Guest guest Posted March 27, 2003 Report Share Posted March 27, 2003 Hi! My son was referred for his STARband through the people at Lucile Packard Children's Hospital. I can give you the contact info for the ortho who did his helmet. His age might be a deterrent - my son was only 3 months old when he got his helmet. Our orthotist was WONDERFUL and I can't say enough about her! Amy Adamczyk, Certified Orthotist Center for Independent Rehabilitative Services 590 Forest Avenue Palo Alto, CA 94301 650.462.0102 (tel) You could call her up and ask for a consultation to see what they suggest. CT (the people who do the DOCband) are in southern CA - no where near us -- you'd have quite a drive or you'd have to fly. Jodi & Collin - STARband Grad! (11/5/02 - 1/25/03)- in CA -----Original Message-----From: pkus7 [mailto:pkus7@...] Sent: Thursday, March 27, 2003 11:48 AMPlagiocephaly Subject: 18 months babyHi,I am new to this board. My DS, Omni, is going to be 18 months in April. I was just referred by his Ped to Lucile Packard Children's Hosp in Stanford and after the initial meeting with the specialist , we were told that it is probably too late now to make a major difference (with the helmets). Oh, I am so upset with Omni's ped - he didn't refer us before, we kept telling him at every appointment that he has a flattening on the right side of his head (back side) - we didn't know that such helmets existed !Anyway, we are going to go ahead and try with the helmets. Does anybody have any experience with these (Starband or others) helmets with their child starting wearing them around 18 months ? Did it help. My DS has a perfectly symmetrical forehead , only the back right side of his head is flattened - it is quite noticeable with short hair. Right now , he has very long hair, so it still looks better.Any advice would be deeply appreciatedFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2003 Report Share Posted March 27, 2003 Thanks a lot for replying to you and to Debbie Abby's mom . The specialist at Lucile referred us to a on-site gentlemen from Center for Independent Rehabilitative Services (Palo Alto) - the same one you are referring to. I'm not sure yet about Amy, as we haven't gone there yet. We are still waiting to get an appt for the CTscan and then the follow-up with the specialist at Lucile ... However, since my DS is already late for the helmet therapy, I wanted to setup an appt ASAP for the measurements etc at Center for Independent Rehabilitative Services or any other good helmet therapy place. I had a few questions - if anybody could answer them - my deep appreciations to them : 1) What's the difference between Starband and DOCband ? Is it just that they are different companies manufacturing basically the same thing or is there any difference in quality, procedures, the age group they apply to, the type of flattening they apply to, the area they work in, etc (I live in Mountain View, CA). 2) I will gladly pay the full amount from my pocket if the insurance doesn't cover it - but it would be nice to have them pay something - my insurance is Aetna - I sent them an email and the following is their answer : What is Positional Plagiocephaly? I am unable to find this disease/condition to look up benefits as requested. If the helmet or equipment needed for your son is considered " DME " Durable Medical Equipment, we will need a CPT code to look it up for you in regards to being a covered benefit. Please advise. I don't know what is the CPT code and whether the helmet would classify as a DME. Can anybody help ? Kim > Hi! My son was referred for his STARband through the people at Lucile > Packard Children's Hospital. I can give you the contact info for the > ortho who did his helmet. His age might be a deterrent - my son was > only 3 months old when he got his helmet. Our orthotist was WONDERFUL > and I can't say enough about her! > > Amy Adamczyk, Certified Orthotist > Center for Independent Rehabilitative Services > 590 Forest Avenue > Palo Alto, CA 94301 > 650.462.0102 (tel) > > You could call her up and ask for a consultation to see what they > suggest. CT (the people who do the DOCband) are in southern CA - no > where near us -- you'd have quite a drive or you'd have to fly. > > Jodi & Collin - STARband Grad! (11/5/02 - 1/25/03)- in CA > > 18 months baby > > > Hi, > > I am new to this board. My DS, Omni, is going to be 18 months in > April. I was just referred by his Ped to Lucile Packard Children's > Hosp in Stanford and after the initial meeting with the specialist , > we were told that it is probably too late now to make a major > difference (with the helmets). Oh, I am so upset with Omni's ped - he > didn't refer us before, we kept telling him at every appointment that > he has a flattening on the right side of his head (back side) - we > didn't know that such helmets existed ! > > Anyway, we are going to go ahead and try with the helmets. Does > anybody have any experience with these (Starband or others) helmets > with their child starting wearing them around 18 months ? Did it > help. My DS has a perfectly symmetrical forehead , only the back > right side of his head is flattened - it is quite noticeable with > short hair. Right now , he has very long hair, so it still looks > better. > > Any advice would be deeply appreciated > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2003 Report Share Posted March 27, 2003 The code that Cranial Tech used to bill my insurance company was S1040. I don't know if that helps, Natasha pkus7 <pkus7@...