Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Well I am 36 and was just diagnosed this last june.......but they said that the shape my lungs are in I've probably had this since I was young..........don't know how young as they think I acquired it after years of fighing pnemonia and bronchitis every winter and since we didn't make too many trips to the dr when I was a kid I didn't have any chest x-rays for them to go by....its kind of a guessing game for us......... sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 welcome to the group madeleine......sorry if I misspelled that.......I am happy that you decided to join us......sometimes you will find that there is no better therapy than to be able to come in here and gripe about something that no one else understands.......except us.......because we all seem to find it frustrating at times to try and explain to drs or co-workers that we are not over dramatizing or faking so we can go home.......(although.....hehehehe I have faked a feeling bad spell once so I didn't have to go to my mother-in-laws.....but shhhhhhhhhh no one but the group knows that) but it is also helpful at times when you might have something happen and it throws a scare into you and you can come in here and find out that the same thing has happened to a couple of other people and then all of the sudden it dosen't seem so scarey anymore......... so I want to say....thanks for coming out......hehehehe.....I'm sure you will enjoy the group....... sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 I have quietly reading all your emails over the past months - often wanting to reply then deciding not to. What has prompted this is the LOL that appears in so many emails. I know this can mean Lots of Love but in some instances that doesn't seem to make sense. Now I'm typing this I feel quite excited about really joining you all so perhaps I should tell you a little bit about me. Am 58 and was diagnosed 2 years ago - this was really quite a shock although quite a relief in some ways. Had been ill for many months and xrays showed clear chest until my GP sent me to a Chest Specialist and lo and behold. Have always (since 6 months old) suffered from Asthma - quite badly until around 30 when it eased a lot. Apparently my Bronch is due to a missed diagnosis possibly many years back - there were many times when I could hardly breathe but because I often don't have a wheeze and xrays were sometimes (not always) clear Drs just seemed to think I was perhaps being a bit over dramatic. I'm sure you all will agree when you can't breath you can't be too dramatic - not enough breath for it. Oh, by the way I live in Sydney and I find the humidity terribly draining and am constantly tired. Since my diagnosis I've had to give up full time work and am struggling alone to make ends meet with part time work. Touch wood at the moment I'm pretty good - just tired. Sorry this has turned into a short story - I do feel lucky to have found you all - you have answered some of my questions that the docs just don't seem to know answers for. I feel like I've just come out....... All the best to all Madeleine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Hi there and welcome! LOL stands for Laugh Out Loud.... it is used to show that we have just made a joke, or responded to someone by laughing...... Isnt it strange how many on this list are in Australia? Is there a reason for that? I myself am in UK. I know there are others in the UK on the list but just wondered about it. Tyne -------------------------------------------------------------------- Get your free email address at http://www.merseymail.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Hi Tyne Thanks for the answer!!! Now it all makes sense. Maybe we could start up a survey to see where the Bronch is most prevalent or if it's equally spread around. I was under the impression that perhaps it was more in the older folk like me who went undiagnosed for so many years and were brought up in an era with less medical knowledge and treatment. But reading the mail from everyone it seems also to hit the young too - which is a real pity. Bye for now Madeleine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Hi Yea, well I am 50 and have had it since I was about 10...... Good idea to do a survey! Tyne -------------------------------------------------------------------- Get your free email address at http://www.merseymail.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Hi Madeleine, Just wanted to say welcome to the group and I'm so glad you have joined us :-) I'm also from Sydney and you will find there are quite a few Aussies on board from different states. I'm 50, and was diagnosed when I was 2 years' old following whooping cough. Oh how I curse that whooping cough (lol)!! I'm also finding the weather in Sydney very draining, especially when the bushfires were flaring all around us. I can't work any more, I had to give up full time work a few years' ago, then tried part time for a while, but eventually my health had to take precedence. Take care and keep in touch. Love Bunny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Hello Bunny & Bob Thanks for your welcome - it's nice to be a part of the group. I found the bushfires bad also and could not go to work on a couple of bad days. Like you I have had to reduce my working days to 3 but sometimes I am so tired for no particular reason that I cannot get to the office. I work for Red Cross who are very understanding and I am able to work certain hours from home so am keen to be able to continue as retirement (forced or otherwise) isn't too far away. Best wishes to you both Madeleine RE: The Bronchs! Hi Madeleine, Just wanted to say welcome to the group and I'm so glad you have joined us :-) I'm also from Sydney and you will find there are quite a few Aussies on board from different states. I'm 50, and was diagnosed when I was 2 years' old following whooping cough. Oh how I curse that whooping cough (lol)!! I'm also finding the weather in Sydney very