You won't believe it!

[Guest guest]

Hi everyone,

I just got off the phone with the neurosurgeon's office. We will be

seeing Dr. ph Madsen on March 20th. Not bad! Only 10 days we

have to wait! Now, here is the news you won't believe-

I told the secretary the reason we were given the referral and she

said that before I made the appointment she wanted to tell me about

the weeks events. They use NOPCO, as I guess it is right in the

area. Before last week it was only $800 for everything, but as of

last week some kind of patent went through. Now it is $1500 to

$2500 UP FRONT for them to even cast her (and she said insurance

would absolutely not cover it regardless what kind we have). They

can't make helmets at all anymore, so they cast and send them out to

another company. I asked which company, but the secretary was

unsure. What a difference a week makes! She also said NOPCO

wouldn't do Hannah while she was so young. I was thinking I would

not want to use a local company anyway and that I would ask for the

DOC band, but it was nice to have NOPCO as an alternative money

wise. So, we will go on the 20th to have them look at Hannah and

then we can get the script from them. The secretary said they will

write it for wherever we want. I just have no idea how we would be

able to afford the DOC band. Should we contact them now and ask for

insurance advice? I can't imagine they won't write us a script

based on Hannah's level of assymetry! Has anyone else heard of this

patent thing? I was wondering what company it would be that they

send out to now. Hmmm...

, mom to Hannah-11wks