> wrote: Thanks a lot for replying to you and to Debbie Abby's mom . The specialist at Lucile referred us to a on-site gentlemen from Center for Independent Rehabilitative Services (Palo Alto) - the same one you are referring to. I'm not sure yet about Amy, as we haven't gone there yet. We are still waiting to get an appt for the CTscan and then the follow-up with the specialist at Lucile ...However, since my DS is already late for the helmet therapy, I wanted to setup an appt ASAP for the measurements etc at Center for Independent Rehabilitative Services or any other good helmet therapy place.I had a few questions - if anybody could answer them - my deep appreciations to them :1) What's the difference between Starband and DOCband ? Is it just that they are different companies manufacturing basically the same thing or is there any difference in quality, procedures, the age group they apply to, the type of flattening they apply to, the area they work in, etc (I live in Mountain View, CA).2) I will gladly pay the full amount from my pocket if the insurance doesn't cover it - but it would be nice to have them pay something - my insurance is Aetna - I sent them an email and the following is their answer :What is Positional Plagiocephaly? I am unable to find thisdisease/condition to look up benefits as requested. If the helmet orequipment needed for your son is considered "DME" Durable MedicalEquipment, we will need a CPT code to look it up for you in regards to being a covered benefit. Please advise.I don't know what is the CPT code and whether the helmet would classify as a DME. Can anybody help ?Kim> Hi! My son was referred for his STARband through the people at Lucile> Packard Children's Hospital. I can give you the contact info for the> ortho who did his helmet. His age might be a deterrent - my son was> only 3 months old when he got his helmet. Our orthotist was WONDERFUL> and I can't say enough about her! > > Amy Adamczyk, Certified Orthotist> Center for Independent Rehabilitative Services> 590 Forest Avenue> Palo Alto, CA 94301> 650.462.0102 (tel)> > You could call her up and ask for a consultation to see what they> suggest. CT (the people who do the DOCband) are in southern CA - no> where near us -- you'd have quite a drive or you'd have to fly.> > Jodi & Collin - STARband Grad! (11/5/02 - 1/25/03)- in CA> > 18 months baby> > > Hi,> > I am new to this board. My DS, Omni, is going to be 18 months in > April. I was just referred by his Ped to Lucile Packard Children's > Hosp in Stanford and after the initial meeting with the specialist , > we were told that it is probably too late now to make a major > difference (with the helmets). Oh, I am so upset with Omni's ped - he > didn't refer us before, we kept telling him at every appointment that > he has a flattening on the right side of his head (back side) - we > didn't know that such helmets existed !> > Anyway, we are going to go ahead and try with the helmets. Does > anybody have any experience with these (Starband or others) helmets > with their child starting wearing them around 18 months ? Did it > help. My DS has a perfectly symmetrical forehead , only the back > right side of his head is flattened - it is quite noticeable with > short hair. Right now , he has very long hair, so it still looks > better.> > Any advice would be deeply appreciated> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2003 Report Share Posted March 27, 2003 Hi Kim, Let's see if I can help more. You must have been referred to Bob. He's also very nice. Amy was our actual orthotist, but we did see Bob once. Amy is very good w/the kids. She makes them feel special and takes a lot of time with them. I really would recommend going for a consultation with them - they scan their head and it only takes one second to scan. I'd probably start there... We never did a CT scan with our son. What did Bob tell you?? Did he recommend visiting CIRS? The STARband and the DOCband are very similar. The DOCband is a little more "active" I think - applies a little more pressure than the STARband. You have to be careful w/the STARband that you don't get an inexperienced orthotist, but Amy has done well over 300 helmets - not all STARband, but I think it was over 100 STARband. She told me they spend approx 80 hours a month doing helmets there now they've gotten so busy. So, the main thing to worry about is lack of experience, but honestly, with Amy, that's not even a concern. The STARband cost us $2200 - insurance covered 1/2 though, so we're left with $1100. That includes the initial exam, all scans, the