Question

[Guest guest]

I would try Melatonin first, anything up to 25 mg....take at nite just before you go to bed. works for me, and it acts as a anti-oxidant. Its available in health food stores.

> I have been asked to go on AMITRIPTYLINE for Fybromialgia! Has anyone tried it or heard anything about this? Please any information would be helpful to me! The specialist said that it will make you sleep! Which is a good thing for me as I dont' have much of that! He said that when you dont' sleep much the body doesn't have a chance to heal itself! thanks lexie

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[Guest guest]

oh ok Thanks

Lexie

Re: Question

I would try Melatonin first, anything up to 25 mg....take at nite just before you go to bed. works for me, and it acts as a anti-oxidant. Its available in health food stores.> I have been asked to go on AMITRIPTYLINE for Fybromialgia! Has anyone tried it or heard anything about this? Please any information would be helpful to me! The specialist said that it will make you sleep! Which is a good thing for me as I dont' have much of that! He said that when you dont' sleep much the body doesn't have a chance to heal itself! thanks lexie > eGroups Sponsor <http://rd.yahoo.com/M=176325.1307935.2900315.1248727/D=egroupmail/S=1700061682:N/A=567133/R=1/*http://domains.yahoo.com><http://rd.yahoo.com/M=176325.1307935.2900315.1248727/D=egroupmail/S=1700061682:N/A=567133/R=2/*http://domains.yahoo.com>>www. > >

[Guest guest]

Lexie,

I have heard that one of leading causes to alot of the pain

involved with FMS is that we dont hit level 4 (i think that's it) sleep.

Thats where your body heals itself, if your not hitting that level in sleep

all the little muscle pulls and tears that you get during the just hurt

worse.

Ive tried AMITRIPTYLINE but it didn't work for me. Actually made

me nervous so that i couldn't sleep. It is an antidepressant that

causes some people to get drowsy, lol, unfortunately i wasn't one of them:)

What I do for sleep is take one over the counter Benadryl. It works

fine for me and even helps with the stuffy nose that i get during the night.

Tim and on wrote:

I

have been asked to go on AMITRIPTYLINE for Fybromialgia! Has anyone tried

it or heard anything about this?Please

any information would be helpful to me! The specialist said that it will

make you sleep! Which is a good thing for me as I dont' have much of that!

He said that when you dont' sleep much the body doesn't have a chance to

heal itself!thankslexie

[Guest guest]

hmm That would definetly make me tired!

But I just hate taking any kind of medicine!

AS I nearly always have some type of reaction! sometimes bad ones!

Thanks for your help

LExie

Re: Question

Lexie, I have heard that one of leading causes to alot of the pain involved with FMS is that we dont hit level 4 (i think that's it) sleep. Thats where your body heals itself, if your not hitting that level in sleep all the little muscle pulls and tears that you get during the just hurt worse. Ive tried AMITRIPTYLINE but it didn't work for me. Actually made me nervous so that i couldn't sleep. It is an antidepressant that causes some people to get drowsy, lol, unfortunately i wasn't one of them:) What I do for sleep is take one over the counter Benadryl. It works fine for me and even helps with the stuffy nose that i get during the night. Tim and on wrote:

I have been asked to go on AMITRIPTYLINE for Fybromialgia! Has anyone tried it or heard anything about this?Please any information would be helpful to me! The specialist said that it will make you sleep! Which is a good thing for me as I dont' have much of that! He said that when you dont' sleep much the body doesn't have a chance to heal itself!thankslexie

[Guest guest]

ÿþ

[Guest guest]

what does that mean?

LExie

Re: Question

ÿþ<

[Guest guest]

> Does anyone know what Serum Creatinine is?

> And also Urea?

> Thanks

> Lexie

Serum is the liquid part of your blood. Creatinine is a waste product

made by your body and excreted out by the kidneys. Urea is made in

the liver and is also a waste product from Uric acid and ammonia

(possibly from parisites). Both are indicators of kidney function to

some degree, but mutations can happen that throw there accuracy off.

Ie. you could have low creatinine and this could be looked upon as

good kidney function but it could also mean that something is

preventing your body from making creatinine(possible mutation even).

The same is true for urea.

These are dicussed in " Cure for all Advanced Cancers " by Hulda

under the section " Reading your own blood tests "

Rod

[Guest guest]

My serum creatinine is low and so is my urea is low too

I can't see my doctor till a month from now lol

and I was just wondering what that meant

Thanks very much

Lexie

Have a ball with us please join http://groups.yahoo.com/group/canadianmomsforu/join

Re: Question

> Does anyone know what Serum Creatinine is?> And also Urea?> Thanks> LexieSerum is the liquid part of your blood. Creatinine is a waste product made by your body and excreted out by the kidneys. Urea is made in the liver and is also a waste product from Uric acid and ammonia(possibly from parisites). Both are indicators of kidney function to some degree, but mutations can happen that throw there accuracy off.Ie. you could have low creatinine and this could be looked upon as good kidney function but it could also mean that something is preventing your body from making creatinine(possible mutation even). The same is true for urea.These are dicussed in "Cure for all Advanced Cancers" by Hulda under the section "Reading your own blood tests"Rod

[Guest guest]

> > Does anyone know what Serum Creatinine is?

