Re: Re: Pandas Soup: The LeRoy 12/Good General Summary of Treatment Options

January 29, 2012

Hi Eileen,

Please could you let me know what do you mean by 'outward expression

of illness' ? Both of my sons seem to do badly on D3 (NT son says it

makes him feel really depressed) and maybe I just need to give it a

longer trial...if bad stuff is a possibility to start with?

Adding that we put in D3 with good success, prompting

outward expression of illness which we hadn't seen for

years.

E

>

> Happy Sunday,

>

> Good friend of mine is Anti-Vax campaigner Marcella

Piper-Terry, who also works with children biomedically.

She has posted an excellent article today which

incorporates a summary of treatment options for Pandas.

>

> Given the recent thread on Treatment Options and

Titres, whether tests work, I am cutting and pasting the

treatment options here. if you want to read the whole

sorry story of the LeRoy 12, here is the link.

>

> http://vaxtruth.org/2012/01/the-leroy-twelve-and-the-lancet-twelve-pandas-and-autism-common-factors/

>

> Treatment Options: Marcella Piper-Terry

>

> I have known about PANDAS since 2001-2002. I have

been treating my daughter's PANDAS for the last several

years, using supplements and diet to rebalance her immune

system and increase her resistance to infection. We have

had great success with this method, as have many of the

patients I worked with between 2003-2010 when I was in

private practice.

>

> I have used (with my daughter) and have recommended

antibiotic treatment (for other children) for the acute

bacterial infections. I have worked with physicians,

helping to educate them about PANDAS and making

recommendations for treatment, especially with IM

bicillin. IM bicillin is an injected form of antibiotic

that treats strep and works very well for a significant

number of children. Part of the reason IM bicillin is

preferable (in my opinion and experience) is because it is

not as likely to damage the balance of bacteria in the

gastrointestinal tract, where the good bacteria is

essential in keeping pathogenic yeast overgrowth from

taking over.

>

> In the children I have seen, many of whom have not

only PANDAS, but who have also been diagnosed with Autism,

the overgrowth of yeast in the GI tract is very near 100%.

With the patients I have been priveleged to work with, we

have tried to avoid the use of oral antibiotics whenever

possible because once yeast takes hold it is much more

difficult to get rid of than the bacterial infections that

cause PANDAS symptoms.

>

> In addition to IM bicillin there are also many

natural agents that can be used to strengthen the body's

resistance to bacterial infections. Among these, Olive

Leaf Extract, Grapefruit Seed Extract, Cranberry Extract,

High Potency Proteolytic Enzymes and Soveriegn Silver are

some of the most effective.

>

> Additional prescription medications that have shown

promise with PANDAS include oral or IM baygam, Low-Dose

Naltrexone, and IVIG (Intravenous Immuno Globulin). IVIG

has been highly effective at treating PANDAS, with one

study showing complete cessation of symptoms in 86% of

patients. However, IVIG is also very expensive and it is

frequently not covered by insurance. The reason IVIG and

bagam are effective is not because they treat strep (or

other bacterial infections), it's because they repair the

damaged immune system that sets kids up for the infections

in the first place.

>

> There are natural ways to balance the immune system

and these can be used without having to have a

prescription. This is what I have done with my daughter

and with other kids with whom I have worked. Thing that

work very well include Transfer Factor, colostrum, and

glycoproteins including beta glucans and arabinogalactin.

>

> Vitamin D3 also works wonders to balance the immune

system and it costs about $10 a bottle. The most important

thing about these options (IMO) is that unlike long-term

antibiotic use (which my daughter and many of the other

kids I've seen) have had as young children, the things I

have discussed and believe are certainly viable

alternatives, do not lead to the depletion of vital

enzymes and bacteria in the gut.

>

> An important component of treating strep (and other

bacterial and viral infections) naturally involves

changing the diet. Food is a wonderful healer – if it is

real food. In particular, anti-inflammatory foods and

foods with high anti-oxidants are key in helping to combat

chronic bacterial (or viral) infections. I absolutely

agree with the use of antibiotics for the acute infection.

