Re: speech generating devices

[Guest guest]

It sounded better for autism -- where the child probably knows what it

wants to communicate but can't

Sally

helenco68 wrote:

>

>

>

> Hi Sally

>

> I've not looked at these links yet...'s school off today as no

> hot water?!! but will look later. I am currently looking into

> augmentative communication for . He is non verbal, diagnosed

> severely autistic (?) and uses PECS but infrequently , Huge

> frustrations from inablity to communicate, lacks the fine motor skills

> to sign (so we have been told) so this is the next avenue to explore

> and is my latest mission. Have just bought a basic 'speaker' where you

> can pre record 9 items/messages and the child presses the button to

> request an item or say 'hi' etc... So it speaks for you but is child

> initiated and adult records.

>

> Helen x

>

>

> >

> >

>

http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PEn\

trez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum

>

<http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PE\

ntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum>

> >

> > Does anyone use these? I've only seen them being used with v v brain

> > damaged people where the helper programmed them and then set them

> off at

> > the right time -- awful, I thought

> >

> > Sally

> >

>

>

> ------------------------------------------------------------------------

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 8.5.323 / Virus Database: 270.12.19/2099 - Release Date: 05/05/09

13:07:00

>

>

[Guest guest]

It sounded better for autism -- where the child probably knows what it

wants to communicate but can't

Sally

helenco68 wrote:

>

>

>

> Hi Sally

>

> I've not looked at these links yet...'s school off today as no

> hot water?!! but will look later. I am currently looking into

> augmentative communication for . He is non verbal, diagnosed

> severely autistic (?) and uses PECS but infrequently , Huge

> frustrations from inablity to communicate, lacks the fine motor skills

> to sign (so we have been told) so this is the next avenue to explore

> and is my latest mission. Have just bought a basic 'speaker' where you

> can pre record 9 items/messages and the child presses the button to

> request an item or say 'hi' etc... So it speaks for you but is child

> initiated and adult records.

>

> Helen x

>

>

> >

> >

>

http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PEn\

trez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum

>

<http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PE\

ntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum>

> >

> > Does anyone use these? I've only seen them being used with v v brain

> > damaged people where the helper programmed them and then set them

> off at

> > the right time -- awful, I thought

> >

> > Sally

> >

>

>

> ------------------------------------------------------------------------

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 8.5.323 / Virus Database: 270.12.19/2099 - Release Date: 05/05/09

13:07:00

>

>

[Guest guest]

Sally I'm not sure what you mean by better for autism? Many children have fine

motor problems and have speech and or communication difficulties. My son Adam

has CP as well as autism (mercury poisoning I mean) and has fine motor

difficulties. PECS was a non starter for him, he just ate the cards, even now

hates symbol-based communication aids, thinks they are for babies. He was nine

when he was assessed for AAC devices and this led to discovery that in the 2

years I had been chelating him he had taught himself to read. With the advent of

AAC he was able to demonstrate he could write and spell, at a level of a 16 yr

old, without any teaching. Due to his lack of communicative abilities he had not

been able to reveal that at all. We had been focused on developing his speech.

We made limited progress in this with intensive VB input, but as soon as that

stopped the speech ability faded away. Even now at 15 it is very minimal, one

word responses, often hardly intelligible.

Contrast this with what happened when we provided him with AAC devices. We used

a range of low-tech and high-tech devices, and eventually obtained funding from

the LEA for a VOCA, a voice output device, a LightWriter, costing around £2.5K.

He wrote that the LightWriter changed his life. It gave him a voice, it gave him

a motive to communicate since he could articulate his feelings and thoughts

about things. With PECS for example you can really only MAND, imagine how

frustrating that must be for a child with opinions and a lot to say?

Now he has a sophisticated tablet computer device called 'Say-IT-Sam', and a

hand held version based upon an HP palm-top, very cool that is too, people

assume it's a blackberry. You can have voice output switched on or off, useful

for public places, and it has word prediction and phrase prediction, which is

dynamic and prioritises his most oft used phrases. These two devices cost approx

£6K together, which I screwed out of the LEA, the only thing the poor boy has

had out of them for over three years. Got it all statemented.

Now he has these, he does not need the LightWriter, so if you would like to

borrow it to trial Helen you are welcome, where do you live?

Adam does not have the fine motor skills to use the touchscreen keyboard

accurately on his own (or any keyboard), so we use FCT or Facilitated

Communication Training (a method of physical, neurological, and emotional

support)to enable him to use (access)his devices for communication and IT for

curriculum access.

I can recommend CandLE, see www.contactcandle.co.uk for assessments, various

types of training, and AAC provision. It was through CandLE and one of their

associates, Dr. Jackie Dearden (Independent Education Consultant), that I

obtained the evidence to convince SENDIST that Adam should have the funded AAC,

including equipment and training courses.

When Adam was 4 I was told that he had an IQ of less than 40. Although we had

glimmers of brightness and surprising awareness over the years, it was not until

he had a means to express himself fully that we realised he is actually very

bright indeed, more like 140! Of course chelation had a lot to do with that, he

says it recovered his intellectual functioning, but without AAC we would never

have known. I think it is a good idea to trial different AAC methodology with

all children who have limited verbal ability, regardless of their fine motor

capacity. There are children using sticks (pointers) attached to their forehead

to access IT devices for communication. Look at Hawking! As CandLE told

my bastard LEA (when they said about my son: " if he's intelligent why can't he

use other forms of communication " ) it isn't about intelligence, its a physical

problem, if Hawking had lost his speech much earlier, like our children,

then he would probably be on P Levels now instead of having about 14 or so

University Degrees.

