Guest guest Posted May 19, 2000 Report Share Posted May 19, 2000 Hi, I just wanted to let you know that I have had the same feelings that you are having now. My delivery didn't involve any forceps or anything, and (my cute little helmet head :]) doesn't have either. His head was big at birth, and was a little misshapen. However, my feelings are that I could have corrected it by watching how he slept from the very beginning. He got used to sleeping on the crooked side. We thought that it was still part of the crookedness from the delivery when he were noticing the flatness on the back of his head. We found out at two months by our Dr. to start turning his head, and stretching the neck muscles. His head improved so much after that, that I felt guilty for not starting that soon enough so that he wouldn't have to have the doc band. However, I have now come to the conclusion that it is not my fault. I can't rid myself of all of the guilt, but I now put most of the blame on the fact that I had received no information nor had I ever heard of plago until this happened. Nor had anyone I've discussed this with. This really should be information that new parents are made aware of. And I am thinking about starting a program to inform expecting and new mothers. If I had known what to do when I brought my son home, I would have been able to prevent this. And I'm thinking that you would have done the same. I am sure you had no idea of the things we need to do as parents to prevent this, therefore you hold none of the blame. As for your husband, I hope he is as supportive as my husband is. He is constantly reassuring me about this--that it is not my fault. He couldn't be a better husband or Daddy. The only thing is that he doesn't believe that it could have been prevented...and I know now that it could have been if I had been aware of it. This was all a just rambling, but I hopeit makes you feel better. Let me know if you'd like. Shelli ----- Original Message ----- From: <annspringborn@...> <Plagiocephalyegroups> Sent: Thursday, May 18, 2000 1:53 PM Subject: Pity Party Revisited > Well, here I am again. It's been four days since we found out Ethan > has to wear the DOC band. I'm so fortunate that I found this > page...it has given me loads of encouragement and information. BUT I > can't help but feel like I'm partially to blame for Ethan's plagio. > He doesn't have tort, he wasn't a multiple...so it had to be sleeping > position which was 100% under my control. He was delivered with > forceps but I haven't heard any correlation between that and plagio. > My hubby says I'm starting to drive him nuts because I'm so obsessed > with this whole thing. But, I'm sorry, I think it's a big deal! > > Just feeling sorry for myself again. Hope you all understand. I'm > waiting for a call back from the DOC band people. We will either be > casted next Tuesday the 23rd or the following Tuesday the 30th. > > Just curious...does anyone know what the success rate is for the > band? I plan to ask when they call, but I was just wondering if any > of you heard. > > That's all for now. Thanks! > > Ann in Wisconsin > > > ------------------------------------------------------------------------ > Up to 60% OFF food! > Buy Now and Shipping is Free. > 1/4016/4/_/689409/_/958675991/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2000 Report Share Posted May 19, 2000 To Tammy Just wanted to let you know that got his band on Monday (today is thurs.) He doesn't even realize that he has anything on his head, I think. I was worried about the same thing as we have the calmest little boy. He hardly ever cries (only when hungry or extremely tired), and just smiles and looks around all the time. He is the same little boy, and still looks " oh so cute " so don't worry at all. I know that a lot of babies sweat a lot from what the Dr. says, but hardly does at all, so not all do. It has gone better than I ever thought. I still can't wait 'til it's over, but it's not too bad. Good Luck Shelli ----- Original Message ----- From: <annspringborn@...> <Plagiocephalyegroups> Sent: Thursday, May 18, 2000 1:53 PM Subject: Pity Party Revisited > Well, here I am again. It's been four days since we found out Ethan > has to wear the DOC band. I'm so fortunate that I found this > page...it has given me loads of encouragement and information. BUT I > can't help but feel like I'm partially to blame for Ethan's plagio. > He doesn't have tort, he wasn't a multiple...so it had to be sleeping > position which was 100% under my control. He was delivered with > forceps but I haven't heard any correlation between that and plagio. > My hubby says I'm starting to drive him nuts because I'm so obsessed > with this whole thing. But, I'm sorry, I think it's a big deal! > > Just feeling sorry for myself again. Hope you all understand. I'm > waiting for a call back from the DOC band people. We will either be > casted next Tuesday the 23rd or the following Tuesday the 30th. > > Just curious...does anyone know what the success rate is for the > band? I plan to ask when they call, but I was just wondering if any > of you heard. > > That's all for now. Thanks! > > Ann in Wisconsin > > > ------------------------------------------------------------------------ > Up to 60% OFF food! > Buy Now and Shipping is Free. > 1/4016/4/_/689409/_/958675991/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2000 Report Share Posted May 20, 2000 Hanna will be 7 months on the 25th. Kendra Sar617mc@... wrote: Kendra, I'm sorry for forgetting this, but how old is Hanna? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2000 Report Share Posted May 20, 2000 In a message dated 5/19/00 6:40:14 AM Pacific Daylight Time, tammy_duffy@... writes: << I have questions about sleeping in the band - will the band keep him from turning to the favored side? If not, are the pressures built into the band to keep the flat spot protected? Am I going to have to reposition him even with the band? (Please say no) Will he be able to rollover? If so, how is sleeping on their stomachs with the band? (I can't imagine this would be comfortable and of course it is not recommended - but I understand once they learn to rollover that they like sleeping on their tummies ??). >> Tammy- The band will not control side to side turning the flat spot is protected by the open area behind the affected area. They can't lay flat anymore on that spot. we spotted re-positioning once we got the band. I know ' " Mum " still does it because they can position him to stretch out the neck muscle. For us it was too exhaustive to be honest. Abby did not have trouble sleeping & once she was able to roll over at night, I knew I could not 100% control her sleeping position. She prefered tummy sleeping-once she learned to roll over (but now back to back sleeping!) She did not seem to mind the band at night. Kimry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2000 Report Share Posted May 20, 2000 In a message dated 5/19/00 8:43:09 AM Pacific Daylight Time, endl@... writes: << until 3 or 4 or longer! Ouch! >> That's my mother-in-law. We still tease my brother-in-law to this day. She is still so PROUD. No offense to anyone but I find that rather offensive when a child is old enough to ask for milk and mom lifts her shirt while then friends continue playing. Belinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2000 Report Share Posted May 20, 2000 Tammy: I am in the same boat with my ped...he did not refer us, gave the same sort of comments ( is also a preemie)and would not write a prescription. To top it off, I have since been labeled an " overaggressive parent " at that office. I found this out when I took another child in for an appointment and I read her chart while we were waiting. We have a well baby visit next week for and and I have been asking myself the same question...what can I say to tell the ped that he was wrong???? The only thing I have come up with is to take pictures of 's head before treatment, and then take the band off to show the changes. We will be in it almost 1 month at that time and even today we see improvement. I have a packet of materials to give him and I am letting him know that we will be changing peds. I will not continue to go to a practice where I am labeled overaggressive for looking for the best treatment for my child. And I will not continue to trust a dr who is not open minded to treatments. I think the proof is in the showing...we need to give visible evidence that the bands/helmets do work. I'm sure they will say something like " we'll this would have happened on its own " (without intervention). My response to that is " I am not willing to take that risk. Would you be with your own child? And how would you explain it to him if it didn't correct. " Best of luck to you, Sue ----- Original Message ----- From: Duffy, Tammy <tammy_duffy@...