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Re: Hello everyone

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Hi Lynda,

Good to hear from you. I am a new member. I do hope you recover and feel better soon. Think spring and that might make this time a bit more bearable. Glad to hear your EN did not flare up on top of everything else.

Nadine P.

Reply-To: erythema_nodosum_Group To: erythema_nodosum_Group Subject: hello everyoneDate: Tue, 20 Feb 2007 15:48:01 -0000

Hello everyone in the group, I havent posted in a while the last time was after yet another op for blocked bowel, since this operation I havent got back to good health it is about nine weeks post op now and my scar has not healed up,I have been on antibiotics on and off since the op due to my glands and lymph nodes swelling, also found a lump in my breast which the doctor says is a swollen gland, my glands are now going down but my energy levels are down,I have lost about a stone in weight and if truth be told I feel awfull my blood pressure is up one min then down low last time I had it taken it was 94/55. Sorry to go on so much but all this time being bad and stressed I have not had one flare up of en which is unusual I have had swelling in my legs and the odd lump which has not gone red, my tonsils are now up and the doctor says they are full of pus so again I am on yet another course of penacillin my fourth since the op. hope everyone is having a better time than me although I have not posted in a while I still read every email but have not replied to any as I have felt so rough spend half of my time in bed or laying down, hopefully this next lot of antibiotics will do the trick, hope everyone has a good day and good health to all Love

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  • 4 months later...
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Hi ,

What a nightmare, to say the very least. I am glad that they finally

figured out what was wrong, and I hope that you are on a quick path

to healing.

I send prayers and well-wishes.

Elaine

>

> Havent posted for a while been in hospital yet again,luckily

> only have had one en flare up since christmas which is

suprising

> seens I have been so ill. Christmas day I had an operation

> for a blocked bowel and hernia repair I havent felt right

> since having that done and have been suffering from throat

> infections all the time, in may my abdomen swelled up and I

> looked pregnant I was huge my waist mesured 68inches went for

> my post op checkup which by now had been cancelled for the

> third time, the surgeon said that it was most probably my

> muscles were so stretched they were not holding me in

properly

> I was not sure that was the problem so asked him if I

should

> have a scan to check everything as I was having problems

> walking because of the weight I weighed at this time 20stone

> 4lb which was killing me,I went for the ct scan and they

said

> if there was anything wrong they would get hold of me but 5

> weeks later I had not heard anything, the pain started like a

> hot knife stabbing me my husband took me to A and E in a

> different hospital and were horrified to see the size on me

I

> had a scan to cut a long story short the first surgeon had

let

> me walk around with a big abcess inside of me I had another

> op to drain out the pus from inside my abdomen the mesh they

> put in had been infected and disintegrated causing an abbcess

> which they drained and got over 2 ltrs of pus out I came

> home monday the 9th with the drain still draining dark yellow

> fluid went back on Friday unable to take the drain out as

it

> is still draining have had another 1000mls out of there and

> still draining,going back in tomorrow but cant see the

drain

> coming out as it is draining more now than Friday I will

> then find out what else they can do also I have another

hernia

> because of the weight of the abbcess and they cant see my big

> hernia staying in as there is no mesh now so more ops to

> have, at the moment I am having trouble trusting the

> medical profession as the first surgeon should have not let

me

> go on like this I am thinking of sueing the hospital

> responisble as my abdomen now has a big crater in it and is

> a mess as where the pus was there is now a big cavity I am

> depressed and stressed out so I dont think my en is triggered

by

> stress my knees and ankles have ached but no lumps unless

it

> is because I have been pumped with high doses of antibiotic

> through a drip trying to keep infection at bay. I hope

> everyone is having better luck than I am should not feel

> sorry for myself really as there are people worse off than

me

> in this world but this is my 5th major op in just under four

> years and it is starting to get me down. Bye for now and I

> will keep you posted of how I am getting on love

>

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  • 1 year later...

thank you so much everyone, sorry I have taken so long to get back have

been off looking up the info and links provided. There are never

enough hours in the day.

I have sent off for " clay bath " and " kids chelate " from a site in the

US called " Even Better Now " . I dont know if anyone has used them they

seem to be a very gentle way of chelating.

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thank you so much everyone, sorry I have taken so long to get back have

been off looking up the info and links provided. There are never

enough hours in the day.

I have sent off for " clay bath " and " kids chelate " from a site in the

US called " Even Better Now " . I dont know if anyone has used them they

seem to be a very gentle way of chelating.

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