Introduction

[Guest guest]

In a message dated 01/16/2000 10:13:15 AM Eastern Standard Time,

Nesteabee@... writes:

<< Congrats on the new tape, the tape I will

never ever pay full price for. LOL Maybe if I find it at a garage sale or

something I'll get it. I don't think I could handle it. >>

I second that

Barb

who would like to try AL5 but not buy it

[Guest guest]

In a message dated 01/16/2000 10:13:15 AM Eastern Standard Time,

Nesteabee@... writes:

<< Congrats on the new tape, the tape I will

never ever pay full price for. LOL Maybe if I find it at a garage sale or

something I'll get it. I don't think I could handle it. >>

I second that

Barb

who would like to try AL5 but not buy it

[Guest guest]

Hi and welcome to the group. I'm glad you're here. I saw the news piece about you and your farm. I know and her children and was so happy to see that she and her daughter come visit you.

I think what you're doing is wonderful.

Thank you Debbie! We absolutely love it when Zana and family come visit us!

[Guest guest]

Hi and welcome to the group. I'm glad you're here. I saw the news piece about you and your farm. I know and her children and was so happy to see that she and her daughter come visit you.

I think what you're doing is wonderful.

Thank you Debbie! We absolutely love it when Zana and family come visit us!

[Guest guest]

Carolyn,

PECS stands for Picture Exchange Communication System (I believe). They use pictures to communicate. Unfortunately, just hands them any picture without distinguishing between them.

I live in Indiana... they tried mainstreaming him for years but he never got better. Then when I found out about private schools, I had to fight for a long time to get him in one. The first one he went to was awful... but it was cheap and that's what the state wanted to use. I fought them... to the point that I contacted the United States Department of Education, the Media, the Senators & Governor... etc. The Media started calling the Indiana Department of Education... and then they finally got off their butts and paid for him to go to the private school that he's at now and has been for almost the last 2 years.

stays at his school... he comes home holidays and birthdays. He loves it up there. We go see him every other Sunday... we would visit more often but my husband works two jobs and we can't get up there more often. He doesn't like to be home more than a few days though... mainly because he has a one-on-one aide up there and they go on outings every single day... but because my husband works, I can't take him on outings... not with my other two children (Mackenzie age 4 and Austin age 1)... I can't handle him ... he would run out into the street if I tried. So usually after a few days he gets his bags and wants to leave! ) Which makes me happy in a way because I know he likes it there a lot.

Right now the state is only giving out 6 month contracts... instead of 1 year contracts like they use to. I guess they think that his disability is not permanent... I have no clue what is going through their minds.

You can see pics of me, my kids, etc... by going to my pics site... http://pics.lithasworld.com/. My main site is http://www.lithasworld.com/. I wrote a poem about on my poetry site too... it's called "I Love You"... it's located at http://poems.lithasworld.com/

Now I'm done rambling... I think )

Litha

-- Re: Introduction

Hi Litha,

Oh my! I am purple, oh heck it went away. Anyway I am glad to hear that you have your son in a good school. That is just great! What state do you live in? We only had one school here in our area, Pearl Buck Center in Eugene, Oregon. The lady who started it many years ago has passed away now, Lisle Waechter. She did a lot for the retarded population, people came from all over the world just to go to her school. They have a work center where the clients make things, etc.

But the trouble is my son never fit in. At all. Looking back I think it is a shame he ever went there because what they did with him made him worse than ever. I don't think they knew they were hurting him, just thought he was retarded, and I guess he was, but too I think a lot of that was the drugs he had to take for his seizures, they never could find the right combination and some of them really upset him.

I don't know what PEC is, maybe you can tell me.

Back in the 70s it became very popular all of a sudden to mainstream children with disabilities, so they sent my son to junior high. He was absolutely awful there. Would not do anything they wanted. I had to take him to school, and every day he would roll on the black top because he did not want to go in. The school district had them build a time out booth in the class room out of plywood, and when he did not comply they put him in there.

