Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 Trina, I think most of us pretty much agree that autism is not caused by any ONE thing. Therefore, some kids will have miracles with chelation or some other treatment, while the rest of us slog along seeing just minor improvements. For our daughter, GFCF was an amazing improvement -- she is still autistic, just much better. I have heard that Dr. has had amazing results with some kids, not so much with others. This is the same thing I have heard about chelation results, gfcf diet, DMG, B6, and other biomedical interventions people recommend for autism, some of which we have tried. It is very hard, no matter how much testing you do, to figure out what will work best for your child until you try it. Your child could be loaded with viral issues -- but that may not be what is causing the autistic behaviors. Your child could test for mercury -- but that may not be what is causing the autism, either. Getting either issue cleared up would probably help their overal health, anyway, so that is a motivation, in addition to the possible improvement of the autism. We are currently seeing Dr. Rao in Dallas, and plan to try his approach for, perhaps, a year and see if there is improvement. If not, we will probably then go to Dr. for a separate approach. I admit that we are blessed with insurance that covers almost everything, at least in part, so we can consider these approaches. I heard Dr. speak and had a chance to speak with him, and I had the distinct impression that he really does care about his work, so it's probably hard for him to be casual and non-defensive about it. Our approach with Maggie on therapeutic and biomedical issues is, " Can it help? If not, can it harm? If it can harm, what are the risks, and how do those compare with the possible benefits? " We weigh all these with how much we think it can help. I sort of expect that the doctors we speak to will strongly advocate their approach because most of them have devoted years to it and are quite passionate it about it -- so I can't judge an approach by how much a doctor defends it, or not. We all really have to do our own research, pray hard, and do what seems best for our child based on what we believe at that time. Blessings to you in this decision. K Dr. > > In a message dated 11/25/03 11:42:56 AM Central Standard Time, > angeladay@... writes: > > > > >My son's thyroid and growth hormone where very low,so we started > > medication for > > both. They are now within normal ranges. The NK-cells are within normal > > ranges, too. > > > > Just to clarify -- were the NK cells within normal range to begin with or at > > first low and now in normal range? > Gaylen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 Trina, I think most of us pretty much agree that autism is not caused by any ONE thing. Therefore, some kids will have miracles with chelation or some other treatment, while the rest of us slog along seeing just minor improvements. For our daughter, GFCF was an amazing improvement -- she is still autistic, just much better. I have heard that Dr. has had amazing results with some kids, not so much with others. This is the same thing I have heard about chelation results, gfcf diet, DMG, B6, and other biomedical interventions people recommend for autism, some of which we have tried. It is very hard, no matter how much testing you do, to figure out what will work best for your child until you try it. Your child could be loaded with viral issues -- but that may not be what is causing the autistic behaviors. Your child could test for mercury -- but that may not be what is causing the autism, either. Getting either issue cleared up would probably help their overal health, anyway, so that is a motivation, in addition to the possible improvement of the autism. We are currently seeing Dr. Rao in Dallas, and plan to try his approach for, perhaps, a year and see if there is improvement. If not, we will probably then go to Dr. for a separate approach. I admit that we are blessed with insurance that covers almost everything, at least in part, so we can consider these approaches. I heard Dr. speak and had a chance to speak with him, and I had the distinct impression that he really does care about his work, so it's probably hard for him to be casual and non-defensive about it. Our approach with Maggie on therapeutic and biomedical issues is, " Can it help? If not, can it harm? If it can harm, what are the risks, and how do those compare with the possible benefits? " We weigh all these with how much we think it can help. I sort of expect that the doctors we speak to will strongly advocate their approach because most of them have devoted years to it and are quite passionate it about it -- so I can't judge an approach by how much a doctor defends it, or not. We all really have to do our own research, pray hard, and do what seems best for our child based on what we believe at that time. Blessings to you in this decision. K Dr. > > In a message dated 11/25/03 11:42:56 AM Central Standard