draining, especially when the bushfires were flaring all around us. I can't work any more, I had to give up full time work a few years' ago, then tried part time for a while, but eventually my health had to take precedence. Take care and keep in touch. Love Bunny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Hi Sondra - yes you spelt my name correctly - definitely deserving of a gold star. Thanks for the welcome and you're right about the therapy - it's great to have people who understand because I think even the best doctors don't. Nobody could if they didn't suffer this or any disease themselves. All the best Madeleine Re: The Bronchs! welcome to the group madeleine......sorry if I misspelled that.......I am happy that you decided to join us......sometimes you will find that there is no better therapy than to be able to come in here and gripe about something that no one else understands.......except us.......because we all seem to find it frustrating at times to try and explain to drs or co-workers that we are not over dramatizing or faking so we can go home.......(although.....hehehehe I have faked a feeling bad spell once so I didn't have to go to my mother-in-laws.....but shhhhhhhhhh no one but the group knows that)but it is also helpful at times when you might have something happen and it throws a scare into you and you can come in here and find out that the same thing has happened to a couple of other people and then all of the sudden it dosen't seem so scarey anymore.........:)so I want to say....thanks for coming out......hehehehe.....I'm sure you will enjoy the group....... sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Hi Barb - Perhaps the two mixed together? I know when you mix chemicals it can be dangerous. The Dr. in Chicago had asked me repeatedly if I was sure I had not had whooping cough as a child & and I kept telling him no. Then I ask could breathing ammonia fumes have caused it & he said no, that's the one thing it does not cause. That's all I have to go on - I did not explore that any further but will ask my specialist the next time I see her. Thanks for the reply. <<hugs>> Nona IN GOD WE TRUST Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Nona, I was told by one of my doctors that breathing the fumes of Clorox mixed with ammonia can cause bronchiectasis. Barb The Bronchs! << File: ATT00007.htm >> A neat idea. Below are my stats. Age: 68.5 Early years: Southern Illinois (USA) Coal Mining Town Allergies: Very bad hayfever from approx. age 12 to approx. 26 Moved to Northern Illinois at age 18 Chest: Numerous chest & sinus infections thru adult years Lost sense of smell approx. age 25 Smoking: Started age 20 till age 52 Osteo: Diagnosed 1999 Reflux: Diagnosed 2000 Bronch: Diagnosed March 2002 after Virus began Jan. 2002, then bronchitis started. Severity: Dr. feels we found it early on. Had one other onset of bronchitis in August. Otherwise have done good so far. Do steaming, postural drainage twice daily & use vibrator. Treadmill walking & Rehab program. General Health: Other than above very good. Work Environment: Worked for a corner board factory in office for approx. 6 months. Got sick with sinus infection and was off work 2 weeks. Was let go. The door from the office was always left open to the factory when someone would come in or out. Cornerboard is a paper product that is used as packing material on the corners of furniture or appliances or the like. There was a lot of cutting. Also, amonia fumes until I convinces the firm they must put up a door between me and the blueprint production area. (Was told when ill by Dr. in Chicago that I could rest easy on that as they know that amonia does not cause bronchiectasis. Have found as have others that changes in weather do affect the way I feel. But have also found that if I feel sluggish & go do postural drainage that I feel much better & get my 'energy' back. I also drink a lot of decaf tea with honey & lemon. And take a lot of Vitamins. My meds for Bronch consist of Serevent 2x per day & use Albuterol when do postural drainage. That's it pretty much for me guys & gals. <<hugs>> Nona star34baby@... IN GOD WE TRUST Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 Hi Nona, My first pulmonologist asked me specifically if I had ever breathed the two mixed together. Barb Re: The Bronchs! << File: ATT00003.htm >> Hi Barb - Perhaps the two mixed together? I know when you mix chemicals it can be dangerous. The Dr. in Chicago had asked me repeatedly if I was sure I had not had whooping cough as a child & and I kept telling him no. Then I ask could breathing ammonia fumes have caused it & he said no, that's the one thing it does not cause. That's all I have to go on - I did not explore that any further but will ask my specialist the next time I see her. Thanks for the reply. <<hugs>> Nona IN GOD WE TRUST Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2003 Report Share Posted January 24, 2003 This is a great idea!!! Here's me: Age: 30 (31 in April) Age of diagnosis: six years old Early years: Born and grew up in suburban Bergen County, NJ, about 30 minute drive from New York City. Asthma?: Yes- allergen induced and exertional Allergies: bee stings, pollen, molds, used to be allergic to dust but seem to have outgrown it, cigarette smoke Smoking: Never have smoked even once; my father has always smoked around me, and he lived with us until I was 12. He still smokes, and refuses to stop, even if I ask him nicely. Bronch: In lower left lobe and a tiny bit in the right middle lobe Severity: Not bad General Health: Other than above, and rapid pulse and the fact I need to lose about 20 pounds, good. (blood sugar levels are normal, BP normal, etc.) Work Environment: High school- older building Family: High family history of lung problems on maternal side. Brother and sister both have exertional asthma. Mother also has asthma. Grandmother had chronic bronchitis. Next... Karin Quote Link to comment Share on other sites More sharing options...
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