I better stop here and get off my hobby horse!

Celia

> > >

> > >

> >

http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PEn\

trez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum

> >

<http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PE\

ntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum>

> > >

> > > Does anyone use these? I've only seen them being used with v v brain

> > > damaged people where the helper programmed them and then set them

> > off at

> > > the right time -- awful, I thought

> > >

> > > Sally

> > >

> >

> >

> > ------------------------------------------------------------------------

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - www.avg.com

> > Version: 8.5.323 / Virus Database: 270.12.19/2099 - Release Date: 05/05/09

13:07:00

> >

> >

>

[Guest guest]

Sally I'm not sure what you mean by better for autism? Many children have fine

motor problems and have speech and or communication difficulties. My son Adam

has CP as well as autism (mercury poisoning I mean) and has fine motor

difficulties. PECS was a non starter for him, he just ate the cards, even now

hates symbol-based communication aids, thinks they are for babies. He was nine

when he was assessed for AAC devices and this led to discovery that in the 2

years I had been chelating him he had taught himself to read. With the advent of

AAC he was able to demonstrate he could write and spell, at a level of a 16 yr

old, without any teaching. Due to his lack of communicative abilities he had not

been able to reveal that at all. We had been focused on developing his speech.

We made limited progress in this with intensive VB input, but as soon as that

stopped the speech ability faded away. Even now at 15 it is very minimal, one

word responses, often hardly intelligible.

Contrast this with what happened when we provided him with AAC devices. We used

a range of low-tech and high-tech devices, and eventually obtained funding from

the LEA for a VOCA, a voice output device, a LightWriter, costing around £2.5K.

He wrote that the LightWriter changed his life. It gave him a voice, it gave him

a motive to communicate since he could articulate his feelings and thoughts

about things. With PECS for example you can really only MAND, imagine how

frustrating that must be for a child with opinions and a lot to say?

Now he has a sophisticated tablet computer device called 'Say-IT-Sam', and a

hand held version based upon an HP palm-top, very cool that is too, people

assume it's a blackberry. You can have voice output switched on or off, useful

for public places, and it has word prediction and phrase prediction, which is

dynamic and prioritises his most oft used phrases. These two devices cost approx

£6K together, which I screwed out of the LEA, the only thing the poor boy has

had out of them for over three years. Got it all statemented.

Now he has these, he does not need the LightWriter, so if you would like to

borrow it to trial Helen you are welcome, where do you live?

Adam does not have the fine motor skills to use the touchscreen keyboard

accurately on his own (or any keyboard), so we use FCT or Facilitated

Communication Training (a method of physical, neurological, and emotional

support)to enable him to use (access)his devices for communication and IT for

curriculum access.

I can recommend CandLE, see www.contactcandle.co.uk for assessments, various

types of training, and AAC provision. It was through CandLE and one of their

associates, Dr. Jackie Dearden (Independent Education Consultant), that I

obtained the evidence to convince SENDIST that Adam should have the funded AAC,

including equipment and training courses.

When Adam was 4 I was told that he had an IQ of less than 40. Although we had

glimmers of brightness and surprising awareness over the years, it was not until

he had a means to express himself fully that we realised he is actually very

bright indeed, more like 140! Of course chelation had a lot to do with that, he

says it recovered his intellectual functioning, but without AAC we would never

have known. I think it is a good idea to trial different AAC methodology with

all children who have limited verbal ability, regardless of their fine motor

capacity. There are children using sticks (pointers) attached to their forehead

to access IT devices for communication. Look at Hawking! As CandLE told

my bastard LEA (when they said about my son: " if he's intelligent why can't he

use other forms of communication " ) it isn't about intelligence, its a physical

problem, if Hawking had lost his speech much earlier, like our children,

then he would probably be on P Levels now instead of having about 14 or so

University Degrees.

I better stop here and get off my hobby horse!

Celia

> > >

> > >

> >

http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PEn\

trez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum

> >

<http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PE\

ntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum>

> > >

> > > Does anyone use these? I've only seen them being used with v v brain

> > > damaged people where the helper programmed them and then set them

> > off at

> > > the right time -- awful, I thought

> > >

> > > Sally

> > >

> >

> >

> > ------------------------------------------------------------------------

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - www.avg.com

> > Version: 8.5.323 / Virus Database: 270.12.19/2099 - Release Date: 05/05/09

13:07:00

> >

> >

>

[Guest guest]

Sally I'm not sure what you mean by better for autism? Many children have fine

motor problems and have speech and or communication difficulties. My son Adam

has CP as well as autism (mercury poisoning I mean) and has fine motor

difficulties. PECS was a non starter for him, he just ate the cards, even now

hates symbol-based communication aids, thinks they are for babies. He was nine

when he was assessed for AAC devices and this led to discovery that in the 2

years I had been chelating him he had taught himself to read. With the advent of

AAC he was able to demonstrate he could write and spell, at a level of a 16 yr

old, without any teaching. Due to his lack of communicative abilities he had not

been able to reveal that at all. We had been focused on developing his speech.