> > And also Urea?

> > Thanks

> > Lexie

>

>

> Serum is the liquid part of your blood. Creatinine is a waste

product made by your body and excreted out by the kidneys. Urea is

made in the liver and is also a waste product from Uric acid and

ammonia (possibly from parisites). Both are indicators of kidney

function to some degree, but mutations can happen that throw there

accuracy off. Ie. you could have low creatinine and this could be

looked upon as good kidney function but it could also mean that

something is preventing your body from making creatinine(possible

mutation even). The same is true for urea.

>

These are dicussed in " Cure for all Advanced Cancers " by Hulda

> under the section " Reading your own blood tests "

>

> Rod

Upon reviewing some material in the " ADVANCED CANCER BOOK " I came

across GLUTAMIC ACID and GLYCINE(both amino acids) as helping to

raise the Uric Acid levels and Creatinine production.

Rod

[Guest guest]

I took it...it gave me the trots and may have helped some, but I was living on

Ammonium AD<sp>...AND they were too expensive! I had to stop due to the cost.

BJ

Question

Has anyone taken Zoloft? Had any success with it or had any real bad problems

from it?

Thanks for any help in advance

lexie

You can never have to many friends

[Guest guest]

oh ok thanks! May I ask you what you were taking it for? I have such bad panic

attacks before my period and they want me to take it one week before it

lexie

You can never have to many friends

Question

Has anyone taken Zoloft? Had any success with it or had any real bad

problems from it?

Thanks for any help in advance

lexie

You can never have to many friends

[Guest guest]

,

They put my daughter on zoloft for " depression " , she was just a typical moody

13 yr old, it really had no effect on her...kinda groggy first thing in the

mornings though. Hope this helped you some. We did take her off of

it....and there was no change in her disposition either way.

[Guest guest]

thanks! wow your 13 year old daughter is DEPRESSED? or just beinga 13 year old

daughter>? Lol I realy ain't trying to make light of it I am just shocked!

Thanks for the information

Lexie

You can never have to many friends

Re: Question

,

They put my daughter on zoloft for " depression " , she was just a typical moody

13 yr old, it really had no effect on her...kinda groggy first thing in the

mornings though. Hope this helped you some. We did take her off of

it....and there was no change in her disposition either way.

[Guest guest]

Becki - bronchi shows most clearly on CT scans - docs can see the dilation of damaged bronchial airways etc. A general chest x ray shows light & dark areas of various degrees ...need to be a trained radiologist to interpret... cheers Craig

Question

HiI was wondering. Has anyone seen their bronchiectasis on an x-ray? When does Pseuodmonas start to take hold in your lungs? DO you have to have major bronchi. or can it be very mild?BeckiYOUR FAVORITE LilGooberGirlYOUNGLUNG EMAIL SUPPORT LISTwww.topica.com/lists/younglungPediatric Interstitial Lung Disease Societyhttp://groups.yahoo.com/group/InterstitialLung_Kids/

[Guest guest]

Hey gang.....I just had to respond to this cause wednesday morning I had to go to the emergency room because of some abdominal pain I was feeling....nothing to do with my bronch.....but some scar tissue had built up and I probably need to have it removed....(I've been through this before) but while I was in the emergency room they were doing all this stuff to me and I guess because I told them I have a lung disesase they felt the need to do chest x-rays.......I'm sitting in the room waiting for them to tell me something and the surgeon comes in holding my x-rays and says (with this wierd look on his face)

"Have you ever seen your chest x-rays??????" and I replied yes I have.....and I know they look awful.......he proceeds to stare at me in awe (while me and my husband are trying not to look at each other for fear we will break out in laughter) and he says....." You have seen these????? " and then he proceeds to plaster them up on the x-ray thingy and turn the lights on it so I can see my x-rays.......he says........"you are basically walking around using one lung.....this left lung is practically gone" and I smiled and said "yes I know this" and he starts shaking his head and says......"you don't even act like your having trouble breathing.....and you have so much energy" I said......." well it just takes practise".......lol

It was so funny to see thier expressions when they actually see my x-rays....It's something that I am finally able to laugh about instead of getting upset.....and I just had to let you all know that the whole time I was sitting there I was thinking........I can't wait to tell the support group about this little venture....lol

sondra

[Guest guest]

Sondra, you're quite the girl! Isn't it amazing how we can get to that point and take life as it comes and not sit on the pity pot too long (a short time is OK!) I can imagine you suppressing your giggles!!