In children who need to have longer-term administration of

antibiotics, it just makes sense to me to do it in a way

that does not cause even more problems down the road.

>

> This stance has made me unpopular in the last few

days, especially with many of the parents of children who

have been treated by Dr. Trifletti. I think this is very

unfortunate. This is not about being right. It's about

ensuring that parents do not have a false sense of

security, especially with regard to the issue of the risk

of severe reactions from vaccines.

>

> Interested to hear anyone's comments

> Currently undertaking antibiotic therapy but don't

want to continue forever - and yeast is under control.

Main point - healing the damaged immune system is the key.

>

> Eileen

>

No virus

found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1901 / Virus Database: 2109/4773 - Release Date:

01/28/12

January 29, 2012

Hi Eileen,

Please could you let me know what do you mean by 'outward expression

of illness' ? Both of my sons seem to do badly on D3 (NT son says it

makes him feel really depressed) and maybe I just need to give it a

longer trial...if bad stuff is a possibility to start with?

Adding that we put in D3 with good success, prompting

outward expression of illness which we hadn't seen for

years.

E

>

> Happy Sunday,

>

> Good friend of mine is Anti-Vax campaigner Marcella

Piper-Terry, who also works with children biomedically.

She has posted an excellent article today which

incorporates a summary of treatment options for Pandas.

>

> Given the recent thread on Treatment Options and

Titres, whether tests work, I am cutting and pasting the

treatment options here. if you want to read the whole

sorry story of the LeRoy 12, here is the link.

>

> http://vaxtruth.org/2012/01/the-leroy-twelve-and-the-lancet-twelve-pandas-and-autism-common-factors/

>

> Treatment Options: Marcella Piper-Terry

>

> I have known about PANDAS since 2001-2002. I have

been treating my daughter's PANDAS for the last several

years, using supplements and diet to rebalance her immune

system and increase her resistance to infection. We have

had great success with this method, as have many of the

patients I worked with between 2003-2010 when I was in

private practice.

>

> I have used (with my daughter) and have recommended

antibiotic treatment (for other children) for the acute

bacterial infections. I have worked with physicians,

helping to educate them about PANDAS and making

recommendations for treatment, especially with IM

bicillin. IM bicillin is an injected form of antibiotic

that treats strep and works very well for a significant

number of children. Part of the reason IM bicillin is

preferable (in my opinion and experience) is because it is

not as likely to damage the balance of bacteria in the

gastrointestinal tract, where the good bacteria is

essential in keeping pathogenic yeast overgrowth from

taking over.

>

> In the children I have seen, many of whom have not

only PANDAS, but who have also been diagnosed with Autism,

the overgrowth of yeast in the GI tract is very near 100%.

With the patients I have been priveleged to work with, we

have tried to avoid the use of oral antibiotics whenever

possible because once yeast takes hold it is much more

difficult to get rid of than the bacterial infections that

cause PANDAS symptoms.

>

> In addition to IM bicillin there are also many

natural agents that can be used to strengthen the body's

resistance to bacterial infections. Among these, Olive

Leaf Extract, Grapefruit Seed Extract, Cranberry Extract,

High Potency Proteolytic Enzymes and Soveriegn Silver are

some of the most effective.

>

> Additional prescription medications that have shown

promise with PANDAS include oral or IM baygam, Low-Dose

Naltrexone, and IVIG (Intravenous Immuno Globulin). IVIG

has been highly effective at treating PANDAS, with one

study showing complete cessation of symptoms in 86% of

patients. However, IVIG is also very expensive and it is

frequently not covered by insurance. The reason IVIG and

bagam are effective is not because they treat strep (or

other bacterial infections), it's because they repair the

damaged immune system that sets kids up for the infections

in the first place.

>

> There are natural ways to balance the immune system

and these can be used without having to have a

prescription. This is what I have done with my daughter

and with other kids with whom I have worked. Thing that

work very well include Transfer Factor, colostrum, and

glycoproteins including beta glucans and arabinogalactin.