Time, > angeladay@... writes: > > > > >My son's thyroid and growth hormone where very low,so we started > > medication for > > both. They are now within normal ranges. The NK-cells are within normal > > ranges, too. > > > > Just to clarify -- were the NK cells within normal range to begin with or at > > first low and now in normal range? > Gaylen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 Trina, I think most of us pretty much agree that autism is not caused by any ONE thing. Therefore, some kids will have miracles with chelation or some other treatment, while the rest of us slog along seeing just minor improvements. For our daughter, GFCF was an amazing improvement -- she is still autistic, just much better. I have heard that Dr. has had amazing results with some kids, not so much with others. This is the same thing I have heard about chelation results, gfcf diet, DMG, B6, and other biomedical interventions people recommend for autism, some of which we have tried. It is very hard, no matter how much testing you do, to figure out what will work best for your child until you try it. Your child could be loaded with viral issues -- but that may not be what is causing the autistic behaviors. Your child could test for mercury -- but that may not be what is causing the autism, either. Getting either issue cleared up would probably help their overal health, anyway, so that is a motivation, in addition to the possible improvement of the autism. We are currently seeing Dr. Rao in Dallas, and plan to try his approach for, perhaps, a year and see if there is improvement. If not, we will probably then go to Dr. for a separate approach. I admit that we are blessed with insurance that covers almost everything, at least in part, so we can consider these approaches. I heard Dr. speak and had a chance to speak with him, and I had the distinct impression that he really does care about his work, so it's probably hard for him to be casual and non-defensive about it. Our approach with Maggie on therapeutic and biomedical issues is, " Can it help? If not, can it harm? If it can harm, what are the risks, and how do those compare with the possible benefits? " We weigh all these with how much we think it can help. I sort of expect that the doctors we speak to will strongly advocate their approach because most of them have devoted years to it and are quite passionate it about it -- so I can't judge an approach by how much a doctor defends it, or not. We all really have to do our own research, pray hard, and do what seems best for our child based on what we believe at that time. Blessings to you in this decision. K Dr. > > In a message dated 11/25/03 11:42:56 AM Central Standard Time, > angeladay@... writes: > > > > >My son's thyroid and growth hormone where very low,so we started > > medication for > > both. They are now within normal ranges. The NK-cells are within normal > > ranges, too. > > > > Just to clarify -- were the NK cells within normal range to begin with or at > > first low and now in normal range? > Gaylen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 A very good post Trina......I would say talk to as many parents as you can - and especially the doctor. If he is defensive - then maybe that is reason for concern. I don't know why a sincere person would be defensive. That seems odd. I have jumped on the bandwagon so many times - only to fall off flat on my face. This Dr. Volpe in Houston is my example of someone who I believe so far - is truly sincere. I e-mail and ask him and his office questions - and he has always responded honestly. That is what I look for nowdays. If they can't take the time with me before I spend all this money - then I don't have warm fuzzy feelings about spending all that money on them.. I would question " cure " --- ask him if he can give you a money back guarantee in writing for that cure!!!!!! _____ From: and Trina Sherman Sent: Thursday, November 27, 2003 5:08 AM To: Texas-Autism-Advocacy Subject: RE: Dr. Hello all, I too went to see Dr. . I have not started his protocol because I'm not sure what I think of him. He told me he could " cure " my son in 6 months. He said he didn't look classically autistic and he thought his issues where something else. I guess I'm just skeptical about any doctor that tells me they can cure my son. Dr. Holmes told me this too about 2 weeks before she quit practice. I also know of 2 kids that had very bad reactions behaviorally with Dr. 