> <Plagiocephalyegroups> Sent: Friday, May 19, 2000 3:03 PM Subject: RE: Pity Party Revisited > Thanks Kendra! > > Now lets talk pity party - I just had the worst conversation with my ped. > Not to bore you with all the details on how we got to this conversation but > to share some comments that really set me off... > > He said he would not take an assertive role in recommending the band for > Grayson (asked him to help with insurance). Why? Because the band/helmet > therapy is not a favorable practice in the medical field. They are not > needed. He has seen preemie babies with board flat heads that have > corrected themselves. I am the first parent to request the > referral/recommendation for the band in his career and the career of the > practice. If I choose to go ahead with the treatment, he will be supportive > but will not play an assertive role in assisting me with the fight for > coverage. The " hipe " is ridiculous. He does not believe that my son needs > the band - it will correct itself. > > PPPPLLLLEEEAAAASSSSEEE! > > I need a smart--- response for this one. I will be taking my son to the ped > on June 15th for his 6 month well visit which will be 3 weeks in the band. > HELP ME PLEASE. > > A little steamy, > Tammy > > > -----Original Message----- > > From: & Kendra [sMTP:kbgarv@...] > > Sent: Friday, May 19, 2000 12:45 PM > > Plagiocephalyegroups > > Subject: Re: Pity Party Revisited > > > > Tammy: > > > > I hope you don't mind if I jump in. My daughter recently got her band. > > I can't even say that she has adjusted to it, just because she hardly > > even knows it's there!! Once in a while she'll reach up to check it > > out, but she has never complained about it. > > > > As far as sleeping goes, Hanna slept right thru the first night - and > > every night since. The band does not effect rolling over, or maybe it > > makes it easier. My little bunny has been a Tasmanian devil for some > > time now!! She does, however seem to end up on her tummy in bed more. > > I don't know if that has anything to do with the band or not?? It kind > > of freaks me out, even tho I know she can lift and turn her head with > > ease!! Just a worry wart, I suppose. I flip her to her back before I > > go to bed. > > > > In our case, Hanna's head is starting to look better (after 3 weeks > > now), but mostly she looks so different out of her band because we're so > > used to what she looks like IN the band!! She's just darn cute either > > way!! > > > > You'll be used to the whole situation in a couple of days after you get > > your band. I cried the night before after I kissed her head for the > > " last time " before bed. I don't regret for one second that that thing > > is on her head! > > > > Chin up! > > Kendra > > > > > > " Duffy, Tammy " wrote: > > > > > : > > > > > > The casting was difficult - both of them! The first casting did not > > > come > > > out around the neck area - probably because Grayson was so tense. He > > > was > > > flailing his arms and arching his back. Soooo.. we had to recast > > > because > > > the PT thought that the cast would be rejected when sent to Phoenix to > > > mold. > > > The second time was not as bad as the first. Grayson was tired and it > > > was > > > nap time so he actually feel asleep during the casting of the back of > > > the > > > head. He was a trooper though - he slept very well that night. > > > > > > I have questions about sleeping in the band - will the band keep him > > > from > > > turning to the favored side? If not, are the pressures built into the > > > band > > > to keep the flat spot protected? Am I going to have to reposition him > > > even > > > with the band? (Please say no) Will he be able to rollover? If so, > > > how is > > > sleeping on their stomachs with the band? (I can't imagine this would > > > be > > > comfortable and of course it is not recommended - but I understand > > > once they > > > learn to rollover that they like sleeping on their tummies ??). I am > > > also > > > wondering what it will be like nursing with the band. I'm sure I will > > > find > > > all of this to be no problem but its just my mind ticking away. I > > > will be > > > sure to ask these questions at our fitting but thought I could get a > > > head > > > start. > > > > > > Sounds like Maddie is still adjusting. It certainly has to take > > > time. My > > > husband keeps telling me that Grayson will be fine since he doesn't > > > know any > > > better. He says that for all Grayson knows - its just what happens > > > when you > > > turn 5 months old - you wear a band! I have been wondering how he > > > will > > > begin to look after wearing the band. You said Maddie looks different > > > to > > > you now - I assume you mean since her heading is changing - for the > > > better > > > . I was looking at Grayson's head last night in the bathtub and I > > > am so > > > glad we are getting the band. As my husband says, he has a couple of > > > issues. I noticed a small ridge in the back of his head. I am not > > > sure if > > > this has always been there of if I just noticed it but I started > > > freaking > > > out thinking that his head had gotten worse since the casting - I am > > > ridiculousy insane!! : 0) My husband says the band will take care > > > of this > > > too! Like Prego - " its in there " - it was in the cast and will be > > > corrected > > > with the band. > > > > > > Hope your little " wildcat " gets calmer. Isn't it amazing how they > > > have such > > > strong wills to be so small - it is fascinating to watch. Maddie will > > > be > > > fine. She's just showing her independence (thats how I think of it - > > > its a > > > good thing). I will let keep you posted. I'm sure I will be posting > > > more > > > questions once we have the band. > > > > > > Tammy > > > > -----Original Message----- > > > > From: Sar617mc@... [sMTP:Sar617mc@...] > > > > Sent: Thursday, May 18, 2000 7:05 PM > > > > Plagiocephalyegroups > > > > Subject: Re: Pity Party Revisited > > > > > > > > Hi Tammy, > > > > I'm happy to hear that you are finding some peace with all of this. > > > It > > > > takes > > > > time and even after you are on the road to treatment, you still may > > > have > > > > moments of " How did this ever happen? " I wish you guys the best > > > with your > > > > > > > > treatment...How did the casting go? You may have already written, > > > but I > > > > have > > > > had so little time to read my posts lately. The casting was a > > > little > > > > grueling for us - she pretty much cried the whole time, but she's > > > doing > > > > much > > > > better. She'll sleep with it on, it's getting to sleep that seems > > > to be > > > > the > > > > problem lately, but we're working on that too. We had been doing > > > some > > > > neck > > > > exercises given to us by the good people at CT and suddenly this > > > week she > > > > decided she doesn't want to turn her head to the left for our > > > exercises. > > > > Fought