Not good. He got worse and worse, and one day I gave in. We were wrestling out in the parking lot, and I told him he didn't have to go to school. And he yelled all the way home, "Good Boy! Good Boy! Good Boy!" I thought that was wonderful as he hadn't said a word in many years! All the time he was just trying to tell me he did not like school. Well duh.

I kept him home for quite some time, then tried a high school class and it was even worse than junior high. Finally one day he had a grand mal seizure at school, he had not had one in 3 years at that time, so I kept him home again, and he has not been back. That was 22 years ago! Wow! All that time he was a teenager and into his 20s he was very wild, would jump around the house trying to intimidate me and many times would trash everything, but I would not back down, just let him know I was sticking to it for the duration, that he could count on me.

And he eventually stopped, thank God!

Marty was not toilet trained that well either, but we did not start using the Depends diapers until he quit school, about age 18. He does have his bowel movements in the toilet, but wets in his diaper. I used to have to take him twenty times a day, and almost drove myself nuts not wanting to give in to the diapers.

Marty used to help in the dressing routine, but has never done it alone. Now he acts like he is paralyzed half the time. Doctor says he cannot get the signal from his brain to his arms and legs is what it is. He can still walk with a very strong aide giving him all his balance. I can do it alone, but it is very tricky, as he is taller than me now, and is quite heavy since he got the G tube, he has gained probably 30 lbs., so is healthy otherwise.

And this made his seizures go down, the good nutrition. He used to have 20 grand mal a month, no matter what drugs he was on, and now has about 4 or 5 a month, in a cluster. He bounces back pretty well from them though, doesn't even sleep anymore.

What a struggle! I was just thinking, I have some pictures of him and me in my computer. I will try to send one.

Best wishes to you all!

Carolyn in Springfield, Oregon

Introduction

Hello... my name is Litha. I have a 12 year old son that is Autistic. His official diagnosis is Autism with a Severe Level of Mental Retardation, Communication Disorder, PICA, and Seizure Disorder (he hasn't had a seizure in a while though).

If you would like to read more about him you can go to http://autism.lithasworld.com/

Thank you,

Litha

[Guest guest]

Carolyn,

PECS stands for Picture Exchange Communication System (I believe). They use pictures to communicate. Unfortunately, just hands them any picture without distinguishing between them.

I live in Indiana... they tried mainstreaming him for years but he never got better. Then when I found out about private schools, I had to fight for a long time to get him in one. The first one he went to was awful... but it was cheap and that's what the state wanted to use. I fought them... to the point that I contacted the United States Department of Education, the Media, the Senators & Governor... etc. The Media started calling the Indiana Department of Education... and then they finally got off their butts and paid for him to go to the private school that he's at now and has been for almost the last 2 years.

stays at his school... he comes home holidays and birthdays. He loves it up there. We go see him every other Sunday... we would visit more often but my husband works two jobs and we can't get up there more often. He doesn't like to be home more than a few days though... mainly because he has a one-on-one aide up there and they go on outings every single day... but because my husband works, I can't take him on outings... not with my other two children (Mackenzie age 4 and Austin age 1)... I can't handle him ... he would run out into the street if I tried. So usually after a few days he gets his bags and wants to leave! ) Which makes me happy in a way because I know he likes it there a lot.

Right now the state is only giving out 6 month contracts... instead of 1 year contracts like they use to. I guess they think that his disability is not permanent... I have no clue what is going through their minds.

You can see pics of me, my kids, etc... by going to my pics site... http://pics.lithasworld.com/. My main site is http://www.lithasworld.com/. I wrote a poem about on my poetry site too... it's called "I Love You"... it's located at http://poems.lithasworld.com/

Now I'm done rambling... I think )

Litha

-- Re: Introduction

Hi Litha,

Oh my! I am purple, oh heck it went away. Anyway I am glad to hear that you have your son in a good school. That is just great! What state do you live in? We only had one school here in our area, Pearl Buck Center in Eugene, Oregon. The lady who started it many years ago has passed away now, Lisle Waechter. She did a lot for the retarded population, people came from all over the world just to go to her school. They have a work center where the clients make things, etc.