And.....how about the reason you went to emergency.....what happened with that?

BLUEEYES1982345@... wrote:

Hey gang.....I just had to respond to this cause wednesday morning I had to go to the emergency room because of some abdominal pain I was feeling....nothing to do with my bronch.....but some scar tissue had built up and I probably need to have it removed....(I've been through this before) but while I was in the emergency room they were doing all this stuff to me and I guess because I told them I have a lung disesase they felt the need to do chest x-rays.......I'm sitting in the room waiting for them to tell me something and the surgeon comes in holding my x-rays and says (with this wierd look on his face)"Have you ever seen your chest x-rays??????" and I replied yes I have.....and I know they look awful.......he proceeds to stare at me in awe (while me and my husband are

trying not to look at each other for fear we will break out in laughter) and he says....." You have seen these????? " and then he proceeds to plaster them up on the x-ray thingy and turn the lights on it so I can see my x-rays.......he says........"you are basically walking around using one lung.....this left lung is practically gone" and I smiled and said "yes I know this" and he starts shaking his head and says......"you don't even act like your having trouble breathing.....and you have so much energy" I said......." well it just takes practise".......lolIt was so funny to see thier expressions when they actually see my x-rays....It's something that I am finally able to laugh about instead of getting upset.....and I just had to let you all know that the whole time I was sitting there I was thinking........I can't wait to tell the support group about this little venture....lol:) sondra

[Guest guest]

Becky ...Craig answered your question effectively regarding x-rays. They used to do bronchograms before Ct. scans . Unfortunately, the contrast medium that was injected into the bronchial tubes to coat them caused more problems later on. Mainly because if the patient had saccular defects, it was difficult to empty all the radiopaque dye out by coughing and tilting the patient. The fear was that some of the substance might cause further sagging on already weakened tubes. Some patients were even allergic to the iodide.Years ago surgeons would use these films as a guide when removing damaged areas of the lungs. Nowadays the tendency is to remove the entire lung or lobe. Less post-op. bleeding and less development of scarring. With regard to Pseudomonas (aeruginosa), it is attracted to damaged tissue or impaired lungs due to infection from bronchiectasis, cancer, Hiv. tuberculosis, etc. Anything that impairs the immune system and allows the bacteria to take hold. Cipro is the best choice of drug and can clear it out of your system as long as it has not colonized. Getting to the doctor at the first sign of green coughed up mucus is important so that an early culture can be obtained and treatment started asap. Not all green mucus is pseudomonas. Here is a simple test to find out. Cough up onto a tissue and even if it is brownish of yellow in colour, hold it under a flourescent light . It will change to a bright citrous green if it is pseudomonas. This is probably more info. than you asked for.

[Guest guest]

It's a good feeling sometimes, when you can leave a doctor gobsmacked as to how you get on with everyday living ...!!! : ) Craig

Re: Question

Sondra, you're quite the girl! Isn't it amazing how we can get to that point and take life as it comes and not sit on the pity pot too long (a short time is OK!) I can imagine you suppressing your giggles!!

And.....how about the reason you went to emergency.....what happened with that?

BLUEEYES1982345@... wrote:

Hey gang.....I just had to respond to this cause wednesday morning I had to go to the emergency room because of some abdominal pain I was feeling....nothing to do with my bronch.....but some scar tissue had built up and I probably need to have it removed....(I've been through this before) but while I was in the emergency room they were doing all this stuff to me and I guess because I told them I have a lung disesase they felt the need to do chest x-rays.......I'm sitting in the room waiting for them to tell me something and the surgeon comes in holding my x-rays and says (with this wierd look on his face)"Have you ever seen your chest x-rays??????" and I replied yes I have.....and I know they look awful.......he proceeds to stare at me in awe (while me and my husband are trying not to look at each other for fear we will break out in laughter) and he says....." You have seen these????? " and then he proceeds to plaster them up on the x-ray thingy and turn the lights on it so I can see my x-rays.......he says........"you are basically walking around using one lung.....this left lung is practically gone" and I smiled and said "yes I know this" and he starts shaking his head and says......"you don't even act like your having trouble breathing.....and you have so much energy" I said......." well it just takes practise".......lolIt was so funny to see thier expressions when they actually see my x-rays....It's something that I am finally able to laugh about instead of getting upset.....and I just had to let you all know that the whole time I was sitting there I was thinking........I can't wait to tell the support group about this little venture....lol:) sondra

[Guest guest]

,

What a wealth of information. I have pseudomonas in both my sinuses and my lungs. I am being treated with Tobramycin by inhalation in my lungs and a nasal spray for my sinuses since I had an allergic reaction to Cipro. My brother died at age 23 from a penicillin shot. Sometimes (according to the New England Journal of Medicine) after several treatments with Cipro, it is no longer effective.