me like a wildcat! I don't know where this came from and > > > worried > > > > at > > > > first that it might be hurting her, but then sat her up and turned > > > her > > > > head > > > > to the left and she was fine. Also, I called Margie at CT in > > > Phoenix and > > > > we > > > > both decided that this is more a display of strong will than > > > anything > > > > else. > > > > I already feel sorry for my husband and I in 13 years. As far as > > > the band > > > > > > > > goes, I don't think she even notices it anymore. It's weird to take > > > it > > > > off > > > > now. She looks different to me! > > > > Take Care and keep us posted, > > > > > > > > > > > > > > > ------------------------------------------------------------------------ > > > > > > > Up to 60% OFF food! > > > > Buy Now and Shipping is Free. > > > > 1/4016/4/_/689409/_/958691108/ > > > > > > > ------------------------------------------------------------------------ > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2000 Report Share Posted May 20, 2000 I would be glad to help but I was also thinking on something along the lines of getting the back to sleep post cards changed()the ones in the dr's offices now) to include some of this info, Just a suggestion since they are most likely to be seen before there is a problem and help thoses with early recognition. - Liz -----Original Message----- From: cssupportgroup@... <cssupportgroup@...> Plagiocephalyegroups <Plagiocephalyegroups> Date: Thursday, May 18, 2000 4:21 PM Subject: Re: Pity Party Revisited >In a message dated 05/18/2000 1:31:08 PM Mountain Daylight Time, >endl@... writes: > ><< And I am thinking about > starting a program to inform expecting and new mothers. >> > >Shelli- > >In the CAPS group we are working on packets to send out to pediatricians to >help inform the doctors so that when a parent goes in and asks about her >child's head then he will be informed enough to do something about it instead >of saying what we are all used to hearing " it will round out on it's own " . > >If you want to help let me know...you can email me at cssupportgroup@.... > And this goes for anyone else to!! > >Tanda > >------------------------------------------------------------------------ >Make new friends, find the old at Classmates.com: >1/4052/4/_/689409/_/958692349/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2000 Report Share Posted May 20, 2000 olivia sleeps on her side,not the flat side but on the other side.the other morning i found her at the other end of the crib on her side with her foot draped over the bumpers being very comfy.lucky girl. lynne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2000 Report Share Posted May 20, 2000 I would be happy and ask/remark that then he was not going to be a problem, thank God about that, we aren't that lucky. - liz -----Original Message----- From: Duffy, Tammy <tammy_duffy@...> 'Plagiocephalyegroups' <Plagiocephalyegroups> Date: Friday, May 19, 2000 12:00 PM Subject: RE: Pity Party Revisited >Thanks Kendra! > >Now lets talk pity party - I just had the worst conversation with my ped. >Not to bore you with all the details on how we got to this conversation but >to share some comments that really set me off... > >He said he would not take an assertive role in recommending the band for >Grayson (asked him to help with insurance). Why? Because the band/helmet >therapy is not a favorable practice in the medical field. They are not >needed. He has seen preemie babies with board flat heads that have >corrected themselves. I am the first parent to request the >referral/recommendation for the band in his career and the career of the >practice. If I choose to go ahead with the treatment, he will be supportive >but will not play an assertive role in assisting me with the fight for >coverage. The " hipe " is ridiculous. He does not believe that my son needs >the band - it will correct itself. > >PPPPLLLLEEEAAAASSSSEEE! > >I need a smart--- response for this one. I will be taking my son to the ped >on June 15th for his 6 month well visit which will be 3 weeks in the band. >HELP ME PLEASE. > >A little steamy, >Tammy > >> -----Original Message----- >> From: & Kendra [sMTP:kbgarv@...] >> Sent: Friday, May 19, 2000 12:45 PM >> Plagiocephalyegroups >> Subject: Re: Pity Party Revisited >> >> Tammy: >> >> I hope you don't mind if I jump in. My daughter recently got her band. >> I can't even say that she has adjusted to it, just because she hardly >> even knows it's there!! Once in a while she'll reach up to check it >> out, but she has never complained about it. >> >> As far as sleeping goes, Hanna slept right thru the first night - and >> every night since. The band does not effect rolling over, or maybe it >> makes it easier. My little bunny has been a Tasmanian devil for some >> time now!! She does, however seem to end up on her tummy in bed more. >> I don't know if that has anything to do with the band or not?? It kind >> of freaks me out, even tho I know she can lift and turn her head with >> ease!! Just a worry wart, I suppose. I flip her to her back before I >> go to bed. >> >> In our case, Hanna's head is starting to look better (after 3 weeks >> now), but mostly she looks so different out of her band because we're so >> used to what she looks like IN the band!! She's just darn cute either >> way!! >> >> You'll be used to the whole situation in a couple of days after you get >> your band. I cried the night before after I kissed her head for the >> " last time " before bed. I don't regret for one second that that thing >> is on her head! >> >> Chin up! >> Kendra >> >> >> " Duffy, Tammy " wrote: >> >> > : >> > >> > The casting was difficult - both of them! The first casting did not >> > come >> > out around the neck area - probably because Grayson was so tense. He >> > was >> > flailing his arms and arching his back. Soooo.. we had to recast >> > because >> > the PT thought that the cast would be rejected when sent to Phoenix to >> > mold. >> > The second time was not as bad as the first. Grayson was tired and it >> > was >> > nap time so he actually feel asleep during the casting of the back of >> > the >> > head. He was a trooper though - he slept very well that night. >> > >> > I have questions about sleeping in the band - will the band keep him >> > from >> > turning to the favored side? If not, are the pressures built into the >> > band >> > to keep the flat spot protected? Am I going to have to reposition him >> > even >> > with the band? (Please say no) Will he be able to rollover? If so, >> > how is >> > sleeping on their stomachs with the band? (I can't imagine this would >> > be >> > comfortable and of course it is not recommended - but I understand >> > once they >> > learn to rollover that they like sleeping on their tummies ??). I am >> > also >> > wondering what it will be like nursing with the band. I'm sure I will >> > find >> > all of this to be no problem but its just my mind ticking away. I >> > will be >> > sure to ask these questions at our fitting but thought I could get a >> > head >> > start. >> > >> > Sounds like Maddie is still adjusting. It certainly has to take >> > time. My >> > husband keeps telling me that Grayson will be fine since he doesn't >> > know any >> > better. He says that for all Grayson knows - its just what happens >> > when you >> > turn 5 months old - you wear a band! I have been wondering how he >> > will >> > begin to look after wearing the band. You said Maddie looks different >> > to >> > you now - I assume you mean since her heading is changing - for the >> > better >> > . I was looking at Grayson's head last night in the bathtub and I >> > am so >> > glad we are getting the band. As my husband says, he has a couple of >> > issues. I noticed a small ridge in the back of his head. I am not >> > sure if >> > this has always been there of if I just noticed it but I started >> > freaking >> > out thinking that his head had gotten worse since the casting - I am >> > ridiculousy insane!! : 0) My husband says the band will take care >> > of this >> > too! Like Prego - " its in there " - it was in the cast and will be >> > corrected >> > with the band. >> > >> > Hope your little " wildcat " gets calmer. Isn't it amazing how they >> > have such >> > strong wills to be so small - it is fascinating to watch. Maddie will >> > be >> > fine. She's just showing her independence (thats how I think of it - >> > its a >> > good thing). I will let keep you posted. I'm sure I will be posting >> > more >> > questions once we have the band. >> > >> > Tammy >> > > -----Original Message----- >> > > From: Sar617mc@... [sMTP:Sar617mc@...] >> > > Sent: Thursday, May 18, 2000 7:05 PM >> > > Plagiocephalyegroups >> > > Subject: Re: Pity Party Revisited >> > > >> > > Hi Tammy, >> > > I'm happy to hear that you are finding some peace with all of this. >> > It >> > > takes >> > > time and even after you are on the road to treatment, you still may >> > have >> > > moments of " How did this ever happen? " I wish you guys the best >> > with your >> > > >> > > treatment...How did the casting go? You may have already written, >> > but I >> > > have >> > > had so little time to read my posts lately. The casting was a >> > little >> > > grueling for us - she pretty much cried the whole time, but she's >> > doing >> > > much >> > > better. She'll sleep with it on, it's getting to sleep that seems >> > to be >> > > the >> > > problem lately, but we're working on that too. We had been doing >> > some >> > > neck >> > > exercises given to us by the good people at CT and suddenly this >> > week she >> > > decided she doesn't want to turn her head to the left for our >> > exercises. >> > > Fought me like a wildcat! I don't know where this came from and >> > worried >> > > at >> > > first that it might be hurting her, but then sat her up and turned >> > her >> > > head >> > > to the left and she was fine. Also, I called Margie at CT in >> > Phoenix and >> > > we >> > > both decided that this is more a display of strong will than >> > anything >> > > else. >> > > I already feel sorry for my husband and I in 13 years. As far as >> > the band >> > > >> > > goes, I don't think she even notices it anymore. It's weird to take >> > it >> > > off >> > > now. She looks different to me! >> > > Take Care and keep us posted, >> > > >> > > >> > > >> > ------------------------------------------------------------------------ >> > >> > > Up to 60% OFF food! >> > > Buy Now and Shipping is Free. >> > > 1/4016/4/_/689409/_/958691108/ >> > > >> > ------------------------------------------------------------------------ >> > >> > > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2000 Report Share Posted May 21, 2000 You know, there are advantages to being an "overaggressive parent". The doctor knows you're more likely to jump if they do something wrong or don't do something at all. So, I would like to think, they take better care of your child. When Grace saw he "old" doctor with her band on, he was very surprised and please at her progress. He even asked for information regarding the helmet/band therapy. I would wager he will look on future kids with "favorite spots" (as he termed Grace's flat spot in her charts) with more interest and pursue treatment for them more aggressively. Kaye/subscribe/Plagiocephaly ----- Original Message ----- From: and Luck Plagiocephalyegroups Sent: Saturday, May 20, 2000 12:25 PM Subject: Re: Pity Party Revisited Tammy:I am in the same boat with my ped...he did not refer us, gave the same sortof comments ( is also a preemie)and would not write a prescription.To top it off, I have since been labeled an "overaggressive parent" at thatoffice. I found this out when I took another child in for an appointmentand I read her chart while we were waiting. We have a well baby visit nextweek for and and I have been asking myself the samequestion...what can I say to tell the ped that he was wrong????The only thing I have come up with is to take pictures of 's headbefore treatment, and then take the band off to show the changes. We willbe in it almost 1 month at that time and even today we see improvement. Ihave a packet of materials to give him and I am letting him know that wewill be changing peds. I will not continue to go to a practice where I amlabeled overaggressive for looking for the best treatment for my child. AndI will not continue to trust a dr who is not open minded to treatments.I think the proof is in the showing...we need to give visible evidence thatthe bands/helmets do work. I'm sure they will say something like "we'llthis would have happened on its own" (without intervention). My responseto that is "I am not willing to take that risk. Would you be with your ownchild? And how would you explain it to him if it didn't correct."Best of luck to you,Sue----- Original Message -----From: Duffy, Tammy <tammy_duffy@...><Plagiocephalyegroups>Sent: Friday, May 19, 2000 3:03 PMSubject: RE: Pity Party Revisited> Thanks Kendra!>> Now lets talk pity party - I just had the worst conversation with my ped.> Not to bore you with all the details on how we got to this conversationbut> to share some comments that really set me off...>> He said he would not take an assertive role in recommending the band for> Grayson (asked him to help with insurance). Why? Because the band/helmet> therapy is not a favorable practice in the medical field. They are not> needed. He has seen preemie babies with board flat heads that have> corrected themselves. I am the first parent to request the> referral/recommendation for the band in his career and the career of the> practice. If I choose to go ahead with the treatment, he will besupportive> but will not play an assertive role in assisting me with the fight for> coverage. The "hipe" is ridiculous. He does not believe that my sonneeds> the band - it will correct itself.>> PPPPLLLLEEEAAAASSSSEEE!>> I need a smart--- response for this one. I will be taking my son to theped> on June 15th for his 6 month well visit which will be 3 weeks in the band.> HELP ME PLEASE.>> A little steamy,> Tammy>> > -----Original Message-----> > From: & Kendra [sMTP:kbgarv@...]> > Sent: Friday, May 19, 2000 12:45 PM> > Plagiocephalyegroups> > Subject: Re: Pity Party Revisited> >> > Tammy:> >> > I hope you don't mind if I jump in. My daughter recently got her band.> > I can't even say that she has adjusted to it, just because she hardly> > even knows it's there!! Once in a while she'll reach up to check it> > out, but she has never complained about it.> >> > As far as sleeping goes, Hanna slept right thru the first night - and> > every night since. The band does not effect rolling over, or maybe it> > makes it easier. My little bunny has been a Tasmanian devil for some> > time now!! She does, however seem to end up on her tummy in bed more.> > I don't know if that has anything to do with the band or not?? It kind> > of freaks me out, even tho I know she can lift and turn her head with> > ease!! Just a worry wart, I suppose. I flip her to her back before I> > go to bed.> >> > In our case, Hanna's head is starting to look better (after 3 weeks> > now), but mostly she looks so different out of her band because we're so> > used to what she looks like IN the band!! She's just darn cute either> > way!!> >> > You'll be used to the whole situation in a couple of days after you get> > your band. I cried the night before after I kissed her head for the> > "last time" before bed. I don't regret for one second that that thing> > is on her head!> >> > Chin up!> > Kendra> >> >> > "Duffy, Tammy" wrote:> >> > > :> > >> > > The casting was difficult - both of them! The first casting did not> > > come> > > out around the neck area - probably because Grayson was so tense. He> > > was> > > flailing his arms and arching his back. Soooo.. we had to recast> > > because> > > the PT thought that the cast would be rejected when sent to Phoenix to> > > mold.