Re: Copax; about ms and possible causes; to all

[Guest guest]

I came to believe that ms is something that already exists in our bodies,

before it " opens outwards " . I spoke / communicate with many other ms-ers and

smth seemed very strange to me: most of them said they surely had had

symptoms of the disease years before the first obvious " crisis " . I think

there always is a predisposition to this disease, maybe genetic. (e.g. my

mother has the Babinsky reflex and she hasn't ms)

Almost all of them had very serious psychological problems (I don't know

exactly how to call them) before the first relapses: tragic events or shocks

that upset their minds or feelings: e.g. death of both parents within six

months, were left by their life partner, had children with handicaps,

" crucial " exams (in universities etc.), they lost their jobs, had car

accidents, a lasting fatigue or emotion, unbearable stress...

After some situations like that, I suspected that it couldn't be just a

coincidence ! And I started to ask more and more persons about that. I can

tell you that what I heard or read was absolutely amazing! Only 4 of them

said they had no such a problem before their ms symptoms. All 4 has a

primary progressive ms. Maybe another coincidence. I ceased to ask other

people, but my conclusion was that maybe, just maybe... such problems could

turn upside-down the immune system or whatever... and cause the ms

" appearance " . Then, once disordered, I think it could illogically provoke

damages to the whole body. And all the external factors (viruses, different

toxins etc.) could be then triggering factors.

Some people may have heart attacks, or hair loss, but also brain damage. Ms

could also be caused by problems like those (shocks etc.). It is my

belief...

I don't know if I was coherent. I am also sure that there were others before

me :-))) who thought about that,but I'd like to know your opinions too.

Natalia

Re: Copaxone

> I suspect that what we now call simply MS is really several different

> diseases some viral, some bacterial and some with some as yet unknown

> eniviromental cause. I for instance, have never had any viral disease no

> colds, no flu and no childhood diseases. This is beypnd the accepted MS

> types: RRMS, SPMS, PPMS, ect.

>

[Guest guest]

Natalia,

When I read your post about a crisis precipitating MS I had to

write. In my early days in grade school I was the target of bullying

that went on for 8 years. I wanted to die. Since my parents felt I

was geting a " good " education changing schools wasn't an option. And

since it was 30 years ago teachers were not willing to do anything,

as they are now.

I carry this mental damage even today and so being diagnosed 16 years

ago with RRMS your article makes so much sense. I hope that an

answer can soon be found for all of us with MS. As I write this my

heart is pounding hard with reliving in my mind this horrible time in

my life.

> I came to believe that ms is something that already exists in our

bodies,

> before it " opens outwards " . I spoke / communicate with many other

ms-ers and

> smth seemed very strange to me: most of them said they surely had

had

> symptoms of the disease years before the first obvious " crisis " . I

think

> there always is a predisposition to this disease, maybe genetic.

(e.g. my

> mother has the Babinsky reflex and she hasn't ms)

>

> Almost all of them had very serious psychological problems (I don't

know

> exactly how to call them) before the first relapses: tragic events

or shocks

> that upset their minds or feelings: e.g. death of both parents

within six

> months, were left by their life partner, had children with

handicaps,

> " crucial " exams (in universities etc.), they lost their jobs, had

car

> accidents, a lasting fatigue or emotion, unbearable stress...

>

> After some situations like that, I suspected that it couldn't be

just a

> coincidence ! And I started to ask more and more persons about

that. I can

> tell you that what I heard or read was absolutely amazing! Only 4

of them

> said they had no such a problem before their ms symptoms. All 4

has a

> primary progressive ms. Maybe another coincidence. I ceased to ask

other

> people, but my conclusion was that maybe, just maybe... such

problems could

> turn upside-down the immune system or whatever... and cause the ms

> " appearance " . Then, once disordered, I think it could illogically

provoke

> damages to the whole body. And all the external factors (viruses,

different

> toxins etc.) could be then triggering factors.

>

> Some people may have heart attacks, or hair loss, but also brain

damage. Ms

> could also be caused by problems like those (shocks etc.). It is my

> belief...

> I don't know if I was coherent. I am also sure that there were

others before

> me :-))) who thought about that,but I'd like to know your opinions

too.

> Natalia

>

>

>

>

> Re: Copaxone

>

>

> > I suspect that what we now call simply MS is really several

different

> > diseases some viral, some bacterial and some with some as yet

unknown

> > eniviromental cause. I for instance, have never had any viral

disease no

> > colds, no flu and no childhood diseases. This is beypnd the

accepted MS

> > types: RRMS, SPMS, PPMS, ect.

> >

[Guest guest]

> Almost all of them had very serious psychological

> problems (I don't know

> exactly how to call them) before the first relapses:

> tragic events or shocks

> that upset their minds or feelings

Natalia,

without a doubt, I went through one of the most

difficult times in my life thus far before my first

symptoms. I have little doubt that the crises (both

emotional and physical) led to a disruption in my

immune system and then MS. So you could add me to

your list of people who've had a crisis before their

first relapse.

Hope you have good success with your treatment this

week. Do give us a report when you return.

Jatra

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