>

> Vitamin D3 also works wonders to balance the immune

system and it costs about $10 a bottle. The most important

thing about these options (IMO) is that unlike long-term

antibiotic use (which my daughter and many of the other

kids I've seen) have had as young children, the things I

have discussed and believe are certainly viable

alternatives, do not lead to the depletion of vital

enzymes and bacteria in the gut.

>

> An important component of treating strep (and other

bacterial and viral infections) naturally involves

changing the diet. Food is a wonderful healer – if it is

real food. In particular, anti-inflammatory foods and

foods with high anti-oxidants are key in helping to combat

chronic bacterial (or viral) infections. I absolutely

agree with the use of antibiotics for the acute infection.

In children who need to have longer-term administration of

antibiotics, it just makes sense to me to do it in a way

that does not cause even more problems down the road.

>

> This stance has made me unpopular in the last few

days, especially with many of the parents of children who

have been treated by Dr. Trifletti. I think this is very

unfortunate. This is not about being right. It's about

ensuring that parents do not have a false sense of

security, especially with regard to the issue of the risk

of severe reactions from vaccines.

>

> Interested to hear anyone's comments

> Currently undertaking antibiotic therapy but don't

want to continue forever - and yeast is under control.

Main point - healing the damaged immune system is the key.

>

> Eileen

>

No virus

found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1901 / Virus Database: 2109/4773 - Release Date:

01/28/12

January 29, 2012

Thanks Eileen,

I am planning another trial soon.

I appreciate your posts as they are making some things a lot clearer

to me.

Thanks again.

Hi, , my ds is of the type that is "never ill" - put

in D3, he actually showed the outward signs of a virus

which we knew from behaviour, things weren't right with

him, then he picked up very nicely. Its so difficult to

tell with our kids I know. The other thing is, we all had

a virus here, and we took D3 high dose as well after a

struggle with it and it hit it big time. Worked well.

Eileen x

> > >

> > > Happy Sunday,

> > >

> > > Good friend of mine is Anti-Vax campaigner

Marcella Piper-Terry, who

> > also works with children biomedically. She has

posted an excellent

> > article today which incorporates a summary of

treatment options for

> > Pandas.

> > >

> > > Given the recent thread on Treatment

Options and Titres, whether

> > tests work, I am cutting and pasting the

treatment options here. if

> > you want to read the whole sorry story of the

LeRoy 12, here is the link.

> > >

> > http://vaxtruth.org/2012/01/the-leroy-twelve-and-the-lancet-twelve-pandas-and-autism-common-factors/

> > >

> > > Treatment Options: Marcella Piper-Terry

> > >

> > > I have known about PANDAS since 2001-2002.

I have been treating my

> > daughter's PANDAS for the last several years,

using supplements and

> > diet to rebalance her immune system and increase

her resistance to

> > infection. We have had great success with this

method, as have many of

> > the patients I worked with between 2003-2010

when I was in private

> > practice.

> > >

> > > I have used (with my daughter) and have

recommended antibiotic

> > treatment (for other children) for the acute

bacterial infections. I

> > have worked with physicians, helping to educate

them about PANDAS and

> > making recommendations for treatment, especially

with IM bicillin. IM

> > bicillin is an injected form of antibiotic that

treats strep and works

> > very well for a significant number of children.

Part of the reason IM

> > bicillin is preferable (in my opinion and

experience) is because it is

> > not as likely to damage the balance of bacteria

in the

> > gastrointestinal tract, where the good bacteria

is essential in

> > keeping pathogenic yeast overgrowth from taking

over.

> > >

> > > In the children I have seen, many of whom

have not only PANDAS, but

> > who have also been diagnosed with Autism, the

overgrowth of yeast in

> > the GI tract is very near 100%. With the

patients I have been

> > priveleged to work with, we have tried to avoid

the use of oral

> > antibiotics whenever possible because once yeast

takes hold it is much

> > more difficult to get rid of than the bacterial

infections that cause

> > PANDAS symptoms.

