fwd..survey to help AS kids in the community

[Guest guest]

HI

I wrote and asked if this survey was for overseas and Bill told me anyone can

fill it in but please if you live outside of NEW ZEALAND please state where you

live as some of it is to help lobby the government here in New Zealand, but he

still interested in answers from people all over world to help with the book

Sharon.

NZ

Survey

ASPEGER'S SYNDROME SURVEY

My name is Bill Murray and I am in the process of writing a book based on my

experience in managing a child with Asperger's Syndrome. Whilst there are

several good books on the subject, I feel that the more information one can

propagate, the more we are likely to overcome the unacceptably high level of

ignorance about A.S.

The following questions should be regarded as thought-provokers, so please

don't restrict your replies to the questions. The more you are able to

elaborate, the more useful your input will be in making the book more

interesting. Answers and responses will be treated in the strictest confidence,

names will be changed and identities disguised.

Although aimed primarily at children with Asperger's Syndrome, responses in

regard to any autistic Spectrum Disorder will be most welcome. Similarly, any

information pertaining to adults is also extremely useful.

Please direct your responses to me, either by email at BILLVALM@... or

if you would prefer to write, my address is 31 Greyfriars Crescent, Tawa,

Wellington.

The book is in it's final stages, so if you intend replying, please don't put

it off, I would love to hear from you.

1.. Was a diagnosis made after the first psychological consultation, or was

it necessary to seek a second or third opinion? First/Second/Third.

2.. Was " denial " a major obstacle in your family? Not at all/It was/It still

is.

3.. Are you reluctant to have your child " labelled " , or are you relaxed

about it? Reluctant/Not concerned/selectively concerned.

4.. Prior to getting a diagnosis, did the school, or teachers at the school,

make you feel like your child had " Spoilt Brat Syndrome " or was the consequence

of " Bad Parent Disorder " ? Yes/No.

5.. Are you satisfied that your child's school started catering adequately

to his/her needs, once a diagnosis was obtained? Satisfied/Dissatisfied.

6.. Do you think it should become a prerequisite for individual teachers to

undergo an Autistic Spectrum Disorder competency test, before being allowed to

teach such children? Yes/No.

7.. Would it be an idea to suggest the Ministry of Education be encouraged

to introduce an incentive bonus for teachers who have successfully undergone

such a test? Yes/No.

8.. Should the Ministry of Education be compelled to provide a list of

Asperger Friendly Schools, so parents of autistic children won't have to lead a

nomadic existence trying to find the right school? Yes/No.

9.. Is there a need for a pro-active pressure group to promote the interests

of children with Asperger's Syndrome in New Zealand? Adequate/Need for more

pressure.

10.. Would you be interested in becoming an active or passive member of such

a group? Active/Passive/Don't want to get involved.

11.. Have any dietary supplements, or exclusions, assisted in modifying your

child's behaviour, e.g. Omega 3, Vitamin B6; or casein free/gluten free diet?

(Please elaborate as much as possible).

12.. Approximately ten percent of Aspergers are thought to have savant

skills. If your child has a savant skill, or is gifted in any particular way, I

would be most interested in hearing the details.

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