> > > The second time was not as bad as the first. Grayson was tired and it> > > was> > > nap time so he actually feel asleep during the casting of the back of> > > the> > > head. He was a trooper though - he slept very well that night.> > >> > > I have questions about sleeping in the band - will the band keep him> > > from> > > turning to the favored side? If not, are the pressures built into the> > > band> > > to keep the flat spot protected? Am I going to have to reposition him> > > even> > > with the band? (Please say no) Will he be able to rollover? If so,> > > how is> > > sleeping on their stomachs with the band? (I can't imagine this would> > > be> > > comfortable and of course it is not recommended - but I understand> > > once they> > > learn to rollover that they like sleeping on their tummies ??). I am> > > also> > > wondering what it will be like nursing with the band. I'm sure I will> > > find> > > all of this to be no problem but its just my mind ticking away. I> > > will be> > > sure to ask these questions at our fitting but thought I could get a> > > head> > > start.> > >> > > Sounds like Maddie is still adjusting. It certainly has to take> > > time. My> > > husband keeps telling me that Grayson will be fine since he doesn't> > > know any> > > better. He says that for all Grayson knows - its just what happens> > > when you> > > turn 5 months old - you wear a band! I have been wondering how he> > > will> > > begin to look after wearing the band. You said Maddie looks different> > > to> > > you now - I assume you mean since her heading is changing - for the> > > better> > > . I was looking at Grayson's head last night in the bathtub and I> > > am so> > > glad we are getting the band. As my husband says, he has a couple of> > > issues. I noticed a small ridge in the back of his head. I am not> > > sure if> > > this has always been there of if I just noticed it but I started> > > freaking> > > out thinking that his head had gotten worse since the casting - I am> > > ridiculousy insane!! : 0) My husband says the band will take care> > > of this> > > too! Like Prego - "its in there" - it was in the cast and will be> > > corrected> > > with the band.> > >> > > Hope your little "wildcat" gets calmer. Isn't it amazing how they> > > have such> > > strong wills to be so small - it is fascinating to watch. Maddie will> > > be> > > fine. She's just showing her independence (thats how I think of it -> > > its a> > > good thing). I will let keep you posted. I'm sure I will be posting> > > more> > > questions once we have the band.> > >> > > Tammy> > > > -----Original Message-----> > > > From: Sar617mc@... [sMTP:Sar617mc@...]> > > > Sent: Thursday, May 18, 2000 7:05 PM> > > > Plagiocephalyegroups> > > > Subject: Re: Pity Party Revisited> > > >> > > > Hi Tammy,> > > > I'm happy to hear that you are finding some peace with all of this.> > > It> > > > takes> > > > time and even after you are on the road to treatment, you still may> > > have> > > > moments of "How did this ever happen?" I wish you guys the best> > > with your> > > >> > > > treatment...How did the casting go? You may have already written,> > > but I> > > > have> > > > had so little time to read my posts lately. The casting was a> > > little> > > > grueling for us - she pretty much cried the whole time, but she's> > > doing> > > > much> > > > better. She'll sleep with it on, it's getting to sleep that seems> > > to be> > > > the> > > > problem lately, but we're working on that too. We had been doing> > > some> > > > neck> > > > exercises given to us by the good people at CT and suddenly this> > > week she> > > > decided she doesn't want to turn her head to the left for our> > > exercises.> > > > Fought me like a wildcat! I don't know where this came from and> > > worried> > > > at> > > > first that it might be hurting her, but then sat her up and turned> > > her> > > > head> > > > to the left and she was fine. Also, I called Margie at CT in> > > Phoenix and> > > > we> > > > both decided that this is more a display of strong will than> > > anything> > > > else.> > > > I already feel sorry for my husband and I in 13 years. As far as> > > the band> > > >> > > > goes, I don't think she even notices it anymore. It's weird to take> > > it> > > > off> > > > now. She looks different to me!> > > > Take Care and keep us posted,> > > > > > > >> > > >> >> ------------------------------------------------------------------------> > >> > > > Up to 60% OFF food!> > > > Buy Now and Shipping is Free.> > > > 1/4016/4/_/689409/_/958691108/> > > >> >> ------------------------------------------------------------------------> > >> > > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2000 Report Share Posted May 21, 2000 In a message dated 5/20/00 6:24:35 PM Pacific Daylight Time, angelakaye@... writes: << You know, there are advantages to being an " overaggressive parent " . >> I prefer to think of myself as an " assertive " parent ! Believe me, there are advantages. When I call & want an appt, I get an appt. They might think I am a pian in the a**, but I am usually right on the money when one of the kids is sick or needs services outside of what the ped. can provide. And another tip, it is important to make nice with your authorization dept. After all was finalized w/Abby's band, I sent her a thank you card. Then I sent her a pic of Abby wearing her band. She is the ONLY picture on her bulletin board. You can really get screwed if the auth. dept. grinds its wheels! Kimry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2000 Report Share Posted May 21, 2000 In a message dated 5/21/00 10:57:03 AM Pacific Daylight Time, fozzie@... writes: << Question for you, when they did the original cast for Abby's band did they give you an estimated time frame for how long she would have to wear it? >> - Yes-12 -16 weeks depending on growth spurts. They also mentioned that sometimes 2 bands are needed, but that we would not be certain until end of band 1. She started so early (wearing at 4.5 months) that they were confident that after band 1, she could still achieve correction with band 2. And she did, you could see the difference in the measurements from end of band 1 to end of band 2. Kimry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2000 Report Share Posted May 21, 2000 Question for you, when they did the original cast for Abby's band did they give you an estimated time frame for how long she would have to wear it? > In a message dated 5/20/00 6:24:35 PM Pacific Daylight Time, > angelakaye@f... writes: > > << You know, there are advantages to being an " overaggressive parent " . >> > I prefer to think of myself as an " assertive " parent ! > Believe me, there are advantages. When I call & want an appt, I get an appt. > They might think I am a pian in the a**, but I am usually right on the money > when one of the kids is sick or needs services outside of what the ped. can > provide. And another tip, it is important to make nice with your > authorization dept. After all was finalized w/Abby's band, I sent her a > thank you card. Then I sent her a pic of Abby wearing her band. She is the > ONLY picture on her bulletin board. You can really get screwed if the auth. > dept. grinds its wheels! Kimry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 Hi everyone! Just wanted to post and let you know that Grayson got his band on May 23 - Tuesday. It came in early. We weren't expecting to get it until today. (By the way, this is my 2nd post - my first one still hasn't shown up so I thought I would write again - hopefully, you will not be reading the same post twice). Grayson has done very well. He wore the band 3 hours on Tuesday. He did not sleep in it that night. On Wednesday, he wore the band 6 hours - he had a good red spot on his