But the trouble is my son never fit in. At all. Looking back I think it is a shame he ever went there because what they did with him made him worse than ever. I don't think they knew they were hurting him, just thought he was retarded, and I guess he was, but too I think a lot of that was the drugs he had to take for his seizures, they never could find the right combination and some of them really upset him.

I don't know what PEC is, maybe you can tell me.

Back in the 70s it became very popular all of a sudden to mainstream children with disabilities, so they sent my son to junior high. He was absolutely awful there. Would not do anything they wanted. I had to take him to school, and every day he would roll on the black top because he did not want to go in. The school district had them build a time out booth in the class room out of plywood, and when he did not comply they put him in there.

Not good. He got worse and worse, and one day I gave in. We were wrestling out in the parking lot, and I told him he didn't have to go to school. And he yelled all the way home, "Good Boy! Good Boy! Good Boy!" I thought that was wonderful as he hadn't said a word in many years! All the time he was just trying to tell me he did not like school. Well duh.

I kept him home for quite some time, then tried a high school class and it was even worse than junior high. Finally one day he had a grand mal seizure at school, he had not had one in 3 years at that time, so I kept him home again, and he has not been back. That was 22 years ago! Wow! All that time he was a teenager and into his 20s he was very wild, would jump around the house trying to intimidate me and many times would trash everything, but I would not back down, just let him know I was sticking to it for the duration, that he could count on me.

And he eventually stopped, thank God!

Marty was not toilet trained that well either, but we did not start using the Depends diapers until he quit school, about age 18. He does have his bowel movements in the toilet, but wets in his diaper. I used to have to take him twenty times a day, and almost drove myself nuts not wanting to give in to the diapers.

Marty used to help in the dressing routine, but has never done it alone. Now he acts like he is paralyzed half the time. Doctor says he cannot get the signal from his brain to his arms and legs is what it is. He can still walk with a very strong aide giving him all his balance. I can do it alone, but it is very tricky, as he is taller than me now, and is quite heavy since he got the G tube, he has gained probably 30 lbs., so is healthy otherwise.

And this made his seizures go down, the good nutrition. He used to have 20 grand mal a month, no matter what drugs he was on, and now has about 4 or 5 a month, in a cluster. He bounces back pretty well from them though, doesn't even sleep anymore.

What a struggle! I was just thinking, I have some pictures of him and me in my computer. I will try to send one.

Best wishes to you all!

Carolyn in Springfield, Oregon

Introduction

Hello... my name is Litha. I have a 12 year old son that is Autistic. His official diagnosis is Autism with a Severe Level of Mental Retardation, Communication Disorder, PICA, and Seizure Disorder (he hasn't had a seizure in a while though).

If you would like to read more about him you can go to http://autism.lithasworld.com/

Thank you,

Litha

[Guest guest]

Hello,

Thanks for letting me into the group! I was told initially that I was denied

entry so I'm glad someone changed their minds.

I just moved to Dakar, Senegal. We'd been in Stuttgart, Germany for the past

3.5 years on an American military base. Now we are working at the American

embassy here. We've been here for 4 weeks now. We found the produce here to be

fabulous, for the time being, except that we have to soak it all in a bleach

solution before we eat it. I plan to have a square foot garden and an indoor

micro garden once we move into our permanent quarters. For now I have been

experimenting with the lentils available at the Lebanese grocery store. I have

been putting them in a red Solo cup and draining them in a colander. I am not

very good at remembering to rinse them often enough but I guess once I get into

the rhythm of things I'll do better. Oh, and we have to use water from the

distiller machine so It's not quite the same as running the tap water in the

sink. So there you have it. Once I get my supplies I have in my house hold

good and get going on this project I'll probably have lots of questions!

Thanks,

Darla