Re: Anyone children here been to neurosurgeon in London, Ontario, Canada?

[Guest guest]

Hi ,

This is Sponagle from New Brunswick. I understand your struggle. We

were fortunate enough to find a locally made helmet. A Neurosurgeon

in our area started treating plagio with an orthotic approach a year

or so ago. Plagio treatment centres in Canada are few and far

between. The known treatment centres are in Alberta, Ontario, New

Brunswick and just recently I heard of an independant in BC. The

Ontario locations are CHEO, Children's Hospital of Eastern Ontario

and Sick Kids in Toronto. I would also check with your local

Orthotist in London, Orthotics of London,Ontario, Hamilton Road 519-

432-2041, ask to speak with their certified orthotist. Hopefully

he/she could steer you in the direction of a plagio-friendly doctor

in your area.

I hope this helps.

Hope the CT goes well......

Keep us posted. Anything else you need. Just ask.

Making the decision to band a child is a difficult one. I just wish

it was atleast on the table for every parent...

Sponagle

--- In Plagiocephaly , " Tracey M. " <dtmiller@l...>

wrote:

> My daughter has been seeing a neurosurgeon in London, Ontario

> Children's Hospital since November last year. Emma is 9 months

old

> and has flattening on the back and off to the right side. She has

> been tummy sleeping since she was 3.5-4 months old and is slowly

> improving but is still somewhat brachycephalic in shape and

> lopsided. She had xray at 5.5 months to rule out lambdoid

> craniosynostosis and was cleared. Banding was never mentioned,

> instead we were offered the, " If Plagio,it will round out on it's

> own " philosophy. Now, at last check-up, neurosurgeon is

concerned

> that one lambdoid suture might be closed because her skull bulges

in

> the back to the left side opposite to the side of her flattening

and

> her face is pretty symmetrical and ears are just slightly off. If

> plagio, the neurosurgeon said she'd have bossing in the forehead.

> Emma is now going in for a CT scan.

>

> The thing is, her " bulge " seems less pronounced than it did 3

months

> ago. My question is has any neurosurgeon from London, Ontario

area

> ever recommended banding? All I'm getting is if it is Cranio, we

> might face the option of reconstructive surgery. In my gut I know

> it's plagio because of her stubborn sleeping preference in her

first

> few months and the area where she is flat. I was under the

> impression that London Children's hospital was a " good " hospital.

I

> am beginning to wonder if it is not progressive enough.

>

> Thanks,

> Tracey M. & Emma

[Guest guest]

Hi Tracey

I am in Canada too, and in my research on plagio, I have found that

Canada seems to be miles behind the US. I have seen 4 doctors (2 of

those ped's) and all told me the " round out on its own story " . It

has rounded out a bit, but not alot. Well, I finally demanded to

see a neurosurgeon (and you know what wait lists are like here....I

don't get in until the end of april) and the orthotist that I spoke

to recommended the helmet. We have decided to give it a try and see

what happens.

You will find a few Canadians on this board (I am in BC), and Mr.

Plagio (Sponagle) is a wealth of info. Good luck and keep us posted!

, mom to Ethan

--- In Plagiocephaly , " Tracey M. " <dtmiller@l...>

wrote:

> My daughter has been seeing a neurosurgeon in London, Ontario

> Children's Hospital since November last year. Emma is 9 months

old

> and has flattening on the back and off to the right side. She has

> been tummy sleeping since she was 3.5-4 months old and is slowly

> improving but is still somewhat brachycephalic in shape and

> lopsided. She had xray at 5.5 months to rule out lambdoid

> craniosynostosis and was cleared. Banding was never mentioned,

> instead we were offered the, " If Plagio,it will round out on it's

> own " philosophy. Now, at last check-up, neurosurgeon is

concerned

> that one lambdoid suture might be closed because her skull bulges

in

> the back to the left side opposite to the side of her flattening

and

> her face is pretty symmetrical and ears are just slightly off. If

> plagio, the neurosurgeon said she'd have bossing in the forehead.

> Emma is now going in for a CT scan.

>

> The thing is, her " bulge " seems less pronounced than it did 3

months

> ago. My question is has any neurosurgeon from London, Ontario

area

> ever recommended banding? All I'm getting is if it is Cranio, we

> might face the option of reconstructive surgery. In my gut I know

> it's plagio because of her stubborn sleeping preference in her

first

> few months and the area where she is flat. I was under the

> impression that London Children's hospital was a " good " hospital.

