Re: Washington State and Band

[Guest guest]

Hi ,

We live in Michigan and were considering flying out to Seattle to see a

Neurosurgeon.

University of Washington

Dr. Sterling Clarren, Director

FAS CLINIC

P.O. Box 5371

Seattle Washington 98015

FAS Clinic Appointment HOTLINE

206-252-2522

He has been involved in many studies, and is a pioneer in advocating

treatment. I hope this helps.

[Guest guest]

Kendra,

We were considering it out of pure desperation to get treatment. I did get

confused, because Dr. Clarren uses the helmet, I think?

[Guest guest]

:

Why are you flying to Washington to see Dr. Clarren?

Kendra

Ssassafras1@... wrote:

Hi ,

We live in Michigan and were considering flying out to Seattle to

see a

Neurosurgeon.

University of Washington

Dr. Sterling Clarren, Director

FAS CLINIC

P.O. Box 5371

Seattle Washington 98015

FAS Clinic Appointment HOTLINE

206-252-2522

He has been involved in many studies, and is a pioneer in advocating

treatment. I hope this helps.

[Guest guest]

:

Yes, Dr. Clarren uses a helmet. I thought you had a band???????

Kendra

Ssassafras1@... wrote:

Kendra,

We were considering it out of pure desperation to get treatment.

I did get

confused, because Dr. Clarren uses the helmet, I think?

[Guest guest]

Kendra,

When the Pediatric Neurosurgeon didn't seem like she was going to give us the

RX for the band, I quit going after it. We were deciding what our options

were, and Dr. Clarren seemed like the way to go, that's how desperate I was.

I would have traveled 2000 miles for an RX. I made an appt. with Dr. Vicari

in Chicago instead. We had even Fed Exed Sierra's X-ray and Cat Scan. When I

called Sierra's Ped Neuro, I had only asked them for Sierra's clinical

pictures, and told them about my project. That was on a Friday. I called back

Monday to see if I could get the pictures, and the receptionist told me no

problem. She also informed me that the Neuro wrote Sierra the RX. I feel the

only reason she did it was because of the implications that might happen if

this project was a success. Kay from CT had sent the Neuro case studies,

and information before we saw her. She still didn't seem to budge on the fact

that it wasn't to late. I need to put my story in, and I will start working

on it ASAP.:}

[Guest guest]

Kendra,

That's history now!!! Thankfully!!

[Guest guest]

So are you still going to see Dr. Clarren, or is that history now?

Kendra

Ssassafras1@... wrote:

Kendra,

When the Pediatric Neurosurgeon didn't seem like she was going to

give us the

RX for the band, I quit going after it. We were deciding what our

options

were, and Dr. Clarren seemed like the way to go, that's how desperate

I was.

I would have traveled 2000 miles for an RX. I made an appt. with

Dr. Vicari

in Chicago instead. We had even Fed Exed Sierra's X-ray and Cat

Scan. When I

called Sierra's Ped Neuro, I had only asked them for Sierra's clinical

pictures, and told them about my project. That was on a Friday.

I called back

Monday to see if I could get the pictures, and the receptionist

told me no

problem. She also informed me that the Neuro wrote Sierra the RX.

I feel the

only reason she did it was because of the implications that might

happen if

this project was a success. Kay from CT had sent the Neuro

case studies,

and information before we saw her. She still didn't seem to budge

on the fact

that it wasn't to late. I need to put my story in, and I will start

working

on it ASAP.:}