Re: Signs of Tort? (long Sorry)

[Guest guest]

Sheri,

Was Dx at 13 weeks didn't enter into PT until she was 5

months. I worked out the muscle enough to get her full ROM on my own

but couldn't get rid of the tilt.

's tilt would also look good and then bad again. This is

common. If her tilt became worse I learned to look and see if she

wasn't feeling well. Most of the time she was sick or cutting a

tooth. The tilt can also come back when they start learning new

milestones, like crawling and walking.

's tilt has improved over the past month to where you don't see

it unless you are part of the " tort police " After she got Banded it

started to look better. I think because the back of the Band brushes

against her shoulder and it is a gentle reminder to straighten back

up. Tilting can become a habit, so that even after the muscle is

stretched and straigthen the children still tilt. I talked about

taping with her PT but we were going to wait until

started walking. But now with the DOC Band I don't think we will

need to tape. (Taping is sometime used to get the last bit of tilt

out, after the muscle is completely stretched out.)

One of the Tort moms took some great photos of her little guy taped.

It is on the Tort BB, Under Photos in Tim's folder.

If you aren't a member please join.

It isn't too late for , but you are right in pushing to get

him help. When I called 's Ped for a referal I say " Look I am

over my head and need help " I didn't care that they thought I should

have been able to do it on my own. I wasn't and I didn't care if

they thought I was just a bad or lazy mother I wanted and needed help.

PT will change as the child develops. It is crazy that the Peds

think we are going to know how to work with our children when

Therapists go to school to learn how and then make money at it.

Tort can sometimes be worked out by moms. My sister had two children

that had tort and she was able to correct at home. But some cases

are tougher than others and it isn't fair that we have to beg for

help.

I hope your EI meeting goes well. I are doing a great job.

is lucky to have you.

Stay Strong,

Long Winded Heidi- SAHM to 7, 4-1/2 (DSI, Apraxia)

11-1/2 months (VUR, Tort/Plagio-DOC Banded 2/14/03 and now Dx

as FTT)

> In a message dated 3/20/2003 12:00:59 PM Eastern Standard Time,

> saraibeth2@y... writes:

>

> > ,

> > Here is the address for the tort BB

> > Torticolliskids/

> >

> > did not have full range of motion. She could only move her

> > head mid-line and then to the right. Her head tilts to the left

and

> > she even formed a c-shape with her whole body during the worst of

it.

> > She is on the tort BB in photos. SHe is the last photo ( W.)

> >

> > Her tort was not Dx until 13 weeks and I was the one who had to

point

> > it out to the Ped.

> >

>

> Can you tell me how long ago she was diagnosed and how she is doing

now? My

> son has had the tilt since he was born and he is almost 6

months now.

> His doctor didn't think it was necessary to get PT help but I went

on my own

> and contacted Early Intervention. His first appt with them is

today...they

> will be here in about 30 minutes. Do you think he is too old now

to have his

> tort fully resolved? I exercise him all the time. There are times

he looks

> soooo good and straight but then there are times like this week

that the tilt

> is back just as bad as before. He has an appt with a pediatric

orthopediac

> dr in chapel hill on the 31st of this month. I sure hope it isn't

too late

> for him. I am so mad at his pediatrician for dismissing this as

nothing. I

> am now looking for a new doctor.