Re: Re: Pandas Soup: The LeRoy 12/Good General Summary of Treatment Options

[Guest guest]

It was bio care.  They do 2. One with 100IU per drop and one with 1000iu per drop.Alison

 

Thanks Alison,

I will go very slowly. Can you tell me what brand the lower dose one

was please.

 

when we used D3 we saw detox (in DS this is manic

behaviour abd hyperactivity in DS this is depressed type

feelings and very tired).

When we bought drops that were just 100IU per drop and

increased gradually he was fine.  We know his levels were

very low as blood was tested.  We know use 1 drop that is

1000 IU and levels are fine.

Prior to this we noticed the same manic behaviour when

been in sun for a few days and could never understand it.

 I now believe this was due to natural Vit D increase and

fact that he was very low (and he is toxic) so got detox

symptoms.  He has been so much better on it when done

gradually - doesn't get ill as often and when he does

deals with it much better.

Of course this would only be indicative if levels are

low to start with.

BW

Alison

On 29 January 2012 15:08, EileenC

wrote:

 

Hi, , my ds is of the type that is

" never ill " - put in D3, he actually showed

the outward signs of a virus which we knew

from behaviour, things weren't right with

him, then he picked up very nicely. Its so

difficult to tell with our kids I know. The

other thing is, we all had a virus here, and

we took D3 high dose as well after a

struggle with it and it hit it big time.

Worked well.

Eileen x

> > >

> > > Happy Sunday,

> > >

> > > Good friend of mine is

Anti-Vax campaigner Marcella Piper-Terry,

who

> > also works with children

biomedically. She has posted an excellent

> > article today which incorporates

a summary of treatment options for

> > Pandas.

> > >

> > > Given the recent thread on

Treatment Options and Titres, whether

> > tests work, I am cutting and

pasting the treatment options here. if

> > you want to read the whole sorry

story of the LeRoy 12, here is the link.

> > >

> > >

> > http://vaxtruth.org/2012/01/the-leroy-twelve-and-the-lancet-twelve-pandas-and-autism-common-factors/

> > >

> > > Treatment Options: Marcella

Piper-Terry

> > >

> > > I have known about PANDAS

since 2001-2002. I have been treating my

> > daughter's PANDAS for the last

several years, using supplements and

> > diet to rebalance her immune

system and increase her resistance to

> > infection. We have had great

success with this method, as have many of

> > the patients I worked with

between 2003-2010 when I was in private

> > practice.

> > >

> > > I have used (with my

daughter) and have recommended antibiotic

> > treatment (for other children)

for the acute bacterial infections. I

> > have worked with physicians,

helping to educate them about PANDAS and

> > making recommendations for

treatment, especially with IM bicillin. IM

> > bicillin is an injected form of

antibiotic that treats strep and works

> > very well for a significant

number of children. Part of the reason IM

> > bicillin is preferable (in my

opinion and experience) is because it is

> > not as likely to damage the

balance of bacteria in the

> > gastrointestinal tract, where

the good bacteria is essential in

> > keeping pathogenic yeast

overgrowth from taking over.

> > >

> > > In the children I have

seen, many of whom have not only PANDAS,

but

> > who have also been diagnosed

with Autism, the overgrowth of yeast in

> > the GI tract is very near 100%.

With the patients I have been

> > priveleged to work with, we have

tried to avoid the use of oral

> > antibiotics whenever possible

because once yeast takes hold it is much

> > more difficult to get rid of

than the bacterial infections that cause

> > PANDAS symptoms.

> > >

> > > In addition to IM bicillin

there are also many natural agents that

> > can be used to strengthen the

body's resistance to bacterial

> > infections. Among these, Olive

Leaf Extract, Grapefruit Seed Extract,

> > Cranberry Extract, High Potency

Proteolytic Enzymes and Soveriegn

> > Silver are some of the most

effective.

> > >

> > > Additional prescription

medications that have shown promise with

> > PANDAS include oral or IM

baygam, Low-Dose Naltrexone, and IVIG

> > (Intravenous Immuno Globulin).

IVIG has been highly effective at

> > treating PANDAS, with one study

showing complete cessation of symptoms

> > in 86% of patients. However,

IVIG is also very expensive and it is

> > frequently not covered by

insurance. The reason IVIG and bagam are

> > effective is not because they

treat strep (or other bacterial

> > infections), it's because they

repair the damaged immune system that

> > sets kids up for the infections

in the first place.

> > >

> > > There are natural ways to

balance the immune system and these can be

> > used without having to have a

prescription. This is what I have done

> > with my daughter and with other

kids with whom I have worked. Thing

> > that work very well include

Transfer Factor, colostrum, and

> > glycoproteins including beta

glucans and arabinogalactin.

> > >

> > > Vitamin D3 also works

wonders to balance the immune system and

it

> > costs about $10 a bottle. The

most important thing about these options

> > (IMO) is that unlike long-term

antibiotic use (which my daughter and

> > many of the other kids I've

seen) have had as young children, the

> > things I have discussed and

believe are certainly viable alternatives,

> > do not lead to the depletion of

vital enzymes and bacteria in the gut.

> > >

> > > An important component of

treating strep (and other bacterial and

> > viral infections) naturally

involves changing the diet. Food is a

> > wonderful healer -- if it is real

food. In particular,

> > anti-inflammatory foods and foods

with high anti-oxidants are key in

> > helping to combat chronic

bacterial (or viral) infections. I

> > absolutely agree with the use of

antibiotics for the acute infection.

> > In children who need to have

longer-term administration of

> > antibiotics, it just makes sense

to me to do it in a way that does not

> > cause even more problems down the

road.

> > >

> > > This stance has made me

unpopular in the last few days, especially

> > with many of the parents of

children who have been treated by Dr.

> > Trifletti. I think this is very

unfortunate. This is not about being

> > right. It's about ensuring that

parents do not have a false sense of

> > security, especially with regard

to the issue of the risk of severe

> > reactions from vaccines.

> > >

> > > Interested to hear anyone's

comments

> > > Currently undertaking

antibiotic therapy but don't want to

continue

> > forever - and yeast is under

control. Main point - healing the damaged

> > immune system is the key.

> > >

> > > Eileen

> > >

> >

> >

> >

> > No virus found in this message.

> > Checked by AVG - www.avg.com

<http://www.avg.com>

> > Version: 2012.0.1901 / Virus

Database: 2109/4773 - Release Date: 01/28/12

> >

>

No virus

found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1901 / Virus Database: 2109/4774 - Release Date:

01/29/12