helmet, and all follow up visits. Well, insurance theoretically covered 1/2 -- we had Lifeguard, and they are now bankrupt, so who knows if they paid anything! All I know is we were quoted $2200 -- not sure if it may be more if he's a little older... Hope that helped! Jodi & Collin - STARband Grad! (11/5/02 - 1/25/03)- in CA 18 months baby> > > Hi,> > I am new to this board. My DS, Omni, is going to be 18 months in > April. I was just referred by his Ped to Lucile Packard Children's > Hosp in Stanford and after the initial meeting with the specialist , > we were told that it is probably too late now to make a major > difference (with the helmets). Oh, I am so upset with Omni's ped - he > didn't refer us before, we kept telling him at every appointment that > he has a flattening on the right side of his head (back side) - we > didn't know that such helmets existed !> > Anyway, we are going to go ahead and try with the helmets. Does > anybody have any experience with these (Starband or others) helmets > with their child starting wearing them around 18 months ? Did it > help. My DS has a perfectly symmetrical forehead , only the back > right side of his head is flattened - it is quite noticeable with > short hair. Right now , he has very long hair, so it still looks > better.> > Any advice would be deeply appreciated> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2003 Report Share Posted March 27, 2003 Hi Kim: I've answered below your questions. > 1) What's the difference between Starband and DOCband ? Is it just > that they are different companies manufacturing basically the same > thing or is there any difference in quality, procedures, the age > group they apply to, the type of flattening they apply to, the area > they work in, etc (I live in Mountain View, CA). Check out this link to compare the 2 products: http://www.plagiocephaly.org/support/compare.htm The key to success with any of these products is having a trained/experienced orthotist. The main diff. between the DOC band & STARband is that the DOCband orthotists receive training prior to being allowed to treating plagio babies w/the DOCband, the training is solely for the DOcband & plagio babies and plagio babies are their only focus. STARband orthotists do not receive specific training on the product, they do receive schooling for all orthotist devices prior to being a orthotist, of which I believe there is educating of Cranial molding orthoses. > > 2) I will gladly pay the full amount from my pocket if the insurance > doesn't cover it - but it would be nice to have them pay something - > my insurance is Aetna - I sent them an email and the following is > their answer : > > What is Positional Plagiocephaly? I am unable to find this > disease/condition to look up benefits as requested. If the helmet or > equipment needed for your son is considered " DME " Durable Medical > Equipment, we will need a CPT code to look it up for you in regards > to > being a covered benefit. Please advise. Check out www.plagiocephaly.org and www.plagiocephaly.org/support for good definitions. My daughters bands were covered as " durable medical equipment " ...each ins. views it differently. Not sure about CPT...sorry!!! Good luck Kim - this can be quite confusing...let us know his CT scan results when you find out.... Debbie Abby's mom DOCGrad MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2003 Report Share Posted March 31, 2003 I really appreciate all the responses I have received here ... However, I am getting really impatient with Lucile Packard Hospital. Things move really slow there. I am still waiting to get an appointment for CT Scan for almost one week now - I won't even know anything until the CTScan appt scheduler returns tommorow and I am sure the CTScan wont happen for one month ! In the meantime, my son will become 19 months and it might get too late. I haven't gotten any call back from the specialist (Dr. Lorenz) - I had asked him to give me a 'prescription' and 'a letter of medical necessity' so that I can start the DOCBand treatment without waiting for the CTScan stuff to save precious time ... I am planning to fly to Phoenix - CT says they have a 3-4 day turnaround time there and make a helmet in that time and then get the by-weekly adjustments in San Diego ... Does anybody have any advice on how to expedite things here ? (Very) Impatient mom (Kim) of Omni > > Hi! My son was referred for his STARband through the people at > Lucile > > Packard Children's Hospital. I can give you the contact info for > the > > ortho who did his helmet. His age might be a deterrent - my son was > > only 3 months old when he got his helmet. Our orthotist was > WONDERFUL > > and I can't say enough about her! > > > > Amy Adamczyk, Certified Orthotist > > Center for Independent Rehabilitative Services > > 590 Forest Avenue > > Palo Alto, CA 94301 > > 650.462.0102 (tel) > > > > You could call her up and ask for a consultation to see what they > > suggest. CT (the people who do the DOCband) are in southern CA - no > > where near us -- you'd have quite a drive or you'd have to fly. > > > > Jodi & Collin - STARband Grad! (11/5/02 - 1/25/03)- in CA > > > > 18 months baby > > > > > > Hi, > > > > I am new to this board. My DS, Omni, is going to be 18 months in > > April. I was just referred by his Ped to Lucile Packard Children's > > Hosp in Stanford and after the initial meeting with the > specialist , > > we were told that it is probably too late now to make a major > > difference (with the helmets). Oh, I am so upset with Omni's ped - > he > > didn't refer us before, we kept telling him at every appointment > that > > he has a flattening on the right side of his head (back side) - we > > didn't know that such helmets existed ! > > > > Anyway, we are going to go ahead and try with the helmets. Does > > anybody have any experience with these (Starband or others) helmets > > with their child starting wearing them around 18 months ? Did it > > help. My DS has a perfectly symmetrical forehead , only the back > > right side of his head is flattened - it is quite noticeable with > > short hair. Right now , he has very long hair, so it still looks > > better. > > > > Any advice would be deeply appreciated > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2003 Report Share Posted March 31, 2003 Kim I don't know all of your story but if have the head nurse at your neuro call the hospital directly and make the appointment for you. It should be done urgently at a children's hospital so you don't lose any more time. Pitch a fit if you need too, Natasha pkus7 <pkus7@...> wrote: I really appreciate all the responses I have received here ...However, I am getting really impatient with Lucile Packard Hospital. Things move really slow there. I am still waiting to get an appointment for CT Scan for almost one week now - I won't even know anything until the CTScan appt scheduler returns tommorow and I am sure the CTScan wont happen for one month ! In the meantime, my son will become 19 months and it might get too late.I haven't gotten any call back from the specialist (Dr. Lorenz) - I had asked him to give me a 'prescription' and 'a letter of medical necessity' so that I can start the DOCBand treatment without waiting for the CTScan stuff to save precious time ...I am planning to fly to Phoenix - CT says they have a 3-4 day turnaround time there and make a helmet in that time and then get the by-weekly adjustments in San Diego ...Does anybody have any advice on how to expedite things here ?(Very) Impatient mom (Kim) of Omni> > Hi! My son was referred for his STARband through the people at > Lucile> > Packard Children's Hospital. I can give you the contact info for > the> > ortho who did his helmet. His age might be a deterrent - my son was> > only 3 months old when he got his helmet. Our orthotist was > WONDERFUL> > and I can't say enough about her! > > > > Amy Adamczyk, Certified Orthotist> > Center for Independent Rehabilitative Services> > 590 Forest Avenue> > Palo Alto, CA 94301> > 650.462.0102 (tel)> > > > You could call her up and ask for a consultation to see what they> > suggest. CT (the people who do the DOCband) are in southern CA - no> > where near us -- you'd have quite a drive or you'd have to fly.> > > > Jodi & Collin - STARband Grad! (11/5/02 - 1/25/03)- in CA> > > > 18 months baby> > > > > > Hi,> > > > I am new to this board. My DS, Omni, is going to be 18 months in > > April. I was just referred by his Ped to Lucile Packard Children's > > Hosp in Stanford and after the initial meeting with the > specialist , > > we were told that it is probably too late now to make a major > > difference (with the helmets). Oh, I am so upset with Omni's ped -> he > > didn't refer us before, we kept telling him at every appointment > that > > he has a flattening on the right side of his head (back side) - we > > didn't know that such helmets existed !> > > > Anyway, we are going to go ahead and try with the helmets. Does > > anybody have any experience with these (Starband or others) helmets > > with their child starting wearing them around 18 months ? Did it > > help. My DS has a perfectly symmetrical forehead , only the back > > right side of his head is flattened - it is quite noticeable with > > short hair. Right now , he has very long hair, so it still looks > > better.> > > > Any advice would be deeply appreciated> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2003 Report Share Posted March 31, 2003 Things really do move slowly through the whole process, however, given your baby's older age I would think they could expedite things for you. Call, call, call. I would give the people who are holding you up no rest until they get the ball rolling for you! Keep pushing - the squeaky wheel gets the oil so squeak away! Marci (Mom to ) Oklahoma > > > Hi! My son was referred for his STARband through the people at > > Lucile > > > Packard Children's Hospital. I can give you the contact info for > > the > > > ortho who did his helmet. His age might be a deterrent - my son > was > > > only 3 months old when he got his helmet. Our