We made limited progress in this with intensive VB input, but as soon as that

stopped the speech ability faded away. Even now at 15 it is very minimal, one

word responses, often hardly intelligible.

Contrast this with what happened when we provided him with AAC devices. We used

a range of low-tech and high-tech devices, and eventually obtained funding from

the LEA for a VOCA, a voice output device, a LightWriter, costing around £2.5K.

He wrote that the LightWriter changed his life. It gave him a voice, it gave him

a motive to communicate since he could articulate his feelings and thoughts

about things. With PECS for example you can really only MAND, imagine how

frustrating that must be for a child with opinions and a lot to say?

Now he has a sophisticated tablet computer device called 'Say-IT-Sam', and a

hand held version based upon an HP palm-top, very cool that is too, people

assume it's a blackberry. You can have voice output switched on or off, useful

for public places, and it has word prediction and phrase prediction, which is

dynamic and prioritises his most oft used phrases. These two devices cost approx

£6K together, which I screwed out of the LEA, the only thing the poor boy has

had out of them for over three years. Got it all statemented.

Now he has these, he does not need the LightWriter, so if you would like to

borrow it to trial Helen you are welcome, where do you live?

Adam does not have the fine motor skills to use the touchscreen keyboard

accurately on his own (or any keyboard), so we use FCT or Facilitated

Communication Training (a method of physical, neurological, and emotional

support)to enable him to use (access)his devices for communication and IT for

curriculum access.

I can recommend CandLE, see www.contactcandle.co.uk for assessments, various

types of training, and AAC provision. It was through CandLE and one of their

associates, Dr. Jackie Dearden (Independent Education Consultant), that I

obtained the evidence to convince SENDIST that Adam should have the funded AAC,

including equipment and training courses.

When Adam was 4 I was told that he had an IQ of less than 40. Although we had

glimmers of brightness and surprising awareness over the years, it was not until

he had a means to express himself fully that we realised he is actually very

bright indeed, more like 140! Of course chelation had a lot to do with that, he

says it recovered his intellectual functioning, but without AAC we would never

have known. I think it is a good idea to trial different AAC methodology with

all children who have limited verbal ability, regardless of their fine motor

capacity. There are children using sticks (pointers) attached to their forehead

to access IT devices for communication. Look at Hawking! As CandLE told

my bastard LEA (when they said about my son: " if he's intelligent why can't he

use other forms of communication " ) it isn't about intelligence, its a physical

problem, if Hawking had lost his speech much earlier, like our children,

then he would probably be on P Levels now instead of having about 14 or so

University Degrees.

I better stop here and get off my hobby horse!

Celia

> > >

> > >

> >

http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PEn\

trez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum

> >

<http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PE\

ntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum>

> > >

> > > Does anyone use these? I've only seen them being used with v v brain

> > > damaged people where the helper programmed them and then set them

> > off at

> > > the right time -- awful, I thought

> > >

> > > Sally

> > >

> >

> >

> > ------------------------------------------------------------------------

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - www.avg.com

> > Version: 8.5.323 / Virus Database: 270.12.19/2099 - Release Date: 05/05/09

13:07:00

> >

> >

>

[Guest guest]

Celia do you think these devices would be particularly useful for auditory learners?

I'm reading a book at the moment on sensory issues and learning styles, it seems really obvious that is an auditory learner, he hates PECS.

understands an awful lot of what we say to him with no visual cues or prompts at all and he always responds to sound over visual.

He can produce some signs but anything visual is just not his primary sense.

Your story is amazing.

Vicky

[Guest guest]

Celia do you think these devices would be particularly useful for auditory learners?

I'm reading a book at the moment on sensory issues and learning styles, it seems really obvious that is an auditory learner, he hates PECS.

understands an awful lot of what we say to him with no visual cues or prompts at all and he always responds to sound over visual.

He can produce some signs but anything visual is just not his primary sense.

Your story is amazing.

Vicky

[Guest guest]

Hi Celia

I so enjoyed reading your post. What an amazing child you have and he is such a

lucky boy to have had you fight his cause. It must be incredible to hear his

opinions and for him to tell you how he feels and thinks. Just amazing.

is 9 now (like Adam was when you had him assessed) . He is non verbal and

we have been using Pecs up till now but still v limited. He either 'squirrels'

them away under things or throws them in the washing up sink or chews them.

Today in our ABA workshop (just doing 'diluted ABA') we introduced a v basic

'listen to me' device. He loved pressing the button and hearing my other son say

things.I am totally convinced that AAC devices are the way forward for him.

I will be phoning CandLE this week to arrange an assessment for , so

thanks for that. You are the second person this week who have mentioned them so

I will take the hint.

Re borrowing the LightWriter... Yes please. Would love to. We live in Cheshire.

Our email address is olivers4@... . Perhaps you could email me and

we can talk about it.