> > >

> > > In addition to IM bicillin there are also

many natural agents that

> > can be used to strengthen the body's resistance

to bacterial

> > infections. Among these, Olive Leaf Extract,

Grapefruit Seed Extract,

> > Cranberry Extract, High Potency Proteolytic

Enzymes and Soveriegn

> > Silver are some of the most effective.

> > >

> > > Additional prescription medications that

have shown promise with

> > PANDAS include oral or IM baygam, Low-Dose

Naltrexone, and IVIG

> > (Intravenous Immuno Globulin). IVIG has been

highly effective at

> > treating PANDAS, with one study showing complete

cessation of symptoms

> > in 86% of patients. However, IVIG is also very

expensive and it is

> > frequently not covered by insurance. The reason

IVIG and bagam are

> > effective is not because they treat strep (or

other bacterial

> > infections), it's because they repair the

damaged immune system that

> > sets kids up for the infections in the first

place.

> > >

> > > There are natural ways to balance the

immune system and these can be

> > used without having to have a prescription. This

is what I have done

> > with my daughter and with other kids with whom I

have worked. Thing

> > that work very well include Transfer Factor,

colostrum, and

> > glycoproteins including beta glucans and

arabinogalactin.

> > >

> > > Vitamin D3 also works wonders to balance

the immune system and it

> > costs about $10 a bottle. The most important

thing about these options

> > (IMO) is that unlike long-term antibiotic use

(which my daughter and

> > many of the other kids I've seen) have had as

young children, the

> > things I have discussed and believe are

certainly viable alternatives,

> > do not lead to the depletion of vital enzymes

and bacteria in the gut.

> > >

> > > An important component of treating strep

(and other bacterial and

> > viral infections) naturally involves changing

the diet. Food is a

> > wonderful healer -- if it is real food. In

particular,

> > anti-inflammatory foods and foods with high

anti-oxidants are key in

> > helping to combat chronic bacterial (or viral)

infections. I

> > absolutely agree with the use of antibiotics for

the acute infection.

> > In children who need to have longer-term

administration of

> > antibiotics, it just makes sense to me to do it

in a way that does not

> > cause even more problems down the road.

> > >

> > > This stance has made me unpopular in the

last few days, especially

> > with many of the parents of children who have

been treated by Dr.

> > Trifletti. I think this is very unfortunate.

This is not about being

> > right. It's about ensuring that parents do not

have a false sense of

> > security, especially with regard to the issue of

the risk of severe

> > reactions from vaccines.

> > >

> > > Interested to hear anyone's comments

> > > Currently undertaking antibiotic therapy

but don't want to continue

> > forever - and yeast is under control. Main point

- healing the damaged

> > immune system is the key.

> > >

> > > Eileen

> > >

> >

> > No virus found in this message.

> > Checked by AVG - www.avg.com <http://www.avg.com>

> > Version: 2012.0.1901 / Virus Database: 2109/4773

- Release Date: 01/28/12

> >

>

No virus

found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1901 / Virus Database: 2109/4773 - Release Date:

01/28/12

January 29, 2012

Thanks Eileen,

I am planning another trial soon.

I appreciate your posts as they are making some things a lot clearer

to me.

Thanks again.

Hi, , my ds is of the type that is "never ill" - put

in D3, he actually showed the outward signs of a virus

which we knew from behaviour, things weren't right with

him, then he picked up very nicely. Its so difficult to

tell with our kids I know. The other thing is, we all had

a virus here, and we took D3 high dose as well after a

struggle with it and it hit it big time. Worked well.

Eileen x

> > >

> > > Happy Sunday,

> > >

> > > Good friend of mine is Anti-Vax campaigner

Marcella Piper-Terry, who

> > also works with children biomedically. She has

posted an excellent

> > article today which incorporates a summary of

treatment options for

> > Pandas.

> > >

> > > Given the recent thread on Treatment

Options and Titres, whether

> > tests work, I am cutting and pasting the

treatment options here. if

> > you want to read the whole sorry story of the

LeRoy 12, here is the link.