forehead so we waited to put the band back on between skin checks. The band was adjusted on Thursday and he wore it all day and slept through the night. No red spots the next morning - yeah! Grayson has been a champ. He only fusses when you put the band on. He doesn't like to sit still. The only challenge we have had is nursing. It certainly is not comfy. That should get better with time. The daycare teachers have been wonderful in helping out with this process - timing the clearing of the red spots, etc.. They call Grayson their " little linebacker " . I have gotten so many questions from the parents. One parent was even rubbing her kids head and checking it out while talking to me. We will be decorating the band this weekend. I would like to put his name across the front with a train across the back. Anyone seen letters or train stickers anywhere? Also, can someone tell me (again) the best varnish or clear cover to put over the stickers?? By the way, I plan to go to Grayson's 6 month appt with before pictures and literature about the band. He will be in the band 3 weeks at the time of the appointment. Based on what I have read - there will most likely be some improvement. Maybe the band will raise some interest since I am the only parent to ever ask for a referral for the band in 11 years..... I'll let you know what happens. Tammy > -----Original Message----- > From: and Luck [sMTP:msluck@...] > Sent: Saturday, May 20, 2000 1:25 PM > Plagiocephalyegroups > Subject: Re: Pity Party Revisited > > Tammy: > I am in the same boat with my ped...he did not refer us, gave the same > sort > of comments ( is also a preemie)and would not write a > prescription. > To top it off, I have since been labeled an " overaggressive parent " at > that > office. I found this out when I took another child in for an appointment > and I read her chart while we were waiting. We have a well baby visit > next > week for and and I have been asking myself the same > question...what can I say to tell the ped that he was wrong???? > > The only thing I have come up with is to take pictures of 's head > before treatment, and then take the band off to show the changes. We will > be in it almost 1 month at that time and even today we see improvement. I > have a packet of materials to give him and I am letting him know that we > will be changing peds. I will not continue to go to a practice where I am > labeled overaggressive for looking for the best treatment for my child. > And > I will not continue to trust a dr who is not open minded to treatments. > > I think the proof is in the showing...we need to give visible evidence > that > the bands/helmets do work. I'm sure they will say something like " we'll > this would have happened on its own " (without intervention). My response > to that is " I am not willing to take that risk. Would you be with your > own > child? And how would you explain it to him if it didn't correct. " > > Best of luck to you, > Sue > > > ----- Original Message ----- > From: Duffy, Tammy <tammy_duffy@...> > <Plagiocephalyegroups> > Sent: Friday, May 19, 2000 3:03 PM > Subject: RE: Pity Party Revisited > > > > Thanks Kendra! > > > > Now lets talk pity party - I just had the worst conversation with my > ped. > > Not to bore you with all the details on how we got to this conversation > but > > to share some comments that really set me off... > > > > He said he would not take an assertive role in recommending the band for > > Grayson (asked him to help with insurance). Why? Because the > band/helmet > > therapy is not a favorable practice in the medical field. They are not > > needed. He has seen preemie babies with board flat heads that have > > corrected themselves. I am the first parent to request the > > referral/recommendation for the band in his career and the career of the > > practice. If I choose to go ahead with the treatment, he will be > supportive > > but will not play an assertive role in assisting me with the fight for > > coverage. The " hipe " is ridiculous. He does not believe that my son > needs > > the band - it will correct itself. > > > > PPPPLLLLEEEAAAASSSSEEE! > > > > I need a smart--- response for this one. I will be taking my son to the > ped > > on June 15th for his 6 month well visit which will be 3 weeks in the > band. > > HELP ME PLEASE. > > > > A little steamy, > > Tammy > > > > > -----Original Message----- > > > From: & Kendra [sMTP:kbgarv@...] > > > Sent: Friday, May 19, 2000 12:45 PM > > > Plagiocephalyegroups > > > Subject: Re: Pity Party Revisited > > > > > > Tammy: > > > > > > I hope you don't mind if I jump in. My daughter recently got her > band. > > > I can't even say that she has adjusted to it, just because she hardly > > > even knows it's there!! Once in a while she'll reach up to check it > > > out, but she has never complained about it. > > > > > > As far as sleeping goes, Hanna slept right thru the first night - and > > > every night since. The band does not effect rolling over, or maybe it > > > makes it easier. My little bunny has been a Tasmanian devil for some > > > time now!! She does, however seem to end up on her tummy in bed more. > > > I don't know if that has anything to do with the band or not?? It > kind > > > of freaks me out, even tho I know she can lift and turn her head with > > > ease!! Just a worry wart, I suppose. I flip her to her back before I > > > go to bed. > > > > > > In our case, Hanna's head is starting to look better (after 3 weeks > > > now), but mostly she looks so different out of her band because we're > so > > > used to what she looks like IN the band!! She's just darn cute either > > > way!! > > > > > > You'll be used to the whole situation in a couple of days after you > get > > > your band. I cried the night before after I kissed her head for the > > > " last time " before bed. I don't regret for one second that that thing > > > is on her head! > > > > > > Chin up! > > > Kendra > > > > > > > > > " Duffy, Tammy " wrote: > > > > > > > : > > > > > > > > The casting was difficult - both of them! The first casting did not > > > > come > > > > out around the neck area - probably because Grayson was so tense. > He > > > > was > > > > flailing his arms and arching his back. Soooo.. we had to recast > > > > because > > > > the PT thought that the cast would be rejected when sent to Phoenix > to > > > > mold. > > > > The second time was not as bad as the first. Grayson was tired and > it > > > > was > > > > nap time so he actually feel asleep during the casting of the back > of > > > > the > > > > head. He was a trooper though - he slept very well that night. > > > > > > > > I have questions about sleeping in the band - will the band keep him > > > > from > > > > turning to the favored side? If not, are the pressures built into > the > > > > band > > > > to keep the flat spot protected? Am I going to have to reposition > him > > > > even > > > > with the band? (Please say no) Will he be able to rollover? If > so, > > > > how is > > > > sleeping on their stomachs with the band? (I can't imagine this > would > > > > be > > > > comfortable and of course it is not recommended - but I understand > > > > once they > > > > learn to rollover that they like sleeping on their tummies ??). I > am > > > > also > > > > wondering what it will be like nursing with the band. I'm sure I > will > > > > find > > > > all of this to be no problem but its just my mind ticking away. I > > > > will be > > > > sure to ask these questions at our fitting but thought I could get a > > > > head > > > > start. > > > > > > > > Sounds like Maddie is still adjusting. It certainly has to take > > > > time. My > > > > husband keeps telling me that Grayson will be fine since he doesn't > > > > know any > > > > better. He says that for all Grayson knows - its just what happens > > > > when you > > > > turn 5 months old - you wear a band! I have been wondering how he > > > > will > > > > begin to look after wearing the band. You said Maddie looks > different > > > > to > > > > you now - I assume you mean since her heading is changing - for the > > > > better > > > > . I was looking at Grayson's head last night in the bathtub and I > > > > am so > > > > glad we are getting the band. As my husband says, he has a couple > of > > > > issues. I noticed a small ridge in the back of his head. I am not > > > > sure if > > > > this has always been there of if I just noticed it but I started > > > > freaking > > > > out thinking that his head had gotten worse since the casting - I am > > > > ridiculousy insane!! : 0) My husband says the band will take care > > > > of this > > > > too! Like Prego - " its in there " - it was in the cast and will be > > > > corrected > > > > with the band. > > > > > > > > Hope your little " wildcat " gets calmer. Isn't it amazing how they > > > > have such > > > > strong wills to be so small - it is fascinating to watch. Maddie > will > > > > be > > > > fine. She's just showing her independence (thats how I think of it > - > > > > its a > > > > good thing). I will let keep you posted. I'm sure I will be > posting > > > > more > > > > questions once we have the band. > > > > > > > > Tammy > > > > > -----Original Message----- > > > > > From: Sar617mc@... [sMTP:Sar617mc@...] > > > > > Sent: Thursday, May 18, 2000 7:05 PM > > > > > Plagiocephalyegroups > > > > > Subject: Re: Pity Party Revisited > > > > > > > > > > Hi Tammy, > > > > > I'm happy to hear that you are finding some peace with all of > this. > > > > It > > > > > takes > > > > > time and even after you are on the road to treatment, you still > may > > > > have > > > > > moments of " How did this ever happen? " I wish you guys the best > > > > with your > > > > > > > > > > treatment...How did the casting go? You may have already written, > > > > but I > > > > > have > > > > > had so little time to read my posts lately. The casting was a > > > > little > > > > > grueling for us - she pretty much cried the whole time, but she's > > > > doing > > > > > much > > > > > better. She'll sleep with it on, it's getting to sleep that seems > > > > to be > > > > > the > > > > > problem lately, but we're working on that too. We had been doing > > > > some > > > > > neck > > > > > exercises given to us by the good people at CT and suddenly this > > > > week she > > > > > decided she doesn't want to turn her head to the left for our > > > > exercises. > > > > > Fought me like a wildcat! I don't know where this came from and > > > > worried > > > > > at > > > > > first that it might be hurting her, but then sat her up and turned > > > > her > > > > > head > > > > > to the left and she was fine. Also, I called Margie at CT in > > > > Phoenix and > > > > > we > > > > > both decided that this is more a display of strong will than > > > > anything > > > > > else. > > > > > I already feel sorry for my husband and I in 13 years. As far as > > > > the band > > > > > > > > > > goes, I don't think she even notices it anymore. It's weird to > take > > > > it > > > > > off > > > > > now. She looks different to me! > > > > > Take Care and keep us posted, > > > > > > > > > > > > > > > > > > > > ------------------------------------------------------------------------ > > > > > > > > > Up to 60% OFF food! > > > > > Buy Now and Shipping is Free. > > > > > 1/4016/4/_/689409/_/958691108/ > > > > > > > > > > ------------------------------------------------------------------------ > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 (By the way, this is my 2nd post - my first one still hasn't shown up so I thought I would write again - hopefully, you will not be reading the same post twice). This seems to be happening a lot lately. Have you heard anything regarding this ? kendra "Duffy, Tammy" wrote: Hi everyone! Just wanted to post and let you know that Grayson got his band on May 23 - Tuesday. It came in early. We weren't expecting to get it until today. (By the way, this is my 2nd post - my first one still hasn't shown up so I thought I would write again - hopefully, you will not be reading the same post twice). Grayson has done very well. He wore the band 3 hours on Tuesday. He did not sleep in it that night. On Wednesday, he wore the band 6 hours - he had a good red spot on his forehead so we waited to put the band back on between skin checks. The band was adjusted on Thursday and he wore it all day and slept through the night. No red spots the next morning - yeah! Grayson has been a champ. He only fusses when you put the band on. He doesn't like to sit still. The only challenge we have had is nursing. It certainly is not comfy. That should get better with time. The daycare teachers have been wonderful in helping out with this process - timing the clearing of the red spots, etc.. They call Grayson their "little linebacker". I have gotten so many questions from the parents. One parent was even rubbing her kids head and checking it out while talking to me. We will be decorating the band this weekend. I would like to put his name across the front with a train across the back. Anyone seen letters or train stickers anywhere? Also, can someone tell me (again) the best varnish or clear cover to put over the stickers?? By the way, I plan to go to Grayson's 6 month appt with before pictures and literature about the band. He will be in the band 3 weeks at the time of the appointment. Based on what I have read - there will most likely be some improvement. Maybe the band will raise some interest since I am the only parent to ever ask for a referral for the band in 11 years..... I'll let you know what happens. Tammy > -----Original Message----- > From: and Luck [sMTP:msluck@...] > Sent: Saturday, May 20, 2000 1:25 PM > Plagiocephalyegroups > Subject: Re: Pity Party Revisited > > Tammy: > I am in the same boat with my ped...he did not refer us, gave the same > sort > of comments ( is also a preemie)and would not write a > prescription. > To top it off, I have since been labeled an "overaggressive parent" at > that > office. I found this out when I took another child in for an appointment > and I read her chart while we were waiting. We have a well baby visit > next > week for and and I have been asking myself the same > question...what can I say to tell the ped that he was wrong???? > > The only thing I have come up with is to take pictures of 's head > before treatment, and then take the band off to show the changes. We will > be in it almost 1 month at that time and even today we see improvement. I > have a packet of materials to give him and I am letting him know that we > will be changing peds. I will not continue to go to a practice where I am > labeled overaggressive for looking for the best treatment for my child. > And > I will not continue to trust a dr who is not open minded to treatments. > > I think the proof is in the showing...we need to give visible evidence > that > the bands/helmets do work. I'm sure they will say something like "we'll > this would have happened on its own" (without intervention). My response > to that is "I am not willing to take that risk. Would you be with your > own > child? And how would you explain it to him if it didn't correct." > > Best of luck to you, > Sue > > > ----- Original Message ----- > From: Duffy, Tammy <tammy_duffy@...