Thanks Celia so much

Helen x

> > > >

> > > >

> > >

http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PEn\

trez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum

> > >

<http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PE\

ntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum>

> > > >

> > > > Does anyone use these? I've only seen them being used with v v brain

> > > > damaged people where the helper programmed them and then set them

> > > off at

> > > > the right time -- awful, I thought

> > > >

> > > > Sally

> > > >

> > >

> > >

> > > ------------------------------------------------------------------------

> > >

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG - www.avg.com

> > > Version: 8.5.323 / Virus Database: 270.12.19/2099 - Release Date: 05/05/09

13:07:00

> > >

> > >

> >

>

[Guest guest]

Hi Celia

I so enjoyed reading your post. What an amazing child you have and he is such a

lucky boy to have had you fight his cause. It must be incredible to hear his

opinions and for him to tell you how he feels and thinks. Just amazing.

is 9 now (like Adam was when you had him assessed) . He is non verbal and

we have been using Pecs up till now but still v limited. He either 'squirrels'

them away under things or throws them in the washing up sink or chews them.

Today in our ABA workshop (just doing 'diluted ABA') we introduced a v basic

'listen to me' device. He loved pressing the button and hearing my other son say

things.I am totally convinced that AAC devices are the way forward for him.

I will be phoning CandLE this week to arrange an assessment for , so

thanks for that. You are the second person this week who have mentioned them so

I will take the hint.

Re borrowing the LightWriter... Yes please. Would love to. We live in Cheshire.

Our email address is olivers4@... . Perhaps you could email me and

we can talk about it.

Thanks Celia so much

Helen x

> > > >

> > > >

> > >

http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PEn\

trez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum

> > >

<http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PE\

ntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum>

> > > >

> > > > Does anyone use these? I've only seen them being used with v v brain

> > > > damaged people where the helper programmed them and then set them

> > > off at

> > > > the right time -- awful, I thought

> > > >

> > > > Sally

> > > >

> > >

> > >

> > > ------------------------------------------------------------------------

> > >

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG - www.avg.com

> > > Version: 8.5.323 / Virus Database: 270.12.19/2099 - Release Date: 05/05/09

13:07:00

> > >

> > >

> >

>

[Guest guest]

Thanks za

Will look this up.

Helen

> > >

> > >

http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PEn\

trez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum

> > >

> > > Does anyone use these? I've only seen them being used with v v brain

> > > damaged people where the helper programmed them and then set them off at

> > > the right time -- awful, I thought

> > >

> > > Sally

> > >

> >

>

[Guest guest]

Thanks za

Will look this up.

Helen

> > >

> > >

http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PEn\

trez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum

> > >

> > > Does anyone use these? I've only seen them being used with v v brain

> > > damaged people where the helper programmed them and then set them off at

> > > the right time -- awful, I thought

> > >

> > > Sally

> > >

> >

>

[Guest guest]

Hi Vicky

I'm not sure if Adam is a visual learner or an auditory learner, even now. I do

know that when he first had access to a computer at around 9 with a voice output

word processing package (software just speaks everything that is written) he

would type and then listen and then backspace/erase and retype until he was

satisfied it sounded correct.

On the other hand, (I now know) he is brilliant visually, he can scan even from

the side of his eye, assimilate, refuse then to look at whatever it is of

course, and then knows it, even complicated text. sounds like Adam in his

responses to verbal cues/language now (he was very different when he was small

and before ABA and biomed).

Adam may appear to pay no attention and not appear to hear or understand but

takes in every thing, every damn thing in fact, hyper hearing, hears through

walls, and it causes all sorts of problems of misunderstanding and consequent

behaviour problems. At least I can make him talk to me about it now once he

calms down!

If I were you I would try him with a few AAC options, see how he responds and if

he feels happy with the approach have his specific needs evaluated by somebody

expert in this area.

BW

Celia

>

> Celia do you think these devices would be particularly useful for auditory

> learners?

> I'm reading a book at the moment on sensory issues and learning styles,

> it seems really obvious that is an auditory learner, he hates PECS.

> understands an awful lot of what we say to him with no visual cues or

> prompts at all and he always responds to sound over visual.

> He can produce some signs but anything visual is just not his primary

> sense.

> Your story is amazing.

> Vicky

>

[Guest guest]

Hi Vicky

I'm not sure if Adam is a visual learner or an auditory learner, even now. I do

know that when he first had access to a computer at around 9 with a voice output

word processing package (software just speaks everything that is written) he

would type and then listen and then backspace/erase and retype until he was

satisfied it sounded correct.

On the other hand, (I now know) he is brilliant visually, he can scan even from

the side of his eye, assimilate, refuse then to look at whatever it is of

course, and then knows it, even complicated text. sounds like Adam in his

responses to verbal cues/language now (he was very different when he was small

and before ABA and biomed).

Adam may appear to pay no attention and not appear to hear or understand but

takes in every thing, every damn thing in fact, hyper hearing, hears through

walls, and it causes all sorts of problems of misunderstanding and consequent

behaviour problems. At least I can make him talk to me about it now once he

calms down!

If I were you I would try him with a few AAC options, see how he responds and if

he feels happy with the approach have his specific needs evaluated by somebody

expert in this area.

BW

Celia

>

> Celia do you think these devices would be particularly useful for auditory

> learners?

> I'm reading a book at the moment on sensory issues and learning styles,

> it seems really obvious that is an auditory learner, he hates PECS.

> understands an awful lot of what we say to him with no visual cues or

> prompts at all and he always responds to sound over visual.

> He can produce some signs but anything visual is just not his primary

> sense.

> Your story is amazing.

> Vicky

>

[Guest guest]

Hi Vicky

I'm not sure if Adam is a visual learner or an auditory learner, even now. I do

know that when he first had access to a computer at around 9 with a voice output

word processing package (software just speaks everything that is written) he

would type and then listen and then backspace/erase and retype until he was

satisfied it sounded correct.