> > >

> > http://vaxtruth.org/2012/01/the-leroy-twelve-and-the-lancet-twelve-pandas-and-autism-common-factors/

> > >

> > > Treatment Options: Marcella Piper-Terry

> > >

> > > I have known about PANDAS since 2001-2002.

I have been treating my

> > daughter's PANDAS for the last several years,

using supplements and

> > diet to rebalance her immune system and increase

her resistance to

> > infection. We have had great success with this

method, as have many of

> > the patients I worked with between 2003-2010

when I was in private

> > practice.

> > >

> > > I have used (with my daughter) and have

recommended antibiotic

> > treatment (for other children) for the acute

bacterial infections. I

> > have worked with physicians, helping to educate

them about PANDAS and

> > making recommendations for treatment, especially

with IM bicillin. IM

> > bicillin is an injected form of antibiotic that

treats strep and works

> > very well for a significant number of children.

Part of the reason IM

> > bicillin is preferable (in my opinion and

experience) is because it is

> > not as likely to damage the balance of bacteria

in the

> > gastrointestinal tract, where the good bacteria

is essential in

> > keeping pathogenic yeast overgrowth from taking

over.

> > >

> > > In the children I have seen, many of whom

have not only PANDAS, but

> > who have also been diagnosed with Autism, the

overgrowth of yeast in

> > the GI tract is very near 100%. With the

patients I have been

> > priveleged to work with, we have tried to avoid

the use of oral

> > antibiotics whenever possible because once yeast

takes hold it is much

> > more difficult to get rid of than the bacterial

infections that cause

> > PANDAS symptoms.

> > >

> > > In addition to IM bicillin there are also

many natural agents that

> > can be used to strengthen the body's resistance

to bacterial

> > infections. Among these, Olive Leaf Extract,

Grapefruit Seed Extract,

> > Cranberry Extract, High Potency Proteolytic

Enzymes and Soveriegn

> > Silver are some of the most effective.

> > >

> > > Additional prescription medications that

have shown promise with

> > PANDAS include oral or IM baygam, Low-Dose

Naltrexone, and IVIG

> > (Intravenous Immuno Globulin). IVIG has been

highly effective at

> > treating PANDAS, with one study showing complete

cessation of symptoms

> > in 86% of patients. However, IVIG is also very

expensive and it is

> > frequently not covered by insurance. The reason

IVIG and bagam are

> > effective is not because they treat strep (or

other bacterial

> > infections), it's because they repair the

damaged immune system that

> > sets kids up for the infections in the first

place.

> > >

> > > There are natural ways to balance the

immune system and these can be

> > used without having to have a prescription. This

is what I have done

> > with my daughter and with other kids with whom I

have worked. Thing

> > that work very well include Transfer Factor,

colostrum, and

> > glycoproteins including beta glucans and

arabinogalactin.

> > >

> > > Vitamin D3 also works wonders to balance

the immune system and it

> > costs about $10 a bottle. The most important

thing about these options

> > (IMO) is that unlike long-term antibiotic use

(which my daughter and

> > many of the other kids I've seen) have had as

young children, the

> > things I have discussed and believe are

certainly viable alternatives,

> > do not lead to the depletion of vital enzymes

and bacteria in the gut.

> > >

> > > An important component of treating strep

(and other bacterial and

> > viral infections) naturally involves changing

the diet. Food is a

> > wonderful healer -- if it is real food. In

particular,

> > anti-inflammatory foods and foods with high

anti-oxidants are key in

> > helping to combat chronic bacterial (or viral)

infections. I

> > absolutely agree with the use of antibiotics for

the acute infection.

> > In children who need to have longer-term

administration of

> > antibiotics, it just makes sense to me to do it

in a way that does not

> > cause even more problems down the road.

> > >

> > > This stance has made me unpopular in the

last few days, especially

> > with many of the parents of children who have

been treated by Dr.

> > Trifletti. I think this is very unfortunate.

This is not about being

> > right. It's about ensuring that parents do not

have a false sense of

> > security, especially with regard to the issue of

the risk of severe

> > reactions from vaccines.