I

> am beginning to wonder if it is not progressive enough.

>

> Thanks,

> Tracey M. & Emma

[Guest guest]

Hi Tracey and welcome. I'm not in Canada so I cannot give you any

specific information. I see that you have already received a couple

of good responses from two of our Canadian members so that is good.

I'm glad that Emma is scheduled for a follow up CT scan to double

check for cranio. Unfortunately surgery is usually the solution for

craniosynostosis so all fingers crossed that it will turn out to be

plagio and not cranio. Hopefully you will be able to explore some of

the options that Spongale (lovingly named Mr. Plagio) gave you. If

you could find a band or helmet maker in your area then you might

want to seriously pursue that option if it is indeed plagio.

Best wishes to you. Please do let us know how the CT goes and what

the results are. Glad to have you with us.

Marci (Mom to )

Oklahoma

--- In Plagiocephaly , " Tracey M. " <dtmiller@l...>

wrote:

> My daughter has been seeing a neurosurgeon in London, Ontario

> Children's Hospital since November last year. Emma is 9 months old

> and has flattening on the back and off to the right side. She has

> been tummy sleeping since she was 3.5-4 months old and is slowly

> improving but is still somewhat brachycephalic in shape and

> lopsided. She had xray at 5.5 months to rule out lambdoid

> craniosynostosis and was cleared. Banding was never mentioned,

> instead we were offered the, " If Plagio,it will round out on it's

> own " philosophy. Now, at last check-up, neurosurgeon is concerned

> that one lambdoid suture might be closed because her skull bulges

in

> the back to the left side opposite to the side of her flattening

and

> her face is pretty symmetrical and ears are just slightly off. If

> plagio, the neurosurgeon said she'd have bossing in the forehead.

> Emma is now going in for a CT scan.

>

> The thing is, her " bulge " seems less pronounced than it did 3

months

> ago. My question is has any neurosurgeon from London, Ontario area

> ever recommended banding? All I'm getting is if it is Cranio, we

> might face the option of reconstructive surgery. In my gut I know

> it's plagio because of her stubborn sleeping preference in her

first

> few months and the area where she is flat. I was under the

> impression that London Children's hospital was a " good " hospital.

I

> am beginning to wonder if it is not progressive enough.

>

> Thanks,

> Tracey M. & Emma

[Guest guest]

Hello,

this is a long time after this post but I have a 2 1/2 year old and

live in Mississauga, ON. We also had crappy advice and were not

recommended to helmet therapy and now she has facial assymetry.

particularly one eye which is set back in her head compared to the

other. just wondered if you ended up needing surgery for your child

and who you went to see. I went to sick kids and was told nothing

could be done. i am considering taking her to the US but it will

cost an arm and a leg and just want to know if there's anyone in

Canada you know of.

thanks,

deepa

> > My daughter has been seeing a neurosurgeon in London, Ontario

> > Children's Hospital since November last year. Emma is 9 months

old

> > and has flattening on the back and off to the right side. She

has

> > been tummy sleeping since she was 3.5-4 months old and is slowly

> > improving but is still somewhat brachycephalic in shape and

> > lopsided. She had xray at 5.5 months to rule out lambdoid

> > craniosynostosis and was cleared. Banding was never mentioned,

> > instead we were offered the, " If Plagio,it will round out on it's

> > own " philosophy. Now, at last check-up, neurosurgeon is

concerned

> > that one lambdoid suture might be closed because her skull bulges

> in

> > the back to the left side opposite to the side of her flattening

> and

> > her face is pretty symmetrical and ears are just slightly off.

If

> > plagio, the neurosurgeon said she'd have bossing in the

forehead.

> > Emma is now going in for a CT scan.

> >

> > The thing is, her " bulge " seems less pronounced than it did 3

> months

> > ago. My question is has any neurosurgeon from London, Ontario

area

> > ever recommended banding? All I'm getting is if it is Cranio, we

> > might face the option of reconstructive surgery. In my gut I

know

> > it's plagio because of her stubborn sleeping preference in her

> first

> > few months and the area where she is flat. I was under the

> > impression that London Children's hospital was a " good "

hospital.

> I

> > am beginning to wonder if it is not progressive enough.

> >

> > Thanks,

> > Tracey M. & Emma

>