On the other hand, (I now know) he is brilliant visually, he can scan even from

the side of his eye, assimilate, refuse then to look at whatever it is of

course, and then knows it, even complicated text. sounds like Adam in his

responses to verbal cues/language now (he was very different when he was small

and before ABA and biomed).

Adam may appear to pay no attention and not appear to hear or understand but

takes in every thing, every damn thing in fact, hyper hearing, hears through

walls, and it causes all sorts of problems of misunderstanding and consequent

behaviour problems. At least I can make him talk to me about it now once he

calms down!

If I were you I would try him with a few AAC options, see how he responds and if

he feels happy with the approach have his specific needs evaluated by somebody

expert in this area.

BW

Celia

>

> Celia do you think these devices would be particularly useful for auditory

> learners?

> I'm reading a book at the moment on sensory issues and learning styles,

> it seems really obvious that is an auditory learner, he hates PECS.

> understands an awful lot of what we say to him with no visual cues or

> prompts at all and he always responds to sound over visual.

> He can produce some signs but anything visual is just not his primary

> sense.

> Your story is amazing.

> Vicky

>

[Guest guest]

Hi, my 4 year non-verbal daughter had no motor imitation at all. It has taken a

year of biomed & a VBA home programme(32hrs 1-1)a week to teach her motor

imitation and fine motor imitation(took months to get her to raise her little

finger). But once it clicked-that was it-then we got oral imitation and better

signs. A few months ago we started getting consistent vocal imitation

sounds(about 16 now)-she has just started in the last few weeks trying to string

them together and can now say " o-puh " for open " a-puh " for apple, " moo-sic " for

music. Its still early days but she is really trying to talk now-something I

never imagined so soon! Its fab - signs definately helped, we also got her to do

blowing exercises(fun things)to help strengthen her muscles as she wasn't

babbling. We have just started GAPS and I'm really excited as Im sure that her

bowel probs effect her concentration and stop her from learn learning as quickly

as she could. So never say never!!!

> > > > >

> > > > >

> > > >

http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PEn\

trez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum

> > > >

<http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PE\

ntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum>

> > > > >

> > > > > Does anyone use these? I've only seen them being used with v v brain

> > > > > damaged people where the helper programmed them and then set them

> > > > off at

> > > > > the right time -- awful, I thought

> > > > >

> > > > > Sally

> > > > >

> > > >

> > > >

> > > > ------------------------------------------------------------------------

> > > >

> > > >

> > > > No virus found in this incoming message.

> > > > Checked by AVG - www.avg.com

> > > > Version: 8.5.323 / Virus Database: 270.12.19/2099 - Release Date:

05/05/09 13:07:00

> > > >

> > > >

> > >

> >

>

[Guest guest]

Hi, my 4 year non-verbal daughter had no motor imitation at all. It has taken a

year of biomed & a VBA home programme(32hrs 1-1)a week to teach her motor

imitation and fine motor imitation(took months to get her to raise her little

finger). But once it clicked-that was it-then we got oral imitation and better

signs. A few months ago we started getting consistent vocal imitation

sounds(about 16 now)-she has just started in the last few weeks trying to string

them together and can now say " o-puh " for open " a-puh " for apple, " moo-sic " for

music. Its still early days but she is really trying to talk now-something I

never imagined so soon! Its fab - signs definately helped, we also got her to do

blowing exercises(fun things)to help strengthen her muscles as she wasn't

babbling. We have just started GAPS and I'm really excited as Im sure that her

bowel probs effect her concentration and stop her from learn learning as quickly

as she could. So never say never!!!

> > > > >

> > > > >

> > > >

http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PEn\

trez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum

> > > >

<http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PE\

ntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum>

> > > > >

> > > > > Does anyone use these? I've only seen them being used with v v brain

> > > > > damaged people where the helper programmed them and then set them

> > > > off at

> > > > > the right time -- awful, I thought

> > > > >

> > > > > Sally

> > > > >

> > > >

> > > >

> > > > ------------------------------------------------------------------------

> > > >

> > > >

> > > > No virus found in this incoming message.

> > > > Checked by AVG - www.avg.com

> > > > Version: 8.5.323 / Virus Database: 270.12.19/2099 - Release Date:

05/05/09 13:07:00

> > > >

> > > >

> > >

> >

>

[Guest guest]

The surrey NAS is asking parents if they have had any problems with transport . Can anone email me private as I am doing the same but not with NAS. Thanks.NinaSubject: Re: speech generating devicesTo: Autism-Biomedical-Europe Date: Thursday, 7 May, 2009, 6:11 PM

Hi, my 4 year non-verbal daughter had no motor imitation at all. It has taken a year of biomed & a VBA home programme(32hrs 1-1)a week to teach her motor imitation and fine motor imitation(took months to get her to raise her little finger). But once it clicked-that was it-then we got oral imitation and better signs. A few months ago we started getting consistent vocal imitation sounds(about 16 now)-she has just started in the last few weeks trying to string them together and can now say "o-puh" for open "a-puh" for apple, "moo-sic" for music. Its still early days but she is really trying to talk now-something I never imagined so soon! Its fab - signs definately helped, we also got her to do blowing exercises(fun things)to help strengthen her muscles as she wasn't babbling. We have just started GAPS and I'm really excited as Im sure that her bowel probs effect her concentration and stop her from learn learning as quickly as she could. So

never say never!!!

