Re: You go !

[Guest guest]

Hi , Melt here;

You go get em girl! Thank you for putting so well your daily

feelings of struggle. This says so aptly what I go thru often. Of

course, like most, in extremley varying degrees. I'm sure you have

more years for working but just remember if you can, it's not always

on the schedules or timelines in which we would choose. I'm rooting

for you to feel well and get to keep your job. You know we are here

anytime to vent all the feelings that build up. Thank you again for

such a touching letter. Till soon, Patty

- In Stillsdisease@y..., " " <jatw@a...> wrote:

> Hello All,

>

> I just wanted to give a quick update on me. I wanted to welcome

the new

> members. Congratulate all of us for making it through the

holidays. I had

> a really nice X-mas.

>

> I am starting to feel better. My Stills is better but I am having

more

> Fibro problems.

>

> I started taking Pred. a month a go. I haven't been on it for

years. I

> thought it would make me feel better but it didn't. My insomnia

was worse.

> I sometimes was awake for two days which over all made me even

worse. I was

> on edge, too wound up and my skin started breaking down. The Pred.

always

> helped before. I just don't understand why it didn't help this

time. I

> was only on 5mg. I feel better now that I am off of it.

>

> My stomach after years of problems is finally getting better. I am

taking

> Nexium and Levsinex and it seems to be working.

>

> I am now coping better with this disease. For awhile I just sort

of gave

> up. I wasn't suicidal I just didn't care any more. My life just

seemed

> pointless. Day in day out with something always hurting was

driving me

> nuts. Plus I seem to be getting more secondary problems. Sjogrens

Disease,

> IBS, Fibro, Migraines, etc... Then one thing is better one day but

> something else is worse. Every day something acts up. This can be

> maddening.

>

> I have been so much sicker and I use to carry on. I was getting so

angry at

> myself for not coping better. I some how woke up and decided I

needed to

> get my life back. I am now determined not to let this disease get

the best

> of me. For now any way.

>

> All of you have been so kind to me. I thank all of you for

everything. I

> know I have been flaky yet you all are still here for me. It means

a lot to

> me.

>

> I am going back to work Jan. 4. I have been on Medical Leave since

mid

> October. I can't have any more absences or I will be fired. I was

lucky

> that I didn't get fired. I was missing 2-3 days a week of work for

almost 6

> months. I am going to give it my best shot. So wish me luck. I

am not

> ready to go on disability yet. I was on it before and got off of

it. I am

> only 34 there has to be a few good years of work left in me, right?

>

> Thanks for listening. I wish you all the best!

>

> Love,

>

>

> jatw@a...