by replying:-) However, I did wonder about pleuresy after I wrote to you but it ws never mentioned in th hosital. Joanthan wsa too unwell to be able even to sit himself up and could barely turn over in the bed the next day without help. But by Sunday Evening he wsa able to walk with assistance and then made a fairly rapid recovery although he seems to never get back to where he was prior to each infection. As for the staff at as far as my children are concerned there is nothing wrong with them and I make it all up. Sorry if that sounds harsh but I now get hackles on the back of my neck when DH starts to tell me what someone in school says. I have no faith in them and no confidence in them taking care of my kids. Sadly I also have no choice about which school they go to as where we live on an Island we have only one school catering for their needs. Love to youTina Hillier Mum to , 12 years old and possesor of an Extra Special Chromosome. Rosie 10 ( who enjoys a life enhanced by the Joys and Trial of CdLS) 6, A budding Artist and Singer, Famously ignoring the fact that his eyesight is deteriorating. And who is 4 years old and a big school girl now! http://uk.photos.yahoo.com/tdlhillier mailto:tdlhillier@... www.cdlsrosie.homestead.comWith Yahoo! Mail you can get a bigger mailbox -- choose a size that fits your needs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2003 Report Share Posted January 11, 2003 Tina I just wanted to say I just got through looking through your pic album........it was so neat to finally put a face with the children.......they are gorgeous..........my daughter enjoyed looking at the pics with me.......thank you for sharing those........ sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2003 Report Share Posted January 11, 2003 Thank you for the complement Sondra. Photography is my hobby...just in case you hadn't realised. Although DH has taken over a lot of the photo taking since he is fascinated by cameras. is becoming a bit of an addict too now and we bought him a small digital camera earlier this year so as not to waste too much oney on the film developing. Did you see the ones of jonathan's Big Day? He was a Page Boy at a friend wedding in July. He was so proud and we were so grateful to the couple who we only met through a prolonged hospital stay their eldes daughter was in hospital for 7 of the 12 weeks that was. They fell in love with him and did a lot of taking care of him when we couldn't be there. They are still some of our very best friends! Much loveTina Hillier Mum to , 12 years old and possesor of an Extra Special Chromosome. Rosie 10 ( who enjoys a life enhanced by the Joys and Trial of CdLS) 6, A budding Artist and Singer, Famously ignoring the fact that his eyesight is deteriorating. And who is 4 years old and a big school girl now! http://uk.photos.yahoo.com/tdlhillier mailto:tdlhillier@... www.cdlsrosie.homestead.comWith Yahoo! Mail you can get a bigger mailbox -- choose a size that fits your needs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2003 Report Share Posted June 11, 2003 OOps... I accidentally sent a blank email...Duhhhhhhhhhhhhhhhhhhhhhh What is the CDLS group? Becki YOUR FAVORITE LilGooberGirl YOUNGLUNG EMAIL SUPPORT LIST www.topica.com/lists/younglung Pediatric Interstitial Lung Disease Society http://groups.yahoo.com/group/InterstitialLung_Kids/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2003 Report Share Posted June 11, 2003 I believe it is a support group for CDLs victims & /or their families....................Nona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2003 Report Share Posted June 11, 2003 Becki CdLS is Cornelia de Lange Syndrome the cdls-kids group is the support group where families share info like we do on Bronchiectasis. My Daughteer Rosie has CdLS. www.cdls-support.org is the website for the group if you would like to find out more. Much love Tina Hillier Mum to , 13 years old and possesor of an Extra Special Chromosome. Rosie 11 ( who enjoys a life enhanced by the Joys and Trial of CdLS) 6, A budding Artist and Singer, And who is 4 years old and a big school girl now! Isle of Wight UK http://uk.photos.yahoo.com/tdlhillier mailto:tdlhillier@... www.cdlsrosie.homestead.comYahoo! Plus - For a better Internet experience Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2003 Report Share Posted June 13, 2003 OH Tina I am sooooo sorry that your neighbour is a complete and utter *%#$! What they need is to be dropped into a lime pit people like that.....You have been through enough without all this on top of it....Are there any organisations who can mediate between you...It says alot about them if they even complain about an ambulance blocking their way. I wish I could offer some help. but all I can do is send you a hug and prayers. I do hope everything settles down....my heart goes out to you.....The saying goes...god's ways are silent...his day will come alright!.......love and best wishes...LeeI too am angry for you and Yahoo! Mobile - Check compose your email via SMS on your Telstra or Vodafone mobile. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 Karin, Thanks for that, They are receiveing some each day at the moment and are loving it. Norma's kept them inthralled for about ten minutes...thanks Norma. I am taking the camera in on Tuesday as they are doing some topic work all day. Hopefully will get soem good pics to send. Hugs Tina Hillier Mum to , 13 years old and possesor of an Extra Special Chromosome. Rosie 11 ( who enjoys a life enhanced by the Joys and Trial of CdLS) 6, A budding Artist and Singer, And who is 4 years old and a big school girl now! Isle of Wight UK http://uk.photos.yahoo.com/tdlhillier mailto:tdlhillier@... www.cdlsrosie.homestead.com Yahoo! Messenger - Communicate instantly..."Ping" your friends today! Download Messenger Now Quote Link to comment Share on other sites More sharing options...
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