> > > > >

> > > > >

> > > > http://www.ncbi. nlm.nih.gov/ pubmed/19404838? ordinalpos= 9 & itool=EntrezSy stem2.PEntrez. Pubmed.Pubmed_ ResultsPanel. Pubmed_DefaultRe portPanel. Pubmed_RVDocSum

> > > > <http://www.ncbi. nlm.nih.gov/ pubmed/19404838? ordinalpos= 9 & itool=EntrezSy stem2.PEntrez. Pubmed.Pubmed_ ResultsPanel. Pubmed_DefaultRe portPanel. Pubmed_RVDocSum>

> > > > >

> > > > > Does anyone use these? I've only seen them being used with v v brain

> > > > > damaged people where the helper programmed them and then set them

> > > > off at

> > > > > the right time -- awful, I thought

> > > > >

> > > > > Sally

> > > > >

> > > >

> > > >

> > > > ------------ --------- --------- --------- --------- --------- -

> > > >

> > > >

> > > > No virus found in this incoming message.

> > > > Checked by AVG - www.avg.com

> > > > Version: 8.5.323 / Virus Database: 270.12.19/2099 - Release Date: 05/05/09 13:07:00

> > > >

> > > >

> > >

> >

>

[Guest guest]

The surrey NAS is asking parents if they have had any problems with transport . Can anone email me private as I am doing the same but not with NAS. Thanks.NinaSubject: Re: speech generating devicesTo: Autism-Biomedical-Europe Date: Thursday, 7 May, 2009, 6:11 PM

Hi, my 4 year non-verbal daughter had no motor imitation at all. It has taken a year of biomed & a VBA home programme(32hrs 1-1)a week to teach her motor imitation and fine motor imitation(took months to get her to raise her little finger). But once it clicked-that was it-then we got oral imitation and better signs. A few months ago we started getting consistent vocal imitation sounds(about 16 now)-she has just started in the last few weeks trying to string them together and can now say "o-puh" for open "a-puh" for apple, "moo-sic" for music. Its still early days but she is really trying to talk now-something I never imagined so soon! Its fab - signs definately helped, we also got her to do blowing exercises(fun things)to help strengthen her muscles as she wasn't babbling. We have just started GAPS and I'm really excited as Im sure that her bowel probs effect her concentration and stop her from learn learning as quickly as she could. So

never say never!!!

> > > > >

> > > > >

> > > > http://www.ncbi. nlm.nih.gov/ pubmed/19404838? ordinalpos= 9 & itool=EntrezSy stem2.PEntrez. Pubmed.Pubmed_ ResultsPanel. Pubmed_DefaultRe portPanel. Pubmed_RVDocSum

> > > > <http://www.ncbi. nlm.nih.gov/ pubmed/19404838? ordinalpos= 9 & itool=EntrezSy stem2.PEntrez. Pubmed.Pubmed_ ResultsPanel. Pubmed_DefaultRe portPanel. Pubmed_RVDocSum>

> > > > >

> > > > > Does anyone use these? I've only seen them being used with v v brain

> > > > > damaged people where the helper programmed them and then set them

> > > > off at

> > > > > the right time -- awful, I thought

> > > > >

> > > > > Sally

> > > > >

> > > >

> > > >

> > > > ------------ --------- --------- --------- --------- --------- -

> > > >

> > > >

> > > > No virus found in this incoming message.

> > > > Checked by AVG - www.avg.com

> > > > Version: 8.5.323 / Virus Database: 270.12.19/2099 - Release Date: 05/05/09 13:07:00

> > > >

> > > >

> > >

> >

>

[Guest guest]

I am thrilled for your little girl but we have been there and bought the t shirt

with all interventions to help speech, 40 hrs ABA a week, AIT, cranial

osteopathy, homeopathy, diet, biomed...

I know its great to be positive and I am a lot of the time but I think that

there also comes a time when you do take stock and look and realise that

actually there is 'something' else going on with the speech mechanisms in the

brain and despite masses of therapy it just aint going to come...someone knock

me down for saying that but I have had so many people saying to me over the

years never say never ...

I guess I'm finally trying to find a way to help communicate more

effectively and I believe that a 'talking' device may help.As he is getting

older his frustrations are huge, growing all the time so just trying to be

pragmatic. Its not that I've given up totally on him talking but just being

realistic.

Hope your little one continues to make strides. GAPS is an amazing diet to be

doing and here's hoping more little sounds continue to pop out.

Helen x

> > > > > >

> > > > > >

> > > > >

http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PEn\

trez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum

> > > > >

<http://www.ncbi.nlm.nih.gov/pubmed/19404838?ordinalpos=9 & itool=EntrezSystem2.PE\

ntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum>

> > > > > >

> > > > > > Does anyone use these? I've only seen them being used with v v brain

> > > > > > damaged people where the helper programmed them and then set them

> > > > > off at

> > > > > > the right time -- awful, I thought

> > > > > >

> > > > > > Sally

> > > > > >

> > > > >

> > > > >

> > > > >

------------------------------------------------------------------------

> > > > >

> > > > >

> > > > > No virus found in this incoming message.

