Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 OK I know this question is silly but I am curious anyway. We have our apt to pick our DOC band up on Dec 11th. Noah was casted on Monday. As we were leaving the lady at Cranial Tech said she would call if it came in early. Did anyone have their bands come in early? If so how early. We are very anxious to get it and start treatment. Thanks a bunch, Mom to Noah 5/29/00 and 10/9/97 Carrollton, Georgia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 Averie's band did not come in early...we got it at the two week appointment as scheduled (at CT in Atlanta). lee >From: " Bishop " <tbi3655190@...> >Reply-Plagiocephalyegroups >Plagiocephalyegroups >Subject: Silly Question >Date: Thu, 30 Nov 2000 04:01:22 -0000 > >OK I know this question is silly but I am curious anyway. We have >our apt to pick our DOC band up on Dec 11th. Noah was casted on >Monday. As we were leaving the lady at Cranial Tech said she would >call if it came in early. Did anyone have their bands come in >early? If so how early. We are very anxious to get it and start >treatment. > >Thanks a bunch, > Mom to Noah 5/29/00 >and 10/9/97 >Carrollton, Georgia > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 , Josh's DOC Band did come in early. His appt was on a Tues. and it was there the Fri. morning before...... Jill (New York) --- Bishop <tbi3655190@...> wrote: > OK I know this question is silly but I am curious > anyway. We have > our apt to pick our DOC band up on Dec 11th. Noah > was casted on > Monday. As we were leaving the lady at Cranial Tech > said she would > call if it came in early. Did anyone have their > bands come in > early? If so how early. We are very anxious to get > it and start > treatment. > > Thanks a bunch, > Mom to Noah 5/29/00 > and 10/9/97 > Carrollton, Georgia > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 Both of our bands came in a day early. Amy & " Did anyone have their bands come in early? If so how early. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Hi Jill, It is not a silly question. I continue to have WBCs done monthly and they fluctuate between 3.5 and 5.5. This has been going on for several years. I would only be concerned if I saw trend in one direction. To establish a trend you would to have 3 consecutive WBCs going in the same direction. This means that you need two more results where the WBC continues to go up and pass 11 (normal being 4-11). Keep watching them. Zavie Zavie (age 70) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-282-0204 ID: zaviem YM: zaviemiller Skype: Zavie _____ From: [mailto: ] On Behalf Of jillannt Sent: August 28, 2008 1:45 PM Subject: [ ] Silly question I am so lucky to be in genetic remission in such a short period of time. For some reason, though, I still get nervous with each blood test. I have " graduated " to a blood test every 4 weeks and a doctor's visit every 8 weeks. Because my blood draw this week was a time I didn't have a doctor's appointment, I called the office and requested a copy of my labs (I like to keep them). My white blood count has been 4.8 or 4.9 for several weeks now (probably about 4 months). This time it went up to 5.9. I realize that this is still in the normal range and this is probably silly, but I worry because it started to increase and went up a point or so in a 4 week time period. What stops it from going up and continuing to go up until I have 95,000 white blood cells again? Does the gleevec keep it at a safe level or does this mean the gleevec isn't as effective because my counts didn't remain about the same this time? I would ask the doctor, but I don't see him until toward the end of September and I am probably making a mountain over a mole hill. My husband had a rejection episode with his tranplanted kidney last week and I think I have become paranoid for both of us. Thanks for all of the help. Jill in Illinois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 There is a mutant test for Gleevec however I doubt if any thing will increase between your test. Good luck 600 Gleevec ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 Jill, From my experience, the Oncology team would not get worried by the WBC rising until it got to about the 30.0 range. As Zavie noted, your WBC count can fluctuate some. It actually cycles up and down a small amount normally during the day. Depending on when your CBC is collected during that cycling will effect the result An interesting anecdote related to me that may or may not be true. Some physical exertion (like climbing some stairs) that gets the heart rate up just before the CBC is collected can cause a larger number of lymphocytes that were stuck to blood vessel walls to float free. This could have the effect to increase the WBC a few points and shift the differential in favor of Lymphocytes. If you are having PCR done, that will show a trend of rising levels of CML cells months before the CBC will. The CBC is also useful to see if any counts are getting to low. This can be used to check to see if the bone marrow is working properly. If anything suspicious is seen on the CBC, then a marrow aspirate can be done to see what is happening inside. Glad to hear your doing well Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2008 Report Share Posted August 30, 2008 Hi, Jill I felt the need to respond to your post because my white blood cells always tend to fluctuate since diagnosis. I have always been between 11 and 13 despite the fact that my PCR, thank God, has mostly been on a downward trend. Just to give you an example, my last four white cell counts were 10, 10, 8, and this week 10.8. My FISH last month was negative for the second time and my PCR, three weeks ago was 0.02 which is what it has pretty much been. My doctor says that he doesn't worry about what the white blood cells are doing as long as the PCR stays low and continues on low trend. Ironically, my white blood cells have always been on the border of normal or a little higher than normal. As a matter of fact, they tested me for Leukemia in 2000 because my whites were still a little high after having my appendix removed. Little did I know that I would end up having CML 7 years later. I hope my story makes you feel better because I remember feeling worried all the time that my whites weren't lower. I think that there is someone on the Asian list who tends to run higher white blood cells on the CBC despite having a low PCR and maintaining that, if I remember correctly. I have been told by doctors that being overweight has been shown to raise your white blood cells. They have noticed that most people who go in to have bariatric surgery have raised white blood cells. Doctors think that being overweight is like an inflammatory disorder for the body and the blood cells treat it as such. Perhaps my being overweight has been the cause of this but, in any case, I think as long as your PCR continues to be steady or on a downward trend, I wouldn't worry too much about what your white cells fluctuating. This is just my two cents and what I have experienced personally. > > I am so lucky to be in genetic remission in such a short period of > time. For some reason, though, I still get nervous with each blood > test. I have " graduated " to a blood test every 4 weeks and a > doctor's visit every 8 weeks. Because my blood draw this week was a > time I didn't have a doctor's appointment, I called the office and > requested a copy of my labs (I like to keep them). My white blood > count has been 4.8 or 4.9 for several weeks now (probably about 4 > months). This time it went up to 5.9. I realize that this is still > in the normal range and this is probably silly, but I worry because > it started to increase and went up a point or so in a 4 week time > period. What stops it from going up and continuing to go up until I > have 95,000 white blood cells again? Does the gleevec keep it at a > safe level or does this mean the gleevec isn't as effective because > my counts didn't remain about the same this time? I would ask the > doctor, but I don't see him until toward the end of September and I > am probably making a mountain over a mole hill. My husband had a > rejection episode with his tranplanted kidney last week and I think I > have become paranoid for both of us. > > Thanks for all of the help. > > Jill in Illinois > Quote Link to comment Share on other sites More sharing options...
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