Guest guest Posted December 23, 2011 Report Share Posted December 23, 2011 Hi Zahra Gosh that was extremely low, we are having this test done in March when we see Dr Goyal, Harry is like Noor as he has had no major wows just steady improvements, although i do feel that most of Harry's issues point to mercury and viruses and i have completed 73 rounds of AC chelation and prior to that 16 rounds of TD-DMPS but i think i have a few more years of doing this to see he mercury levels come down (as they were soooo high) Im really intersted to hear how Noor levels improve with the oxygen concentrator so please report back, great news that she is keeping the mask on, maybe she is starting to feel the benefits of the oxygen now so doesnt mind so much, i have heard with the portable oxygen chambers, as kids get to feel better, they ask to go in the chambers. To go slightly off topic, we were in the car earlier today, my daughter ran in to Waitrose to get some bits for me whilst i stayed in car with Harry, he then continued to say "walk" then there was a pause, then "dog", this is happening quite often lately so we are slowly getting more unprompted language. Happy Christmas to you & Noor and to everyone else on ABE, i will raise my glass on Christmas day and salute all of us warrior Mums & Dads and look forward to the coming year and sharing & hearing more stories of success no matter how small, as im sure you'll agree they make our hearts shine with hope for the future. Season Greetings everyone & Harry xxxxxxxx To: Autism-Biomedical-Europe From: zahrawaheed@...Date: Fri, 23 Dec 2011 13:15:01 +0000Subject: Re: autonomic profiling Hi,So we finally had this done. The results almost made me burst into tears. Noor's oxygen levels were extremely low - 7 instead of a normal 70. Dr. Goyal said he was amazed how she was able to learn anything with these sort of levels.We are now using an oxygen concentrator for 8 weeks (2-3 hours a day).Dr. Goyal says that he is confident that this will make a huge difference to Noor's cognitive function. He suspects viral toxicity so looks like we're going to have to start with anti virals.He also feels that her partial epilepsy is a direct result of the viral toxicity. Fortunately I haven't seen a seizure in 8 months (we were having 4 a month - very brief seizures involving twitching of the right cheek)Noor's case has baffled so many people as she doesn't present with typical symtoms and behaviours. So far I have seen subtle improvements in certain areas - no WOWs.Day 3 of taking oxygen and I'm really pleased that she is keeping the mask on without much of a struggle, I'm really proud of her,Zahra>> I didn't realise they had to wear a mask at night. Is it all night long?> Quote Link to comment Share on other sites More sharing options...
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