Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 Hello Craig What can I say? I can understand how you must feel. Although I'm not yet at your stage I know it must come sometime. Each little step we advance is a bit tough. But that's what we're made of eh? Good luck and take care Madeleine oxygen Hello, just going to have a whinge (woe is me! ) Had a 3 day rest in hospital due to chest infection, and got sent home with an oxygenator for hopefully short term use, as my O2 sat was down to 86% when resting. However I'm feeling a bit low about it as to me, its the next step along to the old windbags clapping out and relying totally on bottled air !! Ta for all you guys out there listening... :-) Craig Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 Hey Craig.....don't get down....hopefully its just temporary for the oxygen use........although I know this disease does tend to bring ya down when it seems like no matter what you do it just dosen't get better.........but we are strong and we will prevail......... too bad its not laughing gas we need instead of oxygen.......man that could be fun......then we would just hope that our stats went down so we could have a little laugh.......lol sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 sending big cyber hugs Lynn Tina Hillier Mum to , 14 years old and possesor of an Extra Special Chromosome. Rosie 12 ( who enjoys a life enhanced by the Joys and Trial of CdLS) 7, A budding Artist and Singer, And who is 6 years old and a lovely friend! Isle of Wight UK http://uk.photos.yahoo.com/tdlhillier mailto:tdlhillier@... www.cdlsrosie.homestead.com I do not know what the future holds, But I am glad I know who holds the Future. ALL-NEW Yahoo! Messenger - all new features - even more fun! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Hi Lynne, Sorry to hear this news. I can understand how upset you are feeling about using oxygen full time. However, your lungs need time to recover from the pneumonia, so you may not always need it. When you get stronger and can do a little exercise, that will help. Have you thought about going to pulmonary rehabilitation as this is always a good place to start? As Del suggested, you may find that you only need it at times when you feel short of breath or at night time. Another suggestion, why not buy a pulse oximeter so that you can monitor your oxygen sats on a regular basis. The pulse oximeters are not cheap, but you can buy them on eBay for approx. US$275.00. If you get a referral from your GP, you may be able to claim on your health insurance. Please know I'm thinking of you and sending {{{hugs}}}. Love Bunny oxygen Hi all, I came from the lung doc for a follow up for the pneumonia. The infectious disease doc I saw last week stopped the IV antiobiotics but recommended oxygen and a visit with my lung guy. My lung doctor agreed--- he said that my lungs were still crackling and popping but I'll have that due to the bronchi. and that I needed to use oxygen. I asked when I should come back to see when I could stop the oxygen and he said that it looks like its time to wear the oxygen FULL time. I burst into tears when he said that, that has always been a concern of mine when I have to use the O2, that I would never come off of it. So if anyone is on O2 full time and has any advice for me I could really use it right now. I am trying not be upset, there are far worse things that could happen, but I was shocked and never thought I was at the point of being on O2 permenantly at age 30. Lynne in Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2004 Report Share Posted October 29, 2004 Hi Lynne, I just got out of hospital in Toronto (I'm staying with my brother and his family), so apologise for the late reply. I have been on 02 for three years, but was excited to get 02, because it meant freedom for me. Initially, I started on 02 just at night, but my lungs being so damaged soon required 02 on a more full-time basis, 02 allows me to sleep better and after sleep my memory and concentration are much improved. Prior to being on 02 my brain was in a fog. 02 allows me to get out and spend time with family and friends, go to restaurant, etc. I even attended an anatomy class last fall! I'm sorry to hear that you require 02, but for those of us who do need it the 02 can be very helpful. Flying home to Nova Scotia tomorrow - The Land of the Sane. Yay! Hugs:0) 31 yr old with atypical CF and restrictive lung disease and not a fan of Toronto hospitals.... grr... another story altogether. ) "Miracles happen with love....." ..... Please support your local children's hospital.... and "Give with all your might!" http://iwkfoundation.org/ )Visit.... Children's Miracle Network.... http://www.cmn.org/ ) The Child Health Site: http://www.thechildhealthsite.com/Care2's Race for Children in Need: http://children.care2.com/Post your free ad now! Yahoo! Canada Personals Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2004 Report Share Posted October 29, 2004 hi mary, pleased to know you'll soon be home and i hope the toronto visit was satisfactory. perhaps you can fill us in on that when you're settled. safe travels. jennifer in bc Holt wrote: Hi Lynne, I just got out of hospital in Toronto (I'm staying with my brother and his family), so apologise for the late reply. I have been on 02 for three years, but was excited to get 02, because it meant freedom for me. Initially, I started on 02 just at night, but my lungs being so damaged soon required 02 on a more full-time basis, 02 allows me to sleep better and after sleep my memory and concentration are much improved. Prior to being on 02 my brain was in a fog. 02 allows me to get out and spend time with family and friends, go to restaurant, etc. I even attended an anatomy class last fall! I'm sorry to hear that you require 02, but for those of us who do need it the 02 can be very helpful. Flying home to Nova Scotia tomorrow - The Land of the Sane. Yay! Hugs:0) 31 yr old with atypical CF and restrictive lung disease and not a fan of Toronto hospitals.... grr... another story altogether. ) "Miracles happen with love....." ..... Please support your local children's hospital.... and "Give with all your might!" http://iwkfoundation.org/ )Visit.... Children's Miracle Network.... http://www.cmn.org/ ) The Child Health Site: http://www.thechildhealthsite.com/Care2's Race for Children in Need: http://children.care2.com/ Post your free ad now! Yahoo! Canada PersonalsPost your free ad now! Yahoo! Canada Personals Quote Link to comment Share on other sites More sharing options...
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