> > >

> > > Interested to hear anyone's comments

> > > Currently undertaking antibiotic therapy

but don't want to continue

> > forever - and yeast is under control. Main point

- healing the damaged

> > immune system is the key.

> > >

> > > Eileen

> > >

> >

> > No virus found in this message.

> > Checked by AVG - www.avg.com <http://www.avg.com>

> > Version: 2012.0.1901 / Virus Database: 2109/4773

- Release Date: 01/28/12

> >

>

No virus

found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1901 / Virus Database: 2109/4773 - Release Date:

01/28/12

January 29, 2012

Thanks Eileen,

I am planning another trial soon.

I appreciate your posts as they are making some things a lot clearer

to me.

Thanks again.

Hi, , my ds is of the type that is "never ill" - put

in D3, he actually showed the outward signs of a virus

which we knew from behaviour, things weren't right with

him, then he picked up very nicely. Its so difficult to

tell with our kids I know. The other thing is, we all had

a virus here, and we took D3 high dose as well after a

struggle with it and it hit it big time. Worked well.

Eileen x

> > >

> > > Happy Sunday,

> > >

> > > Good friend of mine is Anti-Vax campaigner

Marcella Piper-Terry, who

> > also works with children biomedically. She has

posted an excellent

> > article today which incorporates a summary of

treatment options for

> > Pandas.

> > >

> > > Given the recent thread on Treatment

Options and Titres, whether

> > tests work, I am cutting and pasting the

treatment options here. if

> > you want to read the whole sorry story of the

LeRoy 12, here is the link.

> > >

> > http://vaxtruth.org/2012/01/the-leroy-twelve-and-the-lancet-twelve-pandas-and-autism-common-factors/

> > >

> > > Treatment Options: Marcella Piper-Terry

> > >

> > > I have known about PANDAS since 2001-2002.

I have been treating my

> > daughter's PANDAS for the last several years,

using supplements and

> > diet to rebalance her immune system and increase

her resistance to

> > infection. We have had great success with this

method, as have many of

> > the patients I worked with between 2003-2010

when I was in private

> > practice.

> > >

> > > I have used (with my daughter) and have

recommended antibiotic

> > treatment (for other children) for the acute

bacterial infections. I

> > have worked with physicians, helping to educate

them about PANDAS and

> > making recommendations for treatment, especially

with IM bicillin. IM

> > bicillin is an injected form of antibiotic that

treats strep and works

> > very well for a significant number of children.

Part of the reason IM

> > bicillin is preferable (in my opinion and

experience) is because it is

> > not as likely to damage the balance of bacteria

in the

> > gastrointestinal tract, where the good bacteria

is essential in

> > keeping pathogenic yeast overgrowth from taking

over.

> > >

> > > In the children I have seen, many of whom

have not only PANDAS, but

> > who have also been diagnosed with Autism, the

overgrowth of yeast in

> > the GI tract is very near 100%. With the

patients I have been

> > priveleged to work with, we have tried to avoid

the use of oral

> > antibiotics whenever possible because once yeast

takes hold it is much

> > more difficult to get rid of than the bacterial

infections that cause

> > PANDAS symptoms.

> > >

> > > In addition to IM bicillin there are also

many natural agents that

> > can be used to strengthen the body's resistance

to bacterial

> > infections. Among these, Olive Leaf Extract,

Grapefruit Seed Extract,

> > Cranberry Extract, High Potency Proteolytic

Enzymes and Soveriegn

> > Silver are some of the most effective.

> > >

> > > Additional prescription medications that

have shown promise with

> > PANDAS include oral or IM baygam, Low-Dose

Naltrexone, and IVIG

> > (Intravenous Immuno Globulin). IVIG has been

highly effective at

> > treating PANDAS, with one study showing complete

cessation of symptoms

> > in 86% of patients. However, IVIG is also very

expensive and it is

> > frequently not covered by insurance. The reason

IVIG and bagam are

> > effective is not because they treat strep (or

other bacterial

> > infections), it's because they repair the

damaged immune system that

> > sets kids up for the infections in the first

place.

