Re: Appointment with Paediatircian

January 25, 2012

Not saying this will happen to you - but we saw a paediatrician with an interest

in gastroenterology who failed to examine my child and who then carried out a

transit study incorrectly. We didn't get help until we saw a gastroenterologist.

We eventually saw 3 gastroenterologists at 2 hospitals. They were in general

agreement that the earlier treatment had been wrong (movicol, movicol, movicol

and other laxatives )and that it had been giving him confusing signals that

meant he'd lost his ability to recognise when he needed to defecate. By this

stage, a full colostomy was being proposed becasue the encopresis was so bad and

so long-standing. (We used suppositories for 9 months and eventually he learned

to use the loo.)

In general I think it best to talk about symptoms: behaviours, pain, diarrhoea,

whatever the symptoms are. Don't speculate about links to or casues of autism -

it's a hot potato area doctors feel threatened. I would suggest it's probabaly

best just to get your child investigated on the basis of his symptoms and to try

and get medical help based on what is found.

Margaret

>

> Hi All

> I just wanted to ask some advice about an appointment we have in March for my

little boy (age 5, non verbal asd & ld, plus lots of food allergies and frequent

? viral infections, plus usual gut/stool issues). The appointment is with a

Paediatrician who as an interest in Gastroenterology.This appointment came about

as I went back to my GP re concerns about his physical health - I know many of

you will have had the same experience I did of pretty much being dismissed for

even wondering about links between his physical health problems and his asd. So,

wanted to ask what would be the most useful things to try to get from this

appointment for my son - I'm wondering about an x-ray to check for loading, some

kind of immune system checks, ? checks for his viral load that kind of thing.

The concerns I had raised about his physical health were - frequent episodes of

ill health, high fever, lethargy, rashes, swollen lymph glands neck and groin,

vomit with no

> smell, never having had a formed poo, frequent poos. Thanks for any help with

this.

> Jayne

>

Recommended Posts