Norma

[Guest guest]

Norma.. That is the downside of using antibiotics. They can be lifesaving, but with a continuous exposure to a pesky bacterium like Pseudomonas in the lung, the antibiotic cannot do an effective job, because this particular bacterium quickly wraps itself in a protective membrane which antibiotics cannot penitrate. Although research has come up with the newer drug Tobramycin which seems to be having some success.

[Guest guest]

LOL....

Glow in the dark mucus MMMMMMMMMMMMMMMMMMmmmmmmmmmmm

Becki

YOUR FAVORITE LilGooberGirl

YOUNGLUNG EMAIL SUPPORT LIST

www.topica.com/lists/younglung

Pediatric Interstitial Lung Disease Society

http://groups.yahoo.com/group/InterstitialLung_Kids/

[Guest guest]

Hi Bunny,

My brother had hives, rash and nausea after the first shot. A week later after he still has the strep throat infection, the doctor gave him another shot. He drove home and died soon after from anaphylactic shock. The doctor came and gave him adrenaline, but it was too late. That was December 30, 1956. The doctor lived across the street from us in a small town and had been our family doctor and friend for many years. My brother almost died of tetanus when he was about 10 years old when we lived on the farm. In high school he developed polio and survived with no problems. While in the US Army at Fort Bragg, North Carolina he was in the back of a truck with canvas top, and a tornado struck and a tree fell on top of the truck. He sustained major injuries--a broken back and leg. He was in military hospitals for several years for rehabilitation. He wore a back and leg brace and was finally able to attend college. We both came home from college for Christmas holidays when this happened. So, you can understand my concern over antibiotics. Of course, the reaction to a shot is usually much more sudden than oral medication. In my situation, the infectious disease doctor said that they could try to give me Cipro again in a hospital situation where I could be resuscitated if necessary. My pulmonary doctor and the infectious disease doctor decided that the Tobramycin inhalation treatments twice daily for two weeks a month would be safer.

I had welts and hives from my reaction from Cipro, but not any other symptoms.

I hope this answers your question. It is a great antibiotic for those who can take it.

With wishes for better health,

Norma

[Guest guest]

Thanks,

That is what the New England Journal of Medicine says is the most recent treatment for pseudomonas for those who cannot take the oral antibiotic, Cipro.

Thanks for your interest and concern.

Norma

[Guest guest]

Hi Norma,

I've been taking oral Cipro for years for my pseudo, even though it is no longer totally effective. My doctor keeps prescribing it, as my sputum cultures come back as "sensitive" to Cipro, and he feels that it is keeping the pseudo to a manageable level (until I need IV's again). There is really no other choice of oral antibiotic for me (apart from inhaled Tobramycin). What reaction did you have to Cipro? I'm so sorry to hear about your brother.

Take care.

Love Bunny

-----Original Message-----From: nor236@... Sent: Sunday, 19 October 2003 2:54 AMTo: bronchiectasis Subject: Re: Question,What a wealth of information. I have pseudomonas in both my sinuses and my lungs. I am being treated with Tobramycin by inhalation in my lungs and a nasal spray for my sinuses since I had an allergic reaction to Cipro. My brother died at age 23 from a penicillin shot. Sometimes (according to the New England Journal of Medicine) after several treatments with Cipro, it is no longer effective.Norma

[Guest guest]

Norma - I have a reaction to cipro and cotrimoxazole at present - itchy red welts on legs arms and torso, takes ages to heal afterwards.Similar effect to shingles I'm told.

cheers Craig

Re: Question

Hi Bunny,My brother had hives, rash and nausea after the first shot. A week later after he still has the strep throat infection, the doctor gave him another shot. He drove home and died soon after from anaphylactic shock. The doctor came and gave him adrenaline, but it was too late. That was December 30, 1956. The doctor lived across the street from us in a small town and had been our family doctor and friend for many years. My brother almost died of tetanus when he was about 10 years old when we lived on the farm. In high school he developed polio and survived with no problems. While in the US Army at Fort Bragg, North Carolina he was in the back of a truck with canvas top, and a tornado struck and a tree fell on top of the truck. He sustained major injuries--a broken back and leg. He was in military hospitals for several years for rehabilitation. He wore a back and leg brace and was finally able to attend college. We both came home from college for Christmas holidays when this happened. So, you can understand my concern over antibiotics. Of course, the reaction to a shot is usually much more sudden than oral medication. In my situation, the infectious disease doctor said that they could try to give me Cipro again in a hospital situation where I could be resuscitated if necessary. My pulmonary doctor and the infectious disease doctor decided that the Tobramycin inhalation treatments twice daily for two weeks a month would be safer.I had welts and hives from my reaction from Cipro, but not any other symptoms.I hope this answers your question. It is a great antibiotic for those who can take it.With wishes for better health,Norma