> > >

> > > There are natural ways to balance the

immune system and these can be

> > used without having to have a prescription. This

is what I have done

> > with my daughter and with other kids with whom I

have worked. Thing

> > that work very well include Transfer Factor,

colostrum, and

> > glycoproteins including beta glucans and

arabinogalactin.

> > >

> > > Vitamin D3 also works wonders to balance

the immune system and it

> > costs about $10 a bottle. The most important

thing about these options

> > (IMO) is that unlike long-term antibiotic use

(which my daughter and

> > many of the other kids I've seen) have had as

young children, the

> > things I have discussed and believe are

certainly viable alternatives,

> > do not lead to the depletion of vital enzymes

and bacteria in the gut.

> > >

> > > An important component of treating strep

(and other bacterial and

> > viral infections) naturally involves changing

the diet. Food is a

> > wonderful healer -- if it is real food. In

particular,

> > anti-inflammatory foods and foods with high

anti-oxidants are key in

> > helping to combat chronic bacterial (or viral)

infections. I

> > absolutely agree with the use of antibiotics for

the acute infection.

> > In children who need to have longer-term

administration of

> > antibiotics, it just makes sense to me to do it

in a way that does not

> > cause even more problems down the road.

> > >

> > > This stance has made me unpopular in the

last few days, especially

> > with many of the parents of children who have

been treated by Dr.

> > Trifletti. I think this is very unfortunate.

This is not about being

> > right. It's about ensuring that parents do not

have a false sense of

> > security, especially with regard to the issue of

the risk of severe

> > reactions from vaccines.

> > >

> > > Interested to hear anyone's comments

> > > Currently undertaking antibiotic therapy

but don't want to continue

> > forever - and yeast is under control. Main point

- healing the damaged

> > immune system is the key.

> > >

> > > Eileen

> > >

> >

> > No virus found in this message.

> > Checked by AVG - www.avg.com <http://www.avg.com>

> > Version: 2012.0.1901 / Virus Database: 2109/4773

- Release Date: 01/28/12

> >

>

No virus

found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1901 / Virus Database: 2109/4773 - Release Date:

01/28/12

January 29, 2012

when we used D3 we saw detox (in DS this is manic behaviour abd hyperactivity in DS this is depressed type feelings and very tired).When we bought drops that were just 100IU per drop and increased gradually he was fine. We know his levels were very low as blood was tested. We know use 1 drop that is 1000 IU and levels are fine.

Prior to this we noticed the same manic behaviour when been in sun for a few days and could never understand it. I now believe this was due to natural Vit D increase and fact that he was very low (and he is toxic) so got detox symptoms. He has been so much better on it when done gradually - doesn't get ill as often and when he does deals with it much better.

Of course this would only be indicative if levels are low to start with.BWAlison

Hi, , my ds is of the type that is " never ill " - put in D3, he actually showed the outward signs of a virus which we knew from behaviour, things weren't right with him, then he picked up very nicely. Its so difficult to tell with our kids I know. The other thing is, we all had a virus here, and we took D3 high dose as well after a struggle with it and it hit it big time. Worked well.

Eileen x

> > >

> > > Happy Sunday,

> > >

> > > Good friend of mine is Anti-Vax campaigner Marcella Piper-Terry, who

> > also works with children biomedically. She has posted an excellent

> > article today which incorporates a summary of treatment options for

> > Pandas.

> > >

> > > Given the recent thread on Treatment Options and Titres, whether

> > tests work, I am cutting and pasting the treatment options here. if

> > you want to read the whole sorry story of the LeRoy 12, here is the link.

> > >

> > http://vaxtruth.org/2012/01/the-leroy-twelve-and-the-lancet-twelve-pandas-and-autism-common-factors/

> > >

> > > Treatment Options: Marcella Piper-Terry

> > >

> > > I have known about PANDAS since 2001-2002. I have been treating my

> > daughter's PANDAS for the last several years, using supplements and

> > diet to rebalance her immune system and increase her resistance to

> > infection. We have had great success with this method, as have many of

> > the patients I worked with between 2003-2010 when I was in private

> > practice.