orthotist was > > WONDERFUL > > > and I can't say enough about her! > > > > > > Amy Adamczyk, Certified Orthotist > > > Center for Independent Rehabilitative Services > > > 590 Forest Avenue > > > Palo Alto, CA 94301 > > > 650.462.0102 (tel) > > > > > > You could call her up and ask for a consultation to see what they > > > suggest. CT (the people who do the DOCband) are in southern CA - > no > > > where near us -- you'd have quite a drive or you'd have to fly. > > > > > > Jodi & Collin - STARband Grad! (11/5/02 - 1/25/03)- in CA > > > > > > 18 months baby > > > > > > > > > Hi, > > > > > > I am new to this board. My DS, Omni, is going to be 18 months in > > > April. I was just referred by his Ped to Lucile Packard > Children's > > > Hosp in Stanford and after the initial meeting with the > > specialist , > > > we were told that it is probably too late now to make a major > > > difference (with the helmets). Oh, I am so upset with Omni's ped - > > > he > > > didn't refer us before, we kept telling him at every appointment > > that > > > he has a flattening on the right side of his head (back side) - > we > > > didn't know that such helmets existed ! > > > > > > Anyway, we are going to go ahead and try with the helmets. Does > > > anybody have any experience with these (Starband or others) > helmets > > > with their child starting wearing them around 18 months ? Did it > > > help. My DS has a perfectly symmetrical forehead , only the back > > > right side of his head is flattened - it is quite noticeable with > > > short hair. Right now , he has very long hair, so it still looks > > > better. > > > > > > Any advice would be deeply appreciated > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2003 Report Share Posted April 1, 2003 Personally, know what I know about the STARband orthotist near you, that's the route I'd go rather than traveling to CT, but that's just based on my experience. Honestly, if you'd gone to the orthotist I recommended when you originally sent the email, your child would have been in the band within a few days from now. You still may want to call them... Jodi & Collin - STARband Grad! (11/5/02 - 1/25/03)- in CA 18 months baby> > > > > > Hi,> > > > I am new to this board. My DS, Omni, is going to be 18 months in > > April. I was just referred by his Ped to Lucile Packard Children's > > Hosp in Stanford and after the initial meeting with the > specialist , > > we were told that it is probably too late now to make a major > > difference (with the helmets). Oh, I am so upset with Omni's ped -> he > > didn't refer us before, we kept telling him at every appointment > that > > he has a flattening on the right side of his head (back side) - we > > didn't know that such helmets existed !> > > > Anyway, we are going to go ahead and try with the helmets. Does > > anybody have any experience with these (Starband or others) helmets > > with their child starting wearing them around 18 months ? Did it > > help. My DS has a perfectly symmetrical forehead , only the back > > right side of his head is flattened - it is quite noticeable with > > short hair. Right now , he has very long hair, so it still looks > > better.> > > > Any advice would be deeply appreciated> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2003 Report Share Posted April 1, 2003 How old is your child with the Starband ? I did talk to Bob of CIRS 2 times and he didn't sound convincing to me - note that my baby is almost 18 months now - DOCband seems to be better suited for this age and they have more experience than Starband with older babies. Kim > > > Hi! My son was referred for his STARband through the people at > > Lucile > > > Packard Children's Hospital. I can give you the contact info for > > the > > > ortho who did his helmet. His age might be a deterrent - my son > was > > > only 3 months old when he got his helmet. Our orthotist was > > WONDERFUL > > > and I can't say enough about her! > > > > > > Amy Adamczyk, Certified Orthotist > > > Center for Independent Rehabilitative Services > > > 590 Forest Avenue > > > Palo Alto, CA 94301 > > > 650.462.0102 (tel) > > > > > > You could call her up and ask for a consultation to see what they > > > suggest. CT (the people who do the DOCband) are in southern CA - > no > > > where near us -- you'd have quite a drive or you'd have to fly. > > > > > > Jodi & Collin - STARband Grad! (11/5/02 - 1/25/03)- in CA > > > > > > 18 months baby > > > > > > > > > Hi, > > > > > > I am new to this board. My DS, Omni, is going to be 18 months in > > > April. I was just referred by his Ped to Lucile Packard > Children's > > > Hosp in Stanford and after the initial meeting with the > > specialist , > > > we were told that it is probably too late now to make a major > > > difference (with the helmets). Oh, I am so upset with Omni's ped - > > > he > > > didn't refer us before, we kept telling him at every appointment > > that > > > he has a flattening on the right side of his head (back side) - > we > > > didn't know that such helmets existed ! > > > > > > Anyway, we are