> > > > > Checked by AVG - www.avg.com

> > > > > Version: 8.5.323 / Virus Database: 270.12.19/2099 - Release Date:

05/05/09 13:07:00

> > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Hi Helen,

I understand - hey no worries - we are just starting our journey and it sounds

like your quite a bit further along and have already worked your socks off!! All

our kids are unique, at the end of the day I would rely on your gut feeling and

I am sure that will be just fine and a great deal less frustrated. Lawz

xx

>

>

>

>

> Subject: Re: speech generating devices

> To: Autism-Biomedical-Europe

> Date: Thursday, 7 May, 2009, 6:11 PM

>

>

>

>

>

>

> Hi, my 4 year non-verbal daughter had no motor imitation at all. It has

taken a year of biomed & a VBA home programme(32hrs 1-1)a week to teach her

motor imitation and fine motor imitation(took months to get her to raise her

little finger). But once it clicked-that was it-then we got oral imitation and

better signs. A few months ago we started getting consistent vocal imitation

sounds(about 16 now)-she has just started in the last few weeks trying to string

them together and can now say " o-puh " for open " a-puh " for apple, " moo-sic " for

music. Its still early days but she is really trying to talk now-something I

never imagined so soon! Its fab - signs definately helped, we also got her to do

blowing exercises(fun things)to help strengthen her muscles as she wasn't

babbling. We have just started GAPS and I'm really excited as Im sure that her

bowel probs effect her concentration and stop her from learn learning as quickly

as she could. So never say

> never!!!

>

>

>

>

>

> > > > > >

>

> > > > > >

>

> > > > > http://www.ncbi. nlm.nih.gov/ pubmed/19404838? ordinalpos=

9 & itool=EntrezSy stem2.PEntrez. Pubmed.Pubmed_ ResultsPanel. Pubmed_DefaultRe

portPanel. Pubmed_RVDocSum

>

> > > > > <http://www.ncbi. nlm.nih.gov/ pubmed/19404838? ordinalpos=

9 & itool=EntrezSy stem2.PEntrez. Pubmed.Pubmed_ ResultsPanel. Pubmed_DefaultRe

portPanel. Pubmed_RVDocSum>

>

> > > > > >

>

> > > > > > Does anyone use these? I've only seen them being used with v v brain

>

> > > > > > damaged people where the helper programmed them and then set them

>

> > > > > off at

>

> > > > > > the right time -- awful, I thought

>

> > > > > >

>

> > > > > > Sally

>

> > > > > >

>

> > > > >

>

> > > > >

>

> > > > > ------------ --------- --------- --------- --------- --------- -

>

> > > > >

>

> > > > >

>

> > > > > No virus found in this incoming message.

>

> > > > > Checked by AVG - www.avg.com

>

> > > > > Version: 8.5.323 / Virus Database: 270.12.19/2099 - Release Date:

05/05/09 13:07:00

>

> > > > >

>

> > > > >

>

> > > >

>

> > >

>

> >

>

[Guest guest]

Hi Helen,

I understand - hey no worries - we are just starting our journey and it sounds

like your quite a bit further along and have already worked your socks off!! All

our kids are unique, at the end of the day I would rely on your gut feeling and

I am sure that will be just fine and a great deal less frustrated. Lawz

xx

>

>

>

>

> Subject: Re: speech generating devices

> To: Autism-Biomedical-Europe

> Date: Thursday, 7 May, 2009, 6:11 PM

>

>

>

>

>

>

> Hi, my 4 year non-verbal daughter had no motor imitation at all. It has

taken a year of biomed & a VBA home programme(32hrs 1-1)a week to teach her

motor imitation and fine motor imitation(took months to get her to raise her

little finger). But once it clicked-that was it-then we got oral imitation and

better signs. A few months ago we started getting consistent vocal imitation

sounds(about 16 now)-she has just started in the last few weeks trying to string

them together and can now say " o-puh " for open " a-puh " for apple, " moo-sic " for

music. Its still early days but she is really trying to talk now-something I

never imagined so soon! Its fab - signs definately helped, we also got her to do

blowing exercises(fun things)to help strengthen her muscles as she wasn't

babbling. We have just started GAPS and I'm really excited as Im sure that her

bowel probs effect her concentration and stop her from learn learning as quickly

as she could. So never say

> never!!!

>

>

>

>

>

> > > > > >

>

> > > > > >

>

> > > > > http://www.ncbi. nlm.nih.gov/ pubmed/19404838? ordinalpos=

9 & itool=EntrezSy stem2.PEntrez. Pubmed.Pubmed_ ResultsPanel. Pubmed_DefaultRe

portPanel. Pubmed_RVDocSum

>

> > > > > <http://www.ncbi. nlm.nih.gov/ pubmed/19404838? ordinalpos=

9 & itool=EntrezSy stem2.PEntrez. Pubmed.Pubmed_ ResultsPanel. Pubmed_DefaultRe

portPanel. Pubmed_RVDocSum>

>

> > > > > >

>

> > > > > > Does anyone use these? I've only seen them being used with v v brain

>

> > > > > > damaged people where the helper programmed them and then set them

>

> > > > > off at

>

> > > > > > the right time -- awful, I thought

>

> > > > > >

>

> > > > > > Sally

>

> > > > > >

>

> > > > >

>

> > > > >

>

> > > > > ------------ --------- --------- --------- --------- --------- -

>

> > > > >

>

> > > > >

>

> > > > > No virus found in this incoming message.

