Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 Do alot of you have bone/join pain? I'm reading that alot of you feel that it is from the bronchiectasis. Is there anything to prevent these complications from occuring? There again, what do you do for these aches/pains? DeDe Re: Club fingers Ina Club fingers are the result of a lack of well oxygenated blood to the periphery of the fingers...you can get clubbed toes too. Children with congenital heart defects are the commonest group of people where you will see this. It is caused by the tiny blood vessels expanding and widening the finger tips are commonly blue too, so this part of your finger is not caused by bone or join deformity as such. I am certain that emedecine has information on clubbing. However it is interesting that many of you do have bone and joint problems. had problems with his hips dislocating and following surgery his bones did not heal properly. The surgeon suspects he will have further dificulties with joints in years to come. much love Tina Hillier Mum to , 12 years old and possesor of an Extra Special Chromosome. Rosie 10 ( who enjoys a life enhanced by the Joys and Trial of CdLS) 6, A budding Artist and Singer, Famously ignoring the fact that his eyesight is deteriorating. And who is 4 years old and a big school girl now! Isle of Wight UK http://uk.photos.yahoo.com/tdlhillier mailto:tdlhillier@... www.cdlsrosie.homestead.com Yahoo! Plus - For a better Internet experience Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2003 Report Share Posted April 5, 2003 I don't have joint pain mine is always in the muscles........... sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2003 Report Share Posted April 5, 2003 I haven't had trouble with the clubbing of the fingers......although I had read about this before and now every time I get put in the hospital my pulmonary doc always checks out my fingers......now I know why.......... sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2003 Report Share Posted April 5, 2003 > How many of you have club fingers? I do , also have knots on my fingers and they are twisting them around. Also the luna's(half moons) of my finger nails are turning blue.. They told me that Bronchiectasis and cromes disease are the only disease that you get club fingers from. So if your fingers get clubed it stands to reason that this disease does affect your bones and maybe your muscles. I know I have sure got crippled up since I have been told I have this nasty disease. I now have degenertive joint disease too . and am getting worse all the time . and De De. I too have begain having trouble with my teeth. makes you wonder what is going to go next. Nice to have all you good people to talk too. Ina I have always had mildly clubbed fingers. My pulmonologist now and the one I used to have would yell at me if I happened to have on nail polish when I saw them, because they want(ed) to check the color of my nails. (I don't have to never have it- just when I see the doctor.) My clubbing isn't too bad, really, hardly noticeable, but I think it looks weird. Of course, I depend on my hands for a living, too, so I notice them more than the average person, anyway. Karin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2003 Report Share Posted April 5, 2003 Could anyone please explain to me what clubbing of the fingers means and what I am to look for. -- Re: Re: Club fingers I haven't had trouble with the clubbing of the fingers......although I had read about this before and now every time I get put in the hospital my pulmonary doc always checks out my fingers......now I know why.......... sondra Quote Link to comment Share on other sites More sharing options...
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