going to go ahead and try with the helmets. Does > > > anybody have any experience with these (Starband or others) > helmets > > > with their child starting wearing them around 18 months ? Did it > > > help. My DS has a perfectly symmetrical forehead , only the back > > > right side of his head is flattened - it is quite noticeable with > > > short hair. Right now , he has very long hair, so it still looks > > > better. > > > > > > Any advice would be deeply appreciated > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2003 Report Share Posted April 1, 2003 Yeah, he was much younger - He was only 3 months when he got his helmet... Hopefully the traveling won't be too bad! Good luck! Jodi & Collin - STARband Grad! (11/5/02 - 1/25/03)- in CA 18 months baby> > > > > > > > > Hi,> > > > > > I am new to this board. My DS, Omni, is going to be 18 months in > > > April. I was just referred by his Ped to Lucile Packard > Children's > > > Hosp in Stanford and after the initial meeting with the > > specialist , > > > we were told that it is probably too late now to make a major > > > difference (with the helmets). Oh, I am so upset with Omni's ped -> > > he > > > didn't refer us before, we kept telling him at every appointment > > that > > > he has a flattening on the right side of his head (back side) - > we > > > didn't know that such helmets existed !> > > > > > Anyway, we are going to go ahead and try with the helmets. Does > > > anybody have any experience with these (Starband or others) > helmets > > > with their child starting wearing them around 18 months ? Did it > > > help. My DS has a perfectly symmetrical forehead , only the back > > > right side of his head is flattened - it is quite noticeable with > > > short hair. Right now , he has very long hair, so it still looks > > > better.> > > > > > Any advice would be deeply appreciated> > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2003 Report Share Posted April 1, 2003 MessageKim, If you are flying to Phoenix, have you looked into Angel Flight? We live in KY and we have to fly to Chicago for Lorenzo's DOC band. Angel Flight is flying us for free! Let me know if you'd like some more info. God Bless, in KY Wife to Bert Mama to Isabelle (5), Carolina (4), (3) and Lorenzo (6 mos.) > > Re: 18 months baby > > > I really appreciate all the responses I have received here ... > > However, I am getting really impatient with Lucile Packard Hospital. > Things move really slow there. I am still waiting to get an > appointment for CT Scan for almost one week now - I won't even know > anything until the CTScan appt scheduler returns tommorow and I am > sure the CTScan wont happen for one month ! In the meantime, my son > will become 19 months and it might get too late. > > I haven't gotten any call back from the specialist (Dr. > Lorenz) - I had asked him to give me a 'prescription' and 'a letter > of medical necessity' so that I can start the DOCBand treatment > without waiting for the CTScan stuff to save precious time ... > > I am planning to fly to Phoenix - CT says they have a 3-4 day > turnaround time there and make a helmet in that time and then get the > by-weekly adjustments in San Diego ... > > Does anybody have any advice on how to expedite things here ? > > (Very) Impatient mom (Kim) of Omni > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2003 Report Share Posted April 1, 2003 , pls send me more info - pls send to my email address. Thanks, Kim --- In Plagiocephaly , " Lumetta " <Lumetta@n...> wrote: > MessageKim, > > If you are flying to Phoenix, have you looked into Angel Flight? We live in > KY and we have to fly to Chicago for Lorenzo's DOC band. Angel Flight is > flying us for free! Let me know if you'd like some more info. > > God Bless, > in KY > > Wife to Bert > Mama to Isabelle (5), Carolina (4), (3) and Lorenzo (6 mos.) > > > > Re: 18 months baby > > > > > > I really appreciate all the responses I have received here ... > > > > However, I am getting really impatient with Lucile Packard > Hospital. > > Things move really slow there. I am still waiting to get an > > appointment for CT Scan for almost one week now - I won't even know > > anything until the CTScan appt scheduler returns tommorow and I am > > sure the CTScan wont happen for one month ! In the meantime, my son > > will become 19 months and it might get too late. > > > > I haven't gotten any call back from the specialist (Dr. > > Lorenz) - I had asked him to give me a 'prescription' and 'a letter > > of medical necessity' so that I can start the DOCBand treatment > > without waiting for the CTScan stuff to save precious time ... > > > > I am planning to fly to Phoenix - CT says they have a 3-4 day > > turnaround time there and make a helmet in that time and then get > the > > by-weekly adjustments in San Diego ... > > > > Does anybody have any advice on how to expedite things here ? > > > > (Very) Impatient mom (Kim) of Omni > > Quote Link to comment Share on other sites More sharing options...
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