>

> > > > > Checked by AVG - www.avg.com

>

> > > > > Version: 8.5.323 / Virus Database: 270.12.19/2099 - Release Date:

05/05/09 13:07:00

>

> > > > >

>

> > > > >

>

> > > >

>

> > >

>

> >

>

[Guest guest]

Dear All ,

I am gertting a petition teogether about SEN hime to school tarnsport. I would value you adding you names. Its very important and it effects us all. Much love ninax> > From: loopylawz <loopylawz@. ..>> Subject: [Autism-Biomedical- Europe] Re: speech generating devices> To: Autism-Biomedical- Europe@yahoogrou ps.com> Date: Thursday, 7 May, 2009, 6:11 PM> > > > > > > Hi, my 4 year non-verbal daughter had no motor imitation at all.

It has taken a year of biomed & a VBA home programme(32hrs 1-1)a week to teach her motor imitation and fine motor imitation(took months to get her to raise her little finger). But once it clicked-that was it-then we got oral imitation and better signs. A few months ago we started getting consistent vocal imitation sounds(about 16 now)-she has just started in the last few weeks trying to string them together and can now say "o-puh" for open "a-puh" for apple, "moo-sic" for music. Its still early days but she is really trying to talk now-something I never imagined so soon! Its fab - signs definately helped, we also got her to do blowing exercises(fun things)to help strengthen her muscles as she wasn't babbling. We have just started GAPS and I'm really excited as Im sure that her bowel probs effect her concentration and stop her from learn learning as quickly as she could. So never say> never!!! > > > > > > > > > > >> > > > > > > > > > > > > http://www.ncbi. nlm.nih.gov/ pubmed/19404838? ordinalpos= 9 & itool=EntrezSy stem2.PEntrez. Pubmed.Pubmed_ ResultsPanel. Pubmed_DefaultRe portPanel. Pubmed_RVDocSum > > > > > > <http://www.ncbi. nlm.nih.gov/ pubmed/19404838? ordinalpos= 9 & itool=EntrezSy stem2.PEntrez. Pubmed.Pubmed_ ResultsPanel. Pubmed_DefaultRe portPanel. Pubmed_RVDocSum>> > > > > > >> > > > > > > Does anyone use these? I've only seen them being used with v v brain> > > > > > > damaged people where the helper programmed them and then set them > > > > > > off at> > > > > > > the right time -- awful, I thought> > > > > > >> > > > > > > Sally> > > > > > >> > > > > >> > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > > > >>

> > > > >> > > > > > No virus found in this incoming message.> > > > > > Checked by AVG - www.avg.com > > > > > > Version: 8.5.323 / Virus Database: 270.12.19/2099 - Release Date: 05/05/09 13:07:00> > > > > >> > > > > >> > > > >> > > >> > >>

[Guest guest]

Dear All ,

I am gertting a petition teogether about SEN hime to school tarnsport. I would value you adding you names. Its very important and it effects us all. Much love ninax> > From: loopylawz <loopylawz@. ..>> Subject: [Autism-Biomedical- Europe] Re: speech generating devices> To: Autism-Biomedical- Europe@yahoogrou ps.com> Date: Thursday, 7 May, 2009, 6:11 PM> > > > > > > Hi, my 4 year non-verbal daughter had no motor imitation at all.

It has taken a year of biomed & a VBA home programme(32hrs 1-1)a week to teach her motor imitation and fine motor imitation(took months to get her to raise her little finger). But once it clicked-that was it-then we got oral imitation and better signs. A few months ago we started getting consistent vocal imitation sounds(about 16 now)-she has just started in the last few weeks trying to string them together and can now say "o-puh" for open "a-puh" for apple, "moo-sic" for music. Its still early days but she is really trying to talk now-something I never imagined so soon! Its fab - signs definately helped, we also got her to do blowing exercises(fun things)to help strengthen her muscles as she wasn't babbling. We have just started GAPS and I'm really excited as Im sure that her bowel probs effect her concentration and stop her from learn learning as quickly as she could. So never say> never!!! > > > > > > > > > > >> > > > > > > > > > > > > http://www.ncbi. nlm.nih.gov/ pubmed/19404838? ordinalpos= 9 & itool=EntrezSy stem2.PEntrez. Pubmed.Pubmed_ ResultsPanel. Pubmed_DefaultRe portPanel. Pubmed_RVDocSum > > > > > > <http://www.ncbi. nlm.nih.gov/ pubmed/19404838? ordinalpos= 9 & itool=EntrezSy stem2.PEntrez. Pubmed.Pubmed_ ResultsPanel. Pubmed_DefaultRe portPanel. Pubmed_RVDocSum>> > > > > > >> > > > > > > Does anyone use these? I've only seen them being used with v v brain> > > > > > > damaged people where the helper programmed them and then set them > > > > > > off at> > > > > > > the right time -- awful, I thought> > > > > > >> > > > > > > Sally> > > > > > >> > > > > >> > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > > > >>

> > > > >> > > > > > No virus found in this incoming message.> > > > > > Checked by AVG - www.avg.com > > > > > > Version: 8.5.323 / Virus Database: 270.12.19/2099 - Release Date: 05/05/09 13:07:00> > > > > >> > > > > >> > > > >> > > >> > >>