> > <Plagiocephalyegroups> > Sent: Friday, May 19, 2000 3:03 PM > Subject: RE: Pity Party Revisited > > > > Thanks Kendra! > > > > Now lets talk pity party - I just had the worst conversation with my > ped. > > Not to bore you with all the details on how we got to this conversation > but > > to share some comments that really set me off... > > > > He said he would not take an assertive role in recommending the band for > > Grayson (asked him to help with insurance). Why? Because the > band/helmet > > therapy is not a favorable practice in the medical field. They are not > > needed. He has seen preemie babies with board flat heads that have > > corrected themselves. I am the first parent to request the > > referral/recommendation for the band in his career and the career of the > > practice. If I choose to go ahead with the treatment, he will be > supportive > > but will not play an assertive role in assisting me with the fight for > > coverage. The "hipe" is ridiculous. He does not believe that my son > needs > > the band - it will correct itself. > > > > PPPPLLLLEEEAAAASSSSEEE! > > > > I need a smart--- response for this one. I will be taking my son to the > ped > > on June 15th for his 6 month well visit which will be 3 weeks in the > band. > > HELP ME PLEASE. > > > > A little steamy, > > Tammy > > > > > -----Original Message----- > > > From: & Kendra [sMTP:kbgarv@...] > > > Sent: Friday, May 19, 2000 12:45 PM > > > Plagiocephalyegroups > > > Subject: Re: Pity Party Revisited > > > > > > Tammy: > > > > > > I hope you don't mind if I jump in. My daughter recently got her > band. > > > I can't even say that she has adjusted to it, just because she hardly > > > even knows it's there!! Once in a while she'll reach up to check it > > > out, but she has never complained about it. > > > > > > As far as sleeping goes, Hanna slept right thru the first night - and > > > every night since. The band does not effect rolling over, or maybe it > > > makes it easier. My little bunny has been a Tasmanian devil for some > > > time now!! She does, however seem to end up on her tummy in bed more. > > > I don't know if that has anything to do with the band or not?? It > kind > > > of freaks me out, even tho I know she can lift and turn her head with > > > ease!! Just a worry wart, I suppose. I flip her to her back before I > > > go to bed. > > > > > > In our case, Hanna's head is starting to look better (after 3 weeks > > > now), but mostly she looks so different out of her band because we're > so > > > used to what she looks like IN the band!! She's just darn cute either > > > way!! > > > > > > You'll be used to the whole situation in a couple of days after you > get > > > your band. I cried the night before after I kissed her head for the > > > "last time" before bed. I don't regret for one second that that thing > > > is on her head! > > > > > > Chin up! > > > Kendra > > > > > > > > > "Duffy, Tammy" wrote: > > > > > > > : > > > > > > > > The casting was difficult - both of them! The first casting did not > > > > come > > > > out around the neck area - probably because Grayson was so tense. > He > > > > was > > > > flailing his arms and arching his back. Soooo.. we had to recast > > > > because > > > > the PT thought that the cast would be rejected when sent to Phoenix > to > > > > mold. > > > > The second time was not as bad as the first. Grayson was tired and > it > > > > was > > > > nap time so he actually feel asleep during the casting of the back > of > > > > the > > > > head. He was a trooper though - he slept very well that night. > > > > > > > > I have questions about sleeping in the band - will the band keep him > > > > from > > > > turning to the favored side? If not, are the pressures built into > the > > > > band > > > > to keep the flat spot protected? Am I going to have to reposition > him > > > > even > > > > with the band? (Please say no) Will he be able to rollover? If > so, > > > > how is > > > > sleeping on their stomachs with the band? (I can't imagine this > would > > > > be > > > > comfortable and of course it is not recommended - but I understand > > > > once they > > > > learn to rollover that they like sleeping on their tummies ??). I > am > > > > also > > > > wondering what it will be like nursing with the band. I'm sure I > will > > > > find > > > > all of this to be no problem but its just my mind ticking away. I > > > > will be > > > > sure to ask these questions at our fitting but thought I could get a > > > > head > > > > start. > > > > > > > > Sounds like Maddie is still adjusting. It certainly has to take > > > > time. My > > > > husband keeps telling me that Grayson will be fine since he doesn't > > > > know any > > > > better. He says that for all Grayson knows - its just what happens > > > > when you > > > > turn 5 months old - you wear a band! I have been wondering how he > > > > will > > > > begin to look after wearing the band. You said Maddie looks > different > > > > to > > > > you now - I assume you mean since her heading is changing - for the > > > > better > > > > . I was looking at Grayson's head last night in the bathtub and I > > > > am so > > > > glad we are getting the band. As my husband says, he has a couple > of > > > > issues. I noticed a small ridge in the back of his head. I am not > > > > sure if > > > > this has always been there of if I just noticed it but I started > > > > freaking > > > > out thinking that his head had gotten worse since the casting - I am > > > > ridiculousy insane!! : 0) My husband says the band will take care > > > > of this > > > > too! Like Prego - "its in there" - it was in the cast and will be > > > > corrected > > > > with the band. > > > > > > > > Hope your little "wildcat" gets calmer. Isn't it amazing how they > > > > have such > > > > strong wills to be so small - it is fascinating to watch. Maddie > will > > > > be > > > > fine. She's just showing her independence (thats how I think of it > - > > > > its a > > > > good thing). I will let keep you posted. I'm sure I will be > posting > > > > more > > > > questions once we have the band. > > > > > > > > Tammy > > > > > -----Original Message----- > > > > > From: Sar617mc@... [sMTP:Sar617mc@...] > > > > > Sent: Thursday, May 18, 2000 7:05 PM > > > > > Plagiocephalyegroups > > > > > Subject: Re: Pity Party Revisited > > > > > > > > > > Hi Tammy, > > > > > I'm happy to hear that you are finding some peace with all of > this. > > > > It > > > > > takes > > > > > time and even after you are on the road to treatment, you still > may > > > > have > > > > > moments of "How did this ever happen?" I wish you guys the best > > > > with your > > > > > > > > > > treatment...How did the casting go? You may have already written, > > > > but I > > > > > have > > > > > had so little time to read my posts lately. The casting was a > > > > little > > > > > grueling for us - she pretty much cried the whole time, but she's > > > > doing > > > > > much > > > > > better. She'll sleep with it on, it's getting to sleep that seems > > > > to be > > > > > the > > > > > problem lately, but we're working on that too. We had been doing > > > > some > > > > > neck > > > > > exercises given to us by the good people at CT and suddenly this > > > > week she > > > > > decided she doesn't want to turn her head to the left for our > > > > exercises. > > > > > Fought me like a wildcat! I don't know where this came from and > > > > worried > > > > > at > > > > > first that it might be hurting her, but then sat her up and turned > > > > her > > > > > head > > > > > to the left and she was fine. Also, I called Margie at CT in > > > > Phoenix and > > > > > we > > > > > both decided that this is more a display of strong will than > > > > anything > > > > > else. > > > > > I already feel sorry for my husband and I in 13 years. As far as > > > > the band > > > > > > > > > > goes, I don't think she even notices it anymore. It's weird to > take > > > > it > > > > > off > > > > > now. She looks different to me! > > > > > Take Care and keep us posted, > > > > > > > > > > > > > > > > > > > > ------------------------------------------------------------------------ > > > > > > > > > Up to 60% OFF food! > > > > > Buy Now and Shipping is Free. > > > > > 1/4016/4/_/689409/_/958691108/ > > > > > > > > > > ------------------------------------------------------------------------ > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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