's protocol and had to stop. I guess I'm still on the fence because my kid has very sensitive hearing and big sensory issues so I am looking for a new angle. Sometimes though I just get tired of all the tests and the blood work and the new latest and greatest and just want to stop and enjoy the kid I have. It's different when they are 3 or 4 or 5 I couldn't get him to enough specialists. Now it just makes me cynical and I wonder what the motivation really is to tell people you can cure their son. He's making money no doubt, and he got very defensive when I questioned his methods and asked him about the two kids I knew who had not been helped. Perhaps I need to talk to more happy parents? Trina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 A very good post Trina......I would say talk to as many parents as you can - and especially the doctor. If he is defensive - then maybe that is reason for concern. I don't know why a sincere person would be defensive. That seems odd. I have jumped on the bandwagon so many times - only to fall off flat on my face. This Dr. Volpe in Houston is my example of someone who I believe so far - is truly sincere. I e-mail and ask him and his office questions - and he has always responded honestly. That is what I look for nowdays. If they can't take the time with me before I spend all this money - then I don't have warm fuzzy feelings about spending all that money on them.. I would question " cure " --- ask him if he can give you a money back guarantee in writing for that cure!!!!!! _____ From: and Trina Sherman Sent: Thursday, November 27, 2003 5:08 AM To: Texas-Autism-Advocacy Subject: RE: Dr. Hello all, I too went to see Dr. . I have not started his protocol because I'm not sure what I think of him. He told me he could " cure " my son in 6 months. He said he didn't look classically autistic and he thought his issues where something else. I guess I'm just skeptical about any doctor that tells me they can cure my son. Dr. Holmes told me this too about 2 weeks before she quit practice. I also know of 2 kids that had very bad reactions behaviorally with Dr. 's protocol and had to stop. I guess I'm still on the fence because my kid has very sensitive hearing and big sensory issues so I am looking for a new angle. Sometimes though I just get tired of all the tests and the blood work and the new latest and greatest and just want to stop and enjoy the kid I have. It's different when they are 3 or 4 or 5 I couldn't get him to enough specialists. Now it just makes me cynical and I wonder what the motivation really is to tell people you can cure their son. He's making money no doubt, and he got very defensive when I questioned his methods and asked him about the two kids I knew who had not been helped. Perhaps I need to talk to more happy parents? Trina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 A very good post Trina......I would say talk to as many parents as you can - and especially the doctor. If he is defensive - then maybe that is reason for concern. I don't know why a sincere person would be defensive. That seems odd. I have jumped on the bandwagon so many times - only to fall off flat on my face. This Dr. Volpe in Houston is my example of someone who I believe so far - is truly sincere. I e-mail and ask him and his office questions - and he has always responded honestly. That is what I look for nowdays. If they can't take the time with me before I spend all this money - then I don't have warm fuzzy feelings about spending all that money on them.. I would question " cure " --- ask him if he can give you a money back guarantee in writing for that cure!!!!!! _____ From: and Trina Sherman Sent: Thursday, November 27, 2003 5:08 AM To: Texas-Autism-Advocacy Subject: RE: Dr. Hello all, I too went to see Dr. . I have not started his protocol because I'm not sure what I think of him. He told me he could " cure " my son in 6 months. He said he didn't look classically autistic and he thought his issues where something else. I guess I'm just skeptical about any doctor that tells me they can cure my son. Dr. Holmes told me this too about 2 weeks before she quit practice. I also know of 2 kids that had very bad reactions behaviorally with Dr. 's protocol and had to stop. I guess I'm still on the fence because my kid has very sensitive hearing and big sensory issues so I am looking for a new angle. Sometimes though I just get tired of all the tests and the blood work and the new latest and greatest and just want to stop and enjoy the kid I have. It's different when they are 3 or 4 or 5 I couldn't get him to enough specialists. Now it just makes me cynical and I wonder what the motivation really is to tell people you can cure their son. He's making money no doubt, and he got very defensive when I questioned his methods and asked him about the two kids I knew who had not been helped. Perhaps I need to talk to more happy parents? Trina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2003 Report Share Posted November 28, 2003 Can anyone tell me if immune improvements like these generally result from growth hormone therapy? Ruede l.ruede@... Dr. In a message dated 11/25/03 11:42:56 AM Central Standard Time, angeladay@... writes: > >My son's thyroid and growth hormone where very low,so we started > medication for > both. They are now within normal ranges. The NK-cells are within normal > ranges, too. > Just to clarify -- were the NK cells within normal range to begin with or at first low and now in normal range? Gaylen Quote Link to comment Share on other sites More sharing options...
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