> > >

> > > I have used (with my daughter) and have recommended antibiotic

> > treatment (for other children) for the acute bacterial infections. I

> > have worked with physicians, helping to educate them about PANDAS and

> > making recommendations for treatment, especially with IM bicillin. IM

> > bicillin is an injected form of antibiotic that treats strep and works

> > very well for a significant number of children. Part of the reason IM

> > bicillin is preferable (in my opinion and experience) is because it is

> > not as likely to damage the balance of bacteria in the

> > gastrointestinal tract, where the good bacteria is essential in

> > keeping pathogenic yeast overgrowth from taking over.

> > >

> > > In the children I have seen, many of whom have not only PANDAS, but

> > who have also been diagnosed with Autism, the overgrowth of yeast in

> > the GI tract is very near 100%. With the patients I have been

> > priveleged to work with, we have tried to avoid the use of oral

> > antibiotics whenever possible because once yeast takes hold it is much

> > more difficult to get rid of than the bacterial infections that cause

> > PANDAS symptoms.

> > >

> > > In addition to IM bicillin there are also many natural agents that

> > can be used to strengthen the body's resistance to bacterial

> > infections. Among these, Olive Leaf Extract, Grapefruit Seed Extract,

> > Cranberry Extract, High Potency Proteolytic Enzymes and Soveriegn

> > Silver are some of the most effective.

> > >

> > > Additional prescription medications that have shown promise with

> > PANDAS include oral or IM baygam, Low-Dose Naltrexone, and IVIG

> > (Intravenous Immuno Globulin). IVIG has been highly effective at

> > treating PANDAS, with one study showing complete cessation of symptoms

> > in 86% of patients. However, IVIG is also very expensive and it is

> > frequently not covered by insurance. The reason IVIG and bagam are

> > effective is not because they treat strep (or other bacterial

> > infections), it's because they repair the damaged immune system that

> > sets kids up for the infections in the first place.

> > >

> > > There are natural ways to balance the immune system and these can be

> > used without having to have a prescription. This is what I have done

> > with my daughter and with other kids with whom I have worked. Thing

> > that work very well include Transfer Factor, colostrum, and

> > glycoproteins including beta glucans and arabinogalactin.

> > >

> > > Vitamin D3 also works wonders to balance the immune system and it

> > costs about $10 a bottle. The most important thing about these options

> > (IMO) is that unlike long-term antibiotic use (which my daughter and

> > many of the other kids I've seen) have had as young children, the

> > things I have discussed and believe are certainly viable alternatives,

> > do not lead to the depletion of vital enzymes and bacteria in the gut.

> > >

> > > An important component of treating strep (and other bacterial and

> > viral infections) naturally involves changing the diet. Food is a

> > wonderful healer -- if it is real food. In particular,

> > anti-inflammatory foods and foods with high anti-oxidants are key in

> > helping to combat chronic bacterial (or viral) infections. I

> > absolutely agree with the use of antibiotics for the acute infection.

> > In children who need to have longer-term administration of

> > antibiotics, it just makes sense to me to do it in a way that does not

> > cause even more problems down the road.

> > >

> > > This stance has made me unpopular in the last few days, especially

> > with many of the parents of children who have been treated by Dr.

> > Trifletti. I think this is very unfortunate. This is not about being

> > right. It's about ensuring that parents do not have a false sense of

> > security, especially with regard to the issue of the risk of severe

> > reactions from vaccines.

> > >

> > > Interested to hear anyone's comments

> > > Currently undertaking antibiotic therapy but don't want to continue

> > forever - and yeast is under control. Main point - healing the damaged

> > immune system is the key.

> > >

> > > Eileen

> > >

> >

> > No virus found in this message.

> > Checked by AVG - www.avg.com <http://www.avg.com>

> > Version: 2012.0.1901 / Virus Database: 2109/4773 - Release